RE: CF Awareness week TRACI

October 17, 2002

Traci,

I think they put worst case scenario's up to raise the awareness, that

yes this is a life shortening disease (except for Miracle n LOL).

And a full time job raising a child with it. I don't like to hear all

that also, but if it brings awareness then I'll put up with it. I think

what you have to do is to let stuff you don't want to know/think about

go over your head.

Liam 8 wocf & Eilish 5wcf

CF Awareness week

I first want to say that this week has been very enlightening for me.

Where I work (in a college environment) I passed out over 60 ribbons,

and I have only done it to friends and professors that helped me raise

money in Great Strides walks in the past and I have had a tremendous

response. I only gave 2 ribbons to students that work for me and they

have sent at least 10 students to me with information that they have

siblings/cousins/or some form a relative that has CF. We are tabling in

the student center tomorrow and they are helping me. I think that this

is great.

I have had one complaint for the information letter that I have been

passing out with my pins. I didn't put what I call " the death factor "

in my information. I feel with being 3 years old, I don't want

to dwell on that. Am I being stupid? That was what I was called, well

not in that word, really naive and denying the truth was the way she put

it to me. In my information I state website addresses where they can go

and find that information out for them selves. I noticed the CFF wants

us to put that in also. Isn't this playing the " pity me " card? Please

don't flame, I know that this can be a sticky subject for some.

Sorry for this being real long

Thanks and everyone have a great rest of the week.

Traci mom of 3 and only 1 w/cf

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