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Re: CF VISIT

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Ours are the same 9-2 --- the waiting is what gets to you. Our Hospital has

clowns. I feel like strangling those ______ing clowns..........just kidding

.....Gosh, I will create a war on this e-group over CLOWNs who like and who

Hate them....LOL

Rosemary in New York with 3 children with CF - they are 12, 9.11, 6...I

coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you

ready for this - TOBI after their medication!

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Ours are the same 9-2 --- the waiting is what gets to you. Our Hospital has

clowns. I feel like strangling those ______ing clowns..........just kidding

.....Gosh, I will create a war on this e-group over CLOWNs who like and who

Hate them....LOL

Rosemary in New York with 3 children with CF - they are 12, 9.11, 6...I

coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you

ready for this - TOBI after their medication!

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Share on other sites

Ours are the same 9-2 --- the waiting is what gets to you. Our Hospital has

clowns. I feel like strangling those ______ing clowns..........just kidding

.....Gosh, I will create a war on this e-group over CLOWNs who like and who

Hate them....LOL

Rosemary in New York with 3 children with CF - they are 12, 9.11, 6...I

coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you

ready for this - TOBI after their medication!

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Don't ya just " love " family outings to the cf clinic? Geesh, how long are

yours usually? Our are anywhere from 3 hours to 5. That's before lab work

is done! Ugg. DH always goes with me, with the kids being so small I think

I would beg them to admitt me just for a break, lol.

>From: ROSEMARY3FOR3wCF@...

>Reply-To: cfparents

>To: cfparents

>Subject: CF VISIT

>Date: Fri, 25 Oct 2002 21:51:10 EDT

>

>Hey, took all 3 to CF Center yesterday...Oh, Lord, what a day - 2 kids up

>in

>xray - they don't take family films.

>

>1 gag swallow, flu shot and blood work on a 6 yr. with SEVERE Sensory

>issues.....need I say more......it was awful, horrendous and any other

>adjectives you can thing of.

>

>My husband (was there - thankfully) to hold down 6 yr.! He actually has a

>use to me...

>

>My 9.11 yr. with aspergillos - has been sick - virus - but of course

>concerns

>are with his increased cough.

>

>I am getting a tad tired of chronic life and watching " them " ......

>

>Its 9:30 and all are cranky.......I pray for sleep - for them and

>me.........

>

>Rosemary in New York with 3 children with CF - they are 12, 9.11, 6...I

>coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you

>ready for this - TOBI after their medication!

>

>

>

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Don't ya just " love " family outings to the cf clinic? Geesh, how long are

yours usually? Our are anywhere from 3 hours to 5. That's before lab work

is done! Ugg. DH always goes with me, with the kids being so small I think

I would beg them to admitt me just for a break, lol.

>From: ROSEMARY3FOR3wCF@...

>Reply-To: cfparents

>To: cfparents

>Subject: CF VISIT

>Date: Fri, 25 Oct 2002 21:51:10 EDT

>

>Hey, took all 3 to CF Center yesterday...Oh, Lord, what a day - 2 kids up

>in

>xray - they don't take family films.

>

>1 gag swallow, flu shot and blood work on a 6 yr. with SEVERE Sensory

>issues.....need I say more......it was awful, horrendous and any other

>adjectives you can thing of.

>

>My husband (was there - thankfully) to hold down 6 yr.! He actually has a

>use to me...

>

>My 9.11 yr. with aspergillos - has been sick - virus - but of course

>concerns

>are with his increased cough.

>

>I am getting a tad tired of chronic life and watching " them " ......

>

>Its 9:30 and all are cranky.......I pray for sleep - for them and

>me.........

>

>Rosemary in New York with 3 children with CF - they are 12, 9.11, 6...I

>coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you

>ready for this - TOBI after their medication!

>

>

>

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Share on other sites

Don't ya just " love " family outings to the cf clinic? Geesh, how long are

yours usually? Our are anywhere from 3 hours to 5. That's before lab work

is done! Ugg. DH always goes with me, with the kids being so small I think

I would beg them to admitt me just for a break, lol.

>From: ROSEMARY3FOR3wCF@...

>Reply-To: cfparents

>To: cfparents

>Subject: CF VISIT

>Date: Fri, 25 Oct 2002 21:51:10 EDT

>

>Hey, took all 3 to CF Center yesterday...Oh, Lord, what a day - 2 kids up

>in

>xray - they don't take family films.

>

>1 gag swallow, flu shot and blood work on a 6 yr. with SEVERE Sensory

>issues.....need I say more......it was awful, horrendous and any other

>adjectives you can thing of.

>

>My husband (was there - thankfully) to hold down 6 yr.! He actually has a

>use to me...

>

>My 9.11 yr. with aspergillos - has been sick - virus - but of course

>concerns

>are with his increased cough.

>

>I am getting a tad tired of chronic life and watching " them " ......

>

>Its 9:30 and all are cranky.......I pray for sleep - for them and

>me.........

>

>Rosemary in New York with 3 children with CF - they are 12, 9.11, 6...I

>coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you

>ready for this - TOBI after their medication!

>

>

>

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OK I TAKE REAL OFFENSE TO THE CLOWN ISSUE!!!!! I can't stand them either.

They are great for the kids, but always come when all YOU need is some

valium or prozac!!!

By the way, hang in there. I can't imagine having more than what I already

have with CF.

(clown hater mother of two one with cf)

>From: ROSEMARY3FOR3wCF@...

>Reply-To: cfparents

>To: cfparents

>Subject: Re: CF VISIT

>Date: Fri, 25 Oct 2002 23:19:37 EDT

>

>Ours are the same 9-2 --- the waiting is what gets to you. Our Hospital

>has

>clowns. I feel like strangling those ______ing clowns..........just

>kidding

>....Gosh, I will create a war on this e-group over CLOWNs who like and who

>Hate them....LOL

>

>Rosemary in New York with 3 children with CF - they are 12, 9.11, 6...I

>coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you

>ready for this - TOBI after their medication!

>

>

>

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Share on other sites

OK I TAKE REAL OFFENSE TO THE CLOWN ISSUE!!!!! I can't stand them either.

They are great for the kids, but always come when all YOU need is some

valium or prozac!!!

By the way, hang in there. I can't imagine having more than what I already

have with CF.

(clown hater mother of two one with cf)

>From: ROSEMARY3FOR3wCF@...

>Reply-To: cfparents

>To: cfparents

>Subject: Re: CF VISIT

>Date: Fri, 25 Oct 2002 23:19:37 EDT

>

>Ours are the same 9-2 --- the waiting is what gets to you. Our Hospital

>has

>clowns. I feel like strangling those ______ing clowns..........just

>kidding

>....Gosh, I will create a war on this e-group over CLOWNs who like and who

>Hate them....LOL

>

>Rosemary in New York with 3 children with CF - they are 12, 9.11, 6...I

>coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you

>ready for this - TOBI after their medication!

>

>

>

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In a message dated 10/25/2002 11:25:51 PM Eastern Daylight Time,

sjcpd33@... writes:

> OK I TAKE REAL OFFENSE TO THE CLOWN ISSUE!!!!! I can't stand them either.

> They are great for the kids, but always come when all YOU need is some

> valium or prozac!!!

> By the way, hang in there. I can't imagine having more than what I already

> have with CF.

>

I thought that you meant you can't take more than one CLOWN.........ha ha..

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In a message dated 10/25/2002 11:25:51 PM Eastern Daylight Time,

sjcpd33@... writes:

> OK I TAKE REAL OFFENSE TO THE CLOWN ISSUE!!!!! I can't stand them either.

> They are great for the kids, but always come when all YOU need is some

> valium or prozac!!!

> By the way, hang in there. I can't imagine having more than what I already

> have with CF.

>

I thought that you meant you can't take more than one CLOWN.........ha ha..

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Share on other sites

In a message dated 10/25/2002 11:25:51 PM Eastern Daylight Time,

sjcpd33@... writes:

> OK I TAKE REAL OFFENSE TO THE CLOWN ISSUE!!!!! I can't stand them either.

> They are great for the kids, but always come when all YOU need is some

> valium or prozac!!!

> By the way, hang in there. I can't imagine having more than what I already

> have with CF.

>

I thought that you meant you can't take more than one CLOWN.........ha ha..

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  • 4 weeks later...

Hi Rosemary,

Sorry I haven't written but my computer's been in the crapper for the past

few weeks (nasty virus that nearly destroyed EVERYTHING on my computer--

including my most precious photos).

I hope that you and your kids are very, very well. I feel really out of

touch with you since I've been unable to read your most recent posts!!!!!!!

I MISS YOU!

Your friend,

Paige

CF VISIT

> Hey, took all 3 to CF Center yesterday...Oh, Lord, what a day - 2 kids up

in

> xray - they don't take family films.

>

> 1 gag swallow, flu shot and blood work on a 6 yr. with SEVERE Sensory

> issues.....need I say more......it was awful, horrendous and any other

> adjectives you can thing of.

>

> My husband (was there - thankfully) to hold down 6 yr.! He actually has a

> use to me...

>

> My 9.11 yr. with aspergillos - has been sick - virus - but of course

concerns

> are with his increased cough.

>

> I am getting a tad tired of chronic life and watching " them " ......

>

> Its 9:30 and all are cranky.......I pray for sleep - for them and

me.........

>

> Rosemary in New York with 3 children with CF - they are 12, 9.11, 6...I

> coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you

> ready for this - TOBI after their medication!

>

>

>

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