Re: cea studies (PLEASE read)

[Guest guest]

I appreciate all the responses, direct and posted here. However, I

think my point may have been unclear. The NRS was the most likely

target for funds, however, my main point was that I think WE need to

take it upon ourselves to gather funds for research. Distribution of

the funds can be looked at as simply administrative, with the real

challenge in building awareness and capital.

Thanks again to all those who realize that it is time to step up and

try to make a real difference.

Regards.

[Guest guest]

Marjorie,

I don't know if this is the inside scoop, but I believe they are

funded in part by Galderma, makers of the Metro Triplets. When I

first started to receive the NRS newsletter in '94, they really

pushed MetroGel. Noritate wasn't available yet in the US, but I know

Novacet was and it was used for rosacea. Novacet wasn't mentioned at

all in the newsletter or the pamphlet I received on cea from the

American Academy of Dermatology.

On the present day NRS website links page

(http://rosacea.org/links.html ), if you click on the Infoderm

Information on cea link --

http://www.infoderm.com/scc/index.html -- you get to a site that is

sponsored by Galderma. Like the NRS, it doesn't mention topical

treatments by name, but I think it might be a conflict of interest

that a non-profit like the NRS has a link to a pharmaceutical

company's site.

I hope that helps!

Matija

>

> I don't know much about the National cea Society. I know what

the

> Web site says, but does anyone have the inside scoop on who they

are

> and what they do?

>

> Marjorie

>

> Marjorie Lazoff, MD

>

>

[Guest guest]

Marjorie,

I don't know if this is the inside scoop, but I believe they are

funded in part by Galderma, makers of the Metro Triplets. When I

first started to receive the NRS newsletter in '94, they really

pushed MetroGel. Noritate wasn't available yet in the US, but I know

Novacet was and it was used for rosacea. Novacet wasn't mentioned at

all in the newsletter or the pamphlet I received on cea from the

American Academy of Dermatology.

On the present day NRS website links page

(http://rosacea.org/links.html ), if you click on the Infoderm

Information on cea link --

http://www.infoderm.com/scc/index.html -- you get to a site that is

sponsored by Galderma. Like the NRS, it doesn't mention topical

treatments by name, but I think it might be a conflict of interest

that a non-profit like the NRS has a link to a pharmaceutical

company's site.

I hope that helps!

Matija

>

> I don't know much about the National cea Society. I know what

the

> Web site says, but does anyone have the inside scoop on who they

are

> and what they do?

>

> Marjorie

>

> Marjorie Lazoff, MD

>

>

[Guest guest]

Marjorie,

I don't know if this is the inside scoop, but I believe they are

funded in part by Galderma, makers of the Metro Triplets. When I

first started to receive the NRS newsletter in '94, they really

pushed MetroGel. Noritate wasn't available yet in the US, but I know

Novacet was and it was used for rosacea. Novacet wasn't mentioned at

all in the newsletter or the pamphlet I received on cea from the

American Academy of Dermatology.

On the present day NRS website links page

(http://rosacea.org/links.html ), if you click on the Infoderm

Information on cea link --

http://www.infoderm.com/scc/index.html -- you get to a site that is

sponsored by Galderma. Like the NRS, it doesn't mention topical

treatments by name, but I think it might be a conflict of interest

that a non-profit like the NRS has a link to a pharmaceutical

company's site.

I hope that helps!

Matija

>

> I don't know much about the National cea Society. I know what

the

> Web site says, but does anyone have the inside scoop on who they

are

> and what they do?

>

> Marjorie

>

> Marjorie Lazoff, MD

>

>

[Guest guest]

Thanks, Matija. Pharmaceutical companies create professional

educational services for physicians (though all educational material

is accedited by an independent council), so I suspect it's legal for

a pharmaceutical company to also set up consumer educational

services, though I don't know what kind of safeguards, if any, are

required. Both Galderma and Infoderm, cover many dermatologic

conditions.

It sounds like you're suspicious something may also be up with the

American Academy of Dermatology?

Marjorie

> Marjorie,

>

> I don't know if this is the inside scoop, but I believe they are

> funded in part by Galderma, makers of the Metro Triplets. When I

> first started to receive the NRS newsletter in '94, they really

> pushed MetroGel. Noritate wasn't available yet in the US, but I

know

> Novacet was and it was used for rosacea. Novacet wasn't mentioned

at

> all in the newsletter or the pamphlet I received on cea from

the

> American Academy of Dermatology.

>

> On the present day NRS website links page

> (http://rosacea.org/links.html ), if you click on the Infoderm

> Information on cea link --

> http://www.infoderm.com/scc/index.html -- you get to a site that is

> sponsored by Galderma. Like the NRS, it doesn't mention topical

> treatments by name, but I think it might be a conflict of interest

> that a non-profit like the NRS has a link to a pharmaceutical

> company's site.

>

> I hope that helps!

> Matija

> >

> > I don't know much about the National cea Society. I know what

> the

> > Web site says, but does anyone have the inside scoop on who they

> are

> > and what they do?

> >

> > Marjorie

> >

> > Marjorie Lazoff, MD

> >

> >

[Guest guest]

Thanks, Matija. Pharmaceutical companies create professional

educational services for physicians (though all educational material

is accedited by an independent council), so I suspect it's legal for

a pharmaceutical company to also set up consumer educational

services, though I don't know what kind of safeguards, if any, are

required. Both Galderma and Infoderm, cover many dermatologic

conditions.

It sounds like you're suspicious something may also be up with the

American Academy of Dermatology?

Marjorie

> Marjorie,

>

> I don't know if this is the inside scoop, but I believe they are

> funded in part by Galderma, makers of the Metro Triplets. When I

> first started to receive the NRS newsletter in '94, they really

> pushed MetroGel. Noritate wasn't available yet in the US, but I

know

> Novacet was and it was used for rosacea. Novacet wasn't mentioned

at

> all in the newsletter or the pamphlet I received on cea from

the

> American Academy of Dermatology.

>

> On the present day NRS website links page

> (http://rosacea.org/links.html ), if you click on the Infoderm

> Information on cea link --

> http://www.infoderm.com/scc/index.html -- you get to a site that is

> sponsored by Galderma. Like the NRS, it doesn't mention topical

> treatments by name, but I think it might be a conflict of interest

> that a non-profit like the NRS has a link to a pharmaceutical

> company's site.

>

> I hope that helps!

> Matija

> >

> > I don't know much about the National cea Society. I know what

> the

> > Web site says, but does anyone have the inside scoop on who they

> are

> > and what they do?

> >

> > Marjorie

> >

> > Marjorie Lazoff, MD

> >

> >

[Guest guest]

Thanks, Matija. Pharmaceutical companies create professional

educational services for physicians (though all educational material

is accedited by an independent council), so I suspect it's legal for

a pharmaceutical company to also set up consumer educational

services, though I don't know what kind of safeguards, if any, are

required. Both Galderma and Infoderm, cover many dermatologic

conditions.

It sounds like you're suspicious something may also be up with the

American Academy of Dermatology?

Marjorie

> Marjorie,

>

> I don't know if this is the inside scoop, but I believe they are

> funded in part by Galderma, makers of the Metro Triplets. When I

> first started to receive the NRS newsletter in '94, they really

> pushed MetroGel. Noritate wasn't available yet in the US, but I

know

> Novacet was and it was used for rosacea. Novacet wasn't mentioned

at

> all in the newsletter or the pamphlet I received on cea from

the

> American Academy of Dermatology.

>

> On the present day NRS website links page

> (http://rosacea.org/links.html ), if you click on the Infoderm

> Information on cea link --

> http://www.infoderm.com/scc/index.html -- you get to a site that is

> sponsored by Galderma. Like the NRS, it doesn't mention topical

> treatments by name, but I think it might be a conflict of interest

> that a non-profit like the NRS has a link to a pharmaceutical

> company's site.

>

> I hope that helps!

> Matija

> >

> > I don't know much about the National cea Society. I know what

> the

> > Web site says, but does anyone have the inside scoop on who they

> are

> > and what they do?

> >

> > Marjorie

> >

> > Marjorie Lazoff, MD

> >

> >

[Guest guest]

Non-Profit Vs Profit

Many non-profit organizations like the NRS have corporate sponsors, just

like PBS and NPR have corporate sponsors. When you hear a message on an

NPR or PBS progam saying 'this program is partly funded by a grant from

XYZ Corporation,' it is no different. The NRS exists because of the

generosity of Galderma being the major corporate sponsor. Somehow we

believe that non-profit organizations like PBS and NPR are 'better' than

profit organizations and in some cases this may be true. But profit

organizations have credence too. CNN established its place against some

very big profit organizations despite the fact that PBS already

existed. Non-profit organizations can be influenced by money just as

any profit organization can and it depends on the integrity of the

individuals in the organization who control it. The NRS clearly shows

where its money is coming from and anyone can get a copy of its

financial statement where the money was spent since it is public

knowledge. A significant amount of non-profit spending is on salaries,

but that is also true of profit organizations. Which is 'better,

non-profit or profit? You may have an opinion but the fact remains that

in this country they both exist and aren't we the 'better' for it?

Brady Barrows

>

> Thanks, Matija. Pharmaceutical companies create professional

> educational services for physicians (though all educational material

> is accedited by an independent council), so I suspect it's legal for

> a pharmaceutical company to also set up consumer educational

> services, though I don't know what kind of safeguards, if any, are

> required. Both Galderma and Infoderm, cover many dermatologic

> conditions.

>

> It sounds like you're suspicious something may also be up with the

> American Academy of Dermatology?

>

>

> Marjorie

>

>

>> Marjorie,

>>

>> I don't know if this is the inside scoop, but I believe they are

>> funded in part by Galderma, makers of the Metro Triplets. When I

>> first started to receive the NRS newsletter in '94, they really

>> pushed MetroGel. Noritate wasn't available yet in the US, but I

> know

>> Novacet was and it was used for rosacea. Novacet wasn't mentioned

> at

>> all in the newsletter or the pamphlet I received on cea from

> the

>> American Academy of Dermatology.

>>

>> On the present day NRS website links page

>> (http://rosacea.org/links.html ), if you click on the Infoderm

>> Information on cea link --

>> http://www.infoderm.com/scc/index.html -- you get to a site that is

>> sponsored by Galderma. Like the NRS, it doesn't mention topical

>> treatments by name, but I think it might be a conflict of interest

>> that a non-profit like the NRS has a link to a pharmaceutical

>> company's site.

>>

>> I hope that helps!

>> Matija

>>>

>>> I don't know much about the National cea Society. I know what

>> the

>>> Web site says, but does anyone have the inside scoop on who they

>> are

>>> and what they do?

>>>

>>> Marjorie

>>>

>>> Marjorie Lazoff, MD

>>>

>>>

>

>

>

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