Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Hi, I'm tired too but I think it's because I'm unathletic. Was wondering if any of you drink lots of water and always gets thirsty. In know this other girl has rosacea and she drinks about as much water as I do. Even if drinking that much water weren't good for my health, I would still drink because I get so thirsty. Does anyone else have this thirst? Thanks, (new to group) smathewc sussexsi@...> wrote: It seems to me that not many people on this board talk about the emotional and psychological issues about rosacea, just medicinal issues - so I will... Does anyone elso feel that having rosacea makes them particularly tired - that day to day activities take more out of you than most other people? I gave a concert last night (I'm a musician). I knew I would flush at some stage, and of curse, by the second half I was crimson! The nervousness that I felt wasn't about the music, but about whether I would flush badly and how I would cope with it. Then, when I did flush, I had to cope with all the thoughts about what people were thinking looking at me, whether they would say anything, etc. I find this exhausting - today, I can hardly operate at all because I'm so tired - and I feel guilty because I'm not working as hard as I should be, and getting done what I should. Does anyone else identify with this - I do hope it's not just me!! Simon -- Please read the list highlights before posting to the whole group (http://rosacea.ii.net/toc.html). Your post will be delayed if you don't give a meaningful subject or trim your reply text. You must change the subject when replying to a digest ! See http://www.drnase.com for info on his recently published book. To leave the list send an email to rosacea-support-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Hey Simon. YOu're not alone - I feel the same way as you. the constant worrying and stress over our condition does take a large psychological toll. The fatigue might also be a sign of depression. I think you should consider seeing a doctor and perhaps see if you can get a prescription for something that might help you along day-to-day. You'd be surprised how effective some treatments can be in easing your anxiety -- at least until you kick the rosacea BTW: You wrote " Of curse " instead of " Of course " . I was wondering if that was intentional or a Freudian slip? > It seems to me that not many people on this board talk about the > emotional and psychological issues about rosacea, just medicinal > issues - so I will... > > Does anyone elso feel that having rosacea makes them particularly > tired - that day to day activities take more out of you than most > other people? I gave a concert last night (I'm a musician). I knew > I would flush at some stage, and of curse, by the second half I was > crimson! The nervousness that I felt wasn't about the music, but > about whether I would flush badly and how I would cope with it. > Then, when I did flush, I had to cope with all the thoughts about > what people were thinking looking at me, whether they would say > anything, etc. I find this exhausting - today, I can hardly operate > at all because I'm so tired - and I feel guilty because I'm not > working as hard as I should be, and getting done what I should. Does > anyone else identify with this - I do hope it's not just me!! > > Simon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Tiredness > It seems to me that not many people on this board talk about the > emotional and psychological issues about rosacea, just medicinal > issues - so I will... > > Does anyone elso feel that having rosacea makes them particularly > tired - that day to day activities take more out of you than most > other people? I gave a concert last night (I'm a musician). I knew > I would flush at some stage, and of curse, by the second half I was > crimson! The nervousness that I felt wasn't about the music, but > about whether I would flush badly and how I would cope with it. > Then, when I did flush, I had to cope with all the thoughts about > what people were thinking looking at me, whether they would say > anything, etc. I find this exhausting - today, I can hardly operate > at all because I'm so tired - and I feel guilty because I'm not > working as hard as I should be, and getting done what I should. Does > anyone else identify with this - I do hope it's not just me!! > > Simon Hi Simon I can totally relate. I've just recently started a new job involving customer service. It is fast paced and I work inside and outside. It can be cold outside and hot inside plus the stress of a new job. Also I live in the Northwest where it is usually cloudy and a red face really really stands out terribly to the point some people are even shocked. Previously I worked completely outside and didn't really pay as much attention to my condition. Anyway now I am very self-concious about flushing. I think the worst thing is that some people look down on red faces as being super heavy drinking alcholics. That is the worst part. I'm thinking very seriously about moving to a sunnier climate where I won't stand out quite so much even though the sun is bad for my skin. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 > Does anyone elso feel that having rosacea makes them particularly tired - that day to day activities take more out of you than most other people< Hi Thanks for a great post. I am both emotionally and physically drained with this cursed thing. I think that if dermos knew the toll that this has taken on some of our lives, then, at least, they would be a little more sympathetic. I know, I know. I am a supposedly mature 51 year old woman still ranting and raving about something over which I have no control. This feeling of loss of control (whether perceived or real ) is zapping me of energy. I try not to let it get to me, I honestly do but I am so afraid that something I might eat or drink or wear or say will make me flush or blush or flare and set off a whole chain of events that will make matter worse. This continually walking on eggs shells is almost unbearable. I don't understand what is going on with my face. I truly don't. Just thinking about what is going on makes me tired. then I have nothing left to give. No energy for things that I know will make me feel better but for now, they are too much for me to consider doing or participating in. For example, as many of you know I retired from a 30 year teaching career last June and I still try to maintain some contact with my colleagues. well, I supposed t meet them for a social this afternoon but I could not muster the desire or the energy to go. The worry of being there and the not knowing what this wretched face of mine mught decide to do was simply too great. I stayed at home. Now I feel guilty for not going. I am about ready for a nervous breakdown. I just want to feel numb. I don't want to have rosacea or sebderm anymore. wanting it to go away so badly is emotionally taxing as well. i have days when I don't think that I can bear another yet somehow I muster on. This is the time of my life when I thought that I could do all the things that I did not have the time or the money to do when I was younger and raising my son. Now what do I do. When I see or read those ads or those stupid brochures at the dermos, I could scream. they make rosacea seem so simple. Just wash with Cetaphil, use the topicals and camoflage the red . Be happy. watch those triggers. I got to end now since all this ranitng and raving is making me tired. all I want to do is curl up nd sleep. You know from Shakespear sleep that knits the ravelled sleeve of care to bed to bed, perchance to dream... dream of a cure, dream of not having this, of not hearing that cursed word, dreaming of washing my face without fear, dream of eating some pizza. dream of having a glass of wine to celebrate my 3oth anniversary, dream of going biking with my husband. All dreams. I am so tired. So tired. I am so relived that these words are being read by those who do not judge me as a sick, self centrered whiner. Those of us who have suffered ( yes, I say suffer ) from rosacea can understand. i am speaking from my heart thanks for listening. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 > Does anyone elso feel that having rosacea makes them particularly tired - that day to day activities take more out of you than most other people< Hi Thanks for a great post. I am both emotionally and physically drained with this cursed thing. I think that if dermos knew the toll that this has taken on some of our lives, then, at least, they would be a little more sympathetic. I know, I know. I am a supposedly mature 51 year old woman still ranting and raving about something over which I have no control. This feeling of loss of control (whether perceived or real ) is zapping me of energy. I try not to let it get to me, I honestly do but I am so afraid that something I might eat or drink or wear or say will make me flush or blush or flare and set off a whole chain of events that will make matter worse. This continually walking on eggs shells is almost unbearable. I don't understand what is going on with my face. I truly don't. Just thinking about what is going on makes me tired. then I have nothing left to give. No energy for things that I know will make me feel better but for now, they are too much for me to consider doing or participating in. For example, as many of you know I retired from a 30 year teaching career last June and I still try to maintain some contact with my colleagues. well, I supposed t meet them for a social this afternoon but I could not muster the desire or the energy to go. The worry of being there and the not knowing what this wretched face of mine mught decide to do was simply too great. I stayed at home. Now I feel guilty for not going. I am about ready for a nervous breakdown. I just want to feel numb. I don't want to have rosacea or sebderm anymore. wanting it to go away so badly is emotionally taxing as well. i have days when I don't think that I can bear another yet somehow I muster on. This is the time of my life when I thought that I could do all the things that I did not have the time or the money to do when I was younger and raising my son. Now what do I do. When I see or read those ads or those stupid brochures at the dermos, I could scream. they make rosacea seem so simple. Just wash with Cetaphil, use the topicals and camoflage the red . Be happy. watch those triggers. I got to end now since all this ranitng and raving is making me tired. all I want to do is curl up nd sleep. You know from Shakespear sleep that knits the ravelled sleeve of care to bed to bed, perchance to dream... dream of a cure, dream of not having this, of not hearing that cursed word, dreaming of washing my face without fear, dream of eating some pizza. dream of having a glass of wine to celebrate my 3oth anniversary, dream of going biking with my husband. All dreams. I am so tired. So tired. I am so relived that these words are being read by those who do not judge me as a sick, self centrered whiner. Those of us who have suffered ( yes, I say suffer ) from rosacea can understand. i am speaking from my heart thanks for listening. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 on 4/19/02 7:09 AM, Kwan at juliekwan80@... wrote: > > Hi, > I'm tired too but I think it's because I'm unathletic. Was wondering if any > of you drink lots of water and always gets thirsty. In know this other girl > has rosacea and she drinks about as much water as I do. Even if drinking that > much water weren't good for my health, I would still drink because I get so > thirsty. Does anyone else have this thirst? Have you ever been tested for diabetes? Extreme, unquenchable thirst is one of the symptoms. You might check into it if you are concerned! I always have more energetic which I am more active physically. carrie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2002 Report Share Posted April 20, 2002 I know that on a day to day basis I'm OK, but when I have a bad flare it can tale me a day or two to recover. All I want to do is sleep. Becky _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2002 Report Share Posted April 22, 2002 Have you been tested for Lupus? Tiredness > No, Simon --- it's not just you. I have spells of *crashing* fatigue > after a particularly bad rosacea episode. It goes like this: flush, > breakout of patches of pustules (raised, red and itchy), followed by > overwhelming fatigue and exhaustion --- all within the space of about > two or three hours. This part of my overall symptom profile (which also > includes migraines and some digestive problems) bothers me most, as it > seriously impairs my ability to function from time to time. > I had a comprehensive allergy testing session done last week, and the > results were sort of a good-news-bad-news thing: the good news is that > we know what you're allergic to, but the bad news is that it's most > grains and legumes (wheat and gluten being particularly bad), potatoes, > tomatoes, and sugar. And I already knew I had problems with dairy > products derived from cows' milk. Yikes. > I'm trying a sort of " jungle girl " diet, eliminating all those > potential allergens identified by the allergy testing (which I've been > eating all my life, of course), and substituting even more fruits and > vegetables (minus the baddies) and high-protein foods (especially > fish). So far, so good --- less inflammation, no flushing or fatigue. > > Pat > > > -- > Please read the list highlights before posting to the whole group (http://rosacea.ii.net/toc.html). Your post will be delayed if you don't give a meaningful subject or trim your reply text. You must change the subject when replying to a digest ! > > See http://www.drnase.com for info on his recently published book. > > To leave the list send an email to rosacea-support-unsubscribe > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2002 Report Share Posted April 22, 2002 wrote: > > Have you been tested for Lupus? Hi --- No, it never occurred to me that I might have Lupus. And as I mentioned, this " flushing-plus-crashing-fatigue " syndrome disappeared almost immediately as soon as I eliminated the offending food groups (grains and most legumes, plus potatoes, tomatoes and sugar) from my diet. I still have my distinctive rosacea redness and a few tiny pustules (it's only been a week, after all), but no more raised, red itchy patches (I think it's called " herpetiform " dermatitis, but it certainly didn't look anything like a snake to me!), and most significantly, *no more flushing*. Thanks for your helpful note, Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2002 Report Share Posted April 22, 2002 wrote: > > Have you been tested for Lupus? Hi --- No, it never occurred to me that I might have Lupus. And as I mentioned, this " flushing-plus-crashing-fatigue " syndrome disappeared almost immediately as soon as I eliminated the offending food groups (grains and most legumes, plus potatoes, tomatoes and sugar) from my diet. I still have my distinctive rosacea redness and a few tiny pustules (it's only been a week, after all), but no more raised, red itchy patches (I think it's called " herpetiform " dermatitis, but it certainly didn't look anything like a snake to me!), and most significantly, *no more flushing*. Thanks for your helpful note, Pat Quote Link to comment Share on other sites More sharing options...
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