RE: Alternative Treatments/to wendi

November 6, 2002

Wendi,

Hi! Amy from Iowa again. We use Mannatech products and have heard 3

testimonials from families with children with cf. One parent of a 4-yr-old

little boy around the Des Moines area and another actually not children, but

adult person with cf who uses the products and has awesome results. We have

so far only tried the glycobear vitamins and plan to add the other two

products here soon. We too were sceptacle, but kept hearing so much that by

the time we heard from the third person we felt we should look into it. Why

we just tried the glycobears first was to start slow since we were

apprehensive, but he has been using those instead of ADEKS for over 6 months

now and just had his vitamin levels tested and they came back normal. The

people we buy from are not that knowledgable about the products so we have

been looking for someone who knows better what to recommend and such. It

sounds like you might have had that contact. My friend who has her master's

degree in human nutrion looked over the ingredients and said they were all

safe. Our cf dietician alo knows that our son uses them and doesn't have a

problem with it. Let me know if you want more info. I'd be happy to share.

Amy

P.S. Do you sell for the books are fun? I love to get books through there,

but haven't seen any for awhile?

Alternative Treatments

I have been reading the posts about herbs and alternative treatments.

Has

anyone tried, or heard of the Mannatech line of products? They

specialize

in glyconutrients. I had a gentleman at the company I work for approach

me about these products. He then put me in touch with a CF mother in

Texas, who absolutely swore by these products. Because of this line of

products, her daughter no longer need enzymes or CPT and all in all CF

was

no longer a part of their daily lives. I was a little weary, this

sounded

too good to be true and like a heck of a sales pitch to me. The

products

are fairly expensive (in my opinion). The woman in Texas said to stick

with it a year and you should see amazing results. Does anyone know

anything about these products? The products he suggested for my

daughter

was, ambrotose and phytaloe.

Thanks!

Wendi mom to Peyton 2 yrs wcf

November 6, 2002

Amy-

I do not actually sell for Books Are Fun, I work in the home office

to get the books to the representatives. I am glad to hear you have

also hear good things about Mannatech. I tried the Glyco Bears, but

they were to hard for my daughter to chew up, she is only 2. We also

tried to Phytobears, which is the children's form of Phytaloe. They

look like gummi bears, but taste like garlic. ( I know I've tried

them). Peyton would not eat them either. I did find that they will

disolve in a tablespoon of hot water, then you can mix it with juice,

that seems to work better for us. As for the ambrotose, they

recommended 1 tsp twice a day to start with. They suggested mixing

with with applesauce or pudding, as it is a powder form.

>

> Wendi,

>

> Hi! Amy from Iowa again. We use Mannatech products and have heard 3

> testimonials from families with children with cf. One parent of a 4-

yr-old

> little boy around the Des Moines area and another actually not

children, but

> adult person with cf who uses the products and has awesome results.

We have

> so far only tried the glycobear vitamins and plan to add the other

two

> products here soon. We too were sceptacle, but kept hearing so much

that by

> the time we heard from the third person we felt we should look into

it. Why

> we just tried the glycobears first was to start slow since we were

> apprehensive, but he has been using those instead of ADEKS for over

6 months

> now and just had his vitamin levels tested and they came back

normal. The

> people we buy from are not that knowledgable about the products so

we have

> been looking for someone who knows better what to recommend and

such. It

> sounds like you might have had that contact. My friend who has her

master's

> degree in human nutrion looked over the ingredients and said they

were all

> safe. Our cf dietician alo knows that our son uses them and doesn't

have a

> problem with it. Let me know if you want more info. I'd be happy to

share.

>

> Amy

>

> P.S. Do you sell for the books are fun? I love to get books through

there,

> but haven't seen any for awhile?

> Alternative Treatments

>

> I have been reading the posts about herbs and alternative

treatments.

> Has

> anyone tried, or heard of the Mannatech line of products? They

> specialize

> in glyconutrients. I had a gentleman at the company I work for

approach

>

> me about these products. He then put me in touch with a CF mother

in

> Texas, who absolutely swore by these products. Because of this

line of

> products, her daughter no longer need enzymes or CPT and all in all

CF

> was

> no longer a part of their daily lives. I was a little weary, this

> sounded

> too good to be true and like a heck of a sales pitch to me. The

> products

> are fairly expensive (in my opinion). The woman in Texas said to

stick

> with it a year and you should see amazing results. Does anyone

know

> anything about these products? The products he suggested for my

> daughter

> was, ambrotose and phytaloe.

>

> Thanks!

> Wendi mom to Peyton 2 yrs wcf

>

November 6, 2002