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Re: Children Biting

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Shanna,

Eilish bite her brother when she was about 2-3. She only ever did this

once as I bit her back in the same spot. Then she knew how it felt and

has never done it again. It worked with us, but I know friends who

think I was terrible to bite my own child. Of course I wasn't Hannibal

Lecture LoL!

(Australia)

Re: Re: Consumption, TB, Asthma, Pneumonia Etc.

Etc.

Yah...Triana bites sometimes, but generally not during CPT. I told her

that if she bites me, I'll bite her back. (I don't actually bite her

back, but just telling her that makes her stop trying to bite...she

knows it hurts me when she does it.) I was holding her in my lap last

night while I played a game with some friends, and she just up and bit

me on my breast for no reason. I was not amused. Set her down in the

chair next to me and wouldn't pick her back up for the rest of the

evening. That made her extremely mad and unhappy, but hey, she'll

remember that next time.

We take care of her kicking by holding her legs down if she kicks us.

That makes her very mad. You only have to hold them still for 30

seconds or so until she gets the hint and stops trying to kick. She

hates being restrained in any way, which is why I think she hates

therapy so much...all that staying in one place, and having to be in

specific positions far longer than she'd prefer. The actual bopping

part doesn't seem to be a problem (except when we accidentally get her

hair in the way). It's the positioning that gets her upset.

We actually don't have a family history of kids or adults dying from any

of those types of things on either side of the family. My grandfather

had a set of twin siblings that died shortly after birth because their

spines were not covered, and a 7-year-old brother that died from some

contagious disease (forget what, but not lung-related) The other 10 of

his siblings died of old age or cancer. Grandpa died of complications

from hepatitis (gotten from a blood transfusion from before they checked

for that stuff). My grandma's sister died of lung cancer and her

brother is still living (as is my grandma). On the other side, my

grandparents' siblings all lived to adulthood with my grandpa's

half-sibs all living, and my grandma's sister died of old age

(complicated by Alzheimer's) and her brother is still living. My mom's

sister died at birth because of the cord, and her brother is still

living. Dad was an only child.

I don't know anything before my grandparents' generation; I have

genealogical info, but no idea what most of them died from. I'm

guessing our families have just lucked out for a few generations and not

married carriers...I just drew the CF straw. Oh well...

Hope you guys have better luck with the CPT...have you guys looked into

getting the vest yet? I'm just holding on till it gets here...

Shanna

mom of Triana, age 2 wcf

Re: Consumption, TB, Asthma, Pneumonia Etc. Etc.

All those years ago when children died young and no one had ever heard

of CF it wa always put down to either pneumonia or Consumption (which is

I think another name for TB). My Father-in-law remembers a younger

brother dying when he was about 7 years old of " TB " which we have

decided was probably CF. SO being 7 years old 70 years ago was pretty

good going for CF. Usually died within first year or two.

Shanna - your story about Triana and her Physio sounds very familiar

with Shelby who was 2 on 16th November. But she tops it off with biting

and kicking her mother - who has the bruises and bite marks to prove it.

Her psycologist said she was too young to react this way but we are

trying to get the psycologist to actually come to the house and watch

her as its getting physically impossible for her mother to do the CPT at

all. Shelby will allow our Home Care to do it and also most of the time

me. Although even with me she will struggle and wriggle about. We have

taken to trying to get her to bounce on a mini trampoline instead and

then try to blow us all over!

Love Grandma Maggs

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Yeah, that's what my mom did to me the one (and only) time I bit her. I'm

hoping to get Triana to see the light without having to actually do it that way.

Shanna

mom of Triana, age 2 wcf

Re: Consumption, TB, Asthma, Pneumonia Etc. Etc.

All those years ago when children died young and no one had ever heard

of CF it wa always put down to either pneumonia or Consumption (which is

I think another name for TB). My Father-in-law remembers a younger

brother dying when he was about 7 years old of " TB " which we have

decided was probably CF. SO being 7 years old 70 years ago was pretty

good going for CF. Usually died within first year or two.

Shanna - your story about Triana and her Physio sounds very familiar

with Shelby who was 2 on 16th November. But she tops it off with biting

and kicking her mother - who has the bruises and bite marks to prove it.

Her psycologist said she was too young to react this way but we are

trying to get the psycologist to actually come to the house and watch

her as its getting physically impossible for her mother to do the CPT at

all. Shelby will allow our Home Care to do it and also most of the time

me. Although even with me she will struggle and wriggle about. We have

taken to trying to get her to bounce on a mini trampoline instead and

then try to blow us all over!

Love Grandma Maggs

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