Re: U of Mich GI Appt-disappointing

October 3, 2002

Dear Debbie;

I'm so sorry to hear that you're having such a hard time and having

to endure so much pain!

I can only speak for myself, as I have seen Drs.Lehman & Sherman

many, many times over the course of 7 yrs. I think that the only way

that you're going to know for sure is to have an ERCP, and to know

that Drs. Lehman & Sherman are the absolute best! (DRs. come from all

over the world to learn their techniques)

I had S.O.D. and subsequently(sp) had a sphinterotomy done 7 yrs ago.

Unfortunately, I developed Chronic Panc.over the yrs of having Acute

Panc after so many ERCP's. But....that's not the case for everyone!

Remember that! Dr.Lehman once told me that I had the most sensitive

panc. he had ever run across. Lucky me!! Lotsand lotsofpeople have

ERCP's and NEVER get acute panc.!

Well, that's my experience any how.

Make the appt.Debbie! Don't suffer any longer,please!

I pray you get an appt soon, and get a favorable dx.

God's Blessings to you!!

Let me know how you're doing, ok?

Cyndie

In pancreatitis@y..., kietzmans@a... wrote:

> I had my appt w/GI Specialist at U of Mich today and feel

disappointed. She

> was a nice person and believed that I have had 5 acute pancreas

attacks (even

> though only the last one was dx in the ER). She believes that since

I had my

> gallbladder out and have not had an acute attack since then, that

it is not

> my pancreas causing me ongoing pain. She said usually people who

have

> pancreatitis caused from the gallbladder don't have any ongoing

pancreas

> problems - having the gallbladder out stops the attacks. I said,

can't a

> person have damage after several attacks and she said not if it is

caused

> from your gallbladder. I would think that it wouldn't matter what

the cause

> of the many attacks were - as each attack may cause damage no

matter what the

> cause? Now she thinks there is a problem with my stomach and wants

me to take

> previcid and wants to do an upper Endoscopy Oct 23. I don't think I

am going

> to keep the appt. I asked her if it could be sphinter of oddi -

she said

> with that I would have very bad attacks like pancreatitis - not

ongoing daily

> pain. I just want to find a doctor who will believe that my pain

could be

> caused by my pancreas based on the # of attacks I have had and my

symptoms. I

> don't really want an ERCP right now because the pain has only been

severe

> enough for pain meds for a couple of weeks since April 24,02. But

I do have

> pain almost everyday at different levels of intensity - but I

tolerate it.

> How do I go about finding a doctor who will validate my feelings?

If I went

> to see Dr. G. Lehman - do you think he would be inclined to believe

me - or

> would he have to do an ERCP? If I have one done, it is going to be

by someone

> who gets it correct the first time. I would appreciated any

comments.

> Thanks!

> -Debbie in Mich

>

October 16, 2002

hi debbie,

I believe that the doctor is crazy. I had a duct that was closed and the

pressure was very high within my pancreas for about 7 months and i suffered

with horrible pain attacks but my enzyme levels were never elevated to the

point of acute attack.

I am having a dilema with my medical records from the family practice i saw

in charleston university. Has anyone ever read the records. Boy what a

reality check.

These doctors write anything they want and it's there personal perception of

you and the horrible thing is they don't even know you. I wrote this doctor

a very lentghy email concerning all the doragatory statements they documented

concerning my visits to the er. They also stated that the GI department

droped me as a patient and resinded that diagnoses of CP. So I called my

contact at the university and she said she didn't think that was ever done

through them. So she is checking with the head doctor there and will get

back to me. I also told them they should re read the oath they took when

they become a doctor again. Ijust got a new GI and i refuse to hand over this

bull - - - - over to a new doctor. So I've been putting them off. I called

to get my medical records from the university GI department hope they are

better. I also am inquing about enzyme level and do they fulcuate in a

normal person verses a person with cp. I did a chart on my with the lab tests

i had and they are unstable. But the never go past the physician guidelines

of 23-300. the lipase flucuates from 50's,100's, and 200's. Will let you

all the results.

Thanks for letting me ramble on.....

Hope not to long.

I do not write very ofter just read the post. I have gotten somewhat better

and are able to work now. But i still occasionally have these horrible pain

attacks. With er visits.My CP is idiopatic.

Thnaks,

debbie g. Florida

October 16, 2002