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To: Marjorie Re: Rhino

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Dear Marjorie,

You're right that most women will not progress to severe rhinophyma, but

mild rhinophyma is no picnic either.

I have a confirmed diagnosis of mild-stage rhinophyma by Dr. Alan

Shalita -- one of the world's leading dermatologists and an expert on

accutane. If you are interested in him, just do a search on the

Internet.

My rhinophyma is hereditary and is characterized by enlargement of the

sebaceous glands and pores. When my nose began swelling in January

2002, my pores also began to enlarge and produce more oil (I'm talking a

tremendous increase in oil). This happened very quickly. My nose would

also burn and pulsate. There were mornings when I truly looked

disfigured.

There are many variants of rhinophyma, as both Dr. Nase and Dr. Plewig

describe in their books.

My nose is now substantially different than it was when the swelling and

growth began, but accutane and V-Beam have seemed to stop the

progression of the disease.

Rhinophyma also has vascular and lymphatic components, making it a

complex disorder.

Dr. Nase talks about frequent flushing/flaring as triggering the

sebaceous gland to overact and kick-in. Again, this is rare, but it did

happen to me. My face would get very flushed after kickboxing or hot

compresses, although previously I had never been a flusher.

My mother also has rhinophyma, but it started much later in life for

her. She is 60 years old and has severely over active sebaceous glands

and nose enlargement.

Luckily, most women will not get rhinophyma, but that doesn't mean it

doesn't exist.

Heidi

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