Re: Does anyone use Ultrase MT's?

[Guest guest]

Are you talking about 4's ,8's, 12's or 16's? There are all sorts of doses

my 5 year old takes 3- MT-16's with meals and 1-2 w/snacks.BeckyB.

[Guest guest]

Are you talking about 4's ,8's, 12's or 16's? There are all sorts of doses

my 5 year old takes 3- MT-16's with meals and 1-2 w/snacks.BeckyB.

[Guest guest]

I was wondering if you've thought of having them switch her enzymes? I know

last year the girls were on Creon 5's taking 4 w/meals 3/snacks and THEN

was on 80mg's of prilosec twice a day and Yolo was on 70? twice a day.

We switched CF docs and this one thought that was a bit much for their

system, and they still had greasy poops and gas ALOT. Plus was

complaining of tummy ackes. So he changed them to pancreacarb 8's and 1

prilosec 20 twice a day. get's 3 enzymes now with meals and snacks

Yolo gets two. In FL our CF doc there swore up and down they were all the

same, obviosly not. That could be a suggestion for the next visit. Have

you thought of having her talk with other cfer's a little older than she is?

If not in person, on the phone? or on the internet? Maybe talking to

someone who's been there done that, might help her realize how improtant it

is for her. Her ears might open up a bit more listening to a peer rather

than an authority figure. My kids are only 4, 2 1/2 and 6 months so we

aren't going through this yet. Maybe a psycologist might help to. Other

than that I don't think I'm much help. I hope you can find an answer soon.

Jen.

> > > I have a question, my daughter Brittany is 8, and she

> > > takes 900 ultrase MT plains a month....doesn't that

> > > seem like an awful lot? Don't they have anything

> > > stronger? She takes 6 with meals, 3 with snacks but

> > > she has to eat every 2 hours. It's embarrassing to her

> > > at school, to take a handful of pills before she eats.

> > > The janitor found them in the garbage at one point,

> > > she was rebelling against taking them. HELP!! Does

> > > anyone have these problems, and have any idea how to

> > > deal with it? I don't want to punish her, cause I

> > > understand her point of view, how do we convince them

> > > that that the pills are more important than impressing

> > > her friends? She doesn't want to listen to me or her

> > > teachers. She knows it all!!

_________________________________________________________________

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[Guest guest]

I was wondering if you've thought of having them switch her enzymes? I know

last year the girls were on Creon 5's taking 4 w/meals 3/snacks and THEN

was on 80mg's of prilosec twice a day and Yolo was on 70? twice a day.

We switched CF docs and this one thought that was a bit much for their

system, and they still had greasy poops and gas ALOT. Plus was

complaining of tummy ackes. So he changed them to pancreacarb 8's and 1

prilosec 20 twice a day. get's 3 enzymes now with meals and snacks

Yolo gets two. In FL our CF doc there swore up and down they were all the

same, obviosly not. That could be a suggestion for the next visit. Have

you thought of having her talk with other cfer's a little older than she is?

If not in person, on the phone? or on the internet? Maybe talking to

someone who's been there done that, might help her realize how improtant it

is for her. Her ears might open up a bit more listening to a peer rather

than an authority figure. My kids are only 4, 2 1/2 and 6 months so we

aren't going through this yet. Maybe a psycologist might help to. Other

than that I don't think I'm much help. I hope you can find an answer soon.

Jen.

> > > I have a question, my daughter Brittany is 8, and she

> > > takes 900 ultrase MT plains a month....doesn't that

> > > seem like an awful lot? Don't they have anything

> > > stronger? She takes 6 with meals, 3 with snacks but

> > > she has to eat every 2 hours. It's embarrassing to her

> > > at school, to take a handful of pills before she eats.

> > > The janitor found them in the garbage at one point,

> > > she was rebelling against taking them. HELP!! Does

> > > anyone have these problems, and have any idea how to

> > > deal with it? I don't want to punish her, cause I

> > > understand her point of view, how do we convince them

> > > that that the pills are more important than impressing

> > > her friends? She doesn't want to listen to me or her

> > > teachers. She knows it all!!

_________________________________________________________________

Surf the Web without missing calls! Get MSN Broadband.

http://resourcecenter.msn.com/access/plans/freeactivation.asp

[Guest guest]

I was wondering if you've thought of having them switch her enzymes? I know

last year the girls were on Creon 5's taking 4 w/meals 3/snacks and THEN

was on 80mg's of prilosec twice a day and Yolo was on 70? twice a day.

We switched CF docs and this one thought that was a bit much for their

system, and they still had greasy poops and gas ALOT. Plus was

complaining of tummy ackes. So he changed them to pancreacarb 8's and 1

prilosec 20 twice a day. get's 3 enzymes now with meals and snacks

Yolo gets two. In FL our CF doc there swore up and down they were all the

same, obviosly not. That could be a suggestion for the next visit. Have

you thought of having her talk with other cfer's a little older than she is?

If not in person, on the phone? or on the internet? Maybe talking to

someone who's been there done that, might help her realize how improtant it

is for her. Her ears might open up a bit more listening to a peer rather

than an authority figure. My kids are only 4, 2 1/2 and 6 months so we

aren't going through this yet. Maybe a psycologist might help to. Other

than that I don't think I'm much help. I hope you can find an answer soon.

Jen.

> > > I have a question, my daughter Brittany is 8, and she

> > > takes 900 ultrase MT plains a month....doesn't that

> > > seem like an awful lot? Don't they have anything

> > > stronger? She takes 6 with meals, 3 with snacks but

> > > she has to eat every 2 hours. It's embarrassing to her

> > > at school, to take a handful of pills before she eats.

> > > The janitor found them in the garbage at one point,

> > > she was rebelling against taking them. HELP!! Does

> > > anyone have these problems, and have any idea how to

> > > deal with it? I don't want to punish her, cause I

> > > understand her point of view, how do we convince them

> > > that that the pills are more important than impressing

> > > her friends? She doesn't want to listen to me or her

> > > teachers. She knows it all!!

_________________________________________________________________

Surf the Web without missing calls! Get MSN Broadband.

http://resourcecenter.msn.com/access/plans/freeactivation.asp

[Guest guest]

Wyatt was also getting pretty high in the number of Creon 10 he took

plus was using zantac so they put him on the Pancreacarb MS-8 and he

takes that w/ no zantac. He does take 5 pills w/ meals and 3 w/

snacks and I think we are going to have to increase that. He doesn't

usually mind and he goes to the nurse before lunch and she has him

take them.

>

> I was wondering if you've thought of having them switch her

enzymes? I know

> last year the girls were on Creon 5's taking 4 w/meals 3/snacks and

THEN

> was on 80mg's of prilosec twice a day and Yolo was on 70?

twice a day.

> We switched CF docs and this one thought that was a bit much for

their

> system, and they still had greasy poops and gas ALOT. Plus

was

> complaining of tummy ackes. So he changed them to pancreacarb 8's

and 1

> prilosec 20 twice a day. get's 3 enzymes now with meals and

snacks

> Yolo gets two. In FL our CF doc there swore up and down they were

all the

> same, obviosly not. That could be a suggestion for the next

visit. Have

> you thought of having her talk with other cfer's a little older

than she is?

> If not in person, on the phone? or on the internet? Maybe

talking to

> someone who's been there done that, might help her realize how

improtant it

> is for her. Her ears might open up a bit more listening to a peer

rather

> than an authority figure. My kids are only 4, 2 1/2 and 6 months

so we

> aren't going through this yet. Maybe a psycologist might help to.

Other

> than that I don't think I'm much help. I hope you can find an

answer soon.

>

> Jen.

>

> > > > I have a question, my daughter Brittany is 8, and she

> > > > takes 900 ultrase MT plains a month....doesn't that

> > > > seem like an awful lot? Don't they have anything

> > > > stronger? She takes 6 with meals, 3 with snacks but

> > > > she has to eat every 2 hours. It's embarrassing to her

> > > > at school, to take a handful of pills before she eats.

> > > > The janitor found them in the garbage at one point,

> > > > she was rebelling against taking them. HELP!! Does

> > > > anyone have these problems, and have any idea how to

> > > > deal with it? I don't want to punish her, cause I

> > > > understand her point of view, how do we convince them

> > > > that that the pills are more important than impressing

> > > > her friends? She doesn't want to listen to me or her

> > > > teachers. She knows it all!!

>

>

> _________________________________________________________________

> Surf the Web without missing calls! Get MSN Broadband.

> http://resourcecenter.msn.com/access/plans/freeactivation.asp

[Guest guest]

Wyatt was also getting pretty high in the number of Creon 10 he took

plus was using zantac so they put him on the Pancreacarb MS-8 and he

takes that w/ no zantac. He does take 5 pills w/ meals and 3 w/

snacks and I think we are going to have to increase that. He doesn't

usually mind and he goes to the nurse before lunch and she has him

take them.

>

> I was wondering if you've thought of having them switch her

enzymes? I know

> last year the girls were on Creon 5's taking 4 w/meals 3/snacks and

THEN

> was on 80mg's of prilosec twice a day and Yolo was on 70?

twice a day.

> We switched CF docs and this one thought that was a bit much for

their

> system, and they still had greasy poops and gas ALOT. Plus

was

> complaining of tummy ackes. So he changed them to pancreacarb 8's

and 1

> prilosec 20 twice a day. get's 3 enzymes now with meals and

snacks

> Yolo gets two. In FL our CF doc there swore up and down they were

all the

> same, obviosly not. That could be a suggestion for the next

visit. Have

> you thought of having her talk with other cfer's a little older

than she is?

> If not in person, on the phone? or on the internet? Maybe

talking to

> someone who's been there done that, might help her realize how

improtant it

> is for her. Her ears might open up a bit more listening to a peer

rather

> than an authority figure. My kids are only 4, 2 1/2 and 6 months

so we

> aren't going through this yet. Maybe a psycologist might help to.

Other

> than that I don't think I'm much help. I hope you can find an

answer soon.

>

> Jen.

>

> > > > I have a question, my daughter Brittany is 8, and she

> > > > takes 900 ultrase MT plains a month....doesn't that

> > > > seem like an awful lot? Don't they have anything

> > > > stronger? She takes 6 with meals, 3 with snacks but

> > > > she has to eat every 2 hours. It's embarrassing to her

> > > > at school, to take a handful of pills before she eats.

> > > > The janitor found them in the garbage at one point,

> > > > she was rebelling against taking them. HELP!! Does

> > > > anyone have these problems, and have any idea how to

> > > > deal with it? I don't want to punish her, cause I

> > > > understand her point of view, how do we convince them

> > > > that that the pills are more important than impressing

> > > > her friends? She doesn't want to listen to me or her

> > > > teachers. She knows it all!!

>

>

> _________________________________________________________________

> Surf the Web without missing calls! Get MSN Broadband.

> http://resourcecenter.msn.com/access/plans/freeactivation.asp

[Guest guest]

> I have a question, my daughter Brittany is 8, and she

> takes 900 ultrase MT plains a month

Hi,

now we all have learned a bit about Ultrase and we now know how med

errors can happen. I thought that Tammy meant Ultrase MT and not

Ultrase and wasn't clever enough to check for the Ultrase too.

Tammy, I would suggest that you ask the doc for a prescription of two

different strengths (if that's no problem for the insurance). A

strength of 4,500 has the advantage that you can dose more precisely

if you have only ate a little bit while with MT 12 or MT 18 you have

to take much less pills.

We use Creon without capsule (not available in the US) now, because

it's easy to give small amounts. And we have Creon10 capsules,

because that is much easier to handle when you travel.

Peace

Torsten

[Guest guest]

> I have a question, my daughter Brittany is 8, and she

> takes 900 ultrase MT plains a month

Hi,

now we all have learned a bit about Ultrase and we now know how med

errors can happen. I thought that Tammy meant Ultrase MT and not

Ultrase and wasn't clever enough to check for the Ultrase too.

Tammy, I would suggest that you ask the doc for a prescription of two

different strengths (if that's no problem for the insurance). A

strength of 4,500 has the advantage that you can dose more precisely

if you have only ate a little bit while with MT 12 or MT 18 you have

to take much less pills.

We use Creon without capsule (not available in the US) now, because

it's easy to give small amounts. And we have Creon10 capsules,

because that is much easier to handle when you travel.

Peace

Torsten

[Guest guest]

Maybe you should have her go to a nurses room and take the pills then she

wouldn't be doing it in front of the other kids and you would know for sure

she is taking them. That is what they do at our school. Deb A

[Guest guest]

Maybe you should have her go to a nurses room and take the pills then she

wouldn't be doing it in front of the other kids and you would know for sure

she is taking them. That is what they do at our school. Deb A

[Guest guest]

Maybe you should have her go to a nurses room and take the pills then she

wouldn't be doing it in front of the other kids and you would know for sure

she is taking them. That is what they do at our school. Deb A

[Guest guest]

In a message dated 10/25/2002 9:07:15 PM Central Standard Time,

tammyfischer2001@... writes:

>

> Deb, we have 1 nurse that cares for 6 or more Elem.

> schools, so shes only in once a week. That has been a

> battle, the school can't really watch her like she

> needs, so usually if Im still in school(college) and

> they have problems they just call an ambulance. We

> need a full time nurse, but this school district is a

> joke!

>

> Tammy

>

Tammy,

You need to complain because that is what some of our tax money goes to is

our schools. You have a legal right to demand for them to have better care

for you daughter in school if that means hiring an extra aid then they need

to do it. She has a disability and requires extra care and they need to abide

by it. You need to talk to someone from the CF foundation they can tell you

what your legal rights are and how they can help. YOU GOT TO BITCH!!! It

really works and remember it's for you child!