RE: babyfood and scandishake questions

November 2, 2002

Being sick always seems to interfere with growth for Jake. It sounds

like the enzyme increase will probably also help.

Flax seed oil is just that -- oil from flax seeds. It is available at

health food stores. It's pretty expensive, and I started using it

because it contains the plant forms of omega-3s, alpha-linolenic acid,

or LNA. I guess there is some question as to whether the body can

actually convert LNA to DHA...so I'm not sure 100% if there is benefit.

We still use it because it works for us. I save money by using it only

with breakfast foods and then use olive oil for other times.

)O(

mama to , 2yo, wCF and alpha-1

and to , 4 yo, w/alpha-1 but no CF

RE: babyfood and scandishake questions

,

Kennedy was diagnosed at 3 months of age. At that time she was at 5% for

weight. She made it up to the 50th percentile and at her clinic visit 2

weeks ago fell back down to about 25%. We are not sure why she fell off

the

growth curve. She has been sick alot lately. She went from having a cold

for

3 weeks to having pneunomia and now she has had another cold for about a

week now. The doc also upped her enzymes from 2 plain ultrase capsules

to 1

ultrase MT12. He did this because her BMs were large and frequent, not

necessarily because they were greasy.

As for the breastfeeding, I think that it is very important and have no

intention of stoping. Unfortunately, I cannot keep up with her. She eats

every 2 hours. I was hoping to introduce a little more food to her diet

to

give myself a break. I think the avocados are an excellent idea. I will

have

to mash them up because she is not ready for slices or pieces of

anything.

What exactly is flax seed oil and where can I buy some??

Thanks for your input!

Holly(mother of Cheyenne, 4 1/2 years w/o CF and Kennedy, 8 months w/

CF)

November 2, 2002

Hi doesnt ScandiPharm make those little sprinkles you put on food, not only the

shakes, they like disappear in the food, she could use those, my son never used

them so Im not sure of the name but Im sure they are Scandi something or other.

They ate calories to the food. It might be called Scandical now that I am

thinking of it, Ask at your CF center they should get it for you. Hope that

helps Cindy

babyfood and scandishake questions

Hi everyone,

I have an 8 month old daughter that I am trying to make gain weight. She

drinks mostly breastmilk and I also give her babyfood mixed with cereal. I

asked her dietician and the only thing she recomended doing was adding

formula to the breastmilk and to continue to add cereal to her babyfood. I

think Kennedy is actually losing out on fat and calories by eating babyfood.

A jar of babyfood has about 25 calories and 0 or 1 grams of fat. 1/2 serving

of baby cereal has 30 calories and 1/4 of a gram of fat. She eats this in

place of one breastfeeding session. I am assuming she drinks ATLEAST 5

ounces of breatmilk, which would be 100 calories. Do you see what I am

saying? Is she to young for me to be adding other things to her

babyfood....like butter?? Can someone give me some ideas of things to add to

babyfood either now or in the next few months to add fat and calories?

Also, we just switched enzymes. She used to take plain ultrase, and would

get them for free along with ADEK's. Now she is taking ultrase MT12's and

they sent us free scandishakes. I am assuming that she is too young to drink

these as they are suppose to be mixed with milk. Is there something else I

can mix the scandishakes with or should I wait until she starts drinking

regular milk?

Thank you in advance for any replies......

Holly (mother of Cheyenne, 4 1/2 years w/o CF and Kennedy, 8 months w/ CF)

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November 2, 2002