Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Keeley, Where in Florida do you live? My daughter doesn't seem to really crave salt. I forget to give her extra, though I do try and get her to drink Gator Ade in the summer. Lori in Florida (Tallahassee) - about salt , The dietician at our CF center told us that breast milk was low in salt. She also said it was a " standard of care " to supplement them with salt until they were old enough to do it on their own. She said when they got older their body would tell them to add the extra salt and all we would need to do was make sure she had access to a salt shaker. Anyway, I am supposed to give 1/8 tsp. twice daily. I don't seem to be able to get that much in her, but I at least get her to take half of it. She has had the sodium levels in her blood checked and they went from low normal to normal with the supplements. You can have Liam checked next time he has his blood drawn to be sure. I also live in Florida, where it is very hot and babies sweat alot. We may need to supplement here more then you do depending on your temperatures. Keeley mom to Leila, 4m. wcf, and Hadley, 2.5 yrs. nocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Hi salt lovers, Before giving your children free-reign of the salt shaker, you may want to learn more about salt. There is a difference. You want to be sure you're using sea salt, not plain table salt. Here's a web site that explains... it's long but informative and broken into sections... so you might want to bookmark it, then go back to read whenever you have time. It gives sources for ordering sea salt on the web, but you can find good quality sea salt at Whole Foods stores, health food stores, spice shops, and specialty sections of some grocery stores. http://www.curezone.com/foods/saltcure.asp Please, look into switching your family from regular table salt to sea salt. The cost is a bit more, but isn't your health worth it? The US is so bad about altering our foods, removing important minerals that lead to health problems. Other countries don't seem to mess with their food and water supply like the US does. It's no wonder our country is fatter and has more chronic health problems. Kim Mom of (23 with cf and asthma) and (asthma no cf) , The dietician at our CF center told us that breast milk was low in salt. She also said it was a " standard of care " to supplement them with salt until they were old enough to do it on their own. She said when they got older their body would tell them to add the extra salt and all we would need to do was make sure she had access to a salt shaker. Anyway, I am supposed to give 1/8 tsp. twice daily. I don't seem to be able to get that much in her, but I at least get her to take half of it. She has had the sodium levels in her blood checked and they went from low normal to normal with the supplements. You can have Liam checked next time he has his blood drawn to be sure. I also live in Florida, where it is very hot and babies sweat alot. We may need to supplement here more then you do depending on your temperatures. Keeley mom to Leila, 4m. wcf, and Hadley, 2.5 yrs. nocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Lori, Hi! I live in ville, so not too far from you. It's interesting to hear your daughter doesn't crave salt. I wonder if different CF'ers lose different amounts of salt. I really hate trying to give Leila all the extra salt because I enjoy breastfeeding, and this forces me to pump a bottle. I am looking forward to mixing some in with her solids. She's almost there with the solids. Do you cheer for FSU? Congrats. on the recent win over our alma mater, UF! Keeley - about salt , The dietician at our CF center told us that breast milk was low in salt. She also said it was a " standard of care " to supplement them with salt until they were old enough to do it on their own. She said when they got older their body would tell them to add the extra salt and all we would need to do was make sure she had access to a salt shaker. Anyway, I am supposed to give 1/8 tsp. twice daily. I don't seem to be able to get that much in her, but I at least get her to take half of it. She has had the sodium levels in her blood checked and they went from low normal to normal with the supplements. You can have Liam checked next time he has his blood drawn to be sure. I also live in Florida, where it is very hot and babies sweat alot. We may need to supplement here more then you do depending on your temperatures. Keeley mom to Leila, 4m. wcf, and Hadley, 2.5 yrs. nocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Keeley, What you stated reminds me of what happened to my daughter . We found out that during pregnancy that was going to have CF so we started giving her enzymes when she was about 2wks. old before every nursing. But we were not informed about adding salt to her diet and when she was about 4 mos. old she ended up in the hosp. because her sodium level was dangerously low. Needless to say, we have been adding salt every since. And when she really needs the extra salt, she'll get the salt shaker and put some in her hand to have. , Mom to 11wocf, Nikki 9wocf, Luke 6wocf, and 4wcf > , > > The dietician at our CF center told us that breast milk was low in salt. She also said it was a " standard of care " to supplement them with salt until they were old enough to do it on their own. She said when they got older their body would tell them to add the extra salt and all we would need to do was make sure she had access to a salt shaker. Anyway, I am supposed to give 1/8 tsp. twice daily. I don't seem to be able to get that much in her, but I at least get her to take half of it. She has had the sodium levels in her blood checked and they went from low normal to normal with the supplements. You can have Liam checked next time he has his blood drawn to be sure. I also live in Florida, where it is very hot and babies sweat alot. We may need to supplement here more then you do depending on your temperatures. > > Keeley > mom to Leila, 4m. wcf, and Hadley, 2.5 yrs. nocf > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Keeley, What you stated reminds me of what happened to my daughter . We found out that during pregnancy that was going to have CF so we started giving her enzymes when she was about 2wks. old before every nursing. But we were not informed about adding salt to her diet and when she was about 4 mos. old she ended up in the hosp. because her sodium level was dangerously low. Needless to say, we have been adding salt every since. And when she really needs the extra salt, she'll get the salt shaker and put some in her hand to have. , Mom to 11wocf, Nikki 9wocf, Luke 6wocf, and 4wcf > , > > The dietician at our CF center told us that breast milk was low in salt. She also said it was a " standard of care " to supplement them with salt until they were old enough to do it on their own. She said when they got older their body would tell them to add the extra salt and all we would need to do was make sure she had access to a salt shaker. Anyway, I am supposed to give 1/8 tsp. twice daily. I don't seem to be able to get that much in her, but I at least get her to take half of it. She has had the sodium levels in her blood checked and they went from low normal to normal with the supplements. You can have Liam checked next time he has his blood drawn to be sure. I also live in Florida, where it is very hot and babies sweat alot. We may need to supplement here more then you do depending on your temperatures. > > Keeley > mom to Leila, 4m. wcf, and Hadley, 2.5 yrs. nocf > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Keeley, What you stated reminds me of what happened to my daughter . We found out that during pregnancy that was going to have CF so we started giving her enzymes when she was about 2wks. old before every nursing. But we were not informed about adding salt to her diet and when she was about 4 mos. old she ended up in the hosp. because her sodium level was dangerously low. Needless to say, we have been adding salt every since. And when she really needs the extra salt, she'll get the salt shaker and put some in her hand to have. , Mom to 11wocf, Nikki 9wocf, Luke 6wocf, and 4wcf > , > > The dietician at our CF center told us that breast milk was low in salt. She also said it was a " standard of care " to supplement them with salt until they were old enough to do it on their own. She said when they got older their body would tell them to add the extra salt and all we would need to do was make sure she had access to a salt shaker. Anyway, I am supposed to give 1/8 tsp. twice daily. I don't seem to be able to get that much in her, but I at least get her to take half of it. She has had the sodium levels in her blood checked and they went from low normal to normal with the supplements. You can have Liam checked next time he has his blood drawn to be sure. I also live in Florida, where it is very hot and babies sweat alot. We may need to supplement here more then you do depending on your temperatures. > > Keeley > mom to Leila, 4m. wcf, and Hadley, 2.5 yrs. nocf > > > Quote Link to comment Share on other sites More sharing options...
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