Guest guest Posted September 18, 2002 Report Share Posted September 18, 2002 Hello everyone, I just spoke with Dr. Rilo who is a doctor here in Cincinnati at the University of Cincinnati. He was so very nice to talk with and gave me so very much positive information. He does the islet transplantation here in Cincinnati for people who suffer from chronic pancreatitis. He has a lot of compassion for those who have chronic pancreatitis and understands how life altering this disease is and how painful it is also. He has experience in Pittsburgh and has given symposiums. His goal is to help people like us who suffer from such a debilitating disease. I was very impressed with him. He was very down to earth and caring. I wish I could tell you all that he told me but I don't really understand everything right now. I will keep you posted on everything that I learn about Dr. Rilo and the work that he does at the University Hospital. He has given me his two E-mail addresses and I will pass them on to you. He is going to set me up with a coordinator at the hospital to follow me with my health since I have had the pancreatectomy and the islet cell transplant. That is a huge relief for me since so many doctors really don't understand the pancreatectomy and islet cell transplant and the care that a patient could need from having the surgery. I am so pleased that he returned my call and that I will be going to people here in my city who understand what the surgery I had entails and know what my body has experienced. Dr. Rilo knows Dr. Sherman and Dr. Lehman. He is very experienced and will be meeting with Dr. Sutherland soon. They will have a lot to discuss I am sure. Dr. Rilo asked for our support group site. I am going to send it to him and maybe he will have some time to chat with us and answer some of our/your questions. He seemed very interested in you and your pain. I am hoping for the best from my conversation with him. I liked him right away. He has done 20 islet cell transplants and I know if he gets in touch with the group he will be able to inform us of all his experience with pancreatitis patients. Dr. Rilo's E-mail address is RiloHL@... Rcercone@... Hang in there more and more doctors are learning about our plight with chronic pain and not being able to eat. Love, Shirley Quote Link to comment Share on other sites More sharing options...
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