Re: U of Mich GI Appt-disappointing

[Guest guest]

Dear Debbie;

I'm so sorry to hear that you're having such a hard time and having

to endure so much pain!

I can only speak for myself, as I have seen Drs.Lehman & Sherman

many, many times over the course of 7 yrs. I think that the only way

that you're going to know for sure is to have an ERCP, and to know

that Drs. Lehman & Sherman are the absolute best! (DRs. come from all

over the world to learn their techniques)

I had S.O.D. and subsequently(sp) had a sphinterotomy done 7 yrs ago.

Unfortunately, I developed Chronic Panc.over the yrs of having Acute

Panc after so many ERCP's. But....that's not the case for everyone!

Remember that! Dr.Lehman once told me that I had the most sensitive

panc. he had ever run across. Lucky me!! Lotsand lotsofpeople have

ERCP's and NEVER get acute panc.!

Well, that's my experience any how.

Make the appt.Debbie! Don't suffer any longer,please!

I pray you get an appt soon, and get a favorable dx.

God's Blessings to you!!

Let me know how you're doing, ok?

Cyndie

In pancreatitis@y..., kietzmans@a... wrote:

> I had my appt w/GI Specialist at U of Mich today and feel

disappointed. She

> was a nice person and believed that I have had 5 acute pancreas

attacks (even

> though only the last one was dx in the ER). She believes that since

I had my

> gallbladder out and have not had an acute attack since then, that

it is not

> my pancreas causing me ongoing pain. She said usually people who

have

> pancreatitis caused from the gallbladder don't have any ongoing

pancreas

> problems - having the gallbladder out stops the attacks. I said,

can't a

> person have damage after several attacks and she said not if it is

caused

> from your gallbladder. I would think that it wouldn't matter what

the cause

> of the many attacks were - as each attack may cause damage no

matter what the

> cause? Now she thinks there is a problem with my stomach and wants

me to take

> previcid and wants to do an upper Endoscopy Oct 23. I don't think I

am going

> to keep the appt. I asked her if it could be sphinter of oddi -

she said

> with that I would have very bad attacks like pancreatitis - not

ongoing daily

> pain. I just want to find a doctor who will believe that my pain

could be

> caused by my pancreas based on the # of attacks I have had and my

symptoms. I

> don't really want an ERCP right now because the pain has only been

severe

> enough for pain meds for a couple of weeks since April 24,02. But

I do have

> pain almost everyday at different levels of intensity - but I

tolerate it.

> How do I go about finding a doctor who will validate my feelings?

If I went

> to see Dr. G. Lehman - do you think he would be inclined to believe

me - or

> would he have to do an ERCP? If I have one done, it is going to be

by someone

> who gets it correct the first time. I would appreciated any

comments.

> Thanks!

> -Debbie in Mich

>

>

>

[Guest guest]

In reference to your comment:

I am having a dilema with my medical records from the family practice i saw

in charleston university. Has anyone ever read the records. Boy what a

reality check.

These doctors write anything they want and it's there personal perception of

you and the horrible thing is they don't even know you. I wrote this doctor

a very lentghy email concerning all the doragatory statements they documented

concerning my visits to the er.

Thanks for letting me ramble on..... Hope not to long. I do not write very

ofter just

read the post. I have gotten somewhat better and are able to work now.

But i still occasionally have these horrible pain attacks. With er

visits.My CP is idiopatic. Thnaks, debbie g. Florida

Dear Debbie,

I haven't read all the posts yet, but has anyone suggested that you send a

report to JACHO. This is an organization that you can register complaints,

concerns, etc. regarding medical treatment. I am one of the lucky ones that

has only had two primary doctors (the second one took over when my first

doctor retired). This has been so great as both have always interacted with

any specialists I have gone to. It makes me so mad when I read what some of

you have to go through.

Also, please feel free to post the good days, the bad days, or anything you

want to share. It helps all of us to know we are not alone. Don't you just

love the TV mom's that never have a bad day, or a headache on the day of an

important meeting, and when their kids are bad they can calmly explain and

resolve everything in a half hour.

One more thing - it is important to keep your own copies of your medical

records. I would summarize your ER visit without the unnecessary remarks -

geesh, how can anyone who sees you for a few minutes " know " you!

I hope you are having a painfree (or less painful) day,

Gail West þ Many People, Many Faces, One Voice

Indiana State Chapter Representative

Pancreatitis Association International

http://www.pancassociation.org

contactPAIgwest@...

[Guest guest]

In reference to your comment:

I am having a dilema with my medical records from the family practice i saw

in charleston university. Has anyone ever read the records. Boy what a

reality check.

These doctors write anything they want and it's there personal perception of

you and the horrible thing is they don't even know you. I wrote this doctor

a very lentghy email concerning all the doragatory statements they documented

concerning my visits to the er.

Thanks for letting me ramble on..... Hope not to long. I do not write very

ofter just

read the post. I have gotten somewhat better and are able to work now.

But i still occasionally have these horrible pain attacks. With er

visits.My CP is idiopatic. Thnaks, debbie g. Florida

Dear Debbie,

I haven't read all the posts yet, but has anyone suggested that you send a

report to JACHO. This is an organization that you can register complaints,

concerns, etc. regarding medical treatment. I am one of the lucky ones that

has only had two primary doctors (the second one took over when my first

doctor retired). This has been so great as both have always interacted with

any specialists I have gone to. It makes me so mad when I read what some of

you have to go through.

Also, please feel free to post the good days, the bad days, or anything you

want to share. It helps all of us to know we are not alone. Don't you just

love the TV mom's that never have a bad day, or a headache on the day of an

important meeting, and when their kids are bad they can calmly explain and

resolve everything in a half hour.

One more thing - it is important to keep your own copies of your medical

records. I would summarize your ER visit without the unnecessary remarks -

geesh, how can anyone who sees you for a few minutes " know " you!

I hope you are having a painfree (or less painful) day,

Gail West þ Many People, Many Faces, One Voice

Indiana State Chapter Representative

Pancreatitis Association International

http://www.pancassociation.org

contactPAIgwest@...

[Guest guest]

In reference to your comment:

I am having a dilema with my medical records from the family practice i saw

in charleston university. Has anyone ever read the records. Boy what a

reality check.

These doctors write anything they want and it's there personal perception of

you and the horrible thing is they don't even know you. I wrote this doctor

a very lentghy email concerning all the doragatory statements they documented

concerning my visits to the er.

Thanks for letting me ramble on..... Hope not to long. I do not write very

ofter just

read the post. I have gotten somewhat better and are able to work now.

But i still occasionally have these horrible pain attacks. With er

visits.My CP is idiopatic. Thnaks, debbie g. Florida

Dear Debbie,

I haven't read all the posts yet, but has anyone suggested that you send a

report to JACHO. This is an organization that you can register complaints,

concerns, etc. regarding medical treatment. I am one of the lucky ones that

has only had two primary doctors (the second one took over when my first

doctor retired). This has been so great as both have always interacted with

any specialists I have gone to. It makes me so mad when I read what some of

you have to go through.

Also, please feel free to post the good days, the bad days, or anything you

want to share. It helps all of us to know we are not alone. Don't you just

love the TV mom's that never have a bad day, or a headache on the day of an

important meeting, and when their kids are bad they can calmly explain and

resolve everything in a half hour.

One more thing - it is important to keep your own copies of your medical

records. I would summarize your ER visit without the unnecessary remarks -

geesh, how can anyone who sees you for a few minutes " know " you!

I hope you are having a painfree (or less painful) day,

Gail West þ Many People, Many Faces, One Voice

Indiana State Chapter Representative

Pancreatitis Association International

http://www.pancassociation.org

contactPAIgwest@...