Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 Did anyone see the episode today? I heard it advertise and from what I could tell it was the same subject that we were talking about and saying she needs to do a show for moms with kids with severe illnesses. I wanted to know if anyone saw it and if its time for us all to put our letters together? Re: CF Awareness week Hi Traci, whether to play the pity me card or not is subject of constant discussion here in Germany too. I have spoken with our national CF foundation about it, because I personally don't like the approach. But I was assured that if you want to raise more money you have to go the emotional route and save the people with sheer facts. Fortunately many of our kids are doing so well that we feel bad if we play the pity-me card. But then if we wait until there is reason to pity us it's too late :-(( So we have to be split minded. On the one hand we need to be optimistic, because otherwise we would loose it (at least I would). But on the other hand we have to admit that the average life expectancy of pwcf is less than half of healthy people and that is a pity and needs to be changed. Peace Torsten > I first want to say that this week has been very enlightening for me. Where I work (in a college environment) I passed out over 60 ribbons, and I have only done it to friends and professors that helped me raise money in Great Strides walks in the past and I have had a tremendous response. I only gave 2 ribbons to students that work for me and they have sent at least 10 students to me with information that they have siblings/cousins/or some form a relative that has CF. We are tabling in the student center tomorrow and they are helping me. I think that this is great. > > I have had one complaint for the information letter that I have been passing out with my pins. I didn't put what I call " the death factor " in my information. I feel with being 3 years old, I don't want to dwell on that. Am I being stupid? That was what I was called, well not in that word, really naive and denying the truth was the way she put it to me. In my information I state website addresses where they can go and find that information out for them selves. I noticed the CFF wants us to put that in also. Isn't this playing the " pity me " card? Please don't flame, I know that this can be a sticky subject for some. > > Sorry for this being real long > > Thanks and everyone have a great rest of the week. > > Traci mom of 3 and only 1 w/cf > > > > > Quote Link to comment Share on other sites More sharing options...
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