RE: Jackie is at home...yeah

[Guest guest]

,

So glad to hear Jackie's at home. Something Dr Fox told me is that the

hospital should have Iv specialist. Request one. If one's not on duty ask

for an aniastigist (sp). they haev to have one on call in the hospital for

emergencies.

Cassie has been home since Monday a cold and pain. Mike took her to pcp

today, told him she had a cold, and gave her nothing for pain. said if she

isn't throwing up, he's not going to help her. Also seemed to get no reply

when Mike told hem her blood sugar has been dropping almost on a daily basis

since last round of pain. I can understand that her levels are no elevated

but, he openly admitted she could be having pancreatic pain from all the

coughing she had done. But still gave her nothing for pain and nothing to

releive the cough and give her a rest. Then he tells Mike to send her to

school tomorrow.

We're thinking about changing pcp for her. My Dr is also a friend of the

family, his daughter and Cassie were best friends in preschool thru 2nd

grade when they moved a couple towns over. If i switch, i plan to talk to

him way ahead of time about a care plan for her and pain management.

I hope things work out well with Jackie's ERCP. Cassie's only had one and

she had a terrible time. That was the first time her levels went over 2000.

I hope this guy is talented and Jackie sails thru scott free and he comes out

with some answers for you. I know you've been dealing with this longer that

I have but I do understand your fears and frustrations. Oh by the way how

are you? Everyone always asks about our kids but they always seem to forget

us parents/caretakers. I hope your doing as well as possible. At the

hospital here in Maine they have beds in the room for parents and we also

have open visiting hours. Though we only live 10 minutes from the hospital we

sometime take turns staying up there with her. Especially if we know she's

having some type of procedure in the AM. I have found the more one of us

is up there in their faces the more ontop of her care they are. Also, we

have found that we are much better informed that way. Last time she was in

the Dr. on the ward had a god complex. Got very upset with me when I

questioned repeating test that always come back negetive or when i asked for

what her levels were (we keep a diary on her illnes). at one point in time

he even gave me a printout he pulled off line that was so technical you had

to have a PHD just to get past the title. It didn't take me long to put that

little booger back in his place. but that's another story.

Again, good lucknext week. I hope you make it home for Thanksgiving, WITH

JACKIE! God bless you all.

Patty

[Guest guest]

,

So glad to hear Jackie's at home. Something Dr Fox told me is that the

hospital should have Iv specialist. Request one. If one's not on duty ask

for an aniastigist (sp). they haev to have one on call in the hospital for

emergencies.

Cassie has been home since Monday a cold and pain. Mike took her to pcp

today, told him she had a cold, and gave her nothing for pain. said if she

isn't throwing up, he's not going to help her. Also seemed to get no reply

when Mike told hem her blood sugar has been dropping almost on a daily basis

since last round of pain. I can understand that her levels are no elevated

but, he openly admitted she could be having pancreatic pain from all the

coughing she had done. But still gave her nothing for pain and nothing to

releive the cough and give her a rest. Then he tells Mike to send her to

school tomorrow.

We're thinking about changing pcp for her. My Dr is also a friend of the

family, his daughter and Cassie were best friends in preschool thru 2nd

grade when they moved a couple towns over. If i switch, i plan to talk to

him way ahead of time about a care plan for her and pain management.

I hope things work out well with Jackie's ERCP. Cassie's only had one and

she had a terrible time. That was the first time her levels went over 2000.

I hope this guy is talented and Jackie sails thru scott free and he comes out

with some answers for you. I know you've been dealing with this longer that

I have but I do understand your fears and frustrations. Oh by the way how

are you? Everyone always asks about our kids but they always seem to forget

us parents/caretakers. I hope your doing as well as possible. At the

hospital here in Maine they have beds in the room for parents and we also

have open visiting hours. Though we only live 10 minutes from the hospital we

sometime take turns staying up there with her. Especially if we know she's

having some type of procedure in the AM. I have found the more one of us

is up there in their faces the more ontop of her care they are. Also, we

have found that we are much better informed that way. Last time she was in

the Dr. on the ward had a god complex. Got very upset with me when I

questioned repeating test that always come back negetive or when i asked for

what her levels were (we keep a diary on her illnes). at one point in time

he even gave me a printout he pulled off line that was so technical you had

to have a PHD just to get past the title. It didn't take me long to put that

little booger back in his place. but that's another story.

Again, good lucknext week. I hope you make it home for Thanksgiving, WITH

JACKIE! God bless you all.

Patty

[Guest guest]

,

So glad to hear Jackie's at home. Something Dr Fox told me is that the

hospital should have Iv specialist. Request one. If one's not on duty ask

for an aniastigist (sp). they haev to have one on call in the hospital for

emergencies.

Cassie has been home since Monday a cold and pain. Mike took her to pcp

today, told him she had a cold, and gave her nothing for pain. said if she

isn't throwing up, he's not going to help her. Also seemed to get no reply

when Mike told hem her blood sugar has been dropping almost on a daily basis

since last round of pain. I can understand that her levels are no elevated

but, he openly admitted she could be having pancreatic pain from all the

coughing she had done. But still gave her nothing for pain and nothing to

releive the cough and give her a rest. Then he tells Mike to send her to

school tomorrow.

We're thinking about changing pcp for her. My Dr is also a friend of the

family, his daughter and Cassie were best friends in preschool thru 2nd

grade when they moved a couple towns over. If i switch, i plan to talk to

him way ahead of time about a care plan for her and pain management.

I hope things work out well with Jackie's ERCP. Cassie's only had one and

she had a terrible time. That was the first time her levels went over 2000.

I hope this guy is talented and Jackie sails thru scott free and he comes out

with some answers for you. I know you've been dealing with this longer that

I have but I do understand your fears and frustrations. Oh by the way how

are you? Everyone always asks about our kids but they always seem to forget

us parents/caretakers. I hope your doing as well as possible. At the

hospital here in Maine they have beds in the room for parents and we also

have open visiting hours. Though we only live 10 minutes from the hospital we

sometime take turns staying up there with her. Especially if we know she's

having some type of procedure in the AM. I have found the more one of us

is up there in their faces the more ontop of her care they are. Also, we

have found that we are much better informed that way. Last time she was in

the Dr. on the ward had a god complex. Got very upset with me when I

questioned repeating test that always come back negetive or when i asked for

what her levels were (we keep a diary on her illnes). at one point in time

he even gave me a printout he pulled off line that was so technical you had

to have a PHD just to get past the title. It didn't take me long to put that

little booger back in his place. but that's another story.

Again, good lucknext week. I hope you make it home for Thanksgiving, WITH

JACKIE! God bless you all.

Patty

[Guest guest]

,

so glad to hear Jackie is home and doing better. Poor kid! Have they ever

considered doing a PICC line or something like that for easy access to her

veins? I've had one since Sep 25th and it has been wonderful to be in the

hospital and never get stuck. They can draw blood from it and give IVs and

medication. Even before I got sick, I was a very hard stick. It was not

unusual to get stuck 6-8 times if they needed more than just a tiny bit of

blood. I've had them try up to 12 times to start an IV before giving up and

doing a central line. Even once they got the IV started, I've never had one

last more than 24 hours before it blew and the norm was more like 12-14 hours.

You may want to talk to them about it. Having the PICC line put in was almost

painless and only took a few minutes.

Take care and keep us informed as to how Jackie is doing.

W

Jackie is at home...yeah

Hey All,

Jackie was discharged from the hospital today, yeah. She needs to be

on clear liquids for another couple of days, lipase is around 400

now. Her pain is still bad but alot better than it was. We will be

going to MUSC in ton next wednesday for her ERCP. She is

supposed to be there at 10 am.

, we have to be over at the hospital at 10 maybe we could meet

somewhere in the hospital at 9:30 if you could be there then. You

said your appt was at 10:30? Let me know, we would love to meet

you. I wonder if I could get parking validated at the rutledge tower

parking garage if her procedure is over at the hospital. Where is

there parking for the hospital, anybody know? We always park at the

Rutledge tower garage.

I hate the hospital Jackie was at...it was the most horrible time for

me...Jackie doesn't seem as tramatized as me but sometimes I think

she is tougher. They poked her so many times, trying to get a vein.

Then she had to have shots for pain every 4 hours...her behind is so

bruised. I think we met maybe one compassionate person there...maybe

two. 5 % of the hospital staff tops. Sorry, I am a mom with an

attitude, now I am scared to ever take her to a hospital again. So

many horror stories, so little time. And you all know them all

anyway. I will take her to MUSC, even though we've been there before

and NOT been tramatized, I am still WORRIED!!! I will try to catch

up on posts but my work is giving me a hard time and I have to go

back to work tomorrow..or so they say but still don't know if I

will. I hope everyone is doing good and I will try to catch up on

you all asap. Talk to ya soon,

PANCREATITIS Association, Intl.

Online e-mail group

To reply to this message hit & quot;reply & quot; or send an e-mail to:

Pancreatitis (AT) Yahoo

[Guest guest]

,

so glad to hear Jackie is home and doing better. Poor kid! Have they ever

considered doing a PICC line or something like that for easy access to her

veins? I've had one since Sep 25th and it has been wonderful to be in the

hospital and never get stuck. They can draw blood from it and give IVs and

medication. Even before I got sick, I was a very hard stick. It was not

unusual to get stuck 6-8 times if they needed more than just a tiny bit of

blood. I've had them try up to 12 times to start an IV before giving up and

doing a central line. Even once they got the IV started, I've never had one

last more than 24 hours before it blew and the norm was more like 12-14 hours.

You may want to talk to them about it. Having the PICC line put in was almost

painless and only took a few minutes.

Take care and keep us informed as to how Jackie is doing.

W

Jackie is at home...yeah

Hey All,

Jackie was discharged from the hospital today, yeah. She needs to be

on clear liquids for another couple of days, lipase is around 400

now. Her pain is still bad but alot better than it was. We will be

going to MUSC in ton next wednesday for her ERCP. She is

supposed to be there at 10 am.

, we have to be over at the hospital at 10 maybe we could meet

somewhere in the hospital at 9:30 if you could be there then. You

said your appt was at 10:30? Let me know, we would love to meet

you. I wonder if I could get parking validated at the rutledge tower

parking garage if her procedure is over at the hospital. Where is

there parking for the hospital, anybody know? We always park at the

Rutledge tower garage.

I hate the hospital Jackie was at...it was the most horrible time for

me...Jackie doesn't seem as tramatized as me but sometimes I think

she is tougher. They poked her so many times, trying to get a vein.

Then she had to have shots for pain every 4 hours...her behind is so

bruised. I think we met maybe one compassionate person there...maybe

two. 5 % of the hospital staff tops. Sorry, I am a mom with an

attitude, now I am scared to ever take her to a hospital again. So

many horror stories, so little time. And you all know them all

anyway. I will take her to MUSC, even though we've been there before

and NOT been tramatized, I am still WORRIED!!! I will try to catch

up on posts but my work is giving me a hard time and I have to go

back to work tomorrow..or so they say but still don't know if I

will. I hope everyone is doing good and I will try to catch up on

you all asap. Talk to ya soon,

PANCREATITIS Association, Intl.

Online e-mail group

To reply to this message hit & quot;reply & quot; or send an e-mail to:

Pancreatitis (AT) Yahoo

[Guest guest]

,

so glad to hear Jackie is home and doing better. Poor kid! Have they ever

considered doing a PICC line or something like that for easy access to her

veins? I've had one since Sep 25th and it has been wonderful to be in the

hospital and never get stuck. They can draw blood from it and give IVs and

medication. Even before I got sick, I was a very hard stick. It was not

unusual to get stuck 6-8 times if they needed more than just a tiny bit of

blood. I've had them try up to 12 times to start an IV before giving up and

doing a central line. Even once they got the IV started, I've never had one

last more than 24 hours before it blew and the norm was more like 12-14 hours.

You may want to talk to them about it. Having the PICC line put in was almost

painless and only took a few minutes.

Take care and keep us informed as to how Jackie is doing.

W

Jackie is at home...yeah

Hey All,

Jackie was discharged from the hospital today, yeah. She needs to be

on clear liquids for another couple of days, lipase is around 400

now. Her pain is still bad but alot better than it was. We will be

going to MUSC in ton next wednesday for her ERCP. She is

supposed to be there at 10 am.

, we have to be over at the hospital at 10 maybe we could meet

somewhere in the hospital at 9:30 if you could be there then. You

said your appt was at 10:30? Let me know, we would love to meet

you. I wonder if I could get parking validated at the rutledge tower

parking garage if her procedure is over at the hospital. Where is

there parking for the hospital, anybody know? We always park at the

Rutledge tower garage.

I hate the hospital Jackie was at...it was the most horrible time for

me...Jackie doesn't seem as tramatized as me but sometimes I think

she is tougher. They poked her so many times, trying to get a vein.

Then she had to have shots for pain every 4 hours...her behind is so

bruised. I think we met maybe one compassionate person there...maybe

two. 5 % of the hospital staff tops. Sorry, I am a mom with an

attitude, now I am scared to ever take her to a hospital again. So

many horror stories, so little time. And you all know them all

anyway. I will take her to MUSC, even though we've been there before

and NOT been tramatized, I am still WORRIED!!! I will try to catch

up on posts but my work is giving me a hard time and I have to go

back to work tomorrow..or so they say but still don't know if I

will. I hope everyone is doing good and I will try to catch up on

you all asap. Talk to ya soon,

PANCREATITIS Association, Intl.

Online e-mail group

To reply to this message hit & quot;reply & quot; or send an e-mail to:

Pancreatitis (AT) Yahoo

[Guest guest]

,

give Jackie a welcome home hug (and one for yourself too!).

I'm sorry the hospital stay was so bad. Is there another

hospital nearby you can use for when Jackie has an

attack?Any time you need to talk, we are here to listen. Let

us know how the ERCP goes.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Southwest and California Representative

Pancreatitis Association, International

[Guest guest]

,

give Jackie a welcome home hug (and one for yourself too!).

I'm sorry the hospital stay was so bad. Is there another

hospital nearby you can use for when Jackie has an

attack?Any time you need to talk, we are here to listen. Let

us know how the ERCP goes.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Southwest and California Representative

Pancreatitis Association, International

[Guest guest]

,

give Jackie a welcome home hug (and one for yourself too!).

I'm sorry the hospital stay was so bad. Is there another

hospital nearby you can use for when Jackie has an

attack?Any time you need to talk, we are here to listen. Let

us know how the ERCP goes.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Southwest and California Representative

Pancreatitis Association, International

[Guest guest]

In reading the posts I see a lot of questions regarding ERCP's. There is a

Journal of the Pancreas, written for doctors but which has good patient

information at http://www.joplink.net/. There are several articles on

ERCP's and how patients react to them based on what is or is not done. May

not answer all the questions but certainly raises some to ask your doctor

about. I didn't see this Journal as one of the links from the main page but

if I missed it I apologize.

Re: Jackie is at home...yeah

,

give Jackie a welcome home hug (and one for yourself too!).

I'm sorry the hospital stay was so bad. Is there another

hospital nearby you can use for when Jackie has an

attack?Any time you need to talk, we are here to listen. Let

us know how the ERCP goes.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Southwest and California Representative

Pancreatitis Association, International