Re: Run down, feeling poorly on limited foods, need advice

[Guest guest]

what about fruit? can he have fruit?

>

> We've been on SCD for 19 days, my nursing 3yo and I. He seems to be

> doing fine, he hasn't lost any weight thank goodness, and his

> behavior is much much better. He's doing quite well developmentally -

> making faster progress in his ABA program than he ever has.

> Teachers are commenting about how well he's suddenly doing. We're

> also doing antifungals and antibiotics, but I'm convinced the

> progress is mostly due to SCD.

>

> However I'm becoming increasingly run down, foggy-brained and

> unfocused, having difficulty getting through the day. I want to

> sleep a lot. I don't have any energy.

>

> I think a large part of the problem is our limited diet. My son has

> allergies (real, positive test IgE allergies) to most foods,

> including nuts and milk, and with his allergy profile the risk with

> eggs is too great to try them. He eats only a few meats, a few

> veggies, and 3 oils. We follow a rotation diet, and we have about 16

> foods tro spread out over 5 different rotation schedules, so each

> day is really just limited to one meat, one oil, and one or two

> vegetables. A sample day would be: spinach, beef, safflower oil,

> cucumber (cooked).

>

> I am not really able to expand his diet at this point. I've already

> added in advanced foods that I would rather have waited on - like

> broccoli and celeriac, just because he needs the carbs and calories

> from them. But his poops are looking undigested on those days.

>

> A few days, I have cheated with potatos, and I feel much better

> those days and it did not seem to affect my son (he has outgrown his

> old potato allergy). I think I need the carbs. I am not losing

> weight, probably due to eating so much meat and oil.

>

> Can anyone help me figure out what to do? I am really at a loss. I

> don't want to wean him, it would be really hard on him emotionally

> and behaviorally right now. I don't want to take away this important

> food source, either.

>

> Adding other foods is pretty risky, unless we jump ahead to

> rutabagas, or go to non-dissacharide illegals that he's not allergic

> to, like parsnips and turnips (which he always seemed to do well

> with). Am I correct in understanding that Elaine's objections to

> these were due to their rough fibrous texture, rather than the type

> of saccharide they are?

>

> Any advice is welcome!

> Suzanne

>

[Guest guest]

what about fruit? can he have fruit?

>

> We've been on SCD for 19 days, my nursing 3yo and I. He seems to be

> doing fine, he hasn't lost any weight thank goodness, and his

> behavior is much much better. He's doing quite well developmentally -

> making faster progress in his ABA program than he ever has.

> Teachers are commenting about how well he's suddenly doing. We're

> also doing antifungals and antibiotics, but I'm convinced the

> progress is mostly due to SCD.

>

> However I'm becoming increasingly run down, foggy-brained and

> unfocused, having difficulty getting through the day. I want to

> sleep a lot. I don't have any energy.

>

> I think a large part of the problem is our limited diet. My son has

> allergies (real, positive test IgE allergies) to most foods,

> including nuts and milk, and with his allergy profile the risk with

> eggs is too great to try them. He eats only a few meats, a few

> veggies, and 3 oils. We follow a rotation diet, and we have about 16

> foods tro spread out over 5 different rotation schedules, so each

> day is really just limited to one meat, one oil, and one or two

> vegetables. A sample day would be: spinach, beef, safflower oil,

> cucumber (cooked).

>

> I am not really able to expand his diet at this point. I've already

> added in advanced foods that I would rather have waited on - like

> broccoli and celeriac, just because he needs the carbs and calories

> from them. But his poops are looking undigested on those days.

>

> A few days, I have cheated with potatos, and I feel much better

> those days and it did not seem to affect my son (he has outgrown his

> old potato allergy). I think I need the carbs. I am not losing

> weight, probably due to eating so much meat and oil.

>

> Can anyone help me figure out what to do? I am really at a loss. I

> don't want to wean him, it would be really hard on him emotionally

> and behaviorally right now. I don't want to take away this important

> food source, either.

>

> Adding other foods is pretty risky, unless we jump ahead to

> rutabagas, or go to non-dissacharide illegals that he's not allergic

> to, like parsnips and turnips (which he always seemed to do well

> with). Am I correct in understanding that Elaine's objections to

> these were due to their rough fibrous texture, rather than the type

> of saccharide they are?

>

> Any advice is welcome!

> Suzanne

>

[Guest guest]

No, I wish he could have fruit. He's allergic, we confirmed that

when we used it for a week with his intro diet.

We had kept him off fruit for a long time - he's tested allergic in

the past, and he usually developed eczema when he's exposed for a

few days. But in order to do the intro diet I gave him pearsauce,

applesauce, and cooked banana for the first 5 days, which gave us a

few calories so we could take out other illegals like parsnips and

turnips. He was covered with eczema by the end of 5 days. I'm only

now getting the eczema in control using Elidel, which I hate to do.

In the past, fruit exposure has been the star tof a bunch of other

allergies too, so I suspect it's a yeast feeder for him. I hope

since he's on Nystatin now that it won't be as bad a problem.

Suzanne

> >

> > We've been on SCD for 19 days, my nursing 3yo and I. He seems to

be

> > doing fine, he hasn't lost any weight thank goodness, and his

> > behavior is much much better. He's doing quite well

developmentally -

> > making faster progress in his ABA program than he ever has.

> > Teachers are commenting about how well he's suddenly doing.

We're

> > also doing antifungals and antibiotics, but I'm convinced the

> > progress is mostly due to SCD.

> >

> > However I'm becoming increasingly run down, foggy-brained and

> > unfocused, having difficulty getting through the day. I want to

> > sleep a lot. I don't have any energy.

> >

> > I think a large part of the problem is our limited diet. My son

has

> > allergies (real, positive test IgE allergies) to most foods,

> > including nuts and milk, and with his allergy profile the risk

with

> > eggs is too great to try them. He eats only a few meats, a few

> > veggies, and 3 oils. We follow a rotation diet, and we have

about 16

> > foods tro spread out over 5 different rotation schedules, so

each

> > day is really just limited to one meat, one oil, and one or two

> > vegetables. A sample day would be: spinach, beef, safflower oil,

> > cucumber (cooked).

> >

> > I am not really able to expand his diet at this point. I've

already

> > added in advanced foods that I would rather have waited on -

like

> > broccoli and celeriac, just because he needs the carbs and

calories

> > from them. But his poops are looking undigested on those days.

> >

> > A few days, I have cheated with potatos, and I feel much better

> > those days and it did not seem to affect my son (he has outgrown

his

> > old potato allergy). I think I need the carbs. I am not losing

> > weight, probably due to eating so much meat and oil.

> >

> > Can anyone help me figure out what to do? I am really at a loss.

I

> > don't want to wean him, it would be really hard on him

emotionally

> > and behaviorally right now. I don't want to take away this

important

> > food source, either.

> >

> > Adding other foods is pretty risky, unless we jump ahead to

> > rutabagas, or go to non-dissacharide illegals that he's not

allergic

> > to, like parsnips and turnips (which he always seemed to do well

> > with). Am I correct in understanding that Elaine's objections to

> > these were due to their rough fibrous texture, rather than the

type

> > of saccharide they are?

> >

> > Any advice is welcome!

> > Suzanne

> >

>

[Guest guest]

Someone may have already answered with this (some posts never come through, or

arrive in my mailbox days later). It sounds like you're having a real tough time

of it, but I have to congratulate you on following through with a very difficult

regimen.

The one suggestion I would have would be to increase the amount of allowable fat

you can have on any given day. For you especially, as your energy is important.

He's getting a good amount of fat and carbs from your milk, but you need to take

care of yourself. I can't remember, does he do well with honey? Perhaps even

mixing oil and honey would make it more palatable, at least for you.

As far as the meat goes, try to find fattier cuts of the meat, as the fat will

go a long way to giving you the extra calories you need. Also, make a stock with

the bones that he's allowed that day, especially if there's fat, and he can

drink that. The gelatin from meat/bone broth is very healing for the digestive

tract, and if there's extra fat floating on it, so much the better. We've been

getting grass-fed meats from local farmers, and it makes wonderfully rich

stocks.

I remember when I started, I too was tired and listless, and someone here

suggested I increase my fat intake, so for a while I made my yogurt out of cream

(I know you don't do dairy), and that made a huge difference.

One snack I still make for myself (though it won't work for you, sorry) is

roughly equal parts (each ingredient is optional) nut butter, coconut oil (it's

hard at room temperature, especially this time of year), butter (or ghee, which

is casein-free) and honey. I sometimes add nut flour or coconut.

And remember, although your diet is limited right now, there is some healing

happening, so that's an incentive to stick with it, and you're doing the best

for your child. My dd turns 4 in a week, and she only weaned a few months ago,

so stick with it.

I hope this makes sense. Good luck.

Theresa (in Vancouver, Canada)

Run down, feeling poorly on limited foods, need advice

We've been on SCD for 19 days, my nursing 3yo and I. He seems to be

doing fine, he hasn't lost any weight thank goodness, and his

behavior is much much better. He's doing quite well developmentally -

making faster progress in his ABA program than he ever has.

Teachers are commenting about how well he's suddenly doing. We're

also doing antifungals and antibiotics, but I'm convinced the

progress is mostly due to SCD.

However I'm becoming increasingly run down, foggy-brained and

unfocused, having difficulty getting through the day. I want to

sleep a lot. I don't have any energy.

I think a large part of the problem is our limited diet. My son has

allergies (real, positive test IgE allergies) to most foods,

including nuts and milk, and with his allergy profile the risk with

eggs is too great to try them. He eats only a few meats, a few

veggies, and 3 oils. We follow a rotation diet, and we have about 16

foods tro spread out over 5 different rotation schedules, so each

day is really just limited to one meat, one oil, and one or two

vegetables. A sample day would be: spinach, beef, safflower oil,

cucumber (cooked).

I am not really able to expand his diet at this point. I've already

added in advanced foods that I would rather have waited on - like

broccoli and celeriac, just because he needs the carbs and calories

from them. But his poops are looking undigested on those days.

A few days, I have cheated with potatos, and I feel much better

those days and it did not seem to affect my son (he has outgrown his

old potato allergy). I think I need the carbs. I am not losing

weight, probably due to eating so much meat and oil.

Can anyone help me figure out what to do? I am really at a loss. I

don't want to wean him, it would be really hard on him emotionally

and behaviorally right now. I don't want to take away this important

food source, either.

Adding other foods is pretty risky, unless we jump ahead to

rutabagas, or go to non-dissacharide illegals that he's not allergic

to, like parsnips and turnips (which he always seemed to do well

with). Am I correct in understanding that Elaine's objections to

these were due to their rough fibrous texture, rather than the type

of saccharide they are?

Any advice is welcome!

Suzanne

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

Someone may have already answered with this (some posts never come through, or

arrive in my mailbox days later). It sounds like you're having a real tough time

of it, but I have to congratulate you on following through with a very difficult

regimen.

The one suggestion I would have would be to increase the amount of allowable fat

you can have on any given day. For you especially, as your energy is important.

He's getting a good amount of fat and carbs from your milk, but you need to take

care of yourself. I can't remember, does he do well with honey? Perhaps even

mixing oil and honey would make it more palatable, at least for you.

As far as the meat goes, try to find fattier cuts of the meat, as the fat will

go a long way to giving you the extra calories you need. Also, make a stock with

the bones that he's allowed that day, especially if there's fat, and he can

drink that. The gelatin from meat/bone broth is very healing for the digestive

tract, and if there's extra fat floating on it, so much the better. We've been

getting grass-fed meats from local farmers, and it makes wonderfully rich

stocks.

I remember when I started, I too was tired and listless, and someone here

suggested I increase my fat intake, so for a while I made my yogurt out of cream

(I know you don't do dairy), and that made a huge difference.

One snack I still make for myself (though it won't work for you, sorry) is

roughly equal parts (each ingredient is optional) nut butter, coconut oil (it's

hard at room temperature, especially this time of year), butter (or ghee, which

is casein-free) and honey. I sometimes add nut flour or coconut.

And remember, although your diet is limited right now, there is some healing

happening, so that's an incentive to stick with it, and you're doing the best

for your child. My dd turns 4 in a week, and she only weaned a few months ago,

so stick with it.

I hope this makes sense. Good luck.

Theresa (in Vancouver, Canada)

Run down, feeling poorly on limited foods, need advice

We've been on SCD for 19 days, my nursing 3yo and I. He seems to be

doing fine, he hasn't lost any weight thank goodness, and his

behavior is much much better. He's doing quite well developmentally -

making faster progress in his ABA program than he ever has.

Teachers are commenting about how well he's suddenly doing. We're

also doing antifungals and antibiotics, but I'm convinced the

progress is mostly due to SCD.

However I'm becoming increasingly run down, foggy-brained and

unfocused, having difficulty getting through the day. I want to

sleep a lot. I don't have any energy.

I think a large part of the problem is our limited diet. My son has

allergies (real, positive test IgE allergies) to most foods,

including nuts and milk, and with his allergy profile the risk with

eggs is too great to try them. He eats only a few meats, a few

veggies, and 3 oils. We follow a rotation diet, and we have about 16

foods tro spread out over 5 different rotation schedules, so each

day is really just limited to one meat, one oil, and one or two

vegetables. A sample day would be: spinach, beef, safflower oil,

cucumber (cooked).

I am not really able to expand his diet at this point. I've already

added in advanced foods that I would rather have waited on - like

broccoli and celeriac, just because he needs the carbs and calories

from them. But his poops are looking undigested on those days.

A few days, I have cheated with potatos, and I feel much better

those days and it did not seem to affect my son (he has outgrown his

old potato allergy). I think I need the carbs. I am not losing

weight, probably due to eating so much meat and oil.

Can anyone help me figure out what to do? I am really at a loss. I

don't want to wean him, it would be really hard on him emotionally

and behaviorally right now. I don't want to take away this important

food source, either.

Adding other foods is pretty risky, unless we jump ahead to

rutabagas, or go to non-dissacharide illegals that he's not allergic

to, like parsnips and turnips (which he always seemed to do well

with). Am I correct in understanding that Elaine's objections to

these were due to their rough fibrous texture, rather than the type

of saccharide they are?

Any advice is welcome!

Suzanne

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

Someone may have already answered with this (some posts never come through, or

arrive in my mailbox days later). It sounds like you're having a real tough time

of it, but I have to congratulate you on following through with a very difficult

regimen.

The one suggestion I would have would be to increase the amount of allowable fat

you can have on any given day. For you especially, as your energy is important.

He's getting a good amount of fat and carbs from your milk, but you need to take

care of yourself. I can't remember, does he do well with honey? Perhaps even

mixing oil and honey would make it more palatable, at least for you.

As far as the meat goes, try to find fattier cuts of the meat, as the fat will

go a long way to giving you the extra calories you need. Also, make a stock with

the bones that he's allowed that day, especially if there's fat, and he can

drink that. The gelatin from meat/bone broth is very healing for the digestive

tract, and if there's extra fat floating on it, so much the better. We've been

getting grass-fed meats from local farmers, and it makes wonderfully rich

stocks.

I remember when I started, I too was tired and listless, and someone here

suggested I increase my fat intake, so for a while I made my yogurt out of cream

(I know you don't do dairy), and that made a huge difference.

One snack I still make for myself (though it won't work for you, sorry) is

roughly equal parts (each ingredient is optional) nut butter, coconut oil (it's

hard at room temperature, especially this time of year), butter (or ghee, which

is casein-free) and honey. I sometimes add nut flour or coconut.

And remember, although your diet is limited right now, there is some healing

happening, so that's an incentive to stick with it, and you're doing the best

for your child. My dd turns 4 in a week, and she only weaned a few months ago,

so stick with it.

I hope this makes sense. Good luck.

Theresa (in Vancouver, Canada)

Run down, feeling poorly on limited foods, need advice

We've been on SCD for 19 days, my nursing 3yo and I. He seems to be

doing fine, he hasn't lost any weight thank goodness, and his

behavior is much much better. He's doing quite well developmentally -

making faster progress in his ABA program than he ever has.

Teachers are commenting about how well he's suddenly doing. We're

also doing antifungals and antibiotics, but I'm convinced the

progress is mostly due to SCD.

However I'm becoming increasingly run down, foggy-brained and

unfocused, having difficulty getting through the day. I want to

sleep a lot. I don't have any energy.

I think a large part of the problem is our limited diet. My son has

allergies (real, positive test IgE allergies) to most foods,

including nuts and milk, and with his allergy profile the risk with

eggs is too great to try them. He eats only a few meats, a few

veggies, and 3 oils. We follow a rotation diet, and we have about 16

foods tro spread out over 5 different rotation schedules, so each

day is really just limited to one meat, one oil, and one or two

vegetables. A sample day would be: spinach, beef, safflower oil,

cucumber (cooked).

I am not really able to expand his diet at this point. I've already

added in advanced foods that I would rather have waited on - like

broccoli and celeriac, just because he needs the carbs and calories

from them. But his poops are looking undigested on those days.

A few days, I have cheated with potatos, and I feel much better

those days and it did not seem to affect my son (he has outgrown his

old potato allergy). I think I need the carbs. I am not losing

weight, probably due to eating so much meat and oil.

Can anyone help me figure out what to do? I am really at a loss. I

don't want to wean him, it would be really hard on him emotionally

and behaviorally right now. I don't want to take away this important

food source, either.

Adding other foods is pretty risky, unless we jump ahead to

rutabagas, or go to non-dissacharide illegals that he's not allergic

to, like parsnips and turnips (which he always seemed to do well

with). Am I correct in understanding that Elaine's objections to

these were due to their rough fibrous texture, rather than the type

of saccharide they are?

Any advice is welcome!

Suzanne

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

Thanks for your thoughts Theresa. Sorry I'm just getting back online

now. I've had a busy couple of days. I'm not feeling a whole lot

more energetic, partly because of the diet, but I've also got a

lingering cold and because our daily regimen for our son is just a

tough one. We drive 150-200 miles a day for therapy and there are 6

grocery stores to go to every week in addition to the 4 hours a day

of cooking. Add in ab IEP meeting, a doctor visit, and attempting to

job-hunt and it's a lot. And we only get about 4 hours sleep a night.

Your suggestions are good ones, but I'm already doing most of them.

I make stock from the meat drippings every day, and puree a soup

with some of his daily vegetables. But there's not enough for both

of us. Most of my calories are coming from meat, and it doesn't

feel healthy. What I would give for a simple boiled egg! Your nut

butter sounds like an out-of-this world treat. We don't have nuts or

dairy in our house though.

I am reluctantly concluding that I am going to have to wean my son

so I can keep myself going for the other things he needs. He's only

getting a tiny bit of milk from me anymore - probably less than an

ounce a day. I was trying to keep going to provide that for him -

every little bit helps. I've been working at weaning him slowly for

the past 6 months, while pumping to keep my supply up and giving him

the milk in a bottle. But I just don't think I can continue doing

all the other things that need to be done for him while keeping

myself on such a restricted version of the SCD. I don't miss the

foods - I've been on extremely restricted diets for 3 years now, but

I just am not doing well with such limited nutrition. I am dizzy and

weak a lot of the time, and I feel like I'm going to pass out

frequently. I think I need more carbs than I'm getting.

I'll be eating this way for another few weeks til he's fully weaned,

and I'm not sure I'm ever going back to eating grains. I am looking

forward to some yogurt though!

Thanks for the words of encouragement ... I'm sure I'll still need

them for a little while longer.

Suzanne

>

> Someone may have already answered with this (some posts never come

through, or arrive in my mailbox days later). It sounds like you're

having a real tough time of it, but I have to congratulate you on

following through with a very difficult regimen.

>

> The one suggestion I would have would be to increase the amount of

allowable fat you can have on any given day. For you especially, as

your energy is important. He's getting a good amount of fat and

carbs from your milk, but you need to take care of yourself. I can't

remember, does he do well with honey? Perhaps even mixing oil and

honey would make it more palatable, at least for you.

>

> As far as the meat goes, try to find fattier cuts of the meat, as

the fat will go a long way to giving you the extra calories you

need. Also, make a stock with the bones that he's allowed that day,

especially if there's fat, and he can drink that. The gelatin from

meat/bone broth is very healing for the digestive tract, and if

there's extra fat floating on it, so much the better. We've been

getting grass-fed meats from local farmers, and it makes wonderfully

rich stocks.

>

> I remember when I started, I too was tired and listless, and

someone here suggested I increase my fat intake, so for a while I

made my yogurt out of cream (I know you don't do dairy), and that

made a huge difference.

>

> One snack I still make for myself (though it won't work for you,

sorry) is roughly equal parts (each ingredient is optional) nut

butter, coconut oil (it's hard at room temperature, especially this

time of year), butter (or ghee, which is casein-free) and honey. I

sometimes add nut flour or coconut.

>

> And remember, although your diet is limited right now, there is

some healing happening, so that's an incentive to stick with it, and

you're doing the best for your child. My dd turns 4 in a week, and

she only weaned a few months ago, so stick with it.

>

> I hope this makes sense. Good luck.

>

> Theresa (in Vancouver, Canada)

> Run down, feeling poorly on limited foods,

need advice

>

>

> We've been on SCD for 19 days, my nursing 3yo and I. He seems to

be

> doing fine, he hasn't lost any weight thank goodness, and his

> behavior is much much better. He's doing quite well

developmentally -

> making faster progress in his ABA program than he ever has.

> Teachers are commenting about how well he's suddenly doing.

We're

> also doing antifungals and antibiotics, but I'm convinced the

> progress is mostly due to SCD.

>

> However I'm becoming increasingly run down, foggy-brained and

> unfocused, having difficulty getting through the day. I want to

> sleep a lot. I don't have any energy.

>

> I think a large part of the problem is our limited diet. My son

has

> allergies (real, positive test IgE allergies) to most foods,

> including nuts and milk, and with his allergy profile the risk

with

> eggs is too great to try them. He eats only a few meats, a few

> veggies, and 3 oils. We follow a rotation diet, and we have

about 16

> foods tro spread out over 5 different rotation schedules, so

each

> day is really just limited to one meat, one oil, and one or two

> vegetables. A sample day would be: spinach, beef, safflower oil,

> cucumber (cooked).

>

> I am not really able to expand his diet at this point. I've

already

> added in advanced foods that I would rather have waited on -

like

> broccoli and celeriac, just because he needs the carbs and

calories

> from them. But his poops are looking undigested on those days.

>

> A few days, I have cheated with potatos, and I feel much better

> those days and it did not seem to affect my son (he has outgrown

his

> old potato allergy). I think I need the carbs. I am not losing

> weight, probably due to eating so much meat and oil.

>

> Can anyone help me figure out what to do? I am really at a loss.

I

> don't want to wean him, it would be really hard on him

emotionally

> and behaviorally right now. I don't want to take away this

important

> food source, either.

>

> Adding other foods is pretty risky, unless we jump ahead to

> rutabagas, or go to non-dissacharide illegals that he's not

allergic

> to, like parsnips and turnips (which he always seemed to do well

> with). Am I correct in understanding that Elaine's objections to

> these were due to their rough fibrous texture, rather than the

type

> of saccharide they are?

>

> Any advice is welcome!

> Suzanne

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read

the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read

the following websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

>

>

>

[Guest guest]

Thanks for your thoughts Theresa. Sorry I'm just getting back online

now. I've had a busy couple of days. I'm not feeling a whole lot

more energetic, partly because of the diet, but I've also got a

lingering cold and because our daily regimen for our son is just a

tough one. We drive 150-200 miles a day for therapy and there are 6

grocery stores to go to every week in addition to the 4 hours a day

of cooking. Add in ab IEP meeting, a doctor visit, and attempting to

job-hunt and it's a lot. And we only get about 4 hours sleep a night.

Your suggestions are good ones, but I'm already doing most of them.

I make stock from the meat drippings every day, and puree a soup

with some of his daily vegetables. But there's not enough for both

of us. Most of my calories are coming from meat, and it doesn't

feel healthy. What I would give for a simple boiled egg! Your nut

butter sounds like an out-of-this world treat. We don't have nuts or

dairy in our house though.

I am reluctantly concluding that I am going to have to wean my son

so I can keep myself going for the other things he needs. He's only

getting a tiny bit of milk from me anymore - probably less than an

ounce a day. I was trying to keep going to provide that for him -

every little bit helps. I've been working at weaning him slowly for

the past 6 months, while pumping to keep my supply up and giving him

the milk in a bottle. But I just don't think I can continue doing

all the other things that need to be done for him while keeping

myself on such a restricted version of the SCD. I don't miss the

foods - I've been on extremely restricted diets for 3 years now, but

I just am not doing well with such limited nutrition. I am dizzy and

weak a lot of the time, and I feel like I'm going to pass out

frequently. I think I need more carbs than I'm getting.

I'll be eating this way for another few weeks til he's fully weaned,

and I'm not sure I'm ever going back to eating grains. I am looking

forward to some yogurt though!

Thanks for the words of encouragement ... I'm sure I'll still need

them for a little while longer.

Suzanne

>

> Someone may have already answered with this (some posts never come

through, or arrive in my mailbox days later). It sounds like you're

having a real tough time of it, but I have to congratulate you on

following through with a very difficult regimen.

>

> The one suggestion I would have would be to increase the amount of

allowable fat you can have on any given day. For you especially, as

your energy is important. He's getting a good amount of fat and

carbs from your milk, but you need to take care of yourself. I can't

remember, does he do well with honey? Perhaps even mixing oil and

honey would make it more palatable, at least for you.

>

> As far as the meat goes, try to find fattier cuts of the meat, as

the fat will go a long way to giving you the extra calories you

need. Also, make a stock with the bones that he's allowed that day,

especially if there's fat, and he can drink that. The gelatin from

meat/bone broth is very healing for the digestive tract, and if

there's extra fat floating on it, so much the better. We've been

getting grass-fed meats from local farmers, and it makes wonderfully

rich stocks.

>

> I remember when I started, I too was tired and listless, and

someone here suggested I increase my fat intake, so for a while I

made my yogurt out of cream (I know you don't do dairy), and that

made a huge difference.

>

> One snack I still make for myself (though it won't work for you,

sorry) is roughly equal parts (each ingredient is optional) nut

butter, coconut oil (it's hard at room temperature, especially this

time of year), butter (or ghee, which is casein-free) and honey. I

sometimes add nut flour or coconut.

>

> And remember, although your diet is limited right now, there is

some healing happening, so that's an incentive to stick with it, and

you're doing the best for your child. My dd turns 4 in a week, and

she only weaned a few months ago, so stick with it.

>

> I hope this makes sense. Good luck.

>

> Theresa (in Vancouver, Canada)

> Run down, feeling poorly on limited foods,

need advice

>

>

> We've been on SCD for 19 days, my nursing 3yo and I. He seems to

be

> doing fine, he hasn't lost any weight thank goodness, and his

> behavior is much much better. He's doing quite well

developmentally -

> making faster progress in his ABA program than he ever has.

> Teachers are commenting about how well he's suddenly doing.

We're

> also doing antifungals and antibiotics, but I'm convinced the

> progress is mostly due to SCD.

>

> However I'm becoming increasingly run down, foggy-brained and

> unfocused, having difficulty getting through the day. I want to

> sleep a lot. I don't have any energy.

>

> I think a large part of the problem is our limited diet. My son

has

> allergies (real, positive test IgE allergies) to most foods,

> including nuts and milk, and with his allergy profile the risk

with

> eggs is too great to try them. He eats only a few meats, a few

> veggies, and 3 oils. We follow a rotation diet, and we have

about 16

> foods tro spread out over 5 different rotation schedules, so

each

> day is really just limited to one meat, one oil, and one or two

> vegetables. A sample day would be: spinach, beef, safflower oil,

> cucumber (cooked).

>

> I am not really able to expand his diet at this point. I've

already

> added in advanced foods that I would rather have waited on -

like

> broccoli and celeriac, just because he needs the carbs and

calories

> from them. But his poops are looking undigested on those days.

>

> A few days, I have cheated with potatos, and I feel much better

> those days and it did not seem to affect my son (he has outgrown

his

> old potato allergy). I think I need the carbs. I am not losing

> weight, probably due to eating so much meat and oil.

>

> Can anyone help me figure out what to do? I am really at a loss.

I

> don't want to wean him, it would be really hard on him

emotionally

> and behaviorally right now. I don't want to take away this

important

> food source, either.

>

> Adding other foods is pretty risky, unless we jump ahead to

> rutabagas, or go to non-dissacharide illegals that he's not

allergic

> to, like parsnips and turnips (which he always seemed to do well

> with). Am I correct in understanding that Elaine's objections to

> these were due to their rough fibrous texture, rather than the

type

> of saccharide they are?

>

> Any advice is welcome!

> Suzanne

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read

the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read

the following websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

>

>

>

[Guest guest]

Thanks for your thoughts Theresa. Sorry I'm just getting back online

now. I've had a busy couple of days. I'm not feeling a whole lot

more energetic, partly because of the diet, but I've also got a

lingering cold and because our daily regimen for our son is just a

tough one. We drive 150-200 miles a day for therapy and there are 6

grocery stores to go to every week in addition to the 4 hours a day

of cooking. Add in ab IEP meeting, a doctor visit, and attempting to

job-hunt and it's a lot. And we only get about 4 hours sleep a night.

Your suggestions are good ones, but I'm already doing most of them.

I make stock from the meat drippings every day, and puree a soup

with some of his daily vegetables. But there's not enough for both

of us. Most of my calories are coming from meat, and it doesn't

feel healthy. What I would give for a simple boiled egg! Your nut

butter sounds like an out-of-this world treat. We don't have nuts or

dairy in our house though.

I am reluctantly concluding that I am going to have to wean my son

so I can keep myself going for the other things he needs. He's only

getting a tiny bit of milk from me anymore - probably less than an

ounce a day. I was trying to keep going to provide that for him -

every little bit helps. I've been working at weaning him slowly for

the past 6 months, while pumping to keep my supply up and giving him

the milk in a bottle. But I just don't think I can continue doing

all the other things that need to be done for him while keeping

myself on such a restricted version of the SCD. I don't miss the

foods - I've been on extremely restricted diets for 3 years now, but

I just am not doing well with such limited nutrition. I am dizzy and

weak a lot of the time, and I feel like I'm going to pass out

frequently. I think I need more carbs than I'm getting.

I'll be eating this way for another few weeks til he's fully weaned,

and I'm not sure I'm ever going back to eating grains. I am looking

forward to some yogurt though!

Thanks for the words of encouragement ... I'm sure I'll still need

them for a little while longer.

Suzanne

>

> Someone may have already answered with this (some posts never come

through, or arrive in my mailbox days later). It sounds like you're

having a real tough time of it, but I have to congratulate you on

following through with a very difficult regimen.

>

> The one suggestion I would have would be to increase the amount of

allowable fat you can have on any given day. For you especially, as

your energy is important. He's getting a good amount of fat and

carbs from your milk, but you need to take care of yourself. I can't

remember, does he do well with honey? Perhaps even mixing oil and

honey would make it more palatable, at least for you.

>

> As far as the meat goes, try to find fattier cuts of the meat, as

the fat will go a long way to giving you the extra calories you

need. Also, make a stock with the bones that he's allowed that day,

especially if there's fat, and he can drink that. The gelatin from

meat/bone broth is very healing for the digestive tract, and if

there's extra fat floating on it, so much the better. We've been

getting grass-fed meats from local farmers, and it makes wonderfully

rich stocks.

>

> I remember when I started, I too was tired and listless, and

someone here suggested I increase my fat intake, so for a while I

made my yogurt out of cream (I know you don't do dairy), and that

made a huge difference.

>

> One snack I still make for myself (though it won't work for you,

sorry) is roughly equal parts (each ingredient is optional) nut

butter, coconut oil (it's hard at room temperature, especially this

time of year), butter (or ghee, which is casein-free) and honey. I

sometimes add nut flour or coconut.

>

> And remember, although your diet is limited right now, there is

some healing happening, so that's an incentive to stick with it, and

you're doing the best for your child. My dd turns 4 in a week, and

she only weaned a few months ago, so stick with it.

>

> I hope this makes sense. Good luck.

>

> Theresa (in Vancouver, Canada)

> Run down, feeling poorly on limited foods,

need advice

>

>

> We've been on SCD for 19 days, my nursing 3yo and I. He seems to

be

> doing fine, he hasn't lost any weight thank goodness, and his

> behavior is much much better. He's doing quite well

developmentally -

> making faster progress in his ABA program than he ever has.

> Teachers are commenting about how well he's suddenly doing.

We're

> also doing antifungals and antibiotics, but I'm convinced the

> progress is mostly due to SCD.

>

> However I'm becoming increasingly run down, foggy-brained and

> unfocused, having difficulty getting through the day. I want to

> sleep a lot. I don't have any energy.

>

> I think a large part of the problem is our limited diet. My son

has

> allergies (real, positive test IgE allergies) to most foods,

> including nuts and milk, and with his allergy profile the risk

with

> eggs is too great to try them. He eats only a few meats, a few

> veggies, and 3 oils. We follow a rotation diet, and we have

about 16

> foods tro spread out over 5 different rotation schedules, so

each

> day is really just limited to one meat, one oil, and one or two

> vegetables. A sample day would be: spinach, beef, safflower oil,

> cucumber (cooked).

>

> I am not really able to expand his diet at this point. I've

already

> added in advanced foods that I would rather have waited on -

like

> broccoli and celeriac, just because he needs the carbs and

calories

> from them. But his poops are looking undigested on those days.

>

> A few days, I have cheated with potatos, and I feel much better

> those days and it did not seem to affect my son (he has outgrown

his

> old potato allergy). I think I need the carbs. I am not losing

> weight, probably due to eating so much meat and oil.

>

> Can anyone help me figure out what to do? I am really at a loss.

I

> don't want to wean him, it would be really hard on him

emotionally

> and behaviorally right now. I don't want to take away this

important

> food source, either.

>

> Adding other foods is pretty risky, unless we jump ahead to

> rutabagas, or go to non-dissacharide illegals that he's not

allergic

> to, like parsnips and turnips (which he always seemed to do well

> with). Am I correct in understanding that Elaine's objections to

> these were due to their rough fibrous texture, rather than the

type

> of saccharide they are?

>

> Any advice is welcome!

> Suzanne

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read

the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read

the following websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

>

>

>