Re:Re: New Member...Don't know what I am doing just yet/Am anda

[Guest guest]

Hi ---I'm and my daughter was dx at 18 months---she's 3 today!!!

YEAH!!! I would love to tell you that everything is normal but " normal " is

relative. My daughter cultured P. Aeuriginosa last year and I flipped out.

It's definitely a wake-up call. Just know that these bumps are in the road and

you are doing everything you're supposed to do---probably more. I think these

special babies are born only to special parents so pat yourself on the back. I

have a very strong strategy of denial that works some of the time. Best wishes.

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