To Patty...

[Guest guest]

Hey Patty,

I am so sorry Cassie is feeling bad. Sometimes when Jackie has a

cold it causes her worse pain. The docs told us that viral

infections can cause pancreatitis. I always worry a cold or

something might be viral. I know coughing has to hurt the pancreas,

sometimes I think severe coughing caused Jackie's pancreatitis. She

had a horrible cough days before she had her first attack. Coughing

till she would vomit. We treated it with cough meds but sometimes I

blame myself for not doing more. That doc sucks not giving Cassie

something for pain. I cannot believe that. I am so sick of the

medical profession at this point. I hope Cassie is feeling better

and if not I hope you get some pain meds for her. Jackie worries

that she won't get any help for pain. It is sad that you have to

live in pain and worry if they will give you relief for it. These

docs are so into making the kid go to school, it makes me so mad.

That is why I started homeschooling, tired of their attitude. She is

getting so much more than their tutors could ever give anyway. She

only got an hour of school for every day she missed. It was not

enough to get what she needed. Hang tough with her doctors and the

school board, don't let them push you around.

The doc that is doing the ERCP is really good, he did her second

one, this one is her third. She did not have an attack with the

second one, she did with the first. His name is Dr. Cotton, he

even cut a duct open and she did not have an attack, she did have

pretty bad pain so they kept her a few days. I just hope they can

see what is causing her to be having so many problems right now.

Oh about me, well I am really tired. I feel a nervous breakdown

coming on. I need to go to work tonite but will have to see how Jack

is today. I work third shift. Our hospital has a pull out thing to

sleep on, well to say the least my body hurts, LOL. The hospital

requires someone to be with children at all times. But it doesn't

matter, cuz Jackie will not stay the night up there with anyone but

me. She won't even let her dad, he trys but she cries and says she

wants mama. I can't tell her no, I stay and he takes our other

daughter with him. Of course my other daughter wants me home too.

When in ton my husband will take our youngest back to the

hotel. They come about 8 am and stay till 9:30pm, none of us will

leave each other. It is so cute. Now if I was in the hospital, I

don't know about that routine, I think I would want them all to come

and go a little, LOL.

I hope Cassie is feeling better from her cold and her pancreas

pain. Let me know how she is. Talk to ya soon,

[Guest guest]

Hey Patty,

Yes our hospital requires a parent with the child, although with

Jackie's age I am sure we could leave during the day for a few hours.

I usually don't try just get my husband to stay with her then. The

hospital in the city next to us has the children's hospital with

everything you said...tv, vcr, nintendo, games, teen room with

computers, and the little kid play areas also. She would rather go

there but we had to go where her doctor here went at least one time.

I won't anymore...a stranger doctor can care for her, I heard we were

getting a new pediatric GI in the city near us, in February. So

hopefully this will come thru and we can start seeing him. This is

the hospital I have dealt with for the last two years but her

pediatric GI group moved to another state and we were left with none.

The Children's Hospital here is interviewing pediatric GI's so

hopefully this one that said he could start in February will work out.

I do not know what porphobilingen and amino-levulinic acid is,

let me know when you find out. I want to know what caused Jackie's

pancreatitis but it seems it doesn't matter anymore. I mean the poor

pancreas is probably so damaged now. Although if there was a test

that could be done to find out I am sure I would go for it.

Let me know how you all are doing. Jackie ate some mashed potatoes a

little while ago and seems to be doing alright with eating. She said

she was starving. She keeps telling me what she wants for this meal

and that when she can eat. So looks like I will be cooking tonite,

LOL. If I can talk my tired self into it...the hospital makes a well

person sick sometimes. Talk to ya soon,

[Guest guest]

Hey Patty,

Yes our hospital requires a parent with the child, although with

Jackie's age I am sure we could leave during the day for a few hours.

I usually don't try just get my husband to stay with her then. The

hospital in the city next to us has the children's hospital with

everything you said...tv, vcr, nintendo, games, teen room with

computers, and the little kid play areas also. She would rather go

there but we had to go where her doctor here went at least one time.

I won't anymore...a stranger doctor can care for her, I heard we were

getting a new pediatric GI in the city near us, in February. So

hopefully this will come thru and we can start seeing him. This is

the hospital I have dealt with for the last two years but her

pediatric GI group moved to another state and we were left with none.

The Children's Hospital here is interviewing pediatric GI's so

hopefully this one that said he could start in February will work out.

I do not know what porphobilingen and amino-levulinic acid is,

let me know when you find out. I want to know what caused Jackie's

pancreatitis but it seems it doesn't matter anymore. I mean the poor

pancreas is probably so damaged now. Although if there was a test

that could be done to find out I am sure I would go for it.

Let me know how you all are doing. Jackie ate some mashed potatoes a

little while ago and seems to be doing alright with eating. She said

she was starving. She keeps telling me what she wants for this meal

and that when she can eat. So looks like I will be cooking tonite,

LOL. If I can talk my tired self into it...the hospital makes a well

person sick sometimes. Talk to ya soon,

[Guest guest]

Hey Patty,

Yes our hospital requires a parent with the child, although with

Jackie's age I am sure we could leave during the day for a few hours.

I usually don't try just get my husband to stay with her then. The

hospital in the city next to us has the children's hospital with

everything you said...tv, vcr, nintendo, games, teen room with

computers, and the little kid play areas also. She would rather go

there but we had to go where her doctor here went at least one time.

I won't anymore...a stranger doctor can care for her, I heard we were

getting a new pediatric GI in the city near us, in February. So

hopefully this will come thru and we can start seeing him. This is

the hospital I have dealt with for the last two years but her

pediatric GI group moved to another state and we were left with none.

The Children's Hospital here is interviewing pediatric GI's so

hopefully this one that said he could start in February will work out.

I do not know what porphobilingen and amino-levulinic acid is,

let me know when you find out. I want to know what caused Jackie's

pancreatitis but it seems it doesn't matter anymore. I mean the poor

pancreas is probably so damaged now. Although if there was a test

that could be done to find out I am sure I would go for it.

Let me know how you all are doing. Jackie ate some mashed potatoes a

little while ago and seems to be doing alright with eating. She said

she was starving. She keeps telling me what she wants for this meal

and that when she can eat. So looks like I will be cooking tonite,

LOL. If I can talk my tired self into it...the hospital makes a well

person sick sometimes. Talk to ya soon,