Guest guest Posted December 9, 2002 Report Share Posted December 9, 2002 n! Hello and thank you sooooooooooooo much for your response. How do you know all of this stuff? I am very impressed with your knowledge! You never fail to amaze me! I guess the remaining question is...What do I do now? Will the pulmonologist recognize this a significant? Or,....does it take a Genetic counselor to know about this kind of rare finding? I don't know much at all about my husbands family background. He is 33 yrs old and I managed to locate his Dad 2 years ago! Come to find out that Caden takes a lot after his Dad! He is left handed and so is he. Caden also has the same exact kidney problem as his great uncle (My husbands Dad's brother or Caden's grandfather's brother). Both have a small tube coming from the kidney to the bladder. The man wound up having his surgically fixed at age 15. My husband's dad has been married like 6 times! ha I don't know much about their background but have always felt like there is some Asian or something close to Asian in their family. Caden has epicanthelfolds on his eyes. Not as noticeable now that he is older. I need to investigate further. Really, I we would be Jessup's, if Mike had his Dad's last name. s is his mom's maiden name. What would you do now? I truly need some guidance here. My husband and I are both clueless about what to do. I figured something was up when they recommended genetic counseling. I don't think they do if they don't find anything do they? Well, I am thankful for all of the great information you have given me. I hate to push it and keep bothering you but I really don't have anywhere else to go and I have found that the best support come from those other than professionals (Dr's). Love, Krystena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2002 Report Share Posted December 10, 2002 This is quite a bit of inter- information. Especially allot of ???? I really do think the best way to get true ANSWERS is to get to the genetics folks you had the testing done & ask for some counselor there to answer/explain to you. You might also want to write to Asa at CFRI , she is a genetic counselor & has CF(as does her twin sister) & has Asian background/mixed as well .She is wonderful & soooo knowledgeable-both personally & medically & professionally. She is at Stanford U in Palo Alto,CA .She works with L.P Children's Hospital's CF center too. If you go to the www.CFRI.org website, contact Soohoo,program Director, & he will be able to direct you to her ##. 's for contacting. I have them at the office, but I am him right now. let me know if you need them from me .or Call me at 1- (toll free) YOU NEED ANSWERS ! LOVE & HUGS, GrandmomBEV n/ DNA n! Hello and thank you sooooooooooooo much for your response. How do you know all of this stuff? I am very impressed with your knowledge! You never fail to amaze me! I guess the remaining question is...What do I do now? Will the pulmonologist recognize this a significant? Or,....does it take a Genetic counselor to know about this kind of rare finding? I don't know much at all about my husbands family background. He is 33 yrs old and I managed to locate his Dad 2 years ago! Come to find out that Caden takes a lot after his Dad! He is left handed and so is he. Caden also has the same exact kidney problem as his great uncle (My husbands Dad's brother or Caden's grandfather's brother). Both have a small tube coming from the kidney to the bladder. The man wound up having his surgically fixed at age 15. My husband's dad has been married like 6 times! ha I don't know much about their background but have always felt like there is some Asian or something close to Asian in their family. Caden has epicanthelfolds on his eyes. Not as noticeable now that he is older. I need to investigate further. Really, I we would be Jessup's, if Mike had his Dad's last name. s is his mom's maiden name. What would you do now? I truly need some guidance here. My husband and I are both clueless about what to do. I figured something was up when they recommended genetic counseling. I don't think they do if they don't find anything do they? Well, I am thankful for all of the great information you have given me. I hate to push it and keep bothering you but I really don't have anywhere else to go and I have found that the best support come from those other than professionals (Dr's). Love, Krystena Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.