Guest guest Posted December 12, 2002 Report Share Posted December 12, 2002 That's totally shortsighted thinking, though...think how much more all the extra stuff will cost later when the kid shows up with malnutrition problems, etc. I know the various doctor visits, etc, we went on cost our insurance company plenty of money, and some of them could have been avoided if we had known when she was born...although, to be fair, there would have been about as many visits anyhow...just to the CF clinic instead! But the cost to the kid is avoidable, and can go a long way. Shanna mom of Triana, age 2 wcf Re: Newborn testing In Colorado, they do newborn screening on all newborns, based on the idea that if you catch cf earlier, you can avoid most of the malnutrition assoicated with pancreatic insufficency. That is how we found out our daughter, Maya, has cf. She is now 18mo, and though I didn't want to hear it at the time, I am now glad because she has thrived and is now in the 50th percentile for weight! I believe New York and California are adding the testing soon. States don't want to generally because the test costs about $10 per newborn, and there is no cure for cf. , mom to Maya 18mo old with cf and chd ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2002 Report Share Posted December 12, 2002 That's totally shortsighted thinking, though...think how much more all the extra stuff will cost later when the kid shows up with malnutrition problems, etc. I know the various doctor visits, etc, we went on cost our insurance company plenty of money, and some of them could have been avoided if we had known when she was born...although, to be fair, there would have been about as many visits anyhow...just to the CF clinic instead! But the cost to the kid is avoidable, and can go a long way. Shanna mom of Triana, age 2 wcf Re: Newborn testing In Colorado, they do newborn screening on all newborns, based on the idea that if you catch cf earlier, you can avoid most of the malnutrition assoicated with pancreatic insufficency. That is how we found out our daughter, Maya, has cf. She is now 18mo, and though I didn't want to hear it at the time, I am now glad because she has thrived and is now in the 50th percentile for weight! I believe New York and California are adding the testing soon. States don't want to generally because the test costs about $10 per newborn, and there is no cure for cf. , mom to Maya 18mo old with cf and chd ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2002 Report Share Posted December 12, 2002 That's totally shortsighted thinking, though...think how much more all the extra stuff will cost later when the kid shows up with malnutrition problems, etc. I know the various doctor visits, etc, we went on cost our insurance company plenty of money, and some of them could have been avoided if we had known when she was born...although, to be fair, there would have been about as many visits anyhow...just to the CF clinic instead! But the cost to the kid is avoidable, and can go a long way. Shanna mom of Triana, age 2 wcf Re: Newborn testing In Colorado, they do newborn screening on all newborns, based on the idea that if you catch cf earlier, you can avoid most of the malnutrition assoicated with pancreatic insufficency. That is how we found out our daughter, Maya, has cf. She is now 18mo, and though I didn't want to hear it at the time, I am now glad because she has thrived and is now in the 50th percentile for weight! I believe New York and California are adding the testing soon. States don't want to generally because the test costs about $10 per newborn, and there is no cure for cf. , mom to Maya 18mo old with cf and chd ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2002 Report Share Posted December 13, 2002 Yeah, I'd much prefer her seeing him in a home environment, even though it means I have to see my grandparents. My sister and her husband live in a trailor on my grandparents' land, and she spends most of her time actually in their house. My grandmother and I haven't gotten along pretty much since I was born, and I avoid the woman whenever possible. We've told Triana she has a new baby cousin, but it hasn't quite sunk in yet. She loves babies, but has no real understanding of familial relationships further than mom, dad, and grandma and grandpa. Her cousins are just kids she sometimes gets to play with. But she'll figure it out later (about the time Giddy is old enough to play with her, hehe) Yep, the holidays should be fun. One more day of shopping - today - and we should have the majority of our shopping done for this year. (YAY!) Then, I can make cookie dough Saturday and Sunday. Oh, and this wonderful recipe I found for Energy Balls....I'll e-mail that to the list. Gotta go...Triana just woke up. I'm gonna put that recipe in, then go do therapy. Shanna mom of Triana, age 2 wcf Re: Newborn testing > > > Yes, it is a heel prick, which tests for a high level of > Tryp-something. Sorry, I can't recall. > What state do you live in? > It might be done automatically. > Let me know. I'll get you the details. > Lenora > > >Didn't I read something about some sort of newborn testing they > >could do for CF that involved levels of something in the blood? (As > >opposed to the DNA testing.) > > > >My sister is getting induced tomorrow, and we want to quietly tell > >the docs to test for it, without scaring the heck out of my sister. > >Her husband tested negative for carrier status with the 25 most > >common mutations, but that still leaves a 10% chance that he could > >be a carrier, and we'd none of us rather take the chance of catching > >it late if little " Giddy " ends up having CF. (Although it's > >unlikely, it's still possible.) > > > >If someone could tell me what it was or if I was just imagining it, > >I'd appreciate it. > > > >Thanks, > >Shanna > >mom of Triana, age 2 wcf > > > > > > Quote Link to comment Share on other sites More sharing options...
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