Re: Battle Royal Continued

[Guest guest]

HI ,

We use the Trampoline for physio for my Josh too. The only time he ever gets

up any mucus is when he is jumping and laughing on the Tramp. We do his

pulmozyme first and then we jump works great. And, you are right it is a

great workout for Mom as well. We do the same thing when ever he is going to

be doing an active sport (soccer, skiing or swimming). Our Dr. said that is

fine. This usually cuts down having to do the vest a few times a week. And

since he participates in a different sport each season it works out well.

Mom to Josh 8 1/2 wcf and 3 1/2 nocf but wants to do therapy

for

his brother.

[Guest guest]

Wow!! What a great alternative. We have a full size trampoline in our back yard.

Josh see's his doctor in 2 weeks. I'll have to ask if this can be used as an

alternative for him also. Mabe I'll even get out ther with him, god knows I

could use the excercise!!

My list of questions just get's longer and longer.....

Battle Royal Continued

We spoke to Shelby's doctor at the Royal Brompton today with regards to our

battle royal with Shelby almost every evening.

As she got a small trampoline thingy for her birthday Dr Bush said if we can

get her to jump on that 10 times and then blow hard and keep that up for 15

minutes instead of the physio it should do almost the same thing. Then if she

is tired or not feeling very well she will probably tolerate the CPT again.

Want to bet she wont want to jump anymore once she knows she HAS

to!!!!!!!!!!!! LOL

Grandma Maggs

[Guest guest]

Wow!! What a great alternative. We have a full size trampoline in our back yard.

Josh see's his doctor in 2 weeks. I'll have to ask if this can be used as an

alternative for him also. Mabe I'll even get out ther with him, god knows I

could use the excercise!!

My list of questions just get's longer and longer.....

Battle Royal Continued

We spoke to Shelby's doctor at the Royal Brompton today with regards to our

battle royal with Shelby almost every evening.

As she got a small trampoline thingy for her birthday Dr Bush said if we can

get her to jump on that 10 times and then blow hard and keep that up for 15

minutes instead of the physio it should do almost the same thing. Then if she

is tired or not feeling very well she will probably tolerate the CPT again.

Want to bet she wont want to jump anymore once she knows she HAS

to!!!!!!!!!!!! LOL

Grandma Maggs

[Guest guest]

Great news! See how long you can keep her from figuring out that she

" has " to. LOL. That works well at our house. Lots of games. They love

the mini trampoline we have, and our neighbor's full-size one. Jake also

has this wonderful way of running around the house in circles singing

" aaaahhhhhhh " as he goes. The nurse was quite impressed at what we call

his " auto-physio. " LOL. She said that probably is as effective as CPT.

We also do the PEP mask when he's sick but other than that we just keep

him active, jumping on the tramp and then blowing bubbles in between,

and running and singing (which seems to bring up the most mucus).

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

Re: Battle Royal Continued

Wow!! What a great alternative. We have a full size trampoline in our

back yard. Josh see's his doctor in 2 weeks. I'll have to ask if this

can be used as an alternative for him also. Mabe I'll even get out ther

with him, god knows I could use the excercise!!

My list of questions just get's longer and longer.....

Battle Royal Continued

We spoke to Shelby's doctor at the Royal Brompton today with regards

to our battle royal with Shelby almost every evening.

As she got a small trampoline thingy for her birthday Dr Bush said if

we can get her to jump on that 10 times and then blow hard and keep that

up for 15 minutes instead of the physio it should do almost the same

thing. Then if she is tired or not feeling very well she will probably

tolerate the CPT again.

Want to bet she wont want to jump anymore once she knows she HAS

to!!!!!!!!!!!! LOL

Grandma Maggs

[Guest guest]

Great news! See how long you can keep her from figuring out that she

" has " to. LOL. That works well at our house. Lots of games. They love

the mini trampoline we have, and our neighbor's full-size one. Jake also

has this wonderful way of running around the house in circles singing

" aaaahhhhhhh " as he goes. The nurse was quite impressed at what we call

his " auto-physio. " LOL. She said that probably is as effective as CPT.

We also do the PEP mask when he's sick but other than that we just keep

him active, jumping on the tramp and then blowing bubbles in between,

and running and singing (which seems to bring up the most mucus).

)O(

mama to , 2yo, w/CF, and , 4yo, no CF

Re: Battle Royal Continued

Wow!! What a great alternative. We have a full size trampoline in our

back yard. Josh see's his doctor in 2 weeks. I'll have to ask if this

can be used as an alternative for him also. Mabe I'll even get out ther

with him, god knows I could use the excercise!!

My list of questions just get's longer and longer.....

Battle Royal Continued

We spoke to Shelby's doctor at the Royal Brompton today with regards

to our battle royal with Shelby almost every evening.

As she got a small trampoline thingy for her birthday Dr Bush said if

we can get her to jump on that 10 times and then blow hard and keep that

up for 15 minutes instead of the physio it should do almost the same

thing. Then if she is tired or not feeling very well she will probably

tolerate the CPT again.

Want to bet she wont want to jump anymore once she knows she HAS

to!!!!!!!!!!!! LOL

Grandma Maggs

[Guest guest]

Hi ,

When my daughter Cheyenne began to crawl she would climb up on my lap during

Josh's treatment, this was back when we did the " hands on pounding stuff " . She

wanted her turn. So I did not one, but two treatments. It's so funny what the

kids think when they are born into a CF family!

I was meaning to ask how old your other son was. Royal Caribbean's Adventure

Ocean starts taking kid's into the program at age 3. Lucky you. You guys will

get to do the formal dinner thing. Looks like we are either gonna have to get a

baby sitter (yes they have those too) or pay one of the older kids who is not

interested in the formal thing.

I can't wait to ask about the trampoline thing. I notice that Josh coughs up

alot more when he's excited or laughing. Guess we can start family treatments!

Re: Battle Royal Continued

HI ,

We use the Trampoline for physio for my Josh too. The only time he ever gets

up any mucus is when he is jumping and laughing on the Tramp. We do his

pulmozyme first and then we jump works great. And, you are right it is a

great workout for Mom as well. We do the same thing when ever he is going to

be doing an active sport (soccer, skiing or swimming). Our Dr. said that is

fine. This usually cuts down having to do the vest a few times a week. And

since he participates in a different sport each season it works out well.

Mom to Josh 8 1/2 wcf and 3 1/2 nocf but wants to do therapy

for

his brother.

[Guest guest]

,

Your post reminded me of something. When was little, he used to

love watching The Three Stooges and Marx Brothers -- also a British

program called Benny Hill. He would laugh is little head off, which

would cause him to cough and bring up quite a bit of mucus.

After that, whenever would get sick I'd go to the video store

and stock up on Three Stooges and Marx Brothers movies. But I'd also

call my friend , who is the mom of 's best friend (Mark).

I'd ask if we could " borrow " Mark for the weekend because he was

really the best therapy. It's wonderful when you have friends like

that, they would pack a bag and rush Mark out to our house. One time

said, " Boy, you just saved Mark because I just grounded him for

not cleaning his room! "

and Mark would build with Legos, watch videos, invent stuff --

Mark has this wonderful, dry wit with a great delivery style. He'd

have in stitches, laughing so hard that more mucus came up.

Laughter is the best medicine! and Mark are still best friends

and stay in contact even though they attend universities in different

states; in fact, Mark flew here this weekend then he and drove

to Indiana to visit another friend.

When was in junior high school, the show Mr. Bean aired on

Sunday nights. It became a family habit that after their dad got done

milking the cows (we lived on a dairy farm), he'd rush to town, pick

up a pizza and bring it home. We'd throw a quilt on the floor in front

of the fireplace and have winter picnics watching Mr. Bean. But you

really can't watch Mr. Bean and eat at the same time because you're

laughing so hard you choke trying to swallow!

If you haven't seen Mr. Bean's tv shows, you should see if they have

episodes on video. The one about the Christmas turkey is hysterical,

but I also love the one about Mr. Bean staying at a hotel!!

Ohmygosh, now I want to find the videos!!

Kim

Mom to (23 with cf and asthma) and (20 asthma no cf)

I can't wait to ask about the trampoline thing. I notice that Josh

coughs up alot more when he's excited or laughing. Guess we can start

family treatments!