Re: Re:GFCF diet not working

[Guest guest]

We had negative blood work, negative DNA tests...my husband and I had positive

Celiac Biopsies...the GF and GF CF diet gave relief, even cutting out all grain

and dairy gave relief (but we where occasionally cheating with gluten free

foods)...but nothing like the success we are having SCDiet! I wish I would

have been open to this way of eating a year ago...it would have made things a

lot easier...but as we all know....it isn't easy to give up everything.....This

SDIET just baffled me back then...the BTVC book sadly ended up on my

shelf.......thank God one of my little " gremlins " (one year olds) put it on the

coffee table.....after I had said many prayers....since KiKI was not getting any

better...and we thought I possibly had developed refractory sprue (celiac

disease....but incurable/treatable....in other word you could die).

Review the chapter on the " Celiac Story " in BTVC...it pretty much explains whey

the Gluten free diet doesn't work! To be honest...I sometimes wonder why they

even prescribe it. I belong to the Celiac Sprue Association...so many not doing

well on the GF diet! Yet so many of them...think we are nuts for eating this

restricted...I guess you have to " hit bottom " to do this with the " fanatical

adherence " that Elaine speaks of in her book...BOY DID WE HIT BOTTOM...I am

grateful as a family...seeing KIKI get so sick was only part of it.....something

strange happens when you have three children...all being made sick by

food.....especially when you discover that food was the cause of all your

problems...like I have (suffered miserably for 37 years misdiagnosed). In the

last 29 days I have gained weight instead of loosing! AMEN!

Antoinette

(SCD day 29 entire family/Celiac (again the GF diet gave relief...but that is

all)_...DH, ADHD, ADD, ASD and much more!)

Re: stool tests was: recommended tests/GFCF diet not

working

I hope I haven't missed the answer to this - I have a hard time

keeping up with the digests.

Don't you have to be actively ingesting wheat to show up with the

gluten sensitivity? This was how my tests were. The doc said the

blood test should register since I had only been GF for 6 months.

But it didn't register. Then he made me eat wheat for a month before

the biopsy - I'm not sure I did a good job - it hurt too much. And

my biopsy was inconclusive. But I definetly now have the dermatitis

if I eat wheat by accident (prior to SCD), so I definetly have

celiac. And we've always kept my daughter away from wheat, based on

her other intolerances - dairy, soy, egg and our STRONG family

history of celiac and IBS. But I would love to have a test that

would work without putting her on Gluten so that the DIL's would

belief that this is for life. :-) Not complaining, just that its

hard for people to understand if they don't have gut problems or

don't pay attention to them. Thanks for any info.

Colby, celiac

scd - self, daughter 2 1/2 weeks, dh -trying to be compliant - its a

journey and I'm proud of him for trying so hard

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.infohttp://www.breakingtheviciouscycle.info/\

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and

http://www.pecanbread.comhttp://www.pecanbread.com/>