Re: Re: colonized as it refers to bacteriaMARION/Rosemary

November 17, 2002

In a message dated 11/17/2002 9:46:26 PM Central Standard Time,

ROSEMARY3FOR3wCF@... writes:

>

> n:

>

> I will always think of colonized as the " pil GRIMS and IN dians.......... "

>

> Maybe you could share with us some tips on letting chronic life get to you.

>

> I know I am lucky; BUT I sometimes feel sorry for myself or my children. I

>

> try to stay in the positive but damn its hard. I am not a worrier but when

> I

> hear coughing at night for a while it gets to me or when she vomits

> because she is coughing so much.

>

> Its been raining here for 48 hours. Mother Theresa would be depressed if

> she

> were here.........LOL........

>

> Rosemary in New York with 3 children with CF - they are 12, 10, 6...I

> coined

> the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you ready

> for

> this - TOBI after their medication!

Rosemary,

I know how you feel. We found out this week that is still positive

with psueodomonas it has now been 13 months that she has cultured positive.

They are now talking about putting a catheder in her nose so we can get the

Tobi in the area that they believe is infected. I don't even want to tell

about it yet until I know for sure that this is what they are going

to do. Her doctor wants to talk to her ENT about it first before we do this.

Have you ever heard of this being done to a child before? He said they had

done this to an adult for polyps but not a child. I am kind of scared to see

her go through this. Because it can easily be pulled out and that means they

would have to surgically put it back in. I HATE TO THINK OF HER GOING THROUGH

THIS!!!! But we have tried everything and nothing is getting to the source. I

will found out more this week what they are going to do. It is so hard

watching are kids fight this horrible disease. Deb A

Recommended Posts