Re: pancreas removal....????

[Guest guest]

I was told is was because of the blood vessel network. If they were

to remove the complete pancreas it would have far reaching effects

into the way the heart pumps. This is why they only remove 60-70% and

try to save the middle. The will leave in damaged pancreas. Another

reason is the sudden flair of diabetes. Usually the person has no

diabetes before hand and they fear the risks are to great to throw a

person straight into brittle diabetes. I think the slow arrival of

diabetes helped me learn how to control it better. If I started out

with brittle diabetes, it would have killed me before I knew how to

handled it. This is what I remember during a very bad time. I have no

webpage, just personal experience. This about it on a Saturday night,

Hope everyone is feeling like a million bucks!!!

> Does anyone know why a lot of doctors are so against removing the

> pancreas? I have asked several doctors and they just say Jackie is

> young and we are hoping for a better cure. Or they say that is too

> extreme for her right now. I will be asking the docs at MUSC

because

> Dr Cotton is one that said this to me too. So next time I go I

will

> be asking for more details. But do any of ya'll know why they are

so

> against it? Besides they would probably lose a ton of money...that

> one is obvious. Thanks,

[Guest guest]

Theresa,

My surgeon also heads up the Islet Reseach Center at Baylor College of

Medicine in Houston. He thinks that within the next 3 years we will see

incredible breakthroughs in the fields of pancreatic surgery and diabetes

management. If you can possibly hold out it would be in your best

interest. New Islet Cell Autotransplant procedures, Whole organ pancreatic

transplants, stem cell research, genetic research and antirejection

research are all on the verge of exciting discoveries or of human

trials. He has me holding off on my pancreatectomy just for these reasons.

We all have to do our own research and make our own decisions. I think Dr.

Cotton is of the Same thought as Dr. Brunicardi. Keeping the organ in

place gives you more options once the discoveries are made available to you.

Chuck

At 08:59 PM 8/31/2002 +0000, you wrote:

>Does anyone know why a lot of doctors are so against removing the

>pancreas? I have asked several doctors and they just say Jackie is

>young and we are hoping for a better cure. Or they say that is too

>extreme for her right now. I will be asking the docs at MUSC because

>Dr Cotton is one that said this to me too. So next time I go I will

>be asking for more details. But do any of ya'll know why they are so

>against it? Besides they would probably lose a ton of money...that

>one is obvious. Thanks,

Chuck Sullivan

chuck@...

" When in command, Take charge. When faced with a decision, do what is

right. Nothing else matters. " - Gen. Norman Schwarzkopf

[Guest guest]

,

I have now been told by several supposing " knowledgeable " doc the removing the

pancreas does help. They believe that it just causes more problems, such as

brittle diabetics and since the pain could be coming from something else like

scar tissue, that removing it won't help. But so far, they haven't convince me

it wouldn't help me, as I still looking into having it done, as I'm already a

diabetic.

Take Care,

Louie in WV

pancreas removal....????

Does anyone know why a lot of doctors are so against removing the

pancreas? I have asked several doctors and they just say Jackie is

young and we are hoping for a better cure. Or they say that is too

extreme for her right now. I will be asking the docs at MUSC because

Dr Cotton is one that said this to me too. So next time I go I will

be asking for more details. But do any of ya'll know why they are so

against it? Besides they would probably lose a ton of money...that

one is obvious. Thanks,

[Guest guest]

,

I have now been told by several supposing " knowledgeable " doc the removing the

pancreas does help. They believe that it just causes more problems, such as

brittle diabetics and since the pain could be coming from something else like

scar tissue, that removing it won't help. But so far, they haven't convince me

it wouldn't help me, as I still looking into having it done, as I'm already a

diabetic.

Take Care,

Louie in WV

pancreas removal....????

Does anyone know why a lot of doctors are so against removing the

pancreas? I have asked several doctors and they just say Jackie is

young and we are hoping for a better cure. Or they say that is too

extreme for her right now. I will be asking the docs at MUSC because

Dr Cotton is one that said this to me too. So next time I go I will

be asking for more details. But do any of ya'll know why they are so

against it? Besides they would probably lose a ton of money...that

one is obvious. Thanks,

[Guest guest]

,

I had a whipple last January. They were able to leave part of the

pancreas. But my doctors wanted to leave it as the last possible option.

In some cases the symptoms start to ease on thier own.

rob

[Guest guest]

,

I had a whipple last January. They were able to leave part of the

pancreas. But my doctors wanted to leave it as the last possible option.

In some cases the symptoms start to ease on thier own.

rob

[Guest guest]

,

I had a whipple last January. They were able to leave part of the

pancreas. But my doctors wanted to leave it as the last possible option.

In some cases the symptoms start to ease on thier own.

rob

[Guest guest]

,

same here as Chuck. Holding our for all the good

possibilities which are currently just out of reach.

They are doing so much that it should only be in about 5

years where we can see better luck at transplants (ie. ones

where you don't need to take immunosuppressives- a big

plus). I believe a couple of topics in the symposium touch

on this subject. Any possibility you and Jackie could make

it to the symposium? if not, you can always buy the tape

later and still be able to hear the lecture on these.

kimber

--

Kimber

Vallejo, CA

hominid2@...

Southwest Representative

Pancreatitis Association, International

[Guest guest]

I'm in the same club - perhaps we need to start having monthly meetings.

Haha.

I know that a new, better solution is not too far away; currently just

beyond out grasp, but not for long, based on the kinds of research that are

currently underway and need only to come together under one roof to find a

viable solution; be it organ transplant w/o immunosuppressives, islet

transfer, islet transplant, more automated insulin injection options, along

with advancement in the pain management field in the meantime - or who knows

what else... So much more that I'm not even aware of yet.

Everybody has to weigh their own odds and options; right now, my pain is not

severe enough or often enough to trade in for auto-brittle; so I keep

praying, and waiting, and hoping. And praying some more.

Peace,

Terry in KC

PS... I still have LAST year's video... Kimber, is it YOU that I owe it to??

<< ,

same here as Chuck. Holding our for all the good

possibilities which are currently just out of reach.

They are doing so much that it should only be in about 5

years where we can see better luck at transplants (ie. ones

where you don't need to take immunosuppressives- a big

plus). I believe a couple of topics in the symposium touch

on this subject. Any possibility you and Jackie could make

it to the symposium? if not, you can always buy the tape

later and still be able to hear the lecture on these.

kimber >>