Re: Book on Disability / Kimber

[Guest guest]

In a message dated 12/15/2002 10:02:41 PM US Eastern Standard Time,

hominid2@... writes:

> >>>Karyn, I would love to check out the book on getting SSI.... <<<

Kimber,

I am really sorry I am so late in responding again. This is the sickest I

have been in years. I had two or three good days and then went down again. I

did get the book to Tull and he will get the book in the mail this weekend. I

know you will find it helpful.

>>>>I'm intending to call Jim about getting SSI for me, but first I have

to get it all

> arranged with my current doctors. <<<<.

I am glad that you are planning on using Jim. I would encourage you to go a

head and give him a call now so he can be anticipating his schedule.

>>> Each day is harder for me to drag..into work. ... Part of it is that I

know they don't > trust the accuracy .. I've always been proud of my work and

> it hurts to know that I've been doing so badly that they can't trust me

> anymore. The other part is that I just don't have the stamina to deal with

> it..Kimber <<<

I know this must be hard for you. I know from the work that you do with the

PAI that you take much pride in everything you do. Keep using your support

systems. I have faith that everything will be okay. They always are, just not

the way we think they should be.

Let me know if there is anything else I can help you with for the disability.

Karyn

Karyn E. , RN

Founder / Executive Director

Pancreatitis Association International

Corp. Office: Indps, IN, USA 1-

[Guest guest]

In a message dated 12/15/2002 10:02:41 PM US Eastern Standard Time,

hominid2@... writes:

> >>>Karyn, I would love to check out the book on getting SSI.... <<<

Kimber,

I am really sorry I am so late in responding again. This is the sickest I

have been in years. I had two or three good days and then went down again. I

did get the book to Tull and he will get the book in the mail this weekend. I

know you will find it helpful.

>>>>I'm intending to call Jim about getting SSI for me, but first I have

to get it all

> arranged with my current doctors. <<<<.

I am glad that you are planning on using Jim. I would encourage you to go a

head and give him a call now so he can be anticipating his schedule.

>>> Each day is harder for me to drag..into work. ... Part of it is that I

know they don't > trust the accuracy .. I've always been proud of my work and

> it hurts to know that I've been doing so badly that they can't trust me

> anymore. The other part is that I just don't have the stamina to deal with

> it..Kimber <<<

I know this must be hard for you. I know from the work that you do with the

PAI that you take much pride in everything you do. Keep using your support

systems. I have faith that everything will be okay. They always are, just not

the way we think they should be.

Let me know if there is anything else I can help you with for the disability.

Karyn

Karyn E. , RN

Founder / Executive Director

Pancreatitis Association International

Corp. Office: Indps, IN, USA 1-

[Guest guest]

In a message dated 12/15/2002 10:02:41 PM US Eastern Standard Time,

hominid2@... writes:

> >>>Karyn, I would love to check out the book on getting SSI.... <<<

Kimber,

I am really sorry I am so late in responding again. This is the sickest I

have been in years. I had two or three good days and then went down again. I

did get the book to Tull and he will get the book in the mail this weekend. I

know you will find it helpful.

>>>>I'm intending to call Jim about getting SSI for me, but first I have

to get it all

> arranged with my current doctors. <<<<.

I am glad that you are planning on using Jim. I would encourage you to go a

head and give him a call now so he can be anticipating his schedule.

>>> Each day is harder for me to drag..into work. ... Part of it is that I

know they don't > trust the accuracy .. I've always been proud of my work and

> it hurts to know that I've been doing so badly that they can't trust me

> anymore. The other part is that I just don't have the stamina to deal with

> it..Kimber <<<

I know this must be hard for you. I know from the work that you do with the

PAI that you take much pride in everything you do. Keep using your support

systems. I have faith that everything will be okay. They always are, just not

the way we think they should be.

Let me know if there is anything else I can help you with for the disability.

Karyn

Karyn E. , RN

Founder / Executive Director

Pancreatitis Association International

Corp. Office: Indps, IN, USA 1-

[Guest guest]

Karyn,

I got the book yesterday, Thanks! I intend to read it

throughly and help me fill out my forms (as I assume there

will be many). First I need to confirm which doctor is

pulling me out of work. Without that I can't really file for

Social Security. As soon as that's finalized, I'll call

Jim. I have my last dr. appt on Jan. 3 so a few days won't

make much difference. I have a feeling it will end up being

the pain management doctor who pulls me out as the problem

is mainly the pain meds. Or I may be lucky and get my GI to

agree to do it.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

[Guest guest]

In a message dated 12/30/2002 11:14:40 PM US Eastern Standard Time,

hominid2@... writes:

> Karyn,

> >>>I got the book yesterday, Thanks! I intend to read it thoroughly and

> help me fill out my forms (as I assume there will be many).<< >>First I

> need to confirm which doctor is pulling me out of work. Without that I

> can't really file for Social Security. As soon as that's finalized, I'll

> call Jim. ... Kimber <<<

I am glad they arrived intact. Since I didn't have a clue as to how the

process worked, I found them very helpful. I am sure you will do well because

you share those little OCD behaviors that are needed to get organized.

Jim has shared that the earlier someone contacts him, the better. He is able

to do some mental preparation. That worked well for me. In my case, I had

already hired an attorney who hadn't done anything--literally. I wanted to

switch but was scared of some imaginary repercussions. I ended up talking to

him briefly on the phone when I called for information--unexpectedly. I was

hesitant to give him any information because I was afraid he would contact

the other attorney, my doctors, SSI. I had really decided to do all the

preparation and work up my case and then call him.

He was so helpful. He helped me word a letter to my previous attorney. He

said he would do a mental evaluation. He promised he wouldn't do anything

until he heard from me again. During that time, he had time to budget his

time, to ensure that I could get as expedient serviced as possible. It also

turned out that he was familiar with different states, procedures, common

hang ups, and even particular judges (who was willing to work out approvals

on paper and not require a court date).

My disability is due to Chronic Pain and Depression. I am dedicated to

successfully having the diagnosis of Chronic Pancreatitis added to the

listing of impairments, so in the future, persons with CP can get disability

due to the actual disease instead of flirting with symptoms of the disease.

This is where it is important that I have names, numbers, and locations of

persons with Pancreatitis. We'll be integrating an on line petition to take

to congress in the spring term.

Karyn

Karyn E. , RN

Founder / Executive Director

Pancreatitis Association International

Corp. Office: Indps, IN, USA 1-

[Guest guest]

In a message dated 12/30/2002 11:14:40 PM US Eastern Standard Time,

hominid2@... writes:

> Karyn,

> >>>I got the book yesterday, Thanks! I intend to read it thoroughly and

> help me fill out my forms (as I assume there will be many).<< >>First I

> need to confirm which doctor is pulling me out of work. Without that I

> can't really file for Social Security. As soon as that's finalized, I'll

> call Jim. ... Kimber <<<

I am glad they arrived intact. Since I didn't have a clue as to how the

process worked, I found them very helpful. I am sure you will do well because

you share those little OCD behaviors that are needed to get organized.

Jim has shared that the earlier someone contacts him, the better. He is able

to do some mental preparation. That worked well for me. In my case, I had

already hired an attorney who hadn't done anything--literally. I wanted to

switch but was scared of some imaginary repercussions. I ended up talking to

him briefly on the phone when I called for information--unexpectedly. I was

hesitant to give him any information because I was afraid he would contact

the other attorney, my doctors, SSI. I had really decided to do all the

preparation and work up my case and then call him.

He was so helpful. He helped me word a letter to my previous attorney. He

said he would do a mental evaluation. He promised he wouldn't do anything

until he heard from me again. During that time, he had time to budget his

time, to ensure that I could get as expedient serviced as possible. It also

turned out that he was familiar with different states, procedures, common

hang ups, and even particular judges (who was willing to work out approvals

on paper and not require a court date).

My disability is due to Chronic Pain and Depression. I am dedicated to

successfully having the diagnosis of Chronic Pancreatitis added to the

listing of impairments, so in the future, persons with CP can get disability

due to the actual disease instead of flirting with symptoms of the disease.

This is where it is important that I have names, numbers, and locations of

persons with Pancreatitis. We'll be integrating an on line petition to take

to congress in the spring term.

Karyn

Karyn E. , RN

Founder / Executive Director

Pancreatitis Association International

Corp. Office: Indps, IN, USA 1-

[Guest guest]

In a message dated 12/30/2002 11:14:40 PM US Eastern Standard Time,

hominid2@... writes:

> Karyn,

> >>>I got the book yesterday, Thanks! I intend to read it thoroughly and

> help me fill out my forms (as I assume there will be many).<< >>First I

> need to confirm which doctor is pulling me out of work. Without that I

> can't really file for Social Security. As soon as that's finalized, I'll

> call Jim. ... Kimber <<<

I am glad they arrived intact. Since I didn't have a clue as to how the

process worked, I found them very helpful. I am sure you will do well because

you share those little OCD behaviors that are needed to get organized.

Jim has shared that the earlier someone contacts him, the better. He is able

to do some mental preparation. That worked well for me. In my case, I had

already hired an attorney who hadn't done anything--literally. I wanted to

switch but was scared of some imaginary repercussions. I ended up talking to

him briefly on the phone when I called for information--unexpectedly. I was

hesitant to give him any information because I was afraid he would contact

the other attorney, my doctors, SSI. I had really decided to do all the

preparation and work up my case and then call him.

He was so helpful. He helped me word a letter to my previous attorney. He

said he would do a mental evaluation. He promised he wouldn't do anything

until he heard from me again. During that time, he had time to budget his

time, to ensure that I could get as expedient serviced as possible. It also

turned out that he was familiar with different states, procedures, common

hang ups, and even particular judges (who was willing to work out approvals

on paper and not require a court date).

My disability is due to Chronic Pain and Depression. I am dedicated to

successfully having the diagnosis of Chronic Pancreatitis added to the

listing of impairments, so in the future, persons with CP can get disability

due to the actual disease instead of flirting with symptoms of the disease.

This is where it is important that I have names, numbers, and locations of

persons with Pancreatitis. We'll be integrating an on line petition to take

to congress in the spring term.

Karyn

Karyn E. , RN

Founder / Executive Director

Pancreatitis Association International

Corp. Office: Indps, IN, USA 1-