Re: My Daughter has had Chronic Pancreatitis since she was five!

[Guest guest]

,

I am so sorry that you and your family have to deal with this terrible disease.

I am glad that you found us though... You will find a lot of inspiration and

information here along with an abundance of support. We have several parents

here with children that have CP, and some that are trying to raise families and

deal with their own CP. You will not be at a loss for information from them.

I'm not sure what could be causing Kaseys pain but have they checked her for the

CF gene? (Cystic fibrosis) That has been brought up several times here. Or

could she be like me and have Pancreas divisum? I have had problems with mine

for as long as I can remember but it never got bad until I was pregnant with my

third child (who is now 12) and since then it has gotten progressively worse.

There are several areas to look for information on either of these problems, but

if you have a problem finding them, just holler...someone here will point you in

the right direction!

Welcome and Kasey! We are so Gald to have you here!!!

{{{HUGZ and Prayers}}}

(In Michigan)

---------------------------------

[Guest guest]

,

I am so sorry that you and your family have to deal with this terrible disease.

I am glad that you found us though... You will find a lot of inspiration and

information here along with an abundance of support. We have several parents

here with children that have CP, and some that are trying to raise families and

deal with their own CP. You will not be at a loss for information from them.

I'm not sure what could be causing Kaseys pain but have they checked her for the

CF gene? (Cystic fibrosis) That has been brought up several times here. Or

could she be like me and have Pancreas divisum? I have had problems with mine

for as long as I can remember but it never got bad until I was pregnant with my

third child (who is now 12) and since then it has gotten progressively worse.

There are several areas to look for information on either of these problems, but

if you have a problem finding them, just holler...someone here will point you in

the right direction!

Welcome and Kasey! We are so Gald to have you here!!!

{{{HUGZ and Prayers}}}

(In Michigan)

---------------------------------

[Guest guest]

,

I am so sorry that you and your family have to deal with this terrible disease.

I am glad that you found us though... You will find a lot of inspiration and

information here along with an abundance of support. We have several parents

here with children that have CP, and some that are trying to raise families and

deal with their own CP. You will not be at a loss for information from them.

I'm not sure what could be causing Kaseys pain but have they checked her for the

CF gene? (Cystic fibrosis) That has been brought up several times here. Or

could she be like me and have Pancreas divisum? I have had problems with mine

for as long as I can remember but it never got bad until I was pregnant with my

third child (who is now 12) and since then it has gotten progressively worse.

There are several areas to look for information on either of these problems, but

if you have a problem finding them, just holler...someone here will point you in

the right direction!

Welcome and Kasey! We are so Gald to have you here!!!

{{{HUGZ and Prayers}}}

(In Michigan)

---------------------------------

[Guest guest]

Hi ,

I am sorry your daughter has this illness but am glad you found the

group. You sound like I felt when I first found the group. And this

group is wonderful. I would be lost without them. My daughter,

Jackie, is thirteen. She was 10 1/2 when she had her first attack.

She is now in daily chronic pain since May of 2001, and like your

daughter they do not know why she has chronic pancreatitis. If you

can find the stories section of our group you can read Jackie's

story. I don't have the exact address for it as my computer died

awhile back and " being a computer dummy " I lost all of my sites,

favorites etc...but I can give you the run down if you like. Just

ask me anything. So where do you live...we live in the upstate of

South Carolina. My daughter would email your daughter if you like.

She likes to talk to other kids that has to deal with what she does.

Well, I hope to talk to ya soon,

[Guest guest]

Hi ,

I am sorry your daughter has this illness but am glad you found the

group. You sound like I felt when I first found the group. And this

group is wonderful. I would be lost without them. My daughter,

Jackie, is thirteen. She was 10 1/2 when she had her first attack.

She is now in daily chronic pain since May of 2001, and like your

daughter they do not know why she has chronic pancreatitis. If you

can find the stories section of our group you can read Jackie's

story. I don't have the exact address for it as my computer died

awhile back and " being a computer dummy " I lost all of my sites,

favorites etc...but I can give you the run down if you like. Just

ask me anything. So where do you live...we live in the upstate of

South Carolina. My daughter would email your daughter if you like.

She likes to talk to other kids that has to deal with what she does.

Well, I hope to talk to ya soon,

[Guest guest]

> Hi ,

> I am sorry your daughter has this illness but am glad you found the

> group. ...If you

> can find the stories section of our group you can read Jackie's

> story. I don't have the exact address for it as my computer died

> awhile back

fyi - Jackie's story can be found at:

http://www.pancassociation.org/anthology.html#jackie

Cheers,

--Tull

Assistant Moderator

Pancreatitis Association, Int'l

[Guest guest]

> Hi ,

> I am sorry your daughter has this illness but am glad you found the

> group. ...If you

> can find the stories section of our group you can read Jackie's

> story. I don't have the exact address for it as my computer died

> awhile back

fyi - Jackie's story can be found at:

http://www.pancassociation.org/anthology.html#jackie

Cheers,

--Tull

Assistant Moderator

Pancreatitis Association, Int'l

[Guest guest]

> Hi ,

> I am sorry your daughter has this illness but am glad you found the

> group. ...If you

> can find the stories section of our group you can read Jackie's

> story. I don't have the exact address for it as my computer died

> awhile back

fyi - Jackie's story can be found at:

http://www.pancassociation.org/anthology.html#jackie

Cheers,

--Tull

Assistant Moderator

Pancreatitis Association, Int'l

[Guest guest]

,

I don't have chronic panc, I have recurring acute panc for now. My attacks are

very much like your daughter's. Fine one minute, in horrendous pain the next.

Mine seem more likely to hit in the evening than the morning, though. But I

have had some hit in the morning. My hospital stays are much like hers. Levels

are up and then back down in just a few days. They first couldn't decide what

was causing it with me, but they are now pretty sure it is the bile duct and the

sphincter of oddi. I had an ERCP and they put a stent in the duct on Wednesday.

As of this afternoon, I think I am improving. This morning I wasn't so sure.

The stent is only temporary because the GI couldn't safely make the cut in the

bile duct because I've had a previous gastric bypass. However, I learned today

that the GI discussed my case with another GI and my surgeon and has decided he

can do the sphincterotomy through ERCP with a different sphinterome tool. So,

instead of having surgery, I'll just have to have another ERCP.

What all types of tests have they done on your daughter?

It is so hard to see your child sick, expecially with something as painful as

pancreatitis.

My Daughter has had Chronic Pancreatitis since she was

five!

Hi Everyone,

My name is , and thanks to my best friend, I just found

this group today. I can't believe it!

My Daughter, Kasey, is eleven years old and has been in and out

of " attacks " since she was five. I do not know everything about the

disease, but I do know quite a bit. But from what I have heard and

seen, Kasey is like an exception to every rule for Pacncreatitis.

When all of the Doctors discovered what she had, they couldn't

believe it. They told me that it was very rare for children to get

it, especially girls. Then they told me the way she gets it is

different. They can not figure out why she gets it, and why she can

go almost a year without an attack and then only go for a few weeks

at a time without getting sick.

I have so many questions to ask all of you, but I will not load them

all into one email. She just got out of the hospital a few hours ago,

so I will share with you how one of her typical attacks go.

Thursday, August 29th she is running around like anormal eleven year

old, enjoying being home after just finishing her second day of sixth

grade. Then she wakes up Friday morning screaming in pain (it is

always when she wakes up in the morning) We knew right away that she

was having an attack for two reasons, 1) the look on her face (when

the pain is too high, she zones herself out...doctors say that people

do that to help themselvesdeal with massive pain) 2) the smell of her

breath (weird, I know, but she gets a very distinct breath odor when

she has her attacks) so my Husband took her to the emergency room

where they always proceed to check her Amilase and Lipase levels,

then admit her (she does have home health care, but they were having

problems with her port & we were out of Morphine and the Toradol was

not strong enough this time. No food or drink, no moving. The pain

usually lasts for 24 to 48 hours sometimes more, but not normally,

then after going 24 hours without pain, they start clear liquids, in

this case that was Monday. After 24 hours on liquids with still no

pain, then they proceed to a bland solid diet, then after being able

to handle that they will let her go home. (they check her blood

levels daily so they can ,make sure they are progressively going

down) Then that is it! Her attack is done. Nothing that lasts for

months at a time or anything.

They have tested her for EVERYTHING and they do not know " why " she

gets this.

OK I am done for now, I am so glad that I am part of this group now!

[Guest guest]

Hi ,

Sorry to hear about your daughter having pancreatitis too. I suffer from

recurring pancreatitis. My son is 8 years old and he has trouble eating greasy

or certain types of foods like me. His digestive system is very sensitive like

mine. His pediatrician is aware that I suffer from chronic pancreatitis, but she

hasn't checked my son's amylase and lipase levels yet. I pray that he doesn't

have this awful disease.

Weston wrote:,

I don't have chronic panc, I have recurring acute panc for now. My attacks are

very much like your daughter's. Fine one minute, in horrendous pain the next.

Mine seem more likely to hit in the evening than the morning, though. But I

have had some hit in the morning. My hospital stays are much like hers. Levels

are up and then back down in just a few days. They first couldn't decide what

was causing it with me, but they are now pretty sure it is the bile duct and the

sphincter of oddi. I had an ERCP and they put a stent in the duct on Wednesday.

As of this afternoon, I think I am improving. This morning I wasn't so sure.

The stent is only temporary because the GI couldn't safely make the cut in the

bile duct because I've had a previous gastric bypass. However, I learned today

that the GI discussed my case with another GI and my surgeon and has decided he

can do the sphincterotomy through ERCP with a different sphinterome tool. So,

instead of having surgery, I'll just have to have another ERCP.

What all types of tests have they done on your daughter?

It is so hard to see your child sick, expecially with something as painful as

pancreatitis.

My Daughter has had Chronic Pancreatitis since she was

five!

Hi Everyone,

My name is , and thanks to my best friend, I just found

this group today. I can't believe it!

My Daughter, Kasey, is eleven years old and has been in and out

of " attacks " since she was five. I do not know everything about the

disease, but I do know quite a bit. But from what I have heard and

seen, Kasey is like an exception to every rule for Pacncreatitis.

When all of the Doctors discovered what she had, they couldn't

believe it. They told me that it was very rare for children to get

it, especially girls. Then they told me the way she gets it is

different. They can not figure out why she gets it, and why she can

go almost a year without an attack and then only go for a few weeks

at a time without getting sick.

I have so many questions to ask all of you, but I will not load them

all into one email. She just got out of the hospital a few hours ago,

so I will share with you how one of her typical attacks go.

Thursday, August 29th she is running around like anormal eleven year

old, enjoying being home after just finishing her second day of sixth

grade. Then she wakes up Friday morning screaming in pain (it is

always when she wakes up in the morning) We knew right away that she

was having an attack for two reasons, 1) the look on her face (when

the pain is too high, she zones herself out...doctors say that people

do that to help themselvesdeal with massive pain) 2) the smell of her

breath (weird, I know, but she gets a very distinct breath odor when

she has her attacks) so my Husband took her to the emergency room

where they always proceed to check her Amilase and Lipase levels,

then admit her (she does have home health care, but they were having

problems with her port & we were out of Morphine and the Toradol was

not strong enough this time. No food or drink, no moving. The pain

usually lasts for 24 to 48 hours sometimes more, but not normally,

then after going 24 hours without pain, they start clear liquids, in

this case that was Monday. After 24 hours on liquids with still no

pain, then they proceed to a bland solid diet, then after being able

to handle that they will let her go home. (they check her blood

levels daily so they can ,make sure they are progressively going

down) Then that is it! Her attack is done. Nothing that lasts for

months at a time or anything.

They have tested her for EVERYTHING and they do not know " why " she

gets this.

OK I am done for now, I am so glad that I am part of this group now!

[Guest guest]

Hi ,

Sorry to hear about your daughter having pancreatitis too. I suffer from

recurring pancreatitis. My son is 8 years old and he has trouble eating greasy

or certain types of foods like me. His digestive system is very sensitive like

mine. His pediatrician is aware that I suffer from chronic pancreatitis, but she

hasn't checked my son's amylase and lipase levels yet. I pray that he doesn't

have this awful disease.

Weston wrote:,

I don't have chronic panc, I have recurring acute panc for now. My attacks are

very much like your daughter's. Fine one minute, in horrendous pain the next.

Mine seem more likely to hit in the evening than the morning, though. But I

have had some hit in the morning. My hospital stays are much like hers. Levels

are up and then back down in just a few days. They first couldn't decide what

was causing it with me, but they are now pretty sure it is the bile duct and the

sphincter of oddi. I had an ERCP and they put a stent in the duct on Wednesday.

As of this afternoon, I think I am improving. This morning I wasn't so sure.

The stent is only temporary because the GI couldn't safely make the cut in the

bile duct because I've had a previous gastric bypass. However, I learned today

that the GI discussed my case with another GI and my surgeon and has decided he

can do the sphincterotomy through ERCP with a different sphinterome tool. So,

instead of having surgery, I'll just have to have another ERCP.

What all types of tests have they done on your daughter?

It is so hard to see your child sick, expecially with something as painful as

pancreatitis.

My Daughter has had Chronic Pancreatitis since she was

five!

Hi Everyone,

My name is , and thanks to my best friend, I just found

this group today. I can't believe it!

My Daughter, Kasey, is eleven years old and has been in and out

of " attacks " since she was five. I do not know everything about the

disease, but I do know quite a bit. But from what I have heard and

seen, Kasey is like an exception to every rule for Pacncreatitis.

When all of the Doctors discovered what she had, they couldn't

believe it. They told me that it was very rare for children to get

it, especially girls. Then they told me the way she gets it is

different. They can not figure out why she gets it, and why she can

go almost a year without an attack and then only go for a few weeks

at a time without getting sick.

I have so many questions to ask all of you, but I will not load them

all into one email. She just got out of the hospital a few hours ago,

so I will share with you how one of her typical attacks go.

Thursday, August 29th she is running around like anormal eleven year

old, enjoying being home after just finishing her second day of sixth

grade. Then she wakes up Friday morning screaming in pain (it is

always when she wakes up in the morning) We knew right away that she

was having an attack for two reasons, 1) the look on her face (when

the pain is too high, she zones herself out...doctors say that people

do that to help themselvesdeal with massive pain) 2) the smell of her

breath (weird, I know, but she gets a very distinct breath odor when

she has her attacks) so my Husband took her to the emergency room

where they always proceed to check her Amilase and Lipase levels,

then admit her (she does have home health care, but they were having

problems with her port & we were out of Morphine and the Toradol was

not strong enough this time. No food or drink, no moving. The pain

usually lasts for 24 to 48 hours sometimes more, but not normally,

then after going 24 hours without pain, they start clear liquids, in

this case that was Monday. After 24 hours on liquids with still no

pain, then they proceed to a bland solid diet, then after being able

to handle that they will let her go home. (they check her blood

levels daily so they can ,make sure they are progressively going

down) Then that is it! Her attack is done. Nothing that lasts for

months at a time or anything.

They have tested her for EVERYTHING and they do not know " why " she

gets this.

OK I am done for now, I am so glad that I am part of this group now!

[Guest guest]

Hi ,

Sorry to hear about your daughter having pancreatitis too. I suffer from

recurring pancreatitis. My son is 8 years old and he has trouble eating greasy

or certain types of foods like me. His digestive system is very sensitive like

mine. His pediatrician is aware that I suffer from chronic pancreatitis, but she

hasn't checked my son's amylase and lipase levels yet. I pray that he doesn't

have this awful disease.

Weston wrote:,

I don't have chronic panc, I have recurring acute panc for now. My attacks are

very much like your daughter's. Fine one minute, in horrendous pain the next.

Mine seem more likely to hit in the evening than the morning, though. But I

have had some hit in the morning. My hospital stays are much like hers. Levels

are up and then back down in just a few days. They first couldn't decide what

was causing it with me, but they are now pretty sure it is the bile duct and the

sphincter of oddi. I had an ERCP and they put a stent in the duct on Wednesday.

As of this afternoon, I think I am improving. This morning I wasn't so sure.

The stent is only temporary because the GI couldn't safely make the cut in the

bile duct because I've had a previous gastric bypass. However, I learned today

that the GI discussed my case with another GI and my surgeon and has decided he

can do the sphincterotomy through ERCP with a different sphinterome tool. So,

instead of having surgery, I'll just have to have another ERCP.

What all types of tests have they done on your daughter?

It is so hard to see your child sick, expecially with something as painful as

pancreatitis.

My Daughter has had Chronic Pancreatitis since she was

five!

Hi Everyone,

My name is , and thanks to my best friend, I just found

this group today. I can't believe it!

My Daughter, Kasey, is eleven years old and has been in and out

of " attacks " since she was five. I do not know everything about the

disease, but I do know quite a bit. But from what I have heard and

seen, Kasey is like an exception to every rule for Pacncreatitis.

When all of the Doctors discovered what she had, they couldn't

believe it. They told me that it was very rare for children to get

it, especially girls. Then they told me the way she gets it is

different. They can not figure out why she gets it, and why she can

go almost a year without an attack and then only go for a few weeks

at a time without getting sick.

I have so many questions to ask all of you, but I will not load them

all into one email. She just got out of the hospital a few hours ago,

so I will share with you how one of her typical attacks go.

Thursday, August 29th she is running around like anormal eleven year

old, enjoying being home after just finishing her second day of sixth

grade. Then she wakes up Friday morning screaming in pain (it is

always when she wakes up in the morning) We knew right away that she

was having an attack for two reasons, 1) the look on her face (when

the pain is too high, she zones herself out...doctors say that people

do that to help themselvesdeal with massive pain) 2) the smell of her

breath (weird, I know, but she gets a very distinct breath odor when

she has her attacks) so my Husband took her to the emergency room

where they always proceed to check her Amilase and Lipase levels,

then admit her (she does have home health care, but they were having

problems with her port & we were out of Morphine and the Toradol was

not strong enough this time. No food or drink, no moving. The pain

usually lasts for 24 to 48 hours sometimes more, but not normally,

then after going 24 hours without pain, they start clear liquids, in

this case that was Monday. After 24 hours on liquids with still no

pain, then they proceed to a bland solid diet, then after being able

to handle that they will let her go home. (they check her blood

levels daily so they can ,make sure they are progressively going

down) Then that is it! Her attack is done. Nothing that lasts for

months at a time or anything.

They have tested her for EVERYTHING and they do not know " why " she

gets this.

OK I am done for now, I am so glad that I am part of this group now!

[Guest guest]

Hi ,

I am glad to hear that an ERCP will be performed instead of surgery. Kasey

has had four ERCP's done, but when they get in there they can't seem to find

anything wrong. Dr. Howle said that hopefully just having the tubes going

through the duct work that might help her a little. Well, it didn't and never

has, but they keep trying. Dr. Fox from the Childrens Hospital in Boston has

performed one on her too, but he said it was unsuccessful, he couldn't get

in...well that was a wasted trip for us (about a 4 -5 hour drive)

When they first found out that Kasey had Chronic Idiopathic Pancreatitis, they

ran all of the tests to see why...the Cf, sweat test (numerous times) never been

in a car accident, never been hit in the stomach, she certainly isn't an

alcoholic (especially at five years old), I can't think of the other ones right

now, but they have told me that they have run them all many times, kind of

hoping that something shows up. Sounds demented, but it would be nice to know

" Why " she gets this. Nobody in my or my Hubby's family has ever had it...well,

my Mother was adopted and knows nothing about her birth Family, but she herself

doesn't have any signs, or my Brothers.

Kasey will be 12 in January of 2003 and she is 5'2 " and weighs about 170 lbs.

She is not this little fragile girl, she never has been. And that really boggles

the doctors because she has been on a low fat diet for years and she is on IV

fluids so much that you would think that she would be a twig. But I guess it is

because she doesn't do sports, she is not very active at all, which I completely

understand that is normal for someone that has so much trauma to her stomach.

Her Doctors have her on Viokase (enzymes) (2 w/ every time she eats), Pepcid

(twice a day) and he has her on Oxyquenchers (2 a day) which are all of the

antioxidants and minerals that she needs I guess....she hates taking those

though.

So does all of this sound normal? Is there more that we should be doing?

I love this group!

Godbout

Your Partner in Success!

http://angelag.themomteam.com

My Daughter has had Chronic Pancreatitis since she

was five!

Hi Everyone,

My name is , and thanks to my best friend, I just found

this group today. I can't believe it!

My Daughter, Kasey, is eleven years old and has been in and out

of " attacks " since she was five. I do not know everything about the

disease, but I do know quite a bit. But from what I have heard and

seen, Kasey is like an exception to every rule for Pacncreatitis.

When all of the Doctors discovered what she had, they couldn't

believe it. They told me that it was very rare for children to get

it, especially girls. Then they told me the way she gets it is

different. They can not figure out why she gets it, and why she can

go almost a year without an attack and then only go for a few weeks

at a time without getting sick.

I have so many questions to ask all of you, but I will not load them

all into one email. She just got out of the hospital a few hours ago,

so I will share with you how one of her typical attacks go.

Thursday, August 29th she is running around like anormal eleven year

old, enjoying being home after just finishing her second day of sixth

grade. Then she wakes up Friday morning screaming in pain (it is

always when she wakes up in the morning) We knew right away that she

was having an attack for two reasons, 1) the look on her face (when

the pain is too high, she zones herself out...doctors say that people

do that to help themselvesdeal with massive pain) 2) the smell of her

breath (weird, I know, but she gets a very distinct breath odor when

she has her attacks) so my Husband took her to the emergency room

where they always proceed to check her Amilase and Lipase levels,

then admit her (she does have home health care, but they were having

problems with her port & we were out of Morphine and the Toradol was

not strong enough this time. No food or drink, no moving. The pain

usually lasts for 24 to 48 hours sometimes more, but not normally,

then after going 24 hours without pain, they start clear liquids, in

this case that was Monday. After 24 hours on liquids with still no

pain, then they proceed to a bland solid diet, then after being able

to handle that they will let her go home. (they check her blood

levels daily so they can ,make sure they are progressively going

down) Then that is it! Her attack is done. Nothing that lasts for

months at a time or anything.

They have tested her for EVERYTHING and they do not know " why " she

gets this.

OK I am done for now, I am so glad that I am part of this group now!

[Guest guest]

Hi ,

I am glad to hear that an ERCP will be performed instead of surgery. Kasey

has had four ERCP's done, but when they get in there they can't seem to find

anything wrong. Dr. Howle said that hopefully just having the tubes going

through the duct work that might help her a little. Well, it didn't and never

has, but they keep trying. Dr. Fox from the Childrens Hospital in Boston has

performed one on her too, but he said it was unsuccessful, he couldn't get

in...well that was a wasted trip for us (about a 4 -5 hour drive)

When they first found out that Kasey had Chronic Idiopathic Pancreatitis, they

ran all of the tests to see why...the Cf, sweat test (numerous times) never been

in a car accident, never been hit in the stomach, she certainly isn't an

alcoholic (especially at five years old), I can't think of the other ones right

now, but they have told me that they have run them all many times, kind of

hoping that something shows up. Sounds demented, but it would be nice to know

" Why " she gets this. Nobody in my or my Hubby's family has ever had it...well,

my Mother was adopted and knows nothing about her birth Family, but she herself

doesn't have any signs, or my Brothers.

Kasey will be 12 in January of 2003 and she is 5'2 " and weighs about 170 lbs.

She is not this little fragile girl, she never has been. And that really boggles

the doctors because she has been on a low fat diet for years and she is on IV

fluids so much that you would think that she would be a twig. But I guess it is

because she doesn't do sports, she is not very active at all, which I completely

understand that is normal for someone that has so much trauma to her stomach.

Her Doctors have her on Viokase (enzymes) (2 w/ every time she eats), Pepcid

(twice a day) and he has her on Oxyquenchers (2 a day) which are all of the

antioxidants and minerals that she needs I guess....she hates taking those

though.

So does all of this sound normal? Is there more that we should be doing?

I love this group!

Godbout

Your Partner in Success!

http://angelag.themomteam.com

My Daughter has had Chronic Pancreatitis since she

was five!

Hi Everyone,

My name is , and thanks to my best friend, I just found

this group today. I can't believe it!

My Daughter, Kasey, is eleven years old and has been in and out

of " attacks " since she was five. I do not know everything about the

disease, but I do know quite a bit. But from what I have heard and

seen, Kasey is like an exception to every rule for Pacncreatitis.

When all of the Doctors discovered what she had, they couldn't

believe it. They told me that it was very rare for children to get

it, especially girls. Then they told me the way she gets it is

different. They can not figure out why she gets it, and why she can

go almost a year without an attack and then only go for a few weeks

at a time without getting sick.

I have so many questions to ask all of you, but I will not load them

all into one email. She just got out of the hospital a few hours ago,

so I will share with you how one of her typical attacks go.

Thursday, August 29th she is running around like anormal eleven year

old, enjoying being home after just finishing her second day of sixth

grade. Then she wakes up Friday morning screaming in pain (it is

always when she wakes up in the morning) We knew right away that she

was having an attack for two reasons, 1) the look on her face (when

the pain is too high, she zones herself out...doctors say that people

do that to help themselvesdeal with massive pain) 2) the smell of her

breath (weird, I know, but she gets a very distinct breath odor when

she has her attacks) so my Husband took her to the emergency room

where they always proceed to check her Amilase and Lipase levels,

then admit her (she does have home health care, but they were having

problems with her port & we were out of Morphine and the Toradol was

not strong enough this time. No food or drink, no moving. The pain

usually lasts for 24 to 48 hours sometimes more, but not normally,

then after going 24 hours without pain, they start clear liquids, in

this case that was Monday. After 24 hours on liquids with still no

pain, then they proceed to a bland solid diet, then after being able

to handle that they will let her go home. (they check her blood

levels daily so they can ,make sure they are progressively going

down) Then that is it! Her attack is done. Nothing that lasts for

months at a time or anything.

They have tested her for EVERYTHING and they do not know " why " she

gets this.

OK I am done for now, I am so glad that I am part of this group now!

[Guest guest]

Hi ,

I am glad to hear that an ERCP will be performed instead of surgery. Kasey

has had four ERCP's done, but when they get in there they can't seem to find

anything wrong. Dr. Howle said that hopefully just having the tubes going

through the duct work that might help her a little. Well, it didn't and never

has, but they keep trying. Dr. Fox from the Childrens Hospital in Boston has

performed one on her too, but he said it was unsuccessful, he couldn't get

in...well that was a wasted trip for us (about a 4 -5 hour drive)

When they first found out that Kasey had Chronic Idiopathic Pancreatitis, they

ran all of the tests to see why...the Cf, sweat test (numerous times) never been

in a car accident, never been hit in the stomach, she certainly isn't an

alcoholic (especially at five years old), I can't think of the other ones right

now, but they have told me that they have run them all many times, kind of

hoping that something shows up. Sounds demented, but it would be nice to know

" Why " she gets this. Nobody in my or my Hubby's family has ever had it...well,

my Mother was adopted and knows nothing about her birth Family, but she herself

doesn't have any signs, or my Brothers.

Kasey will be 12 in January of 2003 and she is 5'2 " and weighs about 170 lbs.

She is not this little fragile girl, she never has been. And that really boggles

the doctors because she has been on a low fat diet for years and she is on IV

fluids so much that you would think that she would be a twig. But I guess it is

because she doesn't do sports, she is not very active at all, which I completely

understand that is normal for someone that has so much trauma to her stomach.

Her Doctors have her on Viokase (enzymes) (2 w/ every time she eats), Pepcid

(twice a day) and he has her on Oxyquenchers (2 a day) which are all of the

antioxidants and minerals that she needs I guess....she hates taking those

though.

So does all of this sound normal? Is there more that we should be doing?

I love this group!

Godbout

Your Partner in Success!

http://angelag.themomteam.com

My Daughter has had Chronic Pancreatitis since she

was five!

Hi Everyone,

My name is , and thanks to my best friend, I just found

this group today. I can't believe it!

My Daughter, Kasey, is eleven years old and has been in and out

of " attacks " since she was five. I do not know everything about the

disease, but I do know quite a bit. But from what I have heard and

seen, Kasey is like an exception to every rule for Pacncreatitis.

When all of the Doctors discovered what she had, they couldn't

believe it. They told me that it was very rare for children to get

it, especially girls. Then they told me the way she gets it is

different. They can not figure out why she gets it, and why she can

go almost a year without an attack and then only go for a few weeks

at a time without getting sick.

I have so many questions to ask all of you, but I will not load them

all into one email. She just got out of the hospital a few hours ago,

so I will share with you how one of her typical attacks go.

Thursday, August 29th she is running around like anormal eleven year

old, enjoying being home after just finishing her second day of sixth

grade. Then she wakes up Friday morning screaming in pain (it is

always when she wakes up in the morning) We knew right away that she

was having an attack for two reasons, 1) the look on her face (when

the pain is too high, she zones herself out...doctors say that people

do that to help themselvesdeal with massive pain) 2) the smell of her

breath (weird, I know, but she gets a very distinct breath odor when

she has her attacks) so my Husband took her to the emergency room

where they always proceed to check her Amilase and Lipase levels,

then admit her (she does have home health care, but they were having

problems with her port & we were out of Morphine and the Toradol was

not strong enough this time. No food or drink, no moving. The pain

usually lasts for 24 to 48 hours sometimes more, but not normally,

then after going 24 hours without pain, they start clear liquids, in

this case that was Monday. After 24 hours on liquids with still no

pain, then they proceed to a bland solid diet, then after being able

to handle that they will let her go home. (they check her blood

levels daily so they can ,make sure they are progressively going

down) Then that is it! Her attack is done. Nothing that lasts for

months at a time or anything.

They have tested her for EVERYTHING and they do not know " why " she

gets this.

OK I am done for now, I am so glad that I am part of this group now!

[Guest guest]

Thank you ,

I am sorry to hear that yours has gotten so much worse. But I am curious

about what kinds of things started to happen as they got worse? I am praying

that doesn't happen to Kasey, but I would like to have a clue just in case

something different does happen.

Godbout

Your Partner in Success!

http://angelag.themomteam.com

Re: My Daughter has had Chronic Pancreatitis since she

was five!

> Hi Everyone,

>

> My name is , and thanks to my best friend, I just found

> this group today. I can't believe it!

>

> My Daughter, Kasey, is eleven years old and has been in and out

> of " attacks " since she was five. I do not know everything about

the

> disease, but I do know quite a bit. But from what I have heard and

> seen, Kasey is like an exception to every rule for Pacncreatitis.

> When all of the Doctors discovered what she had, they couldn't

> believe it. They told me that it was very rare for children to get

> it, especially girls. Then they told me the way she gets it is

> different. They can not figure out why she gets it, and why she

can

> go almost a year without an attack and then only go for a few

weeks

> at a time without getting sick.

>

> I have so many questions to ask all of you, but I will not load

them

> all into one email. She just got out of the hospital a few hours

ago,

> so I will share with you how one of her typical attacks go.

>

> Thursday, August 29th she is running around like anormal eleven

year

> old, enjoying being home after just finishing her second day of

sixth

> grade. Then she wakes up Friday morning screaming in pain (it is

> always when she wakes up in the morning) We knew right away that

she

> was having an attack for two reasons, 1) the look on her face

(when

> the pain is too high, she zones herself out...doctors say that

people

> do that to help themselvesdeal with massive pain) 2) the smell of

her

> breath (weird, I know, but she gets a very distinct breath odor

when

> she has her attacks) so my Husband took her to the emergency room

> where they always proceed to check her Amilase and Lipase levels,

> then admit her (she does have home health care, but they were

having

> problems with her port & we were out of Morphine and the Toradol

was

> not strong enough this time. No food or drink, no moving. The pain

> usually lasts for 24 to 48 hours sometimes more, but not normally,

> then after going 24 hours without pain, they start clear liquids,

in

> this case that was Monday. After 24 hours on liquids with still no

> pain, then they proceed to a bland solid diet, then after being

able

> to handle that they will let her go home. (they check her blood

> levels daily so they can ,make sure they are progressively going

> down) Then that is it! Her attack is done. Nothing that lasts for

> months at a time or anything.

>

> They have tested her for EVERYTHING and they do not know " why " she

> gets this.

>

> OK I am done for now, I am so glad that I am part of this group

now!

Hi. My name is and I am 22 years of age and I too had

pancreatitis when I was a child. My doctors too were astonished that

I had pancreatitis as a child. They couldn't figure anything out

either at first. When I first had problems they were the same as

your daughters. I would have a flare up and then after 48 hours or

so I would be pretty much fine. I too would go for awhile with no

problems at all and then have several in the space of a few weeks or

months. Unfornately mine progressed rapidly into much more serious

problems which required 4 different surgeries before I have started

to feel somewhat normal again. I hope and pray that this will not be

the case with your daughter but that they find something out soon

that they can do to help her.

Keep us posted with what happens.

You are in my prayers as you deal with this.

[Guest guest]

Thank you ,

I am sorry to hear that yours has gotten so much worse. But I am curious

about what kinds of things started to happen as they got worse? I am praying

that doesn't happen to Kasey, but I would like to have a clue just in case

something different does happen.

Godbout

Your Partner in Success!

http://angelag.themomteam.com

Re: My Daughter has had Chronic Pancreatitis since she

was five!

> Hi Everyone,

>

> My name is , and thanks to my best friend, I just found

> this group today. I can't believe it!

>

> My Daughter, Kasey, is eleven years old and has been in and out

> of " attacks " since she was five. I do not know everything about

the

> disease, but I do know quite a bit. But from what I have heard and

> seen, Kasey is like an exception to every rule for Pacncreatitis.

> When all of the Doctors discovered what she had, they couldn't

> believe it. They told me that it was very rare for children to get

> it, especially girls. Then they told me the way she gets it is

> different. They can not figure out why she gets it, and why she

can

> go almost a year without an attack and then only go for a few

weeks

> at a time without getting sick.

>

> I have so many questions to ask all of you, but I will not load

them

> all into one email. She just got out of the hospital a few hours

ago,

> so I will share with you how one of her typical attacks go.

>

> Thursday, August 29th she is running around like anormal eleven

year

> old, enjoying being home after just finishing her second day of

sixth

> grade. Then she wakes up Friday morning screaming in pain (it is

> always when she wakes up in the morning) We knew right away that

she

> was having an attack for two reasons, 1) the look on her face

(when

> the pain is too high, she zones herself out...doctors say that

people

> do that to help themselvesdeal with massive pain) 2) the smell of

her

> breath (weird, I know, but she gets a very distinct breath odor

when

> she has her attacks) so my Husband took her to the emergency room

> where they always proceed to check her Amilase and Lipase levels,

> then admit her (she does have home health care, but they were

having

> problems with her port & we were out of Morphine and the Toradol

was

> not strong enough this time. No food or drink, no moving. The pain

> usually lasts for 24 to 48 hours sometimes more, but not normally,

> then after going 24 hours without pain, they start clear liquids,

in

> this case that was Monday. After 24 hours on liquids with still no

> pain, then they proceed to a bland solid diet, then after being

able

> to handle that they will let her go home. (they check her blood

> levels daily so they can ,make sure they are progressively going

> down) Then that is it! Her attack is done. Nothing that lasts for

> months at a time or anything.

>

> They have tested her for EVERYTHING and they do not know " why " she

> gets this.

>

> OK I am done for now, I am so glad that I am part of this group

now!

Hi. My name is and I am 22 years of age and I too had

pancreatitis when I was a child. My doctors too were astonished that

I had pancreatitis as a child. They couldn't figure anything out

either at first. When I first had problems they were the same as

your daughters. I would have a flare up and then after 48 hours or

so I would be pretty much fine. I too would go for awhile with no

problems at all and then have several in the space of a few weeks or

months. Unfornately mine progressed rapidly into much more serious

problems which required 4 different surgeries before I have started

to feel somewhat normal again. I hope and pray that this will not be

the case with your daughter but that they find something out soon

that they can do to help her.

Keep us posted with what happens.

You are in my prayers as you deal with this.

[Guest guest]

Thank you ,

I am sorry to hear that yours has gotten so much worse. But I am curious

about what kinds of things started to happen as they got worse? I am praying

that doesn't happen to Kasey, but I would like to have a clue just in case

something different does happen.

Godbout

Your Partner in Success!

http://angelag.themomteam.com

Re: My Daughter has had Chronic Pancreatitis since she

was five!

> Hi Everyone,

>

> My name is , and thanks to my best friend, I just found

> this group today. I can't believe it!

>

> My Daughter, Kasey, is eleven years old and has been in and out

> of " attacks " since she was five. I do not know everything about

the

> disease, but I do know quite a bit. But from what I have heard and

> seen, Kasey is like an exception to every rule for Pacncreatitis.

> When all of the Doctors discovered what she had, they couldn't

> believe it. They told me that it was very rare for children to get

> it, especially girls. Then they told me the way she gets it is

> different. They can not figure out why she gets it, and why she

can

> go almost a year without an attack and then only go for a few

weeks

> at a time without getting sick.

>

> I have so many questions to ask all of you, but I will not load

them

> all into one email. She just got out of the hospital a few hours

ago,

> so I will share with you how one of her typical attacks go.

>

> Thursday, August 29th she is running around like anormal eleven

year

> old, enjoying being home after just finishing her second day of

sixth

> grade. Then she wakes up Friday morning screaming in pain (it is

> always when she wakes up in the morning) We knew right away that

she

> was having an attack for two reasons, 1) the look on her face

(when

> the pain is too high, she zones herself out...doctors say that

people

> do that to help themselvesdeal with massive pain) 2) the smell of

her

> breath (weird, I know, but she gets a very distinct breath odor

when

> she has her attacks) so my Husband took her to the emergency room

> where they always proceed to check her Amilase and Lipase levels,

> then admit her (she does have home health care, but they were

having

> problems with her port & we were out of Morphine and the Toradol

was

> not strong enough this time. No food or drink, no moving. The pain

> usually lasts for 24 to 48 hours sometimes more, but not normally,

> then after going 24 hours without pain, they start clear liquids,

in

> this case that was Monday. After 24 hours on liquids with still no

> pain, then they proceed to a bland solid diet, then after being

able

> to handle that they will let her go home. (they check her blood

> levels daily so they can ,make sure they are progressively going

> down) Then that is it! Her attack is done. Nothing that lasts for

> months at a time or anything.

>

> They have tested her for EVERYTHING and they do not know " why " she

> gets this.

>

> OK I am done for now, I am so glad that I am part of this group

now!

Hi. My name is and I am 22 years of age and I too had

pancreatitis when I was a child. My doctors too were astonished that

I had pancreatitis as a child. They couldn't figure anything out

either at first. When I first had problems they were the same as

your daughters. I would have a flare up and then after 48 hours or

so I would be pretty much fine. I too would go for awhile with no

problems at all and then have several in the space of a few weeks or

months. Unfornately mine progressed rapidly into much more serious

problems which required 4 different surgeries before I have started

to feel somewhat normal again. I hope and pray that this will not be

the case with your daughter but that they find something out soon

that they can do to help her.

Keep us posted with what happens.

You are in my prayers as you deal with this.

[Guest guest]

> Hi Everyone,

>

> My name is , and thanks to my best friend, I just found

> this group today. I can't believe it!

>

> My Daughter, Kasey, is eleven years old and has been in and out

> of " attacks " since she was five. I do not know everything about

the

> disease, but I do know quite a bit. But from what I have heard and

> seen, Kasey is like an exception to every rule for Pacncreatitis.

> When all of the Doctors discovered what she had, they couldn't

> believe it. They told me that it was very rare for children to get

> it, especially girls. Then they told me the way she gets it is

> different. They can not figure out why she gets it, and why she

can

> go almost a year without an attack and then only go for a few

weeks

> at a time without getting sick.

>

> I have so many questions to ask all of you, but I will not load

them

> all into one email. She just got out of the hospital a few hours

ago,

> so I will share with you how one of her typical attacks go.

>

> Thursday, August 29th she is running around like anormal eleven

year

> old, enjoying being home after just finishing her second day of

sixth

> grade. Then she wakes up Friday morning screaming in pain (it is

> always when she wakes up in the morning) We knew right away that

she

> was having an attack for two reasons, 1) the look on her face

(when

> the pain is too high, she zones herself out...doctors say that

people

> do that to help themselvesdeal with massive pain) 2) the smell of

her

> breath (weird, I know, but she gets a very distinct breath odor

when

> she has her attacks) so my Husband took her to the emergency room

> where they always proceed to check her Amilase and Lipase levels,

> then admit her (she does have home health care, but they were

having

> problems with her port & we were out of Morphine and the Toradol

was

> not strong enough this time. No food or drink, no moving. The pain

> usually lasts for 24 to 48 hours sometimes more, but not normally,

> then after going 24 hours without pain, they start clear liquids,

in

> this case that was Monday. After 24 hours on liquids with still no

> pain, then they proceed to a bland solid diet, then after being

able

> to handle that they will let her go home. (they check her blood

> levels daily so they can ,make sure they are progressively going

> down) Then that is it! Her attack is done. Nothing that lasts for

> months at a time or anything.

>

> They have tested her for EVERYTHING and they do not know " why " she

> gets this.

>

> OK I am done for now, I am so glad that I am part of this group

now!

Hi. My name is and I am 22 years of age and I too had

pancreatitis when I was a child. My doctors too were astonished that

I had pancreatitis as a child. They couldn't figure anything out

either at first. When I first had problems they were the same as

your daughters. I would have a flare up and then after 48 hours or

so I would be pretty much fine. I too would go for awhile with no

problems at all and then have several in the space of a few weeks or

months. Unfornately mine progressed rapidly into much more serious

problems which required 4 different surgeries before I have started

to feel somewhat normal again. I hope and pray that this will not be

the case with your daughter but that they find something out soon

that they can do to help her.

Keep us posted with what happens.

You are in my prayers as you deal with this.

[Guest guest]

> Hi Everyone,

>

> My name is , and thanks to my best friend, I just found

> this group today. I can't believe it!

>

> My Daughter, Kasey, is eleven years old and has been in and out

> of " attacks " since she was five. I do not know everything about

the

> disease, but I do know quite a bit. But from what I have heard and

> seen, Kasey is like an exception to every rule for Pacncreatitis.

> When all of the Doctors discovered what she had, they couldn't

> believe it. They told me that it was very rare for children to get

> it, especially girls. Then they told me the way she gets it is

> different. They can not figure out why she gets it, and why she

can

> go almost a year without an attack and then only go for a few

weeks

> at a time without getting sick.

>

> I have so many questions to ask all of you, but I will not load

them

> all into one email. She just got out of the hospital a few hours

ago,

> so I will share with you how one of her typical attacks go.

>

> Thursday, August 29th she is running around like anormal eleven

year

> old, enjoying being home after just finishing her second day of

sixth

> grade. Then she wakes up Friday morning screaming in pain (it is

> always when she wakes up in the morning) We knew right away that

she

> was having an attack for two reasons, 1) the look on her face

(when

> the pain is too high, she zones herself out...doctors say that

people

> do that to help themselvesdeal with massive pain) 2) the smell of

her

> breath (weird, I know, but she gets a very distinct breath odor

when

> she has her attacks) so my Husband took her to the emergency room

> where they always proceed to check her Amilase and Lipase levels,

> then admit her (she does have home health care, but they were

having

> problems with her port & we were out of Morphine and the Toradol

was

> not strong enough this time. No food or drink, no moving. The pain

> usually lasts for 24 to 48 hours sometimes more, but not normally,

> then after going 24 hours without pain, they start clear liquids,

in

> this case that was Monday. After 24 hours on liquids with still no

> pain, then they proceed to a bland solid diet, then after being

able

> to handle that they will let her go home. (they check her blood

> levels daily so they can ,make sure they are progressively going

> down) Then that is it! Her attack is done. Nothing that lasts for

> months at a time or anything.

>

> They have tested her for EVERYTHING and they do not know " why " she

> gets this.

>

> OK I am done for now, I am so glad that I am part of this group

now!

Hi. My name is and I am 22 years of age and I too had

pancreatitis when I was a child. My doctors too were astonished that

I had pancreatitis as a child. They couldn't figure anything out

either at first. When I first had problems they were the same as

your daughters. I would have a flare up and then after 48 hours or

so I would be pretty much fine. I too would go for awhile with no

problems at all and then have several in the space of a few weeks or

months. Unfornately mine progressed rapidly into much more serious

problems which required 4 different surgeries before I have started

to feel somewhat normal again. I hope and pray that this will not be

the case with your daughter but that they find something out soon

that they can do to help her.

Keep us posted with what happens.

You are in my prayers as you deal with this.

[Guest guest]

> Hi Everyone,

>

> My name is , and thanks to my best friend, I just found

> this group today. I can't believe it!

>

> My Daughter, Kasey, is eleven years old and has been in and out

> of " attacks " since she was five. I do not know everything about

the

> disease, but I do know quite a bit. But from what I have heard and

> seen, Kasey is like an exception to every rule for Pacncreatitis.

> When all of the Doctors discovered what she had, they couldn't

> believe it. They told me that it was very rare for children to get

> it, especially girls. Then they told me the way she gets it is

> different. They can not figure out why she gets it, and why she

can

> go almost a year without an attack and then only go for a few

weeks

> at a time without getting sick.

>

> I have so many questions to ask all of you, but I will not load

them

> all into one email. She just got out of the hospital a few hours

ago,

> so I will share with you how one of her typical attacks go.

>

> Thursday, August 29th she is running around like anormal eleven

year

> old, enjoying being home after just finishing her second day of

sixth

> grade. Then she wakes up Friday morning screaming in pain (it is

> always when she wakes up in the morning) We knew right away that

she

> was having an attack for two reasons, 1) the look on her face

(when

> the pain is too high, she zones herself out...doctors say that

people

> do that to help themselvesdeal with massive pain) 2) the smell of

her

> breath (weird, I know, but she gets a very distinct breath odor

when

> she has her attacks) so my Husband took her to the emergency room

> where they always proceed to check her Amilase and Lipase levels,

> then admit her (she does have home health care, but they were

having

> problems with her port & we were out of Morphine and the Toradol

was

> not strong enough this time. No food or drink, no moving. The pain

> usually lasts for 24 to 48 hours sometimes more, but not normally,

> then after going 24 hours without pain, they start clear liquids,

in

> this case that was Monday. After 24 hours on liquids with still no

> pain, then they proceed to a bland solid diet, then after being

able

> to handle that they will let her go home. (they check her blood

> levels daily so they can ,make sure they are progressively going

> down) Then that is it! Her attack is done. Nothing that lasts for

> months at a time or anything.

>

> They have tested her for EVERYTHING and they do not know " why " she

> gets this.

>

> OK I am done for now, I am so glad that I am part of this group

now!

Hi. My name is and I am 22 years of age and I too had

pancreatitis when I was a child. My doctors too were astonished that

I had pancreatitis as a child. They couldn't figure anything out

either at first. When I first had problems they were the same as

your daughters. I would have a flare up and then after 48 hours or

so I would be pretty much fine. I too would go for awhile with no

problems at all and then have several in the space of a few weeks or

months. Unfornately mine progressed rapidly into much more serious

problems which required 4 different surgeries before I have started

to feel somewhat normal again. I hope and pray that this will not be

the case with your daughter but that they find something out soon

that they can do to help her.

Keep us posted with what happens.

You are in my prayers as you deal with this.

[Guest guest]

,

Your statement that the doc was unsuccessful with the ERCP immediately made

me think of my situation. My 3rd GI doc attempted 3 ERCP's before he

decided that I had Pancreas Divisum and passed me to the 4th GI doc to try

to cannulate the secondary duct. That is how he determined that my

pancreas was severely damaged.

I would NEVER suggest that anyone self diagnose but it may be in your best

interest to ask your doc about it. Pancreas divisum is a congenital

deformity of the pancreatic duct work. Instead of having a complete

primary duct with a secondary duct for times of high flow or pressure, a

person with Pancreas Divisum has an incomplete Primary duct so that it is

forced to drain through the smaller secondary duct. The secondary duct is

not capable of handling a really heavy flow. The pancreas in a PD patient

has no method of handling the extra flow or pressure so in many cases it

triggers episodes of Acute Pancreatitis. The attacks may be full blown

severe cases but can also be as simple as a case of diarrhea that occurs

regularly after lunch or a frequently reoccurring burning in your abdomen.

Ask Dr. Howle if he thinks Pancreas Divisum is a possibility. Who knows,

maybe it can help.

Chuck

At 09:33 AM 9/4/02 -0400, you wrote:

>Hi ,

>

> I am glad to hear that an ERCP will be performed instead of surgery.

> Kasey has had four ERCP's done, but when they get in there they can't

> seem to find anything wrong. Dr. Howle said that hopefully just having

> the tubes going through the duct work that might help her a little. Well,

> it didn't and never has, but they keep trying. Dr. Fox from the Childrens

> Hospital in Boston has performed one on her too, but he said it was

> unsuccessful, he couldn't get in...well that was a wasted trip for us

> (about a 4 -5 hour drive)

Chuck Sullivan

chuck@...

[Guest guest]

,

Your statement that the doc was unsuccessful with the ERCP immediately made

me think of my situation. My 3rd GI doc attempted 3 ERCP's before he

decided that I had Pancreas Divisum and passed me to the 4th GI doc to try

to cannulate the secondary duct. That is how he determined that my

pancreas was severely damaged.

I would NEVER suggest that anyone self diagnose but it may be in your best

interest to ask your doc about it. Pancreas divisum is a congenital

deformity of the pancreatic duct work. Instead of having a complete

primary duct with a secondary duct for times of high flow or pressure, a

person with Pancreas Divisum has an incomplete Primary duct so that it is

forced to drain through the smaller secondary duct. The secondary duct is

not capable of handling a really heavy flow. The pancreas in a PD patient

has no method of handling the extra flow or pressure so in many cases it

triggers episodes of Acute Pancreatitis. The attacks may be full blown

severe cases but can also be as simple as a case of diarrhea that occurs

regularly after lunch or a frequently reoccurring burning in your abdomen.

Ask Dr. Howle if he thinks Pancreas Divisum is a possibility. Who knows,

maybe it can help.

Chuck

At 09:33 AM 9/4/02 -0400, you wrote:

>Hi ,

>

> I am glad to hear that an ERCP will be performed instead of surgery.

> Kasey has had four ERCP's done, but when they get in there they can't

> seem to find anything wrong. Dr. Howle said that hopefully just having

> the tubes going through the duct work that might help her a little. Well,

> it didn't and never has, but they keep trying. Dr. Fox from the Childrens

> Hospital in Boston has performed one on her too, but he said it was

> unsuccessful, he couldn't get in...well that was a wasted trip for us

> (about a 4 -5 hour drive)

Chuck Sullivan

chuck@...

[Guest guest]

Thanks Chuck,

I will look into this information that you gave me. So, do you

believe that this kind is fixable?

> >Hi ,

> >

> > I am glad to hear that an ERCP will be performed instead of

surgery.

> > Kasey has had four ERCP's done, but when they get in there they

can't

> > seem to find anything wrong. Dr. Howle said that hopefully just

having

> > the tubes going through the duct work that might help her a

little. Well,

> > it didn't and never has, but they keep trying. Dr. Fox from the

Childrens

> > Hospital in Boston has performed one on her too, but he said it

was

> > unsuccessful, he couldn't get in...well that was a wasted trip

for us

> > (about a 4 -5 hour drive)

>

> Chuck Sullivan

> chuck@s...

[Guest guest]

Thanks Chuck,

I will look into this information that you gave me. So, do you

believe that this kind is fixable?

> >Hi ,

> >

> > I am glad to hear that an ERCP will be performed instead of

surgery.

> > Kasey has had four ERCP's done, but when they get in there they

can't

> > seem to find anything wrong. Dr. Howle said that hopefully just

having

> > the tubes going through the duct work that might help her a

little. Well,

> > it didn't and never has, but they keep trying. Dr. Fox from the

Childrens

> > Hospital in Boston has performed one on her too, but he said it

was

> > unsuccessful, he couldn't get in...well that was a wasted trip

for us

> > (about a 4 -5 hour drive)

>

> Chuck Sullivan

> chuck@s...