Hi! Roxanne! Welcome to our list and thank you for finding us!

[Guest guest]

Roxanne, this should not happen in the face of such obvious symptoms.

What happened to your child reflects the declining quality of an already

compromised medical care establishment. This is, to a large degree,

a worldwide problem. And this is why the medical establishment needs

to be educated about what they have thought were seldom-seen disea

ses which may well be more common (due to lack of diagnosis) than

previously thought. I am so sorry about what your and your child went

through. I am very happy to hear that things are under some degree of

control now. There is not a parent on this list whose heart did not thump

a bit upon reading your post.

With highest hopes for your child and your family,

n Rojas, wcf, mom of 3 adults, youngest wcf (only 1!)