Re: anyone else use Reglan?

[Guest guest]

,

My daugher Emma, 15 months almost, is on Reglan, Prilosec, Bethanocal and

Mylanta for her reflux. She has been on reflux meds since her diagnosis at 2

months of age. This combo is working well though not perfect. Hope this

helps.

Jen

[Guest guest]

,

My daugher Emma, 15 months almost, is on Reglan, Prilosec, Bethanocal and

Mylanta for her reflux. She has been on reflux meds since her diagnosis at 2

months of age. This combo is working well though not perfect. Hope this

helps.

Jen

[Guest guest]

,

My two and a half year old was put on Reglan at about a year of age.

She was on it for maybe six months or so. I noticed in particular that

her morning routine was to get the Reglan and then as soon as we would

try and feed her, she would vomit very, very violently puking up just the

reglan. The whole meal afterwards would be eat a bite, vomit, eat a

bite, vomit, etc. So ... I looked at the AE (adverse experiences) for

Reglan and noticed that vomiting can actually be a side affect from

taking this drug. Seems kind of weird giving your kid a drug to help

them decrease vomiting whose side affect can be vomiting. Really the

purpose of reglan is to empty out the stomach faster but it's given

primarily to kids with vomiting problems. The theory is that emptying

out the stomach faster reduces the amount of acid generated in the

stomach since the food doesn't sit in it as long and less acid means less

problems with acid reflux/vomiting. Anyway, we talked to her doctors and

we did an experiment and found that Emma vomited less when she wasn't on

Reglan. We have since tried almost all of the drugs in that particular

class of drugs and she vomits really violently for all of them. This

obviously doesn't happen to every child but for our child, Reglan was a

horrible experience. Every so often we try Bethanocal again (similiar to

Reglan) and it always accompanies severe vomiting episodes.

As a result, Emma is only on Prilosec. She still vomits regularly, it

was down to every few days but it's been slowly increasing back to once a

day so she may need an increase in the Prilosec. She has her up and

downs and has definately blessed the homes of my siblings with her vomit

but for her the Prilosec generally seems to keep it to a resonable level.

Emma does not have a nissen but she does have a G-tube. However, she is

primarily feed by mouth. She still remains on the G tube because she

doesn't drink enough to quench the thirst of a hamster. We do not plan

on getting a nissan to eleviate her vomiting as she is quite healthy (50%

percentile) despite her problems with reflux. I hope this helps.

- mom to Emma 2 1/2 years w/cf and acid reflux and Isabelle 4 1/2

years wo/cf

> My 21 month old has been on Reglan (metaclopromide) since October to

> curb his vomiting. He was and still is vomiting about 2 times a day--

> and not just a little spit up--it is ALL of his tummy contents.

> Luckily he is exclusively g-tube fed so it is all liquid but it is

> still a pain. He just threw up in the Hyatt hotel lobby. I had to

> have my husband run him over to the corner of the elevator area so

> people wouldn't slip on it!! ugh. Anyway, has anyone else's child

> been put on reglan for vomiting? I don't think it is working at all

> and there are some bad side effects with long term use.

> He is also on Prilosec. We want to avoid having a Nissen

> fundoplication but can't seem to get the vomiting resolved any other

> way. HELP!

>

> (mom to Ashton 21 months wcf, 11 weeks premature,

> ulcerative

> collitis)

>

________________________________________________________________

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[Guest guest]

,

My two and a half year old was put on Reglan at about a year of age.

She was on it for maybe six months or so. I noticed in particular that

her morning routine was to get the Reglan and then as soon as we would

try and feed her, she would vomit very, very violently puking up just the

reglan. The whole meal afterwards would be eat a bite, vomit, eat a

bite, vomit, etc. So ... I looked at the AE (adverse experiences) for

Reglan and noticed that vomiting can actually be a side affect from

taking this drug. Seems kind of weird giving your kid a drug to help

them decrease vomiting whose side affect can be vomiting. Really the

purpose of reglan is to empty out the stomach faster but it's given

primarily to kids with vomiting problems. The theory is that emptying

out the stomach faster reduces the amount of acid generated in the

stomach since the food doesn't sit in it as long and less acid means less

problems with acid reflux/vomiting. Anyway, we talked to her doctors and

we did an experiment and found that Emma vomited less when she wasn't on

Reglan. We have since tried almost all of the drugs in that particular

class of drugs and she vomits really violently for all of them. This

obviously doesn't happen to every child but for our child, Reglan was a

horrible experience. Every so often we try Bethanocal again (similiar to

Reglan) and it always accompanies severe vomiting episodes.

As a result, Emma is only on Prilosec. She still vomits regularly, it

was down to every few days but it's been slowly increasing back to once a

day so she may need an increase in the Prilosec. She has her up and

downs and has definately blessed the homes of my siblings with her vomit

but for her the Prilosec generally seems to keep it to a resonable level.

Emma does not have a nissen but she does have a G-tube. However, she is

primarily feed by mouth. She still remains on the G tube because she

doesn't drink enough to quench the thirst of a hamster. We do not plan

on getting a nissan to eleviate her vomiting as she is quite healthy (50%

percentile) despite her problems with reflux. I hope this helps.

- mom to Emma 2 1/2 years w/cf and acid reflux and Isabelle 4 1/2

years wo/cf

> My 21 month old has been on Reglan (metaclopromide) since October to

> curb his vomiting. He was and still is vomiting about 2 times a day--

> and not just a little spit up--it is ALL of his tummy contents.

> Luckily he is exclusively g-tube fed so it is all liquid but it is

> still a pain. He just threw up in the Hyatt hotel lobby. I had to

> have my husband run him over to the corner of the elevator area so

> people wouldn't slip on it!! ugh. Anyway, has anyone else's child

> been put on reglan for vomiting? I don't think it is working at all

> and there are some bad side effects with long term use.

> He is also on Prilosec. We want to avoid having a Nissen

> fundoplication but can't seem to get the vomiting resolved any other

> way. HELP!

>

> (mom to Ashton 21 months wcf, 11 weeks premature,

> ulcerative

> collitis)

>

________________________________________________________________

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Only $9.95 per month!

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[Guest guest]

,

My two and a half year old was put on Reglan at about a year of age.

She was on it for maybe six months or so. I noticed in particular that

her morning routine was to get the Reglan and then as soon as we would

try and feed her, she would vomit very, very violently puking up just the

reglan. The whole meal afterwards would be eat a bite, vomit, eat a

bite, vomit, etc. So ... I looked at the AE (adverse experiences) for

Reglan and noticed that vomiting can actually be a side affect from

taking this drug. Seems kind of weird giving your kid a drug to help

them decrease vomiting whose side affect can be vomiting. Really the

purpose of reglan is to empty out the stomach faster but it's given

primarily to kids with vomiting problems. The theory is that emptying

out the stomach faster reduces the amount of acid generated in the

stomach since the food doesn't sit in it as long and less acid means less

problems with acid reflux/vomiting. Anyway, we talked to her doctors and

we did an experiment and found that Emma vomited less when she wasn't on

Reglan. We have since tried almost all of the drugs in that particular

class of drugs and she vomits really violently for all of them. This

obviously doesn't happen to every child but for our child, Reglan was a

horrible experience. Every so often we try Bethanocal again (similiar to

Reglan) and it always accompanies severe vomiting episodes.

As a result, Emma is only on Prilosec. She still vomits regularly, it

was down to every few days but it's been slowly increasing back to once a

day so she may need an increase in the Prilosec. She has her up and

downs and has definately blessed the homes of my siblings with her vomit

but for her the Prilosec generally seems to keep it to a resonable level.

Emma does not have a nissen but she does have a G-tube. However, she is

primarily feed by mouth. She still remains on the G tube because she

doesn't drink enough to quench the thirst of a hamster. We do not plan

on getting a nissan to eleviate her vomiting as she is quite healthy (50%

percentile) despite her problems with reflux. I hope this helps.

- mom to Emma 2 1/2 years w/cf and acid reflux and Isabelle 4 1/2

years wo/cf

> My 21 month old has been on Reglan (metaclopromide) since October to

> curb his vomiting. He was and still is vomiting about 2 times a day--

> and not just a little spit up--it is ALL of his tummy contents.

> Luckily he is exclusively g-tube fed so it is all liquid but it is

> still a pain. He just threw up in the Hyatt hotel lobby. I had to

> have my husband run him over to the corner of the elevator area so

> people wouldn't slip on it!! ugh. Anyway, has anyone else's child

> been put on reglan for vomiting? I don't think it is working at all

> and there are some bad side effects with long term use.

> He is also on Prilosec. We want to avoid having a Nissen

> fundoplication but can't seem to get the vomiting resolved any other

> way. HELP!

>

> (mom to Ashton 21 months wcf, 11 weeks premature,

> ulcerative

> collitis)

>

________________________________________________________________

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[Guest guest]

Hi

was on Reglan for a little while when they stopped using Propulsid aka

cicapride. It was not for vomiting, but for intestinal motility. anyway, she

had been doing fine with the propulsid but a few weeks after she started Reglan

she had a really weird reaction to it. Luckily we were in the hospital at the

time or I probably would have had to take her to the ER. She couldn't lie

still, and felt very strange. The doc was called and they gave her some

benedryl and ativan and she was fine the next morning. I don't know what this

type of reaction is called but I think I'd heard of it so I knew it was being

caused by the Reglan.

Anyway, this doesn't really pertain to the problem you're having with Ashton but

I thought I'd comment anyhow.

love,

M

anyone else use Reglan?

My 21 month old has been on Reglan (metaclopromide) since October to

curb his vomiting. He was and still is vomiting about 2 times a day--

and not just a little spit up--it is ALL of his tummy contents.

Luckily he is exclusively g-tube fed so it is all liquid but it is

still a pain. He just threw up in the Hyatt hotel lobby. I had to

have my husband run him over to the corner of the elevator area so

people wouldn't slip on it!! ugh. Anyway, has anyone else's child

been put on reglan for vomiting? I don't think it is working at all

and there are some bad side effects with long term use.

He is also on Prilosec. We want to avoid having a Nissen

fundoplication but can't seem to get the vomiting resolved any other

way. HELP!

(mom to Ashton 21 months wcf, 11 weeks premature, ulcerative

collitis)

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

Hi

was on Reglan for a little while when they stopped using Propulsid aka

cicapride. It was not for vomiting, but for intestinal motility. anyway, she

had been doing fine with the propulsid but a few weeks after she started Reglan

she had a really weird reaction to it. Luckily we were in the hospital at the

time or I probably would have had to take her to the ER. She couldn't lie

still, and felt very strange. The doc was called and they gave her some

benedryl and ativan and she was fine the next morning. I don't know what this

type of reaction is called but I think I'd heard of it so I knew it was being

caused by the Reglan.

Anyway, this doesn't really pertain to the problem you're having with Ashton but

I thought I'd comment anyhow.

love,

M

anyone else use Reglan?

My 21 month old has been on Reglan (metaclopromide) since October to

curb his vomiting. He was and still is vomiting about 2 times a day--

and not just a little spit up--it is ALL of his tummy contents.

Luckily he is exclusively g-tube fed so it is all liquid but it is

still a pain. He just threw up in the Hyatt hotel lobby. I had to

have my husband run him over to the corner of the elevator area so

people wouldn't slip on it!! ugh. Anyway, has anyone else's child

been put on reglan for vomiting? I don't think it is working at all

and there are some bad side effects with long term use.

He is also on Prilosec. We want to avoid having a Nissen

fundoplication but can't seem to get the vomiting resolved any other

way. HELP!

(mom to Ashton 21 months wcf, 11 weeks premature, ulcerative

collitis)

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

Hi ,

Both my twins were on Reglan, even though they had

fundoplications. My son never really threw up, but

he did have severe reflux. He would gag and often

try to force himself to throw up, when he was

uncomfortably full. My daughter threw up almost every

feeding, until recently. We tried reglan and then

bethanechol. We were not given the option of trying

Propulsid. We stopped both reglan and bethanechol

because they didn't do any good. It didn't stop her

from throwing up when we stopped, but it didn't get

any worse.

Both children were strictly tube fed as well, since

they have severe oral aversion. They finally reached

a weight where the doctors were comfortable taking

them off the overnight feedings and their first

morning bolus to induce hunger, and this is what

really

helped my daughter overcome her vomitting.

Unfortunately, she didn't overcome her aversion and

still would not take enough nutrition by mouth to

make up for the loss in calories, so she got really

skinny again. We had to put her back on the overnight

feedings, but we kept her off the first morning's

bolus. She continues to be vomit-free, so it really

helped her to stop that first feeding. Now, she

only vomits when she is at higher elevations, like

when we are up at our cabin in the Sierras. This seems

to kick start her reflux again and she produces alot

more mucus.

Mick never really vomitted, although he would get

some up when he forced it up at the cabin. After

they stopped his overnight feedings, he began taking

an interest in food, and now his challenge is to

learn to chew and swallow more efficiently, so he

doesn't take all day to eat! He is still on reglan,

but we're thinking of taking him off as well, since

he doesn't even attempt to throw up anymore.

They are both on Prilosec as well, to block the acid.

I think they'll need this even if they don't throw up.

Hope our experience helps you. You may want to try

stopping the reglan for a short while to see if he

throws up less or the same. If it makes no difference,

why be on it?

Good luck!

C

Mommy to Mick and Alli, almost-3 yo twins wcf

--- " J. jeninca1010@...> "

jeninca1010@...> wrote:

> My 21 month old has been on Reglan (metaclopromide)

> since October to

> curb his vomiting. He was and still is vomiting

> about 2 times a day--

> and not just a little spit up--it is ALL of his

> tummy contents.

> Luckily he is exclusively g-tube fed so it is all

> liquid but it is

> still a pain. He just threw up in the Hyatt hotel

> lobby. I had to

> have my husband run him over to the corner of the

> elevator area so

> people wouldn't slip on it!! ugh. Anyway, has

> anyone else's child

> been put on reglan for vomiting? I don't think it

> is working at all

> and there are some bad side effects with long term

> use.

>

> He is also on Prilosec. We want to avoid having a

> Nissen

> fundoplication but can't seem to get the vomiting

> resolved any other

> way. HELP!

>

> (mom to Ashton 21 months wcf, 11 weeks

> premature, ulcerative

> collitis)

>

>

[Guest guest]

Hi ,

Both my twins were on Reglan, even though they had

fundoplications. My son never really threw up, but

he did have severe reflux. He would gag and often

try to force himself to throw up, when he was

uncomfortably full. My daughter threw up almost every

feeding, until recently. We tried reglan and then

bethanechol. We were not given the option of trying

Propulsid. We stopped both reglan and bethanechol

because they didn't do any good. It didn't stop her

from throwing up when we stopped, but it didn't get

any worse.

Both children were strictly tube fed as well, since

they have severe oral aversion. They finally reached

a weight where the doctors were comfortable taking

them off the overnight feedings and their first

morning bolus to induce hunger, and this is what

really

helped my daughter overcome her vomitting.

Unfortunately, she didn't overcome her aversion and

still would not take enough nutrition by mouth to

make up for the loss in calories, so she got really

skinny again. We had to put her back on the overnight

feedings, but we kept her off the first morning's

bolus. She continues to be vomit-free, so it really

helped her to stop that first feeding. Now, she

only vomits when she is at higher elevations, like

when we are up at our cabin in the Sierras. This seems

to kick start her reflux again and she produces alot

more mucus.

Mick never really vomitted, although he would get

some up when he forced it up at the cabin. After

they stopped his overnight feedings, he began taking

an interest in food, and now his challenge is to

learn to chew and swallow more efficiently, so he

doesn't take all day to eat! He is still on reglan,

but we're thinking of taking him off as well, since

he doesn't even attempt to throw up anymore.

They are both on Prilosec as well, to block the acid.

I think they'll need this even if they don't throw up.

Hope our experience helps you. You may want to try

stopping the reglan for a short while to see if he

throws up less or the same. If it makes no difference,

why be on it?

Good luck!

C

Mommy to Mick and Alli, almost-3 yo twins wcf

--- " J. jeninca1010@...> "

jeninca1010@...> wrote:

> My 21 month old has been on Reglan (metaclopromide)

> since October to

> curb his vomiting. He was and still is vomiting

> about 2 times a day--

> and not just a little spit up--it is ALL of his

> tummy contents.

> Luckily he is exclusively g-tube fed so it is all

> liquid but it is

> still a pain. He just threw up in the Hyatt hotel

> lobby. I had to

> have my husband run him over to the corner of the

> elevator area so

> people wouldn't slip on it!! ugh. Anyway, has

> anyone else's child

> been put on reglan for vomiting? I don't think it

> is working at all

> and there are some bad side effects with long term

> use.

>

> He is also on Prilosec. We want to avoid having a

> Nissen

> fundoplication but can't seem to get the vomiting

> resolved any other

> way. HELP!

>

> (mom to Ashton 21 months wcf, 11 weeks

> premature, ulcerative

> collitis)

>

>

[Guest guest]

Hi ,

Both my twins were on Reglan, even though they had

fundoplications. My son never really threw up, but

he did have severe reflux. He would gag and often

try to force himself to throw up, when he was

uncomfortably full. My daughter threw up almost every

feeding, until recently. We tried reglan and then

bethanechol. We were not given the option of trying

Propulsid. We stopped both reglan and bethanechol

because they didn't do any good. It didn't stop her

from throwing up when we stopped, but it didn't get

any worse.

Both children were strictly tube fed as well, since

they have severe oral aversion. They finally reached

a weight where the doctors were comfortable taking

them off the overnight feedings and their first

morning bolus to induce hunger, and this is what

really

helped my daughter overcome her vomitting.

Unfortunately, she didn't overcome her aversion and

still would not take enough nutrition by mouth to

make up for the loss in calories, so she got really

skinny again. We had to put her back on the overnight

feedings, but we kept her off the first morning's

bolus. She continues to be vomit-free, so it really

helped her to stop that first feeding. Now, she

only vomits when she is at higher elevations, like

when we are up at our cabin in the Sierras. This seems

to kick start her reflux again and she produces alot

more mucus.

Mick never really vomitted, although he would get

some up when he forced it up at the cabin. After

they stopped his overnight feedings, he began taking

an interest in food, and now his challenge is to

learn to chew and swallow more efficiently, so he

doesn't take all day to eat! He is still on reglan,

but we're thinking of taking him off as well, since

he doesn't even attempt to throw up anymore.

They are both on Prilosec as well, to block the acid.

I think they'll need this even if they don't throw up.

Hope our experience helps you. You may want to try

stopping the reglan for a short while to see if he

throws up less or the same. If it makes no difference,

why be on it?

Good luck!

C

Mommy to Mick and Alli, almost-3 yo twins wcf

--- " J. jeninca1010@...> "

jeninca1010@...> wrote:

> My 21 month old has been on Reglan (metaclopromide)

> since October to

> curb his vomiting. He was and still is vomiting

> about 2 times a day--

> and not just a little spit up--it is ALL of his

> tummy contents.

> Luckily he is exclusively g-tube fed so it is all

> liquid but it is

> still a pain. He just threw up in the Hyatt hotel

> lobby. I had to

> have my husband run him over to the corner of the

> elevator area so

> people wouldn't slip on it!! ugh. Anyway, has

> anyone else's child

> been put on reglan for vomiting? I don't think it

> is working at all

> and there are some bad side effects with long term

> use.

>

> He is also on Prilosec. We want to avoid having a

> Nissen

> fundoplication but can't seem to get the vomiting

> resolved any other

> way. HELP!

>

> (mom to Ashton 21 months wcf, 11 weeks

> premature, ulcerative

> collitis)

>

>

[Guest guest]

Our son was born at 35 weeks and ended up in the NICU because of

reflux, nothing else. The put him on zantac and reglan. Eventually

they switched him from zantac to prilosec and we went home a week

after his due date. By the time we was three months old he was

throwing up ALL the time. There was no indication of anything else

wrong with him (colds, viral or bacterial, etc.) so they switched him

from reglan to urecholine (another name for bethanochol I believe.)

It's worked a little better until we needed to increase the meds. I

think we are approaching time to increase again. From the reading I

did I found that the major difference between reglan and urecholine

is on WHAT it empties faster. Reglan works to empty the stomach

faster, urecholine works to empty the bladder faster. Reglan also has

more side-effects that I think any of us would prefer to avoid.

That's my input....

Crystal

mom to Adam 10mo w/cf, le 3yr nocf.

> My 21 month old has been on Reglan (metaclopromide) since October

to

> curb his vomiting. He was and still is vomiting about 2 times a

day--

> and not just a little spit up--it is ALL of his tummy contents.

> Luckily he is exclusively g-tube fed so it is all liquid but it is

> still a pain. He just threw up in the Hyatt hotel lobby. I had to

> have my husband run him over to the corner of the elevator area so

> people wouldn't slip on it!! ugh. Anyway, has anyone else's child

> been put on reglan for vomiting? I don't think it is working at

all

> and there are some bad side effects with long term use.

>

> He is also on Prilosec. We want to avoid having a Nissen

> fundoplication but can't seem to get the vomiting resolved any

other

> way. HELP!

>

> (mom to Ashton 21 months wcf, 11 weeks premature,

ulcerative

> collitis)

[Guest guest]

My granddaughter, Abby, also has severe reflux. Abby's seems to be

improving, or maybe it's just hopeful thinking. Abby was on

Prevacid, Zantac and Reglan. Toni, my daughter, stoppped giving Abby

the Relan several weeks ago and there has been no change in her

symptoms. Abby has CF and Arnold Chiari 1 malformation. One of

Abby's doctors told us that about 10% of the population have some

degree of Arnold Chiari malformation. Arnold Chiari malformation can

cause difficulty in swallowing. It is also " possible " that the

malformation can contribute to the vomiting issues, due to added

pressure on the vegus (spelling?) nerve. This nerve controls the gag

reflex.

Abby will probably have surgery to correct her Arnold Chiari in the

spring. It was originally scheduled for Dec. 2002, but got postponed.

I hope that you and your son find some relief soon!

Gale

> My 21 month old has been on Reglan (metaclopromide) since October

to

> curb his vomiting. He was and still is vomiting about 2 times a

day--

> and not just a little spit up--it is ALL of his tummy contents.

> Luckily he is exclusively g-tube fed so it is all liquid but it is

> still a pain. He just threw up in the Hyatt hotel lobby. I had to

> have my husband run him over to the corner of the elevator area so

> people wouldn't slip on it!! ugh. Anyway, has anyone else's child

> been put on reglan for vomiting? I don't think it is working at

all

> and there are some bad side effects with long term use.

>

> He is also on Prilosec. We want to avoid having a Nissen

> fundoplication but can't seem to get the vomiting resolved any

other

> way. HELP!

>

> (mom to Ashton 21 months wcf, 11 weeks premature,

ulcerative

> collitis)

[Guest guest]

My granddaughter, Abby, also has severe reflux. Abby's seems to be

improving, or maybe it's just hopeful thinking. Abby was on

Prevacid, Zantac and Reglan. Toni, my daughter, stoppped giving Abby

the Relan several weeks ago and there has been no change in her

symptoms. Abby has CF and Arnold Chiari 1 malformation. One of

Abby's doctors told us that about 10% of the population have some

degree of Arnold Chiari malformation. Arnold Chiari malformation can

cause difficulty in swallowing. It is also " possible " that the

malformation can contribute to the vomiting issues, due to added

pressure on the vegus (spelling?) nerve. This nerve controls the gag

reflex.

Abby will probably have surgery to correct her Arnold Chiari in the

spring. It was originally scheduled for Dec. 2002, but got postponed.

I hope that you and your son find some relief soon!

Gale

> My 21 month old has been on Reglan (metaclopromide) since October

to

> curb his vomiting. He was and still is vomiting about 2 times a

day--

> and not just a little spit up--it is ALL of his tummy contents.

> Luckily he is exclusively g-tube fed so it is all liquid but it is

> still a pain. He just threw up in the Hyatt hotel lobby. I had to

> have my husband run him over to the corner of the elevator area so

> people wouldn't slip on it!! ugh. Anyway, has anyone else's child

> been put on reglan for vomiting? I don't think it is working at

all

> and there are some bad side effects with long term use.

>

> He is also on Prilosec. We want to avoid having a Nissen

> fundoplication but can't seem to get the vomiting resolved any

other

> way. HELP!

>

> (mom to Ashton 21 months wcf, 11 weeks premature,

ulcerative

> collitis)

[Guest guest]

My granddaughter, Abby, also has severe reflux. Abby's seems to be

improving, or maybe it's just hopeful thinking. Abby was on

Prevacid, Zantac and Reglan. Toni, my daughter, stoppped giving Abby

the Relan several weeks ago and there has been no change in her

symptoms. Abby has CF and Arnold Chiari 1 malformation. One of

Abby's doctors told us that about 10% of the population have some

degree of Arnold Chiari malformation. Arnold Chiari malformation can

cause difficulty in swallowing. It is also " possible " that the

malformation can contribute to the vomiting issues, due to added

pressure on the vegus (spelling?) nerve. This nerve controls the gag

reflex.

Abby will probably have surgery to correct her Arnold Chiari in the

spring. It was originally scheduled for Dec. 2002, but got postponed.

I hope that you and your son find some relief soon!

Gale

> My 21 month old has been on Reglan (metaclopromide) since October

to

> curb his vomiting. He was and still is vomiting about 2 times a

day--

> and not just a little spit up--it is ALL of his tummy contents.

> Luckily he is exclusively g-tube fed so it is all liquid but it is

> still a pain. He just threw up in the Hyatt hotel lobby. I had to

> have my husband run him over to the corner of the elevator area so

> people wouldn't slip on it!! ugh. Anyway, has anyone else's child

> been put on reglan for vomiting? I don't think it is working at

all

> and there are some bad side effects with long term use.

>

> He is also on Prilosec. We want to avoid having a Nissen

> fundoplication but can't seem to get the vomiting resolved any

other

> way. HELP!

>

> (mom to Ashton 21 months wcf, 11 weeks premature,

ulcerative

> collitis)