Re: CP & STREES

December 18, 2002

Sorry to hear about your daughter. How horrible to deal with this at such a

young age. I cannot offer you help as far as the CP, but as for schooling, the

school system is required by law to give each child a proper education even if

it means a tutor comes to your home at their expense. Find a child advocate in

your area and discuss your issues. They are a huge help. Many of them deal

with the ADHD area daily and can deal with the pain issues as well. My aunt

used to be a child advocate and helped lots of children.

I hope this helps.

I wish you all the best.

Lanie

Hello to all,

I really need some help here. I have been a member for about 3

months now because of my daughter Cassie. I read everyone's posts

every day. I think I have finially found Cassie's attack trigger

only problem is I can't get any of her DR's to agree.

Several of you early on talked about the relationship between stress

and CP attacks. Where can I find information to back this so her

Dr's will back me on this.

Let me explain, Every morning she gets up and goes to school

sometime between 10 and noon she calls me to come home due to pain.

Her pain does not exist out side the school year. Last year she only

had 5 attacks the year before it was one. I can trace the events of

her life at those times to stress at school. Now comes our problem.

Cassie has ADHD as well as a non verbal learning disorder. She is

not on anything for the ADHD due to damage it can cause her liver and

she already has adnormal lab work for that. So she has this teacher

that she has for 3 classes. the 1st one is in the AM the other 2

after lunch. This woman stresses her out so much and picks on her

due to CP related absenses. and of course the usual " you don't look

sick to me " . I am now in a big fight with the school system trying

to get her away from this woman because her Dr's her locally have

never heard of this.

I really need to get this sitation resolved, my kid needs an

education she also needs to have pain free days just like the rest of

you also. We already have problems getting her any pain relief,

she's only 12 we wouldn't want to cause her to become addicted.

That's the Dr's not me unless her levels rise to 3x's normal and

she's throwing up they give her nothing. Yes, I have been trying for

2 months to get her referred to pain management. It's not the

insurance but the pain clinics, without a Dr's referal no

appointment.

Anyway we feel so helpless, this is my baby and I can't seem to get

anywhere with school or her Dr's. I got told by her GI in Portland

today that i knew more about SPINK1 mutation and it's relatioship to

CP than he did. Boy do I feel confident.

Help!

Patty and Family in Bangot ME

PANCREATITIS Association, Intl.

Online e-mail group

To reply to this message hit & quot;reply & quot; or send an e-mail to:

Pancreatitis (AT) Yahoo

December 19, 2002

I can say with certainty that stress is a contributor for my illness.

At least in my opinion. ;-)

I was a professional Microsoft Geek for a software dev company. Extreme

stress started during the Y2k scare. Long hours of testing, planning

and implementation on top of the normal job stressed everyone out. By

Feb 2000, I was the only one left of the team. Even my boss left. That

was when they told me they were not going to fill the missing positions

right away and I would have to keep up. I was supposed to support 358

workstations and 12 servers all by myself. It got so bad, I couldn't go

to the toilet without being chased down for some problem or other.

Well, 9 months later, they still had not hired replacements and I

couldn't take it anymore. My Panc just started acting up one day and

never stopped. I was diagnosed after an endoscopic ultrasound and have

been home ever since.

As I was not a drinker, my GI has never convinced me as to how this

happened. He only offers suggestions and possibilities. He is

currently of a mind the sphincter of oddi needs to be cut. Of course,

he tells me that its chances of success are limited and it could easily

cause a serious attack. So far, the threat of attack keeps me from

doing it. The pain scares me and if I can avoid it, all the better.

Anyway, it is my opinion it was long term exposure to stress and it

still has a significant impact on my health. Even today, as I get

frustrated with the doctors, debt collectors and skeptics, I can feel my

pain/nausea intensify in direct relation with that frustration.

To combat the stress issues, I like to hold my breath. For some reason,

the extra pressure my lungs put on my panc takes some of the pain away

and it can be relaxing taking slow, deep breathes between holding them.

It doesn't always help the pain, but it does help relax

K

CP & STREES