Re: CF and possible shingles?

[Guest guest]

Hi there, after a long time I speak up again. (Thanks Torsten for

reminding me about this list... I've had it on nomail forever because of my

crazy nutso life.)

My son (no CF) had a bumpy rash around that same age that turned out

to be pityriasis rosea (a cold virus that remains dormant and comes back as

a rash). He has had bad skin (eczema) ever since but nothing major.

Our pediatrician told me at the time that a child can get sick from someone

else with shingles or chicken pox, but they would not get shingles, but

rather, chicken pox. Perhaps popular opinion among pedis has changed since

then.

I have no idea how it might affect his CF other than possibly opening him up

for further viral infections?

Becky mom of Ricky (almost 7) with CF and Andy (4.5) no CF

CF and possible shingles?

Hey we just got back from PJ's 6 month well baby. Everything looks good

except he has a really bumpy rash on his shoulder. It JUST appeared today,

so the doc said it could be a staph infection? or possible shingles. So he

gave us some ointment to put on it and to keep an eye on it. If it spreads

or gets worse to call him. Anyone have any expierence with this? Also does

anyone know how on earth a 6 month old who has never had chicken poxs before

get this?? How will it affect his CF?

Any info would be great.

Jen A. mom to 4, Yolo 2 1/2 and Phynix 6 months all w/cf.

[Guest guest]

Hi Becky,

thanks for rejoining the list! It has changed quite a lot since

you've been here the last time. Hundreds of new parents and quite a

few from sunny California too. Hope that Ricky gets out of the club

in time for his birthday.

Peace

Torsten

> Hi there, after a long time I speak up again. (Thanks Torsten

for

> reminding me about this list... I've had it on nomail forever

because of my

> crazy nutso life.)

>

> My son (no CF) had a bumpy rash around that same age that

turned out

> to be pityriasis rosea (a cold virus that remains dormant and comes

back as

> a rash). He has had bad skin (eczema) ever since but nothing major.

>

> Our pediatrician told me at the time that a child can get sick from

someone

> else with shingles or chicken pox, but they would not get shingles,

but

> rather, chicken pox. Perhaps popular opinion among pedis has

changed since

> then.

>

> I have no idea how it might affect his CF other than possibly

opening him up

> for further viral infections?

>

> Becky mom of Ricky (almost 7) with CF and Andy (4.5) no CF

>

>

> CF and possible shingles?

>

>

>

> Hey we just got back from PJ's 6 month well baby. Everything looks

good

> except he has a really bumpy rash on his shoulder. It JUST

appeared today,

> so the doc said it could be a staph infection? or possible

shingles. So he

> gave us some ointment to put on it and to keep an eye on it. If it

spreads

> or gets worse to call him. Anyone have any expierence with this?

Also does

>

> anyone know how on earth a 6 month old who has never had chicken

poxs before

>

> get this?? How will it affect his CF?

>

>

> Any info would be great.

>

> Jen A. mom to 4, Yolo 2 1/2 and Phynix 6 months all w/cf.

>

>

>

>

>

>

[Guest guest]

Hi Becky,

thanks for rejoining the list! It has changed quite a lot since

you've been here the last time. Hundreds of new parents and quite a

few from sunny California too. Hope that Ricky gets out of the club

in time for his birthday.

Peace

Torsten

> Hi there, after a long time I speak up again. (Thanks Torsten

for

> reminding me about this list... I've had it on nomail forever

because of my

> crazy nutso life.)

>

> My son (no CF) had a bumpy rash around that same age that

turned out

> to be pityriasis rosea (a cold virus that remains dormant and comes

back as

> a rash). He has had bad skin (eczema) ever since but nothing major.

>

> Our pediatrician told me at the time that a child can get sick from

someone

> else with shingles or chicken pox, but they would not get shingles,

but

> rather, chicken pox. Perhaps popular opinion among pedis has

changed since

> then.

>

> I have no idea how it might affect his CF other than possibly

opening him up

> for further viral infections?

>

> Becky mom of Ricky (almost 7) with CF and Andy (4.5) no CF

>

>

> CF and possible shingles?

>

>

>

> Hey we just got back from PJ's 6 month well baby. Everything looks

good

> except he has a really bumpy rash on his shoulder. It JUST

appeared today,

> so the doc said it could be a staph infection? or possible

shingles. So he

> gave us some ointment to put on it and to keep an eye on it. If it

spreads

> or gets worse to call him. Anyone have any expierence with this?

Also does

>

> anyone know how on earth a 6 month old who has never had chicken

poxs before

>

> get this?? How will it affect his CF?

>

>

> Any info would be great.

>

> Jen A. mom to 4, Yolo 2 1/2 and Phynix 6 months all w/cf.

>

>

>

>

>

>

[Guest guest]

Hi Becky,

thanks for rejoining the list! It has changed quite a lot since

you've been here the last time. Hundreds of new parents and quite a

few from sunny California too. Hope that Ricky gets out of the club

in time for his birthday.

Peace

Torsten

> Hi there, after a long time I speak up again. (Thanks Torsten

for

> reminding me about this list... I've had it on nomail forever

because of my

> crazy nutso life.)

>

> My son (no CF) had a bumpy rash around that same age that

turned out

> to be pityriasis rosea (a cold virus that remains dormant and comes

back as

> a rash). He has had bad skin (eczema) ever since but nothing major.

>

> Our pediatrician told me at the time that a child can get sick from

someone

> else with shingles or chicken pox, but they would not get shingles,

but

> rather, chicken pox. Perhaps popular opinion among pedis has

changed since

> then.

>

> I have no idea how it might affect his CF other than possibly

opening him up

> for further viral infections?

>

> Becky mom of Ricky (almost 7) with CF and Andy (4.5) no CF

>

>

> CF and possible shingles?

>

>

>

> Hey we just got back from PJ's 6 month well baby. Everything looks

good

> except he has a really bumpy rash on his shoulder. It JUST

appeared today,

> so the doc said it could be a staph infection? or possible

shingles. So he

> gave us some ointment to put on it and to keep an eye on it. If it

spreads

> or gets worse to call him. Anyone have any expierence with this?

Also does

>

> anyone know how on earth a 6 month old who has never had chicken

poxs before

>

> get this?? How will it affect his CF?

>

>

> Any info would be great.

>

> Jen A. mom to 4, Yolo 2 1/2 and Phynix 6 months all w/cf.

>

>

>

>

>

>

[Guest guest]

Jen,

A person cannot develop shingles (herpes zoster) before first having

chicken pox (varicella zoster).

The only scenario would be if you contracted chicken pox while

pregnant. Phynix would then be exposed in utero, and of course no one

would see it. Later, he could present with shingles. Did you have

chicken pox while pregnant with Phynix?

Even if you had chicken pox has a child, there are some rare cases

where a person who had *very mild* chicken pox *can* get chicken pox a

second time.

But generally, once you have chicken pox you don't get it again; it

just lies dormant in your body. It is only when your immune system is

weak that the chicken pox virus rears up and becomes the shingles

virus. Most people who get shingles only have one outbreak in their

lifetimes, but those that are immune compromised can have more than

one outbreak.

Someone posted that their 13-year old had shingles; I've read about

other children and teens having it, but again this is rare (bet that

13-year old feels not-so-special). I know adults who have had

outbreaks of shingles, but I would seriously question a shingles

diagnosis in a six-month old who has not yet had a confirmed case of

chicken pox.

Your doctor should do an antibody test on Phynix to rule out shingles,

and I'm wondering why he didn't do this especially because you have

other children at home.

Have you, your husband and other children already had chicken pox?

For those who haven't had chicken pox -- and if Phynix really *does*

have shingles -- then Phynix is exposing everyone to *chicken pox*

(*not* shingles). (Confusing, isn't it?)

The doctor's diagnosis is also suspicious because a shingles outbreak

follows nerve pathways; the virus lies dormant in nerve cells near the

spine, so an outbreak is mainly seen like a belt around the

midsection. Adults I know that were diagnosed with shingles all said

they felt truly awful, fever and lots of pain (one woman I worked with

broke out on her trunk, all around the midsection front and back, and

down one side of her face, was vomiting and ran a fever for days).

You noted that the rash is on Phynix's shoulder, which isn't a

commonly affected area for shingles, but then again... uncommon things

can happen to anyone but this is still why I'd demand an antibody

test if the doctor insists its shingles.

I would also question whether its a localized staph infection on the

shoulder, unless Phynix had a cut or sore at that site that allowed

staph to take hold in that area.

Was Phynix recently on an antibiotic? It's not uncommon for a rash or

hives to occur while on an antibiotic or even days after finishing the

antibiotic (this happened to my daughter and to the son of a friend

three days after they finished amoxicillian). My son and I both get

weird patchy rashes on Bactrim, so doctors won't prescribe it for us

anymore.

Also, though it's an uncommon site to start the rash, Phynix may have

exzema. You might want to pay attention to his essential fatty acid

levels; if these are too low (as they are in people with CF) then you

might consider getting omega-3's into him, especially the omega-3 DHA.

I recently read a study that in males with CF, they have lower DHA

than females with CF, or don't convert it as well... something like

that. But we already know people with CF are just overall way too low

in the omega-3 essential fatty acid DHA, and this causes many

problems.

Btw: my son's pediatrician saw a case of neonatal chicken pox; he said

it's very rare. He said because there's a 10 to 14-day incubation

period this meant the baby was exposed while still in utero because

the baby showed up with chicken pox at age 7 days.

Thinking of you and hope you find an answer soon. Maybe Phynix doesn't

get along well with whatever soap or clothing detergent you're using?

And sometimes scabies looks like a rash...

Kim

Mom to (23 with cf and asthma) and (20 asthma, no cf)

Hey we just got back from PJ's 6 month well baby. Everything looks

good except he has a really bumpy rash on his shoulder. It JUST

appeared today, so the doc said it could be a staph infection? or

possible shingles. So he gave us some ointment to put on it and to

keep an eye on it. If it spreads or gets worse to call him. Anyone

have any expierence with this? Also does anyone know how on earth a 6

month old who has never had chicken poxs before get this?? How will

it affect his CF?

Any info would be great.

Jen A. mom to 4, Yolo 2 1/2 and Phynix 6 months all w/cf.

[Guest guest]

Sounds like it could be chickenpox, too.

And don't let 'em tell you they can't get it after having the immunization...not

true! Triana got 'em after having the shot. (Of course, that's just

genetics...I had them twice, too...a really bad case when I was 2, and a

super-duper bad case when I was 17.) Doc said the fact that I had them twice

probably had something to do with her getting them twice. (My doc had told me

that 1 in 10 people's immune systems just sort of " forget " they've had them.)

Of course, it could just be a simple rash.

Shanna

mom of Triana, age 2 wcf

CF and possible shingles?

Hey we just got back from PJ's 6 month well baby. Everything looks good

except he has a really bumpy rash on his shoulder. It JUST appeared today,

so the doc said it could be a staph infection? or possible shingles. So he

gave us some ointment to put on it and to keep an eye on it. If it spreads

or gets worse to call him. Anyone have any expierence with this? Also does

anyone know how on earth a 6 month old who has never had chicken poxs before

get this?? How will it affect his CF?

Any info would be great.

Jen A. mom to 4, Yolo 2 1/2 and Phynix 6 months all w/cf.

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The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

[Guest guest]

Sounds like it could be chickenpox, too.

And don't let 'em tell you they can't get it after having the immunization...not

true! Triana got 'em after having the shot. (Of course, that's just

genetics...I had them twice, too...a really bad case when I was 2, and a

super-duper bad case when I was 17.) Doc said the fact that I had them twice

probably had something to do with her getting them twice. (My doc had told me

that 1 in 10 people's immune systems just sort of " forget " they've had them.)

Of course, it could just be a simple rash.

Shanna

mom of Triana, age 2 wcf

CF and possible shingles?

Hey we just got back from PJ's 6 month well baby. Everything looks good

except he has a really bumpy rash on his shoulder. It JUST appeared today,

so the doc said it could be a staph infection? or possible shingles. So he

gave us some ointment to put on it and to keep an eye on it. If it spreads

or gets worse to call him. Anyone have any expierence with this? Also does

anyone know how on earth a 6 month old who has never had chicken poxs before

get this?? How will it affect his CF?

Any info would be great.

Jen A. mom to 4, Yolo 2 1/2 and Phynix 6 months all w/cf.

_________________________________________________________________

Protect your PC - get McAfee.com VirusScan Online

http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------