Guest guest Posted January 13, 2006 Report Share Posted January 13, 2006 I realize this is off the topic, but has anyone had to treat their ASD child for amblyopis (lazy eye)? Anyone use a patch? The pediatric opthamologist said for my 19 month old to wear glasses and to use drops to blur the good eye to force the weak eye to work. Anyone have any thoughts, suggestions or experience in this? My son has many sensory integration issues also. thanks to everyone. SCD 4 months - mom to broderick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2006 Report Share Posted January 13, 2006 My son is not ASD but he has amblyopia, which we treated with a patch for about 6 months. He eagerly wore it to keep from having to have eye drops. I don't know if that helps you or not as the patch might be annoying for a child with ASD, but if they don't tolerate the eye drops well, a patch would be needed. It's extremely important that something be done or the lazy eye will deteriorate. If you don't think he will tolerate the patch, then the drops are the only other option I know of unless a special type of glasses can be made that blacks out that one eye. Surgery can be done but many times is avoided with the patches/drops. It's a brain function thing - and the earlier the intervention, the better his sight will be in the long run... I have more info if you need it. I have it as well (lazy eye). Robbie Lazy Eye - Help >I realize this is off the topic, but has anyone had to treat their ASD > child for amblyopis (lazy eye)? Anyone use a patch? The pediatric > opthamologist said for my 19 month old to wear glasses and to use > drops to blur the good eye to force the weak eye to work. > > Anyone have any thoughts, suggestions or experience in this? My son > has many sensory integration issues also. > > thanks to everyone. > > > SCD 4 months - mom to broderick > > > > > > For information on the Specific Carbohydrate Diet, please read the book > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following > websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2006 Report Share Posted January 13, 2006 My son is not ASD but he has amblyopia, which we treated with a patch for about 6 months. He eagerly wore it to keep from having to have eye drops. I don't know if that helps you or not as the patch might be annoying for a child with ASD, but if they don't tolerate the eye drops well, a patch would be needed. It's extremely important that something be done or the lazy eye will deteriorate. If you don't think he will tolerate the patch, then the drops are the only other option I know of unless a special type of glasses can be made that blacks out that one eye. Surgery can be done but many times is avoided with the patches/drops. It's a brain function thing - and the earlier the intervention, the better his sight will be in the long run... I have more info if you need it. I have it as well (lazy eye). Robbie Lazy Eye - Help >I realize this is off the topic, but has anyone had to treat their ASD > child for amblyopis (lazy eye)? Anyone use a patch? The pediatric > opthamologist said for my 19 month old to wear glasses and to use > drops to blur the good eye to force the weak eye to work. > > Anyone have any thoughts, suggestions or experience in this? My son > has many sensory integration issues also. > > thanks to everyone. > > > SCD 4 months - mom to broderick > > > > > > For information on the Specific Carbohydrate Diet, please read the book > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following > websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2006 Report Share Posted January 13, 2006 I also found this study between the effectiveness of the atropine vs. patching if you're interested... http://www.nei.nih.gov/neitrials/viewStudyWeb.aspx?id=73 Robbie Lazy Eye - Help >I realize this is off the topic, but has anyone had to treat their ASD > child for amblyopis (lazy eye)? Anyone use a patch? The pediatric > opthamologist said for my 19 month old to wear glasses and to use > drops to blur the good eye to force the weak eye to work. > > Anyone have any thoughts, suggestions or experience in this? My son > has many sensory integration issues also. > > thanks to everyone. > > > SCD 4 months - mom to broderick > > > > > > For information on the Specific Carbohydrate Diet, please read the book > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following > websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2006 Report Share Posted January 13, 2006 I also found this study between the effectiveness of the atropine vs. patching if you're interested... http://www.nei.nih.gov/neitrials/viewStudyWeb.aspx?id=73 Robbie Lazy Eye - Help >I realize this is off the topic, but has anyone had to treat their ASD > child for amblyopis (lazy eye)? Anyone use a patch? The pediatric > opthamologist said for my 19 month old to wear glasses and to use > drops to blur the good eye to force the weak eye to work. > > Anyone have any thoughts, suggestions or experience in this? My son > has many sensory integration issues also. > > thanks to everyone. > > > SCD 4 months - mom to broderick > > > > > > For information on the Specific Carbohydrate Diet, please read the book > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following > websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2006 Report Share Posted January 13, 2006 I also found this study between the effectiveness of the atropine vs. patching if you're interested... http://www.nei.nih.gov/neitrials/viewStudyWeb.aspx?id=73 Robbie Lazy Eye - Help >I realize this is off the topic, but has anyone had to treat their ASD > child for amblyopis (lazy eye)? Anyone use a patch? The pediatric > opthamologist said for my 19 month old to wear glasses and to use > drops to blur the good eye to force the weak eye to work. > > Anyone have any thoughts, suggestions or experience in this? My son > has many sensory integration issues also. > > thanks to everyone. > > > SCD 4 months - mom to broderick > > > > > > For information on the Specific Carbohydrate Diet, please read the book > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following > websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Hi ! My son, age 5.5, has just had his 3rd surgery, both eyes for a type of strabismus. He also has autism, mild cerebral palsy, and sensory issues. We were never offered the atropine drops as an alternative to patching, as we were to only patch for 4 hours a day. We have tried patching twice, and it is really difficult for kids with other issues, like ours. I used to patch his caillou doll at the same time..let him choose who got patched first, and he got to take caillou's patch off when it was time...if you have to patch, soaking the patch with warm water for a couple of minutes really helps. We have been using the fatty acids, and other suplements, for about 3 years now. Brady requires glasses for close up work, but opted to wear them all of the time....his distance vision is greatly reduced with the glasses on, and yet, he 'sees' better with them...the difference between visual acuity and ASD related visual processing i presume. At the moment, they have taken his glasses away, and he is not impressed! There is a doctor at the Waterloo University Opthomology dept. who does a very comprehensive evaluation of kids with special needs and is able to help identify visual processing issues..he has a waitlist, and we are going in the spring. He is Dr. Wiggens, {519} 888-4567, x 6321. Also, the CNIB has an infant development type worker that will come to the house and work with you, helping to develop strategies etc..i found them very helpful. Sorry, this got quite long. Feel free to email me. Good luck! Cindy PS..if it gets to that point, our 3 surgeries have been at sick kids, and they are easier to recover from than a cold! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Hi ! My son, age 5.5, has just had his 3rd surgery, both eyes for a type of strabismus. He also has autism, mild cerebral palsy, and sensory issues. We were never offered the atropine drops as an alternative to patching, as we were to only patch for 4 hours a day. We have tried patching twice, and it is really difficult for kids with other issues, like ours. I used to patch his caillou doll at the same time..let him choose who got patched first, and he got to take caillou's patch off when it was time...if you have to patch, soaking the patch with warm water for a couple of minutes really helps. We have been using the fatty acids, and other suplements, for about 3 years now. Brady requires glasses for close up work, but opted to wear them all of the time....his distance vision is greatly reduced with the glasses on, and yet, he 'sees' better with them...the difference between visual acuity and ASD related visual processing i presume. At the moment, they have taken his glasses away, and he is not impressed! There is a doctor at the Waterloo University Opthomology dept. who does a very comprehensive evaluation of kids with special needs and is able to help identify visual processing issues..he has a waitlist, and we are going in the spring. He is Dr. Wiggens, {519} 888-4567, x 6321. Also, the CNIB has an infant development type worker that will come to the house and work with you, helping to develop strategies etc..i found them very helpful. Sorry, this got quite long. Feel free to email me. Good luck! Cindy PS..if it gets to that point, our 3 surgeries have been at sick kids, and they are easier to recover from than a cold! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Hi ! My son, age 5.5, has just had his 3rd surgery, both eyes for a type of strabismus. He also has autism, mild cerebral palsy, and sensory issues. We were never offered the atropine drops as an alternative to patching, as we were to only patch for 4 hours a day. We have tried patching twice, and it is really difficult for kids with other issues, like ours. I used to patch his caillou doll at the same time..let him choose who got patched first, and he got to take caillou's patch off when it was time...if you have to patch, soaking the patch with warm water for a couple of minutes really helps. We have been using the fatty acids, and other suplements, for about 3 years now. Brady requires glasses for close up work, but opted to wear them all of the time....his distance vision is greatly reduced with the glasses on, and yet, he 'sees' better with them...the difference between visual acuity and ASD related visual processing i presume. At the moment, they have taken his glasses away, and he is not impressed! There is a doctor at the Waterloo University Opthomology dept. who does a very comprehensive evaluation of kids with special needs and is able to help identify visual processing issues..he has a waitlist, and we are going in the spring. He is Dr. Wiggens, {519} 888-4567, x 6321. Also, the CNIB has an infant development type worker that will come to the house and work with you, helping to develop strategies etc..i found them very helpful. Sorry, this got quite long. Feel free to email me. Good luck! Cindy PS..if it gets to that point, our 3 surgeries have been at sick kids, and they are easier to recover from than a cold! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Thank you for all that good info. We are taking him in a couple of days to another developmental opthamologist for a second opinion. I've heard it's tough to patch kids, he's 19 months old, but I feel that blurring his good eye with drops and then if he refuses to wear the glasses - he won't be able to see anything. And that helps no one. Thanks again for your help. - -- In pecanbread , " Cindy " wrote: > > Hi ! My son, age 5.5, has just had his 3rd surgery, both eyes > for a type of strabismus. He also has autism, mild cerebral palsy, > and sensory issues. We were never offered the atropine drops as an > alternative to patching, as we were to only patch for 4 hours a day. > We have tried patching twice, and it is really difficult for kids > with other issues, like ours. I used to patch his caillou doll at > the same time..let him choose who got patched first, and he got to > take caillou's patch off when it was time...if you have to patch, > soaking the patch with warm water for a couple of minutes really > helps. We have been using the fatty acids, and other suplements, for > about 3 years now. > Brady requires glasses for close up work, but opted to wear them all > of the time....his distance vision is greatly reduced with the > glasses on, and yet, he 'sees' better with them...the difference > between visual acuity and ASD related visual processing i presume. > At the moment, they have taken his glasses away, and he is not > impressed! There is a doctor at the Waterloo University Opthomology > dept. who does a very comprehensive evaluation of kids with special > needs and is able to help identify visual processing issues..he has a > waitlist, and we are going in the spring. He is Dr. Wiggens, {519} > 888-4567, x 6321. Also, the CNIB has an infant development type > worker that will come to the house and work with you, helping to > develop strategies etc..i found them very helpful. Sorry, this got > quite long. Feel free to email me. Good luck! Cindy > PS..if it gets to that point, our 3 surgeries have been at sick kids, > and they are easier to recover from than a cold! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Thank you for all that good info. We are taking him in a couple of days to another developmental opthamologist for a second opinion. I've heard it's tough to patch kids, he's 19 months old, but I feel that blurring his good eye with drops and then if he refuses to wear the glasses - he won't be able to see anything. And that helps no one. Thanks again for your help. - -- In pecanbread , " Cindy " wrote: > > Hi ! My son, age 5.5, has just had his 3rd surgery, both eyes > for a type of strabismus. He also has autism, mild cerebral palsy, > and sensory issues. We were never offered the atropine drops as an > alternative to patching, as we were to only patch for 4 hours a day. > We have tried patching twice, and it is really difficult for kids > with other issues, like ours. I used to patch his caillou doll at > the same time..let him choose who got patched first, and he got to > take caillou's patch off when it was time...if you have to patch, > soaking the patch with warm water for a couple of minutes really > helps. We have been using the fatty acids, and other suplements, for > about 3 years now. > Brady requires glasses for close up work, but opted to wear them all > of the time....his distance vision is greatly reduced with the > glasses on, and yet, he 'sees' better with them...the difference > between visual acuity and ASD related visual processing i presume. > At the moment, they have taken his glasses away, and he is not > impressed! There is a doctor at the Waterloo University Opthomology > dept. who does a very comprehensive evaluation of kids with special > needs and is able to help identify visual processing issues..he has a > waitlist, and we are going in the spring. He is Dr. Wiggens, {519} > 888-4567, x 6321. Also, the CNIB has an infant development type > worker that will come to the house and work with you, helping to > develop strategies etc..i found them very helpful. Sorry, this got > quite long. Feel free to email me. Good luck! Cindy > PS..if it gets to that point, our 3 surgeries have been at sick kids, > and they are easier to recover from than a cold! > Quote Link to comment Share on other sites More sharing options...
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