Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Keeley, Where in Florida do you live? My daughter doesn't seem to really crave salt. I forget to give her extra, though I do try and get her to drink Gator Ade in the summer. Lori in Florida (Tallahassee) - about salt , The dietician at our CF center told us that breast milk was low in salt. She also said it was a " standard of care " to supplement them with salt until they were old enough to do it on their own. She said when they got older their body would tell them to add the extra salt and all we would need to do was make sure she had access to a salt shaker. Anyway, I am supposed to give 1/8 tsp. twice daily. I don't seem to be able to get that much in her, but I at least get her to take half of it. She has had the sodium levels in her blood checked and they went from low normal to normal with the supplements. You can have Liam checked next time he has his blood drawn to be sure. I also live in Florida, where it is very hot and babies sweat alot. We may need to supplement here more then you do depending on your temperatures. Keeley mom to Leila, 4m. wcf, and Hadley, 2.5 yrs. nocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Keeley, Where in Florida do you live? My daughter doesn't seem to really crave salt. I forget to give her extra, though I do try and get her to drink Gator Ade in the summer. Lori in Florida (Tallahassee) - about salt , The dietician at our CF center told us that breast milk was low in salt. She also said it was a " standard of care " to supplement them with salt until they were old enough to do it on their own. She said when they got older their body would tell them to add the extra salt and all we would need to do was make sure she had access to a salt shaker. Anyway, I am supposed to give 1/8 tsp. twice daily. I don't seem to be able to get that much in her, but I at least get her to take half of it. She has had the sodium levels in her blood checked and they went from low normal to normal with the supplements. You can have Liam checked next time he has his blood drawn to be sure. I also live in Florida, where it is very hot and babies sweat alot. We may need to supplement here more then you do depending on your temperatures. Keeley mom to Leila, 4m. wcf, and Hadley, 2.5 yrs. nocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Hi salt lovers, Before giving your children free-reign of the salt shaker, you may want to learn more about salt. There is a difference. You want to be sure you're using sea salt, not plain table salt. Here's a web site that explains... it's long but informative and broken into sections... so you might want to bookmark it, then go back to read whenever you have time. It gives sources for ordering sea salt on the web, but you can find good quality sea salt at Whole Foods stores, health food stores, spice shops, and specialty sections of some grocery stores. http://www.curezone.com/foods/saltcure.asp Please, look into switching your family from regular table salt to sea salt. The cost is a bit more, but isn't your health worth it? The US is so bad about altering our foods, removing important minerals that lead to health problems. Other countries don't seem to mess with their food and water supply like the US does. It's no wonder our country is fatter and has more chronic health problems. Kim Mom of (23 with cf and asthma) and (asthma no cf) , The dietician at our CF center told us that breast milk was low in salt. She also said it was a " standard of care " to supplement them with salt until they were old enough to do it on their own. She said when they got older their body would tell them to add the extra salt and all we would need to do was make sure she had access to a salt shaker. Anyway, I am supposed to give 1/8 tsp. twice daily. I don't seem to be able to get that much in her, but I at least get her to take half of it. She has had the sodium levels in her blood checked and they went from low normal to normal with the supplements. You can have Liam checked next time he has his blood drawn to be sure. I also live in Florida, where it is very hot and babies sweat alot. We may need to supplement here more then you do depending on your temperatures. Keeley mom to Leila, 4m. wcf, and Hadley, 2.5 yrs. nocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Hi salt lovers, Before giving your children free-reign of the salt shaker, you may want to learn more about salt. There is a difference. You want to be sure you're using sea salt, not plain table salt. Here's a web site that explains... it's long but informative and broken into sections... so you might want to bookmark it, then go back to read whenever you have time. It gives sources for ordering sea salt on the web, but you can find good quality sea salt at Whole Foods stores, health food stores, spice shops, and specialty sections of some grocery stores. http://www.curezone.com/foods/saltcure.asp Please, look into switching your family from regular table salt to sea salt. The cost is a bit more, but isn't your health worth it? The US is so bad about altering our foods, removing important minerals that lead to health problems. Other countries don't seem to mess with their food and water supply like the US does. It's no wonder our country is fatter and has more chronic health problems. Kim Mom of (23 with cf and asthma) and (asthma no cf) , The dietician at our CF center told us that breast milk was low in salt. She also said it was a " standard of care " to supplement them with salt until they were old enough to do it on their own. She said when they got older their body would tell them to add the extra salt and all we would need to do was make sure she had access to a salt shaker. Anyway, I am supposed to give 1/8 tsp. twice daily. I don't seem to be able to get that much in her, but I at least get her to take half of it. She has had the sodium levels in her blood checked and they went from low normal to normal with the supplements. You can have Liam checked next time he has his blood drawn to be sure. I also live in Florida, where it is very hot and babies sweat alot. We may need to supplement here more then you do depending on your temperatures. Keeley mom to Leila, 4m. wcf, and Hadley, 2.5 yrs. nocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Lori, Hi! I live in ville, so not too far from you. It's interesting to hear your daughter doesn't crave salt. I wonder if different CF'ers lose different amounts of salt. I really hate trying to give Leila all the extra salt because I enjoy breastfeeding, and this forces me to pump a bottle. I am looking forward to mixing some in with her solids. She's almost there with the solids. Do you cheer for FSU? Congrats. on the recent win over our alma mater, UF! Keeley - about salt , The dietician at our CF center told us that breast milk was low in salt. She also said it was a " standard of care " to supplement them with salt until they were old enough to do it on their own. She said when they got older their body would tell them to add the extra salt and all we would need to do was make sure she had access to a salt shaker. Anyway, I am supposed to give 1/8 tsp. twice daily. I don't seem to be able to get that much in her, but I at least get her to take half of it. She has had the sodium levels in her blood checked and they went from low normal to normal with the supplements. You can have Liam checked next time he has his blood drawn to be sure. I also live in Florida, where it is very hot and babies sweat alot. We may need to supplement here more then you do depending on your temperatures. Keeley mom to Leila, 4m. wcf, and Hadley, 2.5 yrs. nocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 In regards to the salt issue, sodium is a required ingredient in our body chemistry and more so for pwcf bc of the loss of sodium that occurs. Please note that sodium and refined table salt are not synonymous, as there are many sources of sodium. For instance refined table salt and most refined sea salts are 99% sodium chloride with chemical anti-caking agents added to prevent absorption of moisture and keep it free flowing. 82 of the 84 minerals have been extracted. We can obtain all the sodium we need on a diet of raw fruits and vegetables. For example celery is an excellent source of sodium in a form the body can ultilize. In processed foods there is far too much salt added and the body struggles to constantly remove this toxin. The body deposits salt in the tissue fluids in an attempt to dilute this toxicity. In the body, salt destroys the living cells and wreaks havoc with our immune system. Sodium chloride or table salt should be eliminated from the diet it is a poison. Keep feeding Liam the carrot juice as it is a superior source of vitamins A, E, beta-carotene, mineral and amino acids. You could never get the same quality of vitamin from the synthetic ADEK, in fact synthetic vitamins and minerals are utterly useless bc the body does not digest them and the scientific method of reductionism reduces the the potential of the vitamin. Such as vitamin C-from its naturally occuring source gives us a substance that was intended to work in conjunction with other nutrients in whole food, but not by itself. For example, if you eat a raw apple, your body will benefit from vitamin C-along with dozens of other vitamin and mineral and hundreds of ENZYMES an a totally natural configuration formulated and designed into that apple. So the closer to the natural, raw state you stay with your food the more nutrient value you will derive from it as well as the enyzmes that will be available for digestion. Our household has completely forgone the SAD(Standard American Diet) for a raw vegetarian (no animal product, or processed foods)diet including my 15month old wcf. She was dx at 3months with severe malabsortion, anemia, edema, virtually no weight gain since birth (except fluid),since then she has not been hospitalized, has not been on antibiotics or any meds and has fought off colds , ear infections and the flu with her own immune system. She is still primarily eating from the breast with few solids except for raw fruits and veggies and carrot/barley juice. So MOnique keep up the good work and keep Liam on the breast as it is the best foo dfor him. Take care mom to Grayce 15months wcf > > , > > > > The dietician at our CF center told us that breast milk was low > in salt. She also said it was a " standard of care " to supplement them > with salt until they were old enough to do it on their own. She said > when they got older their body would tell them to add the extra salt > and all we would need to do was make sure she had access to a salt > shaker. Anyway, I am supposed to give 1/8 tsp. twice daily. I don't > seem to be able to get that much in her, but I at least get her to > take half of it. She has had the sodium levels in her blood checked > and they went from low normal to normal with the supplements. You can > have Liam checked next time he has his blood drawn to be sure. I also > live in Florida, where it is very hot and babies sweat alot. We may > need to supplement here more then you do depending on your > temperatures. > > > > Keeley > > mom to Leila, 4m. wcf, and Hadley, 2.5 yrs. nocf > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Hi , Thanks for your valuable post on salt and nutrition. I agree with your nutrition choices, and I'm happy to read it's working for your family. I use unrefined sea salts... you have to get use to the gray color but this is better for you if you need salt. I also like using the red and black salts from Hawaii; they are so pretty and like the other unrefined sea salts, they are good mineral sources. Kim Mom of (23 with cf and asthma) and (20 asthma no cf) > > > , > > > > > > The dietician at our CF center told us that breast milk was > low > > in salt. She also said it was a " standard of care " to supplement > them > > with salt until they were old enough to do it on their own. She > said > > when they got older their body would tell them to add the extra > salt > > and all we would need to do was make sure she had access to a salt > > shaker. Anyway, I am supposed to give 1/8 tsp. twice daily. I > don't > > seem to be able to get that much in her, but I at least get her to > > take half of it. She has had the sodium levels in her blood > checked > > and they went from low normal to normal with the supplements. You > can > > have Liam checked next time he has his blood drawn to be sure. I > also > > live in Florida, where it is very hot and babies sweat alot. We > may > > need to supplement here more then you do depending on your > > temperatures. > > > > > > Keeley > > > mom to Leila, 4m. wcf, and Hadley, 2.5 yrs. nocf > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Thanks for this wonderful post, . We are moving toward the kind of diet you describe and it's great to hear how well your child is doing on it. We use refined sea salt but now I will definitely switch to unrefined...I am glad to have learned this. And yay for breastfeeding. :-) Jake is still going strong, nursing lots, at 27 months. His sister nursed till 3.5 yo. also ate few solids until about 15-18 months of age, as did . )O( mama to , 2yo, w/CF, and , 4yo, no CF Re: - about salt In regards to the salt issue, sodium is a required ingredient in our body chemistry and more so for pwcf bc of the loss of sodium that occurs. Please note that sodium and refined table salt are not synonymous, as there are many sources of sodium. For instance refined table salt and most refined sea salts are 99% sodium chloride with chemical anti-caking agents added to prevent absorption of moisture and keep it free flowing. 82 of the 84 minerals have been extracted. We can obtain all the sodium we need on a diet of raw fruits and vegetables. For example celery is an excellent source of sodium in a form the body can ultilize. In processed foods there is far too much salt added and the body struggles to constantly remove this toxin. The body deposits salt in the tissue fluids in an attempt to dilute this toxicity. In the body, salt destroys the living cells and wreaks havoc with our immune system. Sodium chloride or table salt should be eliminated from the diet it is a poison. Keep feeding Liam the carrot juice as it is a superior source of vitamins A, E, beta-carotene, mineral and amino acids. You could never get the same quality of vitamin from the synthetic ADEK, in fact synthetic vitamins and minerals are utterly useless bc the body does not digest them and the scientific method of reductionism reduces the the potential of the vitamin. Such as vitamin C-from its naturally occuring source gives us a substance that was intended to work in conjunction with other nutrients in whole food, but not by itself. For example, if you eat a raw apple, your body will benefit from vitamin C-along with dozens of other vitamin and mineral and hundreds of ENZYMES an a totally natural configuration formulated and designed into that apple. So the closer to the natural, raw state you stay with your food the more nutrient value you will derive from it as well as the enyzmes that will be available for digestion. Our household has completely forgone the SAD(Standard American Diet) for a raw vegetarian (no animal product, or processed foods)diet including my 15month old wcf. She was dx at 3months with severe malabsortion, anemia, edema, virtually no weight gain since birth (except fluid),since then she has not been hospitalized, has not been on antibiotics or any meds and has fought off colds , ear infections and the flu with her own immune system. She is still primarily eating from the breast with few solids except for raw fruits and veggies and carrot/barley juice. So MOnique keep up the good work and keep Liam on the breast as it is the best foo dfor him. Take care Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Thanks for this wonderful post, . We are moving toward the kind of diet you describe and it's great to hear how well your child is doing on it. We use refined sea salt but now I will definitely switch to unrefined...I am glad to have learned this. And yay for breastfeeding. :-) Jake is still going strong, nursing lots, at 27 months. His sister nursed till 3.5 yo. also ate few solids until about 15-18 months of age, as did . )O( mama to , 2yo, w/CF, and , 4yo, no CF Re: - about salt In regards to the salt issue, sodium is a required ingredient in our body chemistry and more so for pwcf bc of the loss of sodium that occurs. Please note that sodium and refined table salt are not synonymous, as there are many sources of sodium. For instance refined table salt and most refined sea salts are 99% sodium chloride with chemical anti-caking agents added to prevent absorption of moisture and keep it free flowing. 82 of the 84 minerals have been extracted. We can obtain all the sodium we need on a diet of raw fruits and vegetables. For example celery is an excellent source of sodium in a form the body can ultilize. In processed foods there is far too much salt added and the body struggles to constantly remove this toxin. The body deposits salt in the tissue fluids in an attempt to dilute this toxicity. In the body, salt destroys the living cells and wreaks havoc with our immune system. Sodium chloride or table salt should be eliminated from the diet it is a poison. Keep feeding Liam the carrot juice as it is a superior source of vitamins A, E, beta-carotene, mineral and amino acids. You could never get the same quality of vitamin from the synthetic ADEK, in fact synthetic vitamins and minerals are utterly useless bc the body does not digest them and the scientific method of reductionism reduces the the potential of the vitamin. Such as vitamin C-from its naturally occuring source gives us a substance that was intended to work in conjunction with other nutrients in whole food, but not by itself. For example, if you eat a raw apple, your body will benefit from vitamin C-along with dozens of other vitamin and mineral and hundreds of ENZYMES an a totally natural configuration formulated and designed into that apple. So the closer to the natural, raw state you stay with your food the more nutrient value you will derive from it as well as the enyzmes that will be available for digestion. Our household has completely forgone the SAD(Standard American Diet) for a raw vegetarian (no animal product, or processed foods)diet including my 15month old wcf. She was dx at 3months with severe malabsortion, anemia, edema, virtually no weight gain since birth (except fluid),since then she has not been hospitalized, has not been on antibiotics or any meds and has fought off colds , ear infections and the flu with her own immune system. She is still primarily eating from the breast with few solids except for raw fruits and veggies and carrot/barley juice. So MOnique keep up the good work and keep Liam on the breast as it is the best foo dfor him. Take care Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Thanks for this wonderful post, . We are moving toward the kind of diet you describe and it's great to hear how well your child is doing on it. We use refined sea salt but now I will definitely switch to unrefined...I am glad to have learned this. And yay for breastfeeding. :-) Jake is still going strong, nursing lots, at 27 months. His sister nursed till 3.5 yo. also ate few solids until about 15-18 months of age, as did . )O( mama to , 2yo, w/CF, and , 4yo, no CF Re: - about salt In regards to the salt issue, sodium is a required ingredient in our body chemistry and more so for pwcf bc of the loss of sodium that occurs. Please note that sodium and refined table salt are not synonymous, as there are many sources of sodium. For instance refined table salt and most refined sea salts are 99% sodium chloride with chemical anti-caking agents added to prevent absorption of moisture and keep it free flowing. 82 of the 84 minerals have been extracted. We can obtain all the sodium we need on a diet of raw fruits and vegetables. For example celery is an excellent source of sodium in a form the body can ultilize. In processed foods there is far too much salt added and the body struggles to constantly remove this toxin. The body deposits salt in the tissue fluids in an attempt to dilute this toxicity. In the body, salt destroys the living cells and wreaks havoc with our immune system. Sodium chloride or table salt should be eliminated from the diet it is a poison. Keep feeding Liam the carrot juice as it is a superior source of vitamins A, E, beta-carotene, mineral and amino acids. You could never get the same quality of vitamin from the synthetic ADEK, in fact synthetic vitamins and minerals are utterly useless bc the body does not digest them and the scientific method of reductionism reduces the the potential of the vitamin. Such as vitamin C-from its naturally occuring source gives us a substance that was intended to work in conjunction with other nutrients in whole food, but not by itself. For example, if you eat a raw apple, your body will benefit from vitamin C-along with dozens of other vitamin and mineral and hundreds of ENZYMES an a totally natural configuration formulated and designed into that apple. So the closer to the natural, raw state you stay with your food the more nutrient value you will derive from it as well as the enyzmes that will be available for digestion. Our household has completely forgone the SAD(Standard American Diet) for a raw vegetarian (no animal product, or processed foods)diet including my 15month old wcf. She was dx at 3months with severe malabsortion, anemia, edema, virtually no weight gain since birth (except fluid),since then she has not been hospitalized, has not been on antibiotics or any meds and has fought off colds , ear infections and the flu with her own immune system. She is still primarily eating from the breast with few solids except for raw fruits and veggies and carrot/barley juice. So MOnique keep up the good work and keep Liam on the breast as it is the best foo dfor him. Take care Quote Link to comment Share on other sites More sharing options...
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