Guest guest Posted February 14, 2006 Report Share Posted February 14, 2006 Hi > > I get my messages in a digest. I wanted to reply to message # 17, in digest # 2121 1/13/06 What I wanted to say to this parent is to be careful with Vit C. >I do not think it is so wise for parents to attribute everything to " die off " . I had been supplementing my son for 1 1/2 years with 500mg (2 standard Kirkman capsules) per day, on the advice of my DAN. When we did an OATS at GPL, his asorbic levels came back at 5608.4 (ref range 10.0-200.) yes that 5 thousand. > (Oxalic acid also extremely high). > > The report stated " although Vit C toxicity is rare, these results are > consistent with such toxicity. Oxalic acid is a breakdown product of > Vit C and the high Oxalic acid may be due to high Vit C. High oxalic > acid in the blood might act as a chelator of calcium and/or magnesium, > causing symptoms of calcium or magnesium deficiency due to insufficent ionized di valent metals. High oxalic acid may cause kidney stones. " > > Owens posted on her list a few months ago also that up to 70% of unused Vit C may be converted to oxalic acid. I know she is now doing more research into the effects of Vit C, and hope she posts her > findings. > > My son showed immediate improvement when we removed the Vit C > but now I have to worry about how much damage I have inadvertently > caused him. > > We are all parent trying to do the best for our very sick kids. I am a doctor hopper & have taken my son to no less than 6 different doctors who all reviewed his > supplement intake. At least three assured me that whatever water solubable > supplements were not needed were eliminated in the urine. One (my DAN) even suggested that I continue giving the Vit C, after seeing this report from GPL.. > > It is very important that we parents share our experiences, as we know that most of our DAN doctors etc are well meaning, but all the facts > are not fully known yet. We have to be careful. It is not a one size fits all, we have to look at our childs reaction especially when we see regression. > > I know this is o/t for Pecan Bread, but when I saw this parents note > about loads of vit c. & regression, I had to speak up. > > Philomena > Mom of (5) Sv Aut. SCD 14mths ++ > > Message: 17 Date: Mon, 13 Feb 2006 15:11:26 -0000 Subject: Re: introducing iGg intolerant foods. Hi , > Hi, Her stools are ok, but I've been giving her LOADS of Vit C. She > seems to have regressed since starting the diet 8 days ago. She has > become more disconnected from the world and her tantrums returned > again today. As yet, I've not introduced the new foods as I'm not > sure if the time is right. Will I understand whether it's due to the > food, or part of the natural regression at the beginning of the > diet. How long should it be before we see anything positive?> > . > What foods is she eating now and how are they prepared - peeled and cooked or raw? Some foods and raw fruits and vegetables can worsen constipation. It would probably be a good idea to wait a while before reinntroducing the Igg foods since her tantrums are back. It may be part of the regression that some with die off at the start f the diet. Epsom salt baths and/or activated charcoal may be helpful to reduce die off symptoms. Sheila, SCD 60 mos, 22 yrs UC mom of and --------------------------------- What are the most popular cars? Find out at Yahoo! Autos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2006 Report Share Posted February 14, 2006 Hi > > I get my messages in a digest. I wanted to reply to message # 17, in digest # 2121 1/13/06 What I wanted to say to this parent is to be careful with Vit C. >I do not think it is so wise for parents to attribute everything to " die off " . I had been supplementing my son for 1 1/2 years with 500mg (2 standard Kirkman capsules) per day, on the advice of my DAN. When we did an OATS at GPL, his asorbic levels came back at 5608.4 (ref range 10.0-200.) yes that 5 thousand. > (Oxalic acid also extremely high). > > The report stated " although Vit C toxicity is rare, these results are > consistent with such toxicity. Oxalic acid is a breakdown product of > Vit C and the high Oxalic acid may be due to high Vit C. High oxalic > acid in the blood might act as a chelator of calcium and/or magnesium, > causing symptoms of calcium or magnesium deficiency due to insufficent ionized di valent metals. High oxalic acid may cause kidney stones. " > > Owens posted on her list a few months ago also that up to 70% of unused Vit C may be converted to oxalic acid. I know she is now doing more research into the effects of Vit C, and hope she posts her > findings. > > My son showed immediate improvement when we removed the Vit C > but now I have to worry about how much damage I have inadvertently > caused him. > > We are all parent trying to do the best for our very sick kids. I am a doctor hopper & have taken my son to no less than 6 different doctors who all reviewed his > supplement intake. At least three assured me that whatever water solubable > supplements were not needed were eliminated in the urine. One (my DAN) even suggested that I continue giving the Vit C, after seeing this report from GPL.. > > It is very important that we parents share our experiences, as we know that most of our DAN doctors etc are well meaning, but all the facts > are not fully known yet. We have to be careful. It is not a one size fits all, we have to look at our childs reaction especially when we see regression. > > I know this is o/t for Pecan Bread, but when I saw this parents note > about loads of vit c. & regression, I had to speak up. > > Philomena > Mom of (5) Sv Aut. SCD 14mths ++ > > Message: 17 Date: Mon, 13 Feb 2006 15:11:26 -0000 Subject: Re: introducing iGg intolerant foods. Hi , > Hi, Her stools are ok, but I've been giving her LOADS of Vit C. She > seems to have regressed since starting the diet 8 days ago. She has > become more disconnected from the world and her tantrums returned > again today. As yet, I've not introduced the new foods as I'm not > sure if the time is right. Will I understand whether it's due to the > food, or part of the natural regression at the beginning of the > diet. How long should it be before we see anything positive?> > . > What foods is she eating now and how are they prepared - peeled and cooked or raw? Some foods and raw fruits and vegetables can worsen constipation. It would probably be a good idea to wait a while before reinntroducing the Igg foods since her tantrums are back. It may be part of the regression that some with die off at the start f the diet. Epsom salt baths and/or activated charcoal may be helpful to reduce die off symptoms. Sheila, SCD 60 mos, 22 yrs UC mom of and --------------------------------- What are the most popular cars? Find out at Yahoo! Autos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2006 Report Share Posted February 14, 2006 Hi > > I get my messages in a digest. I wanted to reply to message # 17, in digest # 2121 1/13/06 What I wanted to say to this parent is to be careful with Vit C. >I do not think it is so wise for parents to attribute everything to " die off " . I had been supplementing my son for 1 1/2 years with 500mg (2 standard Kirkman capsules) per day, on the advice of my DAN. When we did an OATS at GPL, his asorbic levels came back at 5608.4 (ref range 10.0-200.) yes that 5 thousand. > (Oxalic acid also extremely high). > > The report stated " although Vit C toxicity is rare, these results are > consistent with such toxicity. Oxalic acid is a breakdown product of > Vit C and the high Oxalic acid may be due to high Vit C. High oxalic > acid in the blood might act as a chelator of calcium and/or magnesium, > causing symptoms of calcium or magnesium deficiency due to insufficent ionized di valent metals. High oxalic acid may cause kidney stones. " > > Owens posted on her list a few months ago also that up to 70% of unused Vit C may be converted to oxalic acid. I know she is now doing more research into the effects of Vit C, and hope she posts her > findings. > > My son showed immediate improvement when we removed the Vit C > but now I have to worry about how much damage I have inadvertently > caused him. > > We are all parent trying to do the best for our very sick kids. I am a doctor hopper & have taken my son to no less than 6 different doctors who all reviewed his > supplement intake. At least three assured me that whatever water solubable > supplements were not needed were eliminated in the urine. One (my DAN) even suggested that I continue giving the Vit C, after seeing this report from GPL.. > > It is very important that we parents share our experiences, as we know that most of our DAN doctors etc are well meaning, but all the facts > are not fully known yet. We have to be careful. It is not a one size fits all, we have to look at our childs reaction especially when we see regression. > > I know this is o/t for Pecan Bread, but when I saw this parents note > about loads of vit c. & regression, I had to speak up. > > Philomena > Mom of (5) Sv Aut. SCD 14mths ++ > > Message: 17 Date: Mon, 13 Feb 2006 15:11:26 -0000 Subject: Re: introducing iGg intolerant foods. Hi , > Hi, Her stools are ok, but I've been giving her LOADS of Vit C. She > seems to have regressed since starting the diet 8 days ago. She has > become more disconnected from the world and her tantrums returned > again today. As yet, I've not introduced the new foods as I'm not > sure if the time is right. Will I understand whether it's due to the > food, or part of the natural regression at the beginning of the > diet. How long should it be before we see anything positive?> > . > What foods is she eating now and how are they prepared - peeled and cooked or raw? Some foods and raw fruits and vegetables can worsen constipation. It would probably be a good idea to wait a while before reinntroducing the Igg foods since her tantrums are back. It may be part of the regression that some with die off at the start f the diet. Epsom salt baths and/or activated charcoal may be helpful to reduce die off symptoms. Sheila, SCD 60 mos, 22 yrs UC mom of and --------------------------------- What are the most popular cars? Find out at Yahoo! Autos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2006 Report Share Posted February 14, 2006 Wow, thank you for that info Dave! It is so timely - I just recently increased my daughters vitamin C . . . .!!! On a side note, just in case your child is a big raw vegetable eater: " Beet greens, spinach and chard contain oxalic acid that blocks calcium and iron absorption and irritates the mouth and intestinal tract.... Cooking destroys or neutralizes these harmful substances (as does the fermentation process). (Nourishing Traditions, p. 366). and " Kale and related greens* should always been eaten cooked - but not overcooked - so that the oxalic acid they contain is neutralized. " (Nourishing Traditions, p. 386) * I think the 'related greens' are dark green leafy vegetables of the cabbage family. Another note: If you are avoiding nitrates, the above mentioned book (p. 386) goes on to say " Dark green, leafy vegetables grown in nitrogen fertilized soils tend to concentrate nitrites. " and recommends making an effort to buy organic. Hmmm . . . while looking this info up I just came across the following : spinach has high amounts of glutathione in it! (p. 403) Well! and how many of us are trying to increase the gluathione levels in our ASD children?!! (spinach is one of those greens that should be eaten cooked) > > I had been supplementing my son for 1 1/2 years with 500mg (2 standard Kirkman capsules) per day, on the advice of my DAN. When we did an OATS at GPL, his asorbic levels came back at 5608.4 (ref range 10.0-200.) yes that 5 thousand. > (Oxalic acid also extremely high). > > > > The report stated " although Vit C toxicity is rare, these results are > > consistent with such toxicity. Oxalic acid is a breakdown product of > > Vit C and the high Oxalic acid may be due to high Vit C. High oxalic > > acid in the blood might act as a chelator of calcium and/or magnesium, > > causing symptoms of calcium or magnesium deficiency due to > insufficent ionized di valent metals. High oxalic acid may cause kidney stones. " > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2006 Report Share Posted February 14, 2006 " Does all of the oxalates go away when cooked? What are the safest veggies to eat to minimize this " , Cooking the veggies lowers the oxalate content, but it doesn't make the oxalates disappear. If you join the Trying_low_oxalates list, you will find a list of LOD/SCD foods in the file section. That's where I posted it. Offhand, peeled zucchini, peeled cucumbers, iceberg lettuce, green peas are low oxalate and SCD. The rest of the vegetables vary from medium to very high (like spinach). To get more information on LOD, join the Yahoo! Group. http://groups.yahoo.com/group/trying_low_oxalates Jody mom to -7 and -9 SCD 1/03 Quote Link to comment Share on other sites More sharing options...
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