Re: New, need information on breastfeeding

February 12, 2006

We used the Doctor's Data Comprehensive Digestive Stool Analysis, it

was quite informative and in many ways more helpful than an upper and

lower GI scope.

I've been able to eliminate most of Tom's GI and allergy symptoms on

a complete elimination diet - I don't eat anything he's allergic to.

I've been pretty succesful at this, though it's a ton of work and not

a lot of fun for me. I went on a total elimination diet for 2 months

when he was 3 months old, eating just turkey, rice, pears and

zucchini for 2 months. I've never eaten the top-8 allergens in the 3

years since then. Now we both eat a rotation diet of 4 foods at a

time (2 veggies, one meat and one oil) for 2 days at a time, then

rotate. It's hard but it keeps him reaction-free. His poops still

aren't good though, he's got yeast and bacteria problems that the

diets haven't helped. He's been off disaccharides for a month (he ate

a little quinoa and millet), and that seems to be helping a bit too.

Suzanne

> > >

> > > Hi all,

> > > I am new to SCD although my son and I have been on various

> >restrictive

> > > diets for allergies since 2 months old. My son is now 3 and has

> > > autism. He can only tolerate about 15 foods currently, but I

have

> > > removed all the disaccharides from his diet within the last

month.

> >I

> > > have not yet removed all illegal vegetables (turnips, rutabagas,

> > > cabbage, broccoli), because they are some of the few foods he is

> >not

> > > allergic to and I need to feed him something! y

> > >

> > > A recent upper and lower GI scope showed no inflammation apart

from

> > > what the doctor termed " mild gastritis " , but did show nodular

> >lymphoid

> > > hyperplasia. A Comprehensive Digestive Stool Analysis showed a

> > > continuing yeast problem (which we've been treating on and off

for

> >a

> > > year), and high lactoferrin levels indicative on inflammation.

He

> >also

> > > has occult blood in his stool and high Secretory IgA. His doctor

> > > believes there is probably inflammation in his small intestine

and

> >has

> > > recommended a trial of Singulair. He is highly allergic to corn

> >(IgE)

> > > and Singulair granules contain mannitol, so this makes me

nervous

> >but

> > > we are going forward. He is not anaphylactic, thank goodness.

His

> >main

> > > food allergy symptom is eczema.

> > >

> > > I am breastfeeding my son and I eliminating all the foods he

cannot

> > > tolerate. My question is about the role of breastmilk in the SCD

> >diet.

> > > Elaine doesn't mention this in BTVC and I have not seen it

> >mentioned in

> > > the files or various SCD websites. As far as anyone knows, is

> > > breastmilk legal? I do continue to eat a few foods that are SCD

> >illegal

> > > (small amounts of sugar, and potatoes for calories). However, my

> >son

> > > only gets a very small amount of breastmilk any more - maybe an

> >ounce

> > > or two per day.

> > >

> > > It is my understanding that sugars and carbohydrates are broken

> >down in

> > > my digestion and do not transmit through breastmilk like food

> >proteins

> > > do. Is my understanding correct? As far as I know, my own

digestion

> >is

> > > fine and I would have no problems eating a standard American

diet

> > > (though I'm sure I'm healthier without it). But quite simply, I

> >have

> > > been on an extremely restricted diet for 3 years, often eating

only

> >3

> > > foods at a time for months, and I don't think I am able to

restrict

> >it

> > > further than I currently am - which is pretty restricted. We

rotate

> > > foods every 2 days, so I do only eat 3 or 4 foods on any given

day.

> >The

> > > reason I can't restrict my diet more is mostly due to the time

it

> >would

> > > take to prepare SCD foods for myself in addition to my son. I

> >already

> > > spend 3-4 hours per day cooking, and I work full time and spend

3

> >hours

> > > driving my son to therapy. There just isn't more time, and if I

can

> >pop

> > > a baked potato in the microwave, it often means that I get to

eat

> >when

> > > I otherwise would go hungry most of the day. Also, can I safely

eat

> >raw

> > > (uncooked) fruits?

> > >

> > > Thanks for your advice!

> > > Suzanne

> > >

> >

> >For information on the Specific Carbohydrate Diet, please read the

book

> >_Breaking the Vicious Cycle_ by Elaine Gottschall and read the

following

> >websites:

> >http://www.breakingtheviciouscycle.info

> >and

> >http://www.pecanbread.com

> >

February 13, 2006

Hey Suzanne,

There are many enzymes without papain... go to the health food store, I'm sure

they work with you on finding products that will work for you.

I had my son on a very restrictive diet also... Sometimes the benefit of

something you believe he's allergic to outweighs the risk...for example Omega

3's and 6's...his brain needs it ... (food for thought) you may have to do some

experimenting... MSM tastes bitter, that why there are illlegals in it, you

coultry pure MSM with honey...Health Food store will help you with Quercitin.

And he probably needs probiotics too.

Go to www.pecanbread.com and click on food preparation you'll see the

modifications for ASD kids and INTRO diet. You probably don't have to wait 6

months to introduce, just cook and puree everything and add slowly.

Agape,

Suzanne szmidford@...> wrote:

Thanks .

I am now trying to figure out which of his safe foods would work for

an intro diet. He only tolerates a few meats and veggies, and most of

his veggies are not suitable for the intro diet. I am able to

succesfully control his eczema by limiting his diet and mine, but I'm

not willing to give him allergens for the intro diet. I don't eat any

of the foods he's allergic to, but I do permit potatoes (he's not

allergic to them but I don't give him any disaccharides). It's my

basic understanding that sugars and starches don't transmit through

breastmilk the way proteins do, so the disaccharides shouldn't be a

problem.

He isn't able to tolerate most suplements in general, due to

allergenic ingredients. He takes probiotics, but enzymes are out as

he's allergic to papaya in most of them. Krill oil is out, he's

allergic to all ocean products. I think there's an ingredient in MSM

he's allergic to, but I should look into it more. I don't know a

thing about Quercitin, can you tell me more? Omega 3's and 6's are

usually dericed from allergens, I've never found a safe one.

Here are the foods we have to choose from to develop an intro diet

for him (after I eliminated all the allergens and disaccharides). I'd

appreciate any advice about which ones would be the " least bad " and

therefore suitable for an intro diet. I assume the meats would all be

okay?

MEATS:

buffalo

ostrich

lamb

grass-fed beef (in small amounts)

VEGGIES:

asparagus

beets

broccoli

brussel sprouts

cabbage

celery

celery root

cucumber

garlic

onion

pumpkin

rutabagas

spinach

squash

zucchini

turnips

FRUITS:

cranberry

lemon

He REALLY, REALLY is IgE reactive to almost all foods, so I'm not

planning to introduce any of those foods for at least 6 months on the

diet. We're accustomed to very restrictive diets around here, so

commitment is not a problem. The only thing that is hard is getting

him sufficient nutrition on the very limited food list we have to

work with.

I would love any advice about which of the above foods we could use

for an intro diet.

Suzanne

> >

> > Hi all,

> > I am new to SCD although my son and I have been on various

> restrictive

> > diets for allergies since 2 months old. My son is now 3 and has

> > autism. He can only tolerate about 15 foods currently, but I

have

> > removed all the disaccharides from his diet within the last

month.

> I

> > have not yet removed all illegal vegetables (turnips, rutabagas,

> > cabbage, broccoli), because they are some of the few foods he is

> not

> > allergic to and I need to feed him something! y

> >

> > A recent upper and lower GI scope showed no inflammation apart

from

> > what the doctor termed " mild gastritis " , but did show nodular

> lymphoid

> > hyperplasia. A Comprehensive Digestive Stool Analysis showed a

> > continuing yeast problem (which we've been treating on and off

for

> a

> > year), and high lactoferrin levels indicative on inflammation. He

> also

> > has occult blood in his stool and high Secretory IgA. His doctor

> > believes there is probably inflammation in his small intestine

and

> has

> > recommended a trial of Singulair. He is highly allergic to corn

> (IgE)

> > and Singulair granules contain mannitol, so this makes me nervous

> but

> > we are going forward. He is not anaphylactic, thank goodness. His

> main

> > food allergy symptom is eczema.

> >

> > I am breastfeeding my son and I eliminating all the foods he

cannot

> > tolerate. My question is about the role of breastmilk in the SCD

> diet.

> > Elaine doesn't mention this in BTVC and I have not seen it

> mentioned in

> > the files or various SCD websites. As far as anyone knows, is

> > breastmilk legal? I do continue to eat a few foods that are SCD

> illegal

> > (small amounts of sugar, and potatoes for calories). However, my

> son

> > only gets a very small amount of breastmilk any more - maybe an

> ounce

> > or two per day.

> >

> > It is my understanding that sugars and carbohydrates are broken

> down in

> > my digestion and do not transmit through breastmilk like food

> proteins

> > do. Is my understanding correct? As far as I know, my own

digestion

> is

> > fine and I would have no problems eating a standard American diet

> > (though I'm sure I'm healthier without it). But quite simply, I

> have

> > been on an extremely restricted diet for 3 years, often eating

only

> 3

> > foods at a time for months, and I don't think I am able to

restrict

> it

> > further than I currently am - which is pretty restricted. We

rotate

> > foods every 2 days, so I do only eat 3 or 4 foods on any given

day.

> The

> > reason I can't restrict my diet more is mostly due to the time it

> would

> > take to prepare SCD foods for myself in addition to my son. I

> already

> > spend 3-4 hours per day cooking, and I work full time and spend 3

> hours

> > driving my son to therapy. There just isn't more time, and if I

can

> pop

> > a baked potato in the microwave, it often means that I get to eat

> when

> > I otherwise would go hungry most of the day. Also, can I safely

eat

> raw

> > (uncooked) fruits?

> >

> > Thanks for your advice!

> > Suzanne

> >

>

> For information on the Specific Carbohydrate Diet, please read the

book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the

following websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

February 13, 2006