Guest guest Posted November 21, 2002 Report Share Posted November 21, 2002 Hi I was just wondering where abouts you live. I also have an appointement at cf clinic on the 3rd december, thought that we may by some chance be in the same part of the world. mum to baby Liam school issues & stuff I've learned a lesson by reading all these posts. It seems that I've taken a lot for granted these past years dealing with Josh's school and with the staff at our CF clinic. I always assumed that as professionals, compassion was a given. Apparently not. It seems that some of these people have become jaded in their many years of service. This year we intend to give a special thank you to those we have taken for granted. Every year we bake cookies for the kids to give to my ex, the grandparents and their buss driver. It's our way of giving something that the kid's have make themselves. We also make homemade cinnamon ornaments. These go in the gift baskets as well. They mean more to people because of the effort put into them. On the third of December Josh goes to clinic. I intend to take both the doctor and the social worker special ornaments with 's name on the back. Every year when they trim their tree they will remember Josh, and how he apprecieated their efforts. I'm taking a huge basket of homemade cookies to leave at the nurses station. Another big thank you. The school office will get cookies, along with the sweet ladies in the lunch room that give him extra portions every day. God know's there are not enough cookies for the thank you's that I owe. But hey, one step at a time.... All of these people have made our lives easier in one small way or another. Who knows, mabe it will keep them from becoming among the jaded. Thank you all for the insight. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 thanks Re: - about salt In regards to the salt issue, sodium is a required ingredient in our body chemistry and more so for pwcf bc of the loss of sodium that occurs. Please note that sodium and refined table salt are not synonymous, as there are many sources of sodium. For instance refined table salt and most refined sea salts are 99% sodium chloride with chemical anti-caking agents added to prevent absorption of moisture and keep it free flowing. 82 of the 84 minerals have been extracted. We can obtain all the sodium we need on a diet of raw fruits and vegetables. For example celery is an excellent source of sodium in a form the body can ultilize. In processed foods there is far too much salt added and the body struggles to constantly remove this toxin. The body deposits salt in the tissue fluids in an attempt to dilute this toxicity. In the body, salt destroys the living cells and wreaks havoc with our immune system. Sodium chloride or table salt should be eliminated from the diet it is a poison. Keep feeding Liam the carrot juice as it is a superior source of vitamins A, E, beta-carotene, mineral and amino acids. You could never get the same quality of vitamin from the synthetic ADEK, in fact synthetic vitamins and minerals are utterly useless bc the body does not digest them and the scientific method of reductionism reduces the the potential of the vitamin. Such as vitamin C-from its naturally occuring source gives us a substance that was intended to work in conjunction with other nutrients in whole food, but not by itself. For example, if you eat a raw apple, your body will benefit from vitamin C-along with dozens of other vitamin and mineral and hundreds of ENZYMES an a totally natural configuration formulated and designed into that apple. So the closer to the natural, raw state you stay with your food the more nutrient value you will derive from it as well as the enyzmes that will be available for digestion. Our household has completely forgone the SAD(Standard American Diet) for a raw vegetarian (no animal product, or processed foods)diet including my 15month old wcf. She was dx at 3months with severe malabsortion, anemia, edema, virtually no weight gain since birth (except fluid),since then she has not been hospitalized, has not been on antibiotics or any meds and has fought off colds , ear infections and the flu with her own immune system. She is still primarily eating from the breast with few solids except for raw fruits and veggies and carrot/barley juice. So MOnique keep up the good work and keep Liam on the breast as it is the best foo dfor him. Take care mom to Grayce 15months wcf > > , > > > > The dietician at our CF center told us that breast milk was low > in salt. She also said it was a " standard of care " to supplement them > with salt until they were old enough to do it on their own. She said > when they got older their body would tell them to add the extra salt > and all we would need to do was make sure she had access to a salt > shaker. Anyway, I am supposed to give 1/8 tsp. twice daily. I don't > seem to be able to get that much in her, but I at least get her to > take half of it. She has had the sodium levels in her blood checked > and they went from low normal to normal with the supplements. You can > have Liam checked next time he has his blood drawn to be sure. I also > live in Florida, where it is very hot and babies sweat alot. We may > need to supplement here more then you do depending on your > temperatures. > > > > Keeley > > mom to Leila, 4m. wcf, and Hadley, 2.5 yrs. nocf > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 thanks Re: - about salt In regards to the salt issue, sodium is a required ingredient in our body chemistry and more so for pwcf bc of the loss of sodium that occurs. Please note that sodium and refined table salt are not synonymous, as there are many sources of sodium. For instance refined table salt and most refined sea salts are 99% sodium chloride with chemical anti-caking agents added to prevent absorption of moisture and keep it free flowing. 82 of the 84 minerals have been extracted. We can obtain all the sodium we need on a diet of raw fruits and vegetables. For example celery is an excellent source of sodium in a form the body can ultilize. In processed foods there is far too much salt added and the body struggles to constantly remove this toxin. The body deposits salt in the tissue fluids in an attempt to dilute this toxicity. In the body, salt destroys the living cells and wreaks havoc with our immune system. Sodium chloride or table salt should be eliminated from the diet it is a poison. Keep feeding Liam the carrot juice as it is a superior source of vitamins A, E, beta-carotene, mineral and amino acids. You could never get the same quality of vitamin from the synthetic ADEK, in fact synthetic vitamins and minerals are utterly useless bc the body does not digest them and the scientific method of reductionism reduces the the potential of the vitamin. Such as vitamin C-from its naturally occuring source gives us a substance that was intended to work in conjunction with other nutrients in whole food, but not by itself. For example, if you eat a raw apple, your body will benefit from vitamin C-along with dozens of other vitamin and mineral and hundreds of ENZYMES an a totally natural configuration formulated and designed into that apple. So the closer to the natural, raw state you stay with your food the more nutrient value you will derive from it as well as the enyzmes that will be available for digestion. Our household has completely forgone the SAD(Standard American Diet) for a raw vegetarian (no animal product, or processed foods)diet including my 15month old wcf. She was dx at 3months with severe malabsortion, anemia, edema, virtually no weight gain since birth (except fluid),since then she has not been hospitalized, has not been on antibiotics or any meds and has fought off colds , ear infections and the flu with her own immune system. She is still primarily eating from the breast with few solids except for raw fruits and veggies and carrot/barley juice. So MOnique keep up the good work and keep Liam on the breast as it is the best foo dfor him. Take care mom to Grayce 15months wcf > > , > > > > The dietician at our CF center told us that breast milk was low > in salt. She also said it was a " standard of care " to supplement them > with salt until they were old enough to do it on their own. She said > when they got older their body would tell them to add the extra salt > and all we would need to do was make sure she had access to a salt > shaker. Anyway, I am supposed to give 1/8 tsp. twice daily. I don't > seem to be able to get that much in her, but I at least get her to > take half of it. She has had the sodium levels in her blood checked > and they went from low normal to normal with the supplements. You can > have Liam checked next time he has his blood drawn to be sure. I also > live in Florida, where it is very hot and babies sweat alot. We may > need to supplement here more then you do depending on your > temperatures. > > > > Keeley > > mom to Leila, 4m. wcf, and Hadley, 2.5 yrs. nocf > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 thanks Re: - about salt In regards to the salt issue, sodium is a required ingredient in our body chemistry and more so for pwcf bc of the loss of sodium that occurs. Please note that sodium and refined table salt are not synonymous, as there are many sources of sodium. For instance refined table salt and most refined sea salts are 99% sodium chloride with chemical anti-caking agents added to prevent absorption of moisture and keep it free flowing. 82 of the 84 minerals have been extracted. We can obtain all the sodium we need on a diet of raw fruits and vegetables. For example celery is an excellent source of sodium in a form the body can ultilize. In processed foods there is far too much salt added and the body struggles to constantly remove this toxin. The body deposits salt in the tissue fluids in an attempt to dilute this toxicity. In the body, salt destroys the living cells and wreaks havoc with our immune system. Sodium chloride or table salt should be eliminated from the diet it is a poison. Keep feeding Liam the carrot juice as it is a superior source of vitamins A, E, beta-carotene, mineral and amino acids. You could never get the same quality of vitamin from the synthetic ADEK, in fact synthetic vitamins and minerals are utterly useless bc the body does not digest them and the scientific method of reductionism reduces the the potential of the vitamin. Such as vitamin C-from its naturally occuring source gives us a substance that was intended to work in conjunction with other nutrients in whole food, but not by itself. For example, if you eat a raw apple, your body will benefit from vitamin C-along with dozens of other vitamin and mineral and hundreds of ENZYMES an a totally natural configuration formulated and designed into that apple. So the closer to the natural, raw state you stay with your food the more nutrient value you will derive from it as well as the enyzmes that will be available for digestion. Our household has completely forgone the SAD(Standard American Diet) for a raw vegetarian (no animal product, or processed foods)diet including my 15month old wcf. She was dx at 3months with severe malabsortion, anemia, edema, virtually no weight gain since birth (except fluid),since then she has not been hospitalized, has not been on antibiotics or any meds and has fought off colds , ear infections and the flu with her own immune system. She is still primarily eating from the breast with few solids except for raw fruits and veggies and carrot/barley juice. So MOnique keep up the good work and keep Liam on the breast as it is the best foo dfor him. Take care mom to Grayce 15months wcf > > , > > > > The dietician at our CF center told us that breast milk was low > in salt. She also said it was a " standard of care " to supplement them > with salt until they were old enough to do it on their own. She said > when they got older their body would tell them to add the extra salt > and all we would need to do was make sure she had access to a salt > shaker. Anyway, I am supposed to give 1/8 tsp. twice daily. I don't > seem to be able to get that much in her, but I at least get her to > take half of it. She has had the sodium levels in her blood checked > and they went from low normal to normal with the supplements. You can > have Liam checked next time he has his blood drawn to be sure. I also > live in Florida, where it is very hot and babies sweat alot. We may > need to supplement here more then you do depending on your > temperatures. > > > > Keeley > > mom to Leila, 4m. wcf, and Hadley, 2.5 yrs. nocf > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.