Jump to content
RemedySpot.com

Re: CF VISIT

Rate this topic


Guest guest

Recommended Posts

Hi Rosemary,

Sorry I haven't written but my computer's been in the crapper for the past

few weeks (nasty virus that nearly destroyed EVERYTHING on my computer--

including my most precious photos).

I hope that you and your kids are very, very well. I feel really out of

touch with you since I've been unable to read your most recent posts!!!!!!!

I MISS YOU!

Your friend,

Paige

CF VISIT

> Hey, took all 3 to CF Center yesterday...Oh, Lord, what a day - 2 kids up

in

> xray - they don't take family films.

>

> 1 gag swallow, flu shot and blood work on a 6 yr. with SEVERE Sensory

> issues.....need I say more......it was awful, horrendous and any other

> adjectives you can thing of.

>

> My husband (was there - thankfully) to hold down 6 yr.! He actually has a

> use to me...

>

> My 9.11 yr. with aspergillos - has been sick - virus - but of course

concerns

> are with his increased cough.

>

> I am getting a tad tired of chronic life and watching " them " ......

>

> Its 9:30 and all are cranky.......I pray for sleep - for them and

me.........

>

> Rosemary in New York with 3 children with CF - they are 12, 9.11, 6...I

> coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you

> ready for this - TOBI after their medication!

>

>

>

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...