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Re: Who's had a Whipple and how do you feel???HELP

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,

I am a 38 year old male. I had a pyloris preserving Whipple (they

leave the Stomach) at s Hopkins in January. I was in the hopital for 8

days. The recovery was tough as was getting off the pain meds. However I went

back to work in September and have been getting stronger every day. I'm not

on pain meds. It's taking some time to get back in the swing of things but

I'm getting there. I do still taek pancreatic enzymes and Bentyl to prevent

stomach cramps and diareah an effect of not having most of your pancreas.

They left aprt of the panc so I'm not a diabetic. I was leary about having it

done, but all in all it gave me my life back. My only advice would be to find

a hospital that does them frequently. My research showed that those place

offer the best chance for a succesful recovery. Well time to get ready for

work. Good luck to you, and many prayers.

Rob

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,

I am a 38 year old male. I had a pyloris preserving Whipple (they

leave the Stomach) at s Hopkins in January. I was in the hopital for 8

days. The recovery was tough as was getting off the pain meds. However I went

back to work in September and have been getting stronger every day. I'm not

on pain meds. It's taking some time to get back in the swing of things but

I'm getting there. I do still taek pancreatic enzymes and Bentyl to prevent

stomach cramps and diareah an effect of not having most of your pancreas.

They left aprt of the panc so I'm not a diabetic. I was leary about having it

done, but all in all it gave me my life back. My only advice would be to find

a hospital that does them frequently. My research showed that those place

offer the best chance for a succesful recovery. Well time to get ready for

work. Good luck to you, and many prayers.

Rob

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,

I am a 38 year old male. I had a pyloris preserving Whipple (they

leave the Stomach) at s Hopkins in January. I was in the hopital for 8

days. The recovery was tough as was getting off the pain meds. However I went

back to work in September and have been getting stronger every day. I'm not

on pain meds. It's taking some time to get back in the swing of things but

I'm getting there. I do still taek pancreatic enzymes and Bentyl to prevent

stomach cramps and diareah an effect of not having most of your pancreas.

They left aprt of the panc so I'm not a diabetic. I was leary about having it

done, but all in all it gave me my life back. My only advice would be to find

a hospital that does them frequently. My research showed that those place

offer the best chance for a succesful recovery. Well time to get ready for

work. Good luck to you, and many prayers.

Rob

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In a message dated 10/28/02 2:35:45 AM Eastern Standard Time,

ericka72us@... writes:

>

Hi ka, I had a Modified Whipple when I was 44 in 1986. The surgery was to

treat a cancerous tumor in my small intestine located at the main bile duct.

The surgery was successful and I have been cancer free for 16 years now. I

developed Chronic Panc. in 1999 but the cause is really unknown. There is a

possibility that over the years the effect of the modified Whipple helped to

cause the Panc. condition but no one really would know that. My Whipple was

successful, for the condition it treated. I was off work during recovery for

5 months and really didn't fully recover for over a year. It's very much

major surgery but one must depend on the advice and skill of your GI and/or

surgeon. I hope your choice and it's conclusion are successful and I wish you

well.

Poncho - GA

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>

hi from tomnjan56... finally i am getting on.. have had troubles just

getting in... In response to whipple procedure,,, i say absolutely

no way should you have this done. You think you are in pain now..

you couldn't believe what your in for. I think the docs urge this

procedure because they don't know what else to do. If you do it...

you can be sure that the scare tissue that will form at the surgery

site will hamper your pan even more as scare tissue eventually turns

hard like bone.I had the chief of surgery of 2 hosopitals tell me he

was going to do this to me.... not ask me... but tell me... this is

what i am going to do.. tom and i have done lots of research for

many years on cp and this is an invasive procedure.... You want to

avoid surgery at allcosts.... because it will do nothing but

aggrevate the cp. I have had cp for 6 years now.... no

picnic,right?I have been seen by the worst of the worst... and let's

face it, the doc's don't have answers.... because they don't know

the causes.. everyone is different. Now.. the last 3 years... i have

found a saint of a doc!!! He is a real blessing... and i can't tell

you how really good he is.... He listens to me... and i tell him

everything... He is a pan specialist and has done numerous ERCP's on

me. He put a stent in from my pan to the small intestine when i had

a large pseudocyst on the mouth.... and after the initial 3 days of

extreme pain... i was good.... really good. I have a history of

pseudocysts.... toooo many too count... very large ones.. The last

two large ones were bigger ( on top of) than my pan and the other

was on top of my left kidney... it was even bigger... i saw the

ct\scan and we couldn't believe how huge they were.. I was sent to a

known surgeon for counsel. He said they had to be drained by

surgery....... which is really bad..I talked about it to my good doc

and I said i would like to try something by myself to get them down.

So here's what I did .... I pray.... always i pray everyday...

sometimes for god to take me because of the pain.. No such luck!! I

meditate.... there is no right or wrong way to put yourself in a

meditating state... just don't think about anything.... go blank..

relax..... lose all fear.... about everything... including fearing

the next episode or attack..... lose that fear.... have no fear in

your thoughts.... visualize a healthy body... start from your head

and work your way down to your toes.... take your time.... time is on

your side.... ... This is an involved process... you don't have to

know anything in specific about the body... just that all body parts

are pink with health and flowing. If you know of problem areas...

imagine them in your mind and shoot them out... see them blast

away.. they are gone for good.. I know this works because when i

did this , after seeing the ct scan.... the next day... i was pain

free... No pain meds at all and i was on demoral 50 every 4 hours...

and that wasn't working. still now some 5 weeks later.... pain

freeand loving every minute of it.. I went back to show the doc's

the cysts were shrunk down to nothing!!! They had never seen anything

like it before...they said.... how did you do that.... what did you

do? so i explained it to them on paper so they could re read it over

and over. They couldn't believe how good i looked.... i guess we

don't realize how really bad we can look to others.... but it

doesn't matter. There is so much more i can tell you if you want to

know anything... at all... I still take enzymes and nexium and that's

all. I watch my diet... 10 grms of fat a day... no more. any one of

you should try this... You have to believe with every breath you

take.... positve attitude and lose fear..... healthy flowing body...

now... Pray... help yourst elf to heal... i will try and explain more

if anyone wants to know more... i have horror stories.. but i have

success stories too.. I like the successful ones the best! I know i

am new talking to all of you,,, but after reading from you over and

over months and months... maybe there is something i can do for you..

My heart always goes out to all of you as i can really relate to your

lives... i have been there... and i am still there... so hang in....

let me know...just say hi or anything... take care.... jan

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>

hi from tomnjan56... finally i am getting on.. have had troubles just

getting in... In response to whipple procedure,,, i say absolutely

no way should you have this done. You think you are in pain now..

you couldn't believe what your in for. I think the docs urge this

procedure because they don't know what else to do. If you do it...

you can be sure that the scare tissue that will form at the surgery

site will hamper your pan even more as scare tissue eventually turns

hard like bone.I had the chief of surgery of 2 hosopitals tell me he

was going to do this to me.... not ask me... but tell me... this is

what i am going to do.. tom and i have done lots of research for

many years on cp and this is an invasive procedure.... You want to

avoid surgery at allcosts.... because it will do nothing but

aggrevate the cp. I have had cp for 6 years now.... no

picnic,right?I have been seen by the worst of the worst... and let's

face it, the doc's don't have answers.... because they don't know

the causes.. everyone is different. Now.. the last 3 years... i have

found a saint of a doc!!! He is a real blessing... and i can't tell

you how really good he is.... He listens to me... and i tell him

everything... He is a pan specialist and has done numerous ERCP's on

me. He put a stent in from my pan to the small intestine when i had

a large pseudocyst on the mouth.... and after the initial 3 days of

extreme pain... i was good.... really good. I have a history of

pseudocysts.... toooo many too count... very large ones.. The last

two large ones were bigger ( on top of) than my pan and the other

was on top of my left kidney... it was even bigger... i saw the

ct\scan and we couldn't believe how huge they were.. I was sent to a

known surgeon for counsel. He said they had to be drained by

surgery....... which is really bad..I talked about it to my good doc

and I said i would like to try something by myself to get them down.

So here's what I did .... I pray.... always i pray everyday...

sometimes for god to take me because of the pain.. No such luck!! I

meditate.... there is no right or wrong way to put yourself in a

meditating state... just don't think about anything.... go blank..

relax..... lose all fear.... about everything... including fearing

the next episode or attack..... lose that fear.... have no fear in

your thoughts.... visualize a healthy body... start from your head

and work your way down to your toes.... take your time.... time is on

your side.... ... This is an involved process... you don't have to

know anything in specific about the body... just that all body parts

are pink with health and flowing. If you know of problem areas...

imagine them in your mind and shoot them out... see them blast

away.. they are gone for good.. I know this works because when i

did this , after seeing the ct scan.... the next day... i was pain

free... No pain meds at all and i was on demoral 50 every 4 hours...

and that wasn't working. still now some 5 weeks later.... pain

freeand loving every minute of it.. I went back to show the doc's

the cysts were shrunk down to nothing!!! They had never seen anything

like it before...they said.... how did you do that.... what did you

do? so i explained it to them on paper so they could re read it over

and over. They couldn't believe how good i looked.... i guess we

don't realize how really bad we can look to others.... but it

doesn't matter. There is so much more i can tell you if you want to

know anything... at all... I still take enzymes and nexium and that's

all. I watch my diet... 10 grms of fat a day... no more. any one of

you should try this... You have to believe with every breath you

take.... positve attitude and lose fear..... healthy flowing body...

now... Pray... help yourst elf to heal... i will try and explain more

if anyone wants to know more... i have horror stories.. but i have

success stories too.. I like the successful ones the best! I know i

am new talking to all of you,,, but after reading from you over and

over months and months... maybe there is something i can do for you..

My heart always goes out to all of you as i can really relate to your

lives... i have been there... and i am still there... so hang in....

let me know...just say hi or anything... take care.... jan

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