Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 Thanks ! I think I am just numb I don't know what to feel, I don't know what to think, I don't know what to do. I JUST WANT THIS BACTERIA OUT OF MY KIDS!! SO we can have some what of a normal life. I guess after we were diagnosed we went one year were we were on med.'s a lot and then the second year we went a whole year without any med.'s and now we are back on them again. It's just frustrating because I thought I had it all figured out and something like this is thrown at me and I just don't know what I can do about it and I guess that's what makes me so mad there is nothing I can do! Know matter how hard I try to get rid of it it won't go away. Thanks for listening. This is my me time right now while the kids and the hubby are in bed. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 Thanks ! I think I am just numb I don't know what to feel, I don't know what to think, I don't know what to do. I JUST WANT THIS BACTERIA OUT OF MY KIDS!! SO we can have some what of a normal life. I guess after we were diagnosed we went one year were we were on med.'s a lot and then the second year we went a whole year without any med.'s and now we are back on them again. It's just frustrating because I thought I had it all figured out and something like this is thrown at me and I just don't know what I can do about it and I guess that's what makes me so mad there is nothing I can do! Know matter how hard I try to get rid of it it won't go away. Thanks for listening. This is my me time right now while the kids and the hubby are in bed. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 Thanks ! I think I am just numb I don't know what to feel, I don't know what to think, I don't know what to do. I JUST WANT THIS BACTERIA OUT OF MY KIDS!! SO we can have some what of a normal life. I guess after we were diagnosed we went one year were we were on med.'s a lot and then the second year we went a whole year without any med.'s and now we are back on them again. It's just frustrating because I thought I had it all figured out and something like this is thrown at me and I just don't know what I can do about it and I guess that's what makes me so mad there is nothing I can do! Know matter how hard I try to get rid of it it won't go away. Thanks for listening. This is my me time right now while the kids and the hubby are in bed. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 YOU CAN VENT HERE ANYTIME>>>>>>>> I sure to wish you didn't have the problem that is causing it, but you are for sure not alone in that area. Many folks here are going thru this with you today. or have done so other times. My fervent wish is for all things to settle for you VERY soon!! Just come here & let it all hang out. Maybe so will have some ideas from their experience as well. Take care of you. Your in my special wishes, LOVE & HUGS, grandmomBEV Throat Culture Hey everybody I need to do a little e-venting here so if you don's want to listen to this you better stop right now. Well, we found out today that is still positive! I can't believe it we have done everything to try to get rid of the psuedomonas and it will not go away this time. WHY!! I can't understand it her doctor does not think that she has become immune to the antibiotics yet but I am beginning to wonder. I HATE THIS!!!! My youngest is back on med.'s also and we had one day were they over lapped and they were both doing med.'s I thought that morning I was going to lose my mind. It's hard enough trying to get one kids medications done but now I am going to have two done before school starts in the morning. Last year it wasn't so bad because my youngest was only in preschool and she went later to school but this year she is in kindergarten so they go at the same time. I just want to ball but I know it's not going to do any good it won't make the psuedomonas GO AWAY!! I HATE THIS I HATE THIS I HATE THIS!! I HATE WHAT CF IS DOING TO OUR FAMILY! I HATE WHAT CF IS DOING TO MY KIDS!!! There are somedays I think I can handle this there are others that have worse then we got but there are days like this where I am just going to lose my mind. I WANT MY LIFE BACK! I WANT MY KIDS LIFE BACK! I JUST WANT A NORMAL LIFE AGAIN!!! I just can't understand why she can't get rid of this pseudomonas. I though for sure that the nose irrigation's were going to work. She had so much crap that would come out of her nose I thought for sure that this was going to do it. I don't know where to go from here and I don't think her doctor knows either. That is what is so frustrating it's all a game lets try this OK if that don't work lets try this way. I'M TIRED OF IT. You work so hard at doing everything just right to get rid of it and you have such a let down when you find out it still there. THIS IS CRAZY!!!! OK I feel a little better now that I got all this screaming out of my system I hope I didn't hurt anyone's ears with all my yelling. LOL! But thanks for listening I really need some venting time. If I try to talk to my husband about it he just gets even more mad because he knows I'm upset about it and it just make the whole house an unpleasant place to be so I just try to keep it all in. But now that I have this website I can let it out. Thanks for listening. Deb A PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 YOU CAN VENT HERE ANYTIME>>>>>>>> I sure to wish you didn't have the problem that is causing it, but you are for sure not alone in that area. Many folks here are going thru this with you today. or have done so other times. My fervent wish is for all things to settle for you VERY soon!! Just come here & let it all hang out. Maybe so will have some ideas from their experience as well. Take care of you. Your in my special wishes, LOVE & HUGS, grandmomBEV Throat Culture Hey everybody I need to do a little e-venting here so if you don's want to listen to this you better stop right now. Well, we found out today that is still positive! I can't believe it we have done everything to try to get rid of the psuedomonas and it will not go away this time. WHY!! I can't understand it her doctor does not think that she has become immune to the antibiotics yet but I am beginning to wonder. I HATE THIS!!!! My youngest is back on med.'s also and we had one day were they over lapped and they were both doing med.'s I thought that morning I was going to lose my mind. It's hard enough trying to get one kids medications done but now I am going to have two done before school starts in the morning. Last year it wasn't so bad because my youngest was only in preschool and she went later to school but this year she is in kindergarten so they go at the same time. I just want to ball but I know it's not going to do any good it won't make the psuedomonas GO AWAY!! I HATE THIS I HATE THIS I HATE THIS!! I HATE WHAT CF IS DOING TO OUR FAMILY! I HATE WHAT CF IS DOING TO MY KIDS!!! There are somedays I think I can handle this there are others that have worse then we got but there are days like this where I am just going to lose my mind. I WANT MY LIFE BACK! I WANT MY KIDS LIFE BACK! I JUST WANT A NORMAL LIFE AGAIN!!! I just can't understand why she can't get rid of this pseudomonas. I though for sure that the nose irrigation's were going to work. She had so much crap that would come out of her nose I thought for sure that this was going to do it. I don't know where to go from here and I don't think her doctor knows either. That is what is so frustrating it's all a game lets try this OK if that don't work lets try this way. I'M TIRED OF IT. You work so hard at doing everything just right to get rid of it and you have such a let down when you find out it still there. THIS IS CRAZY!!!! OK I feel a little better now that I got all this screaming out of my system I hope I didn't hurt anyone's ears with all my yelling. LOL! But thanks for listening I really need some venting time. If I try to talk to my husband about it he just gets even more mad because he knows I'm upset about it and it just make the whole house an unpleasant place to be so I just try to keep it all in. But now that I have this website I can let it out. Thanks for listening. Deb A PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 YOU CAN VENT HERE ANYTIME>>>>>>>> I sure to wish you didn't have the problem that is causing it, but you are for sure not alone in that area. Many folks here are going thru this with you today. or have done so other times. My fervent wish is for all things to settle for you VERY soon!! Just come here & let it all hang out. Maybe so will have some ideas from their experience as well. Take care of you. Your in my special wishes, LOVE & HUGS, grandmomBEV Throat Culture Hey everybody I need to do a little e-venting here so if you don's want to listen to this you better stop right now. Well, we found out today that is still positive! I can't believe it we have done everything to try to get rid of the psuedomonas and it will not go away this time. WHY!! I can't understand it her doctor does not think that she has become immune to the antibiotics yet but I am beginning to wonder. I HATE THIS!!!! My youngest is back on med.'s also and we had one day were they over lapped and they were both doing med.'s I thought that morning I was going to lose my mind. It's hard enough trying to get one kids medications done but now I am going to have two done before school starts in the morning. Last year it wasn't so bad because my youngest was only in preschool and she went later to school but this year she is in kindergarten so they go at the same time. I just want to ball but I know it's not going to do any good it won't make the psuedomonas GO AWAY!! I HATE THIS I HATE THIS I HATE THIS!! I HATE WHAT CF IS DOING TO OUR FAMILY! I HATE WHAT CF IS DOING TO MY KIDS!!! There are somedays I think I can handle this there are others that have worse then we got but there are days like this where I am just going to lose my mind. I WANT MY LIFE BACK! I WANT MY KIDS LIFE BACK! I JUST WANT A NORMAL LIFE AGAIN!!! I just can't understand why she can't get rid of this pseudomonas. I though for sure that the nose irrigation's were going to work. She had so much crap that would come out of her nose I thought for sure that this was going to do it. I don't know where to go from here and I don't think her doctor knows either. That is what is so frustrating it's all a game lets try this OK if that don't work lets try this way. I'M TIRED OF IT. You work so hard at doing everything just right to get rid of it and you have such a let down when you find out it still there. THIS IS CRAZY!!!! OK I feel a little better now that I got all this screaming out of my system I hope I didn't hurt anyone's ears with all my yelling. LOL! But thanks for listening I really need some venting time. If I try to talk to my husband about it he just gets even more mad because he knows I'm upset about it and it just make the whole house an unpleasant place to be so I just try to keep it all in. But now that I have this website I can let it out. Thanks for listening. Deb A PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Deb, Sorry about the on going battle. If it makes you feel any better, I was looking at everyone's adorable children and found yours! How beautiful! Are all 3 yours!? Do they all have CF? Very pretty little girls. What are the psuedomonas you guys talk about? Is it a type of infection/bacteria? How do you know it's there? Are they really harmful? I wish I had some answers for you but unfortunately, you know I am in dire need of all sorts of questions. Just wanted to let you know that I was thinking of you guys, Krystena s Caden 4 rys GAII ////testing for CF Throat Culture Hey everybody I need to do a little e-venting here so if you don's want to listen to this you better stop right now. Well, we found out today that is still positive! I can't believe it we have done everything to try to get rid of the psuedomonas and it will not go away this time. WHY!! I can't understand it her doctor does not think that she has become immune to the antibiotics yet but I am beginning to wonder. I HATE THIS!!!! My youngest is back on med.'s also and we had one day were they over lapped and they were both doing med.'s I thought that morning I was going to lose my mind. It's hard enough trying to get one kids medications done but now I am going to have two done before school starts in the morning. Last year it wasn't so bad because my youngest was only in preschool and she went later to school but this year she is in kindergarten so they go at the same time. I just want to ball but I know it's not going to do any good it won't make the psuedomonas GO AWAY!! I HATE THIS I HATE THIS I HATE THIS!! I HATE WHAT CF IS DOING TO OUR FAMILY! I HATE WHAT CF IS DOING TO MY KIDS!!! There are somedays I think I can handle this there are others that have worse then we got but there are days like this where I am just going to lose my mind. I WANT MY LIFE BACK! I WANT MY KIDS LIFE BACK! I JUST WANT A NORMAL LIFE AGAIN!!! I just can't understand why she can't get rid of this pseudomonas. I though for sure that the nose irrigation's were going to work. She had so much crap that would come out of her nose I thought for sure that this was going to do it. I don't know where to go from here and I don't think her doctor knows either. That is what is so frustrating it's all a game lets try this OK if that don't work lets try this way. I'M TIRED OF IT. You work so hard at doing everything just right to get rid of it and you have such a let down when you find out it still there. THIS IS CRAZY!!!! OK I feel a little better now that I got all this screaming out of my system I hope I didn't hurt anyone's ears with all my yelling. LOL! But thanks for listening I really need some venting time. If I try to talk to my husband about it he just gets even more mad because he knows I'm upset about it and it just make the whole house an unpleasant place to be so I just try to keep it all in. But now that I have this website I can let it out. Thanks for listening. Deb A PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Deb, Sorry about the on going battle. If it makes you feel any better, I was looking at everyone's adorable children and found yours! How beautiful! Are all 3 yours!? Do they all have CF? Very pretty little girls. What are the psuedomonas you guys talk about? Is it a type of infection/bacteria? How do you know it's there? Are they really harmful? I wish I had some answers for you but unfortunately, you know I am in dire need of all sorts of questions. Just wanted to let you know that I was thinking of you guys, Krystena s Caden 4 rys GAII ////testing for CF Throat Culture Hey everybody I need to do a little e-venting here so if you don's want to listen to this you better stop right now. Well, we found out today that is still positive! I can't believe it we have done everything to try to get rid of the psuedomonas and it will not go away this time. WHY!! I can't understand it her doctor does not think that she has become immune to the antibiotics yet but I am beginning to wonder. I HATE THIS!!!! My youngest is back on med.'s also and we had one day were they over lapped and they were both doing med.'s I thought that morning I was going to lose my mind. It's hard enough trying to get one kids medications done but now I am going to have two done before school starts in the morning. Last year it wasn't so bad because my youngest was only in preschool and she went later to school but this year she is in kindergarten so they go at the same time. I just want to ball but I know it's not going to do any good it won't make the psuedomonas GO AWAY!! I HATE THIS I HATE THIS I HATE THIS!! I HATE WHAT CF IS DOING TO OUR FAMILY! I HATE WHAT CF IS DOING TO MY KIDS!!! There are somedays I think I can handle this there are others that have worse then we got but there are days like this where I am just going to lose my mind. I WANT MY LIFE BACK! I WANT MY KIDS LIFE BACK! I JUST WANT A NORMAL LIFE AGAIN!!! I just can't understand why she can't get rid of this pseudomonas. I though for sure that the nose irrigation's were going to work. She had so much crap that would come out of her nose I thought for sure that this was going to do it. I don't know where to go from here and I don't think her doctor knows either. That is what is so frustrating it's all a game lets try this OK if that don't work lets try this way. I'M TIRED OF IT. You work so hard at doing everything just right to get rid of it and you have such a let down when you find out it still there. THIS IS CRAZY!!!! OK I feel a little better now that I got all this screaming out of my system I hope I didn't hurt anyone's ears with all my yelling. LOL! But thanks for listening I really need some venting time. If I try to talk to my husband about it he just gets even more mad because he knows I'm upset about it and it just make the whole house an unpleasant place to be so I just try to keep it all in. But now that I have this website I can let it out. Thanks for listening. Deb A PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Deb, Sorry about the on going battle. If it makes you feel any better, I was looking at everyone's adorable children and found yours! How beautiful! Are all 3 yours!? Do they all have CF? Very pretty little girls. What are the psuedomonas you guys talk about? Is it a type of infection/bacteria? How do you know it's there? Are they really harmful? I wish I had some answers for you but unfortunately, you know I am in dire need of all sorts of questions. Just wanted to let you know that I was thinking of you guys, Krystena s Caden 4 rys GAII ////testing for CF Throat Culture Hey everybody I need to do a little e-venting here so if you don's want to listen to this you better stop right now. Well, we found out today that is still positive! I can't believe it we have done everything to try to get rid of the psuedomonas and it will not go away this time. WHY!! I can't understand it her doctor does not think that she has become immune to the antibiotics yet but I am beginning to wonder. I HATE THIS!!!! My youngest is back on med.'s also and we had one day were they over lapped and they were both doing med.'s I thought that morning I was going to lose my mind. It's hard enough trying to get one kids medications done but now I am going to have two done before school starts in the morning. Last year it wasn't so bad because my youngest was only in preschool and she went later to school but this year she is in kindergarten so they go at the same time. I just want to ball but I know it's not going to do any good it won't make the psuedomonas GO AWAY!! I HATE THIS I HATE THIS I HATE THIS!! I HATE WHAT CF IS DOING TO OUR FAMILY! I HATE WHAT CF IS DOING TO MY KIDS!!! There are somedays I think I can handle this there are others that have worse then we got but there are days like this where I am just going to lose my mind. I WANT MY LIFE BACK! I WANT MY KIDS LIFE BACK! I JUST WANT A NORMAL LIFE AGAIN!!! I just can't understand why she can't get rid of this pseudomonas. I though for sure that the nose irrigation's were going to work. She had so much crap that would come out of her nose I thought for sure that this was going to do it. I don't know where to go from here and I don't think her doctor knows either. That is what is so frustrating it's all a game lets try this OK if that don't work lets try this way. I'M TIRED OF IT. You work so hard at doing everything just right to get rid of it and you have such a let down when you find out it still there. THIS IS CRAZY!!!! OK I feel a little better now that I got all this screaming out of my system I hope I didn't hurt anyone's ears with all my yelling. LOL! But thanks for listening I really need some venting time. If I try to talk to my husband about it he just gets even more mad because he knows I'm upset about it and it just make the whole house an unpleasant place to be so I just try to keep it all in. But now that I have this website I can let it out. Thanks for listening. Deb A PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Deb, I'm sorry you are having such a bad time. I'm glad you were able to vent. Hearing you reminded me so much of 2 1/2 years ago when we were trying to get rid of Wyatt's PA's. I sat at the park down the road and bawled my eyes out. Thank God my husband just let me cry and gave me a hug and didn't say much. NOrmally he tries to give me his male perspective which usually I don't want. I hope you can still get rid of them and things will get better. I only have one CF Child to deal with but I can imagine how hard it must be for you with two. Lots of love, Christy > Hey everybody I need to do a little e-venting here so if you don's want to > listen to this you better stop right now. Well, we found out today that > is still positive! I can't believe it we have done everything to try > to get rid of the psuedomonas and it will not go away this time. WHY!! I > can't understand it her doctor does not think that she has become immune to > the antibiotics yet but I am beginning to wonder. I HATE THIS!!!! My youngest > is back on med.'s also and we had one day were they over lapped and they were > both doing med.'s I thought that morning I was going to lose my mind. It's > hard enough trying to get one kids medications done but now I am going to > have two done before school starts in the morning. Last year it wasn't so bad > because my youngest was only in preschool and she went later to school but > this year she is in kindergarten so they go at the same time. I just want to > ball but I know it's not going to do any good it won't make the psuedomonas > GO AWAY!! I HATE THIS I HATE THIS I HATE THIS!! I HATE WHAT CF IS DOING TO > OUR FAMILY! I HATE WHAT CF IS DOING TO MY KIDS!!! There are somedays I think > I can handle this there are others that have worse then we got but there are > days like this where I am just going to lose my mind. I WANT MY LIFE BACK! I > WANT MY KIDS LIFE BACK! I JUST WANT A NORMAL LIFE AGAIN!!! > I just can't understand why she can't get rid of this pseudomonas. I though > for sure that the nose irrigation's were going to work. She had so much crap > that would come out of her nose I thought for sure that this was going to do > it. I don't know where to go from here and I don't think her doctor knows > either. That is what is so frustrating it's all a game lets try this OK if > that don't work lets try this way. I'M TIRED OF IT. You work so hard at > doing everything just right to get rid of it and you have such a let down > when you find out it still there. THIS IS CRAZY!!!! OK I feel a little better > now that I got all this screaming out of my system I hope I didn't hurt > anyone's ears with all my yelling. LOL! But thanks for listening I really > need some venting time. If I try to talk to my husband about it he just gets > even more mad because he knows I'm upset about it and it just make the whole > house an unpleasant place to be so I just try to keep it all in. But now that > I have this website I can let it out. Thanks for listening. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Deb, I'm sorry you are having such a bad time. I'm glad you were able to vent. Hearing you reminded me so much of 2 1/2 years ago when we were trying to get rid of Wyatt's PA's. I sat at the park down the road and bawled my eyes out. Thank God my husband just let me cry and gave me a hug and didn't say much. NOrmally he tries to give me his male perspective which usually I don't want. I hope you can still get rid of them and things will get better. I only have one CF Child to deal with but I can imagine how hard it must be for you with two. Lots of love, Christy > Hey everybody I need to do a little e-venting here so if you don's want to > listen to this you better stop right now. Well, we found out today that > is still positive! I can't believe it we have done everything to try > to get rid of the psuedomonas and it will not go away this time. WHY!! I > can't understand it her doctor does not think that she has become immune to > the antibiotics yet but I am beginning to wonder. I HATE THIS!!!! My youngest > is back on med.'s also and we had one day were they over lapped and they were > both doing med.'s I thought that morning I was going to lose my mind. It's > hard enough trying to get one kids medications done but now I am going to > have two done before school starts in the morning. Last year it wasn't so bad > because my youngest was only in preschool and she went later to school but > this year she is in kindergarten so they go at the same time. I just want to > ball but I know it's not going to do any good it won't make the psuedomonas > GO AWAY!! I HATE THIS I HATE THIS I HATE THIS!! I HATE WHAT CF IS DOING TO > OUR FAMILY! I HATE WHAT CF IS DOING TO MY KIDS!!! There are somedays I think > I can handle this there are others that have worse then we got but there are > days like this where I am just going to lose my mind. I WANT MY LIFE BACK! I > WANT MY KIDS LIFE BACK! I JUST WANT A NORMAL LIFE AGAIN!!! > I just can't understand why she can't get rid of this pseudomonas. I though > for sure that the nose irrigation's were going to work. She had so much crap > that would come out of her nose I thought for sure that this was going to do > it. I don't know where to go from here and I don't think her doctor knows > either. That is what is so frustrating it's all a game lets try this OK if > that don't work lets try this way. I'M TIRED OF IT. You work so hard at > doing everything just right to get rid of it and you have such a let down > when you find out it still there. THIS IS CRAZY!!!! OK I feel a little better > now that I got all this screaming out of my system I hope I didn't hurt > anyone's ears with all my yelling. LOL! But thanks for listening I really > need some venting time. If I try to talk to my husband about it he just gets > even more mad because he knows I'm upset about it and it just make the whole > house an unpleasant place to be so I just try to keep it all in. But now that > I have this website I can let it out. Thanks for listening. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Deb, I'm sorry you are having such a bad time. I'm glad you were able to vent. Hearing you reminded me so much of 2 1/2 years ago when we were trying to get rid of Wyatt's PA's. I sat at the park down the road and bawled my eyes out. Thank God my husband just let me cry and gave me a hug and didn't say much. NOrmally he tries to give me his male perspective which usually I don't want. I hope you can still get rid of them and things will get better. I only have one CF Child to deal with but I can imagine how hard it must be for you with two. Lots of love, Christy > Hey everybody I need to do a little e-venting here so if you don's want to > listen to this you better stop right now. Well, we found out today that > is still positive! I can't believe it we have done everything to try > to get rid of the psuedomonas and it will not go away this time. WHY!! I > can't understand it her doctor does not think that she has become immune to > the antibiotics yet but I am beginning to wonder. I HATE THIS!!!! My youngest > is back on med.'s also and we had one day were they over lapped and they were > both doing med.'s I thought that morning I was going to lose my mind. It's > hard enough trying to get one kids medications done but now I am going to > have two done before school starts in the morning. Last year it wasn't so bad > because my youngest was only in preschool and she went later to school but > this year she is in kindergarten so they go at the same time. I just want to > ball but I know it's not going to do any good it won't make the psuedomonas > GO AWAY!! I HATE THIS I HATE THIS I HATE THIS!! I HATE WHAT CF IS DOING TO > OUR FAMILY! I HATE WHAT CF IS DOING TO MY KIDS!!! There are somedays I think > I can handle this there are others that have worse then we got but there are > days like this where I am just going to lose my mind. I WANT MY LIFE BACK! I > WANT MY KIDS LIFE BACK! I JUST WANT A NORMAL LIFE AGAIN!!! > I just can't understand why she can't get rid of this pseudomonas. I though > for sure that the nose irrigation's were going to work. She had so much crap > that would come out of her nose I thought for sure that this was going to do > it. I don't know where to go from here and I don't think her doctor knows > either. That is what is so frustrating it's all a game lets try this OK if > that don't work lets try this way. I'M TIRED OF IT. You work so hard at > doing everything just right to get rid of it and you have such a let down > when you find out it still there. THIS IS CRAZY!!!! OK I feel a little better > now that I got all this screaming out of my system I hope I didn't hurt > anyone's ears with all my yelling. LOL! But thanks for listening I really > need some venting time. If I try to talk to my husband about it he just gets > even more mad because he knows I'm upset about it and it just make the whole > house an unpleasant place to be so I just try to keep it all in. But now that > I have this website I can let it out. Thanks for listening. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 In a message dated 11/15/2002 5:20:19 AM Central Standard Time, bevd@... writes: > > YOU CAN VENT HERE ANYTIME>>>>>>>> I sure to wish you didn't have the > problem > that is causing it, but you are for sure not alone in that area. Many folks > here are going thru this with you today. or have done so other times. My > fervent wish is for all things to settle for you VERY soon!! Just come here > & let it all hang out. Maybe so will have some ideas from their experience > as well. Take care of you. Your in my special wishes, > > LOVE & HUGS, grandmomBEV Thanks Grandma Bev it's so nice to come on her and have people understand what you are going through. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 In a message dated 11/15/2002 5:20:19 AM Central Standard Time, bevd@... writes: > > YOU CAN VENT HERE ANYTIME>>>>>>>> I sure to wish you didn't have the > problem > that is causing it, but you are for sure not alone in that area. Many folks > here are going thru this with you today. or have done so other times. My > fervent wish is for all things to settle for you VERY soon!! Just come here > & let it all hang out. Maybe so will have some ideas from their experience > as well. Take care of you. Your in my special wishes, > > LOVE & HUGS, grandmomBEV Thanks Grandma Bev it's so nice to come on her and have people understand what you are going through. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 In a message dated 11/15/2002 8:13:05 AM Central Standard Time, krystena@... writes: > Deb, > > Sorry about the on going battle. If it makes you feel any better, I was > looking at everyone's adorable children and found yours! How beautiful! Are > all 3 yours!? Do they all have CF? Very pretty little girls. > What are the psuedomonas you guys talk about? Is it a type of > infection/bacteria? How do you know it's there? Are they really harmful? I > wish I had some answers for you but unfortunately, you know I am in dire > need of all sorts of questions. > > Just wanted to let you know that I was thinking of you guys, > Krystena s > Caden 4 rys GAII ////testing for CF Krystena, Just my two blondes have CF my middle child thank God does not. The psuedomonas that we are talking about is a bacteria that gets in the lungs and if continues to breed there it can eat away at the lung tissue and damage it. That is why so many kids with CF have to have a lung transplant. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 In a message dated 11/15/2002 8:13:05 AM Central Standard Time, krystena@... writes: > Deb, > > Sorry about the on going battle. If it makes you feel any better, I was > looking at everyone's adorable children and found yours! How beautiful! Are > all 3 yours!? Do they all have CF? Very pretty little girls. > What are the psuedomonas you guys talk about? Is it a type of > infection/bacteria? How do you know it's there? Are they really harmful? I > wish I had some answers for you but unfortunately, you know I am in dire > need of all sorts of questions. > > Just wanted to let you know that I was thinking of you guys, > Krystena s > Caden 4 rys GAII ////testing for CF Krystena, Just my two blondes have CF my middle child thank God does not. The psuedomonas that we are talking about is a bacteria that gets in the lungs and if continues to breed there it can eat away at the lung tissue and damage it. That is why so many kids with CF have to have a lung transplant. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 In a message dated 11/15/2002 10:40:14 AM Central Standard Time, seabeewife2@... writes: > Deb, > I'm sorry you are having such a bad time. I'm glad you were able to > vent. Hearing you reminded me so much of 2 1/2 years ago when we were > trying to get rid of Wyatt's PA's. I sat at the park down the road > and bawled my eyes out. Thank God my husband just let me cry and gave > me a hug and didn't say much. NOrmally he tries to give me his male > perspective which usually I don't want. I hope you can still get > rid of them and things will get better. I only have one CF Child to > deal with but I can imagine how hard it must be for you with two. > Lots of love, Christy > Thanks Christy it is so nice to know I am not the only one that feels this way!! So how did yo finally get rid of the PA? how long did it take for you to get fid of PA? Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 In a message dated 11/15/2002 10:40:14 AM Central Standard Time, seabeewife2@... writes: > Deb, > I'm sorry you are having such a bad time. I'm glad you were able to > vent. Hearing you reminded me so much of 2 1/2 years ago when we were > trying to get rid of Wyatt's PA's. I sat at the park down the road > and bawled my eyes out. Thank God my husband just let me cry and gave > me a hug and didn't say much. NOrmally he tries to give me his male > perspective which usually I don't want. I hope you can still get > rid of them and things will get better. I only have one CF Child to > deal with but I can imagine how hard it must be for you with two. > Lots of love, Christy > Thanks Christy it is so nice to know I am not the only one that feels this way!! So how did yo finally get rid of the PA? how long did it take for you to get fid of PA? Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 In a message dated 11/15/2002 10:40:14 AM Central Standard Time, seabeewife2@... writes: > Deb, > I'm sorry you are having such a bad time. I'm glad you were able to > vent. Hearing you reminded me so much of 2 1/2 years ago when we were > trying to get rid of Wyatt's PA's. I sat at the park down the road > and bawled my eyes out. Thank God my husband just let me cry and gave > me a hug and didn't say much. NOrmally he tries to give me his male > perspective which usually I don't want. I hope you can still get > rid of them and things will get better. I only have one CF Child to > deal with but I can imagine how hard it must be for you with two. > Lots of love, Christy > Thanks Christy it is so nice to know I am not the only one that feels this way!! So how did yo finally get rid of the PA? how long did it take for you to get fid of PA? Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2002 Report Share Posted November 16, 2002 We didn't get rid of it. We tried it for over six months I believe and decided to call it a day and consider him colonized. So now we do 28 days on of TOBI and 28 off. My doc believes he went undiagnosed for at least a year and a half when I told him of my battles w/ Wyatt's cough while in California. His doc here in Hawaii diagnosed him immediately when we got here. Maybe 2-3 weeks after arriving. So don't give up hope yet, you still have a chance. I don't think we ever did but what can you do? Christy mom of Wyatt 7wcf and Hunter 2.5wocf > In a message dated 11/15/2002 10:40:14 AM Central Standard Time, > seabeewife2@h... writes: > > > > Deb, > > I'm sorry you are having such a bad time. I'm glad you were able to > > vent. Hearing you reminded me so much of 2 1/2 years ago when we were > > trying to get rid of Wyatt's PA's. I sat at the park down the road > > and bawled my eyes out. Thank God my husband just let me cry and gave > > me a hug and didn't say much. NOrmally he tries to give me his male > > perspective which usually I don't want. I hope you can still get > > rid of them and things will get better. I only have one CF Child to > > deal with but I can imagine how hard it must be for you with two. > > Lots of love, Christy > > > > Thanks Christy it is so nice to know I am not the only one that feels this > way!! So how did yo finally get rid of the PA? how long did it take for you > to get fid of PA? Deb A > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2002 Report Share Posted November 16, 2002 We didn't get rid of it. We tried it for over six months I believe and decided to call it a day and consider him colonized. So now we do 28 days on of TOBI and 28 off. My doc believes he went undiagnosed for at least a year and a half when I told him of my battles w/ Wyatt's cough while in California. His doc here in Hawaii diagnosed him immediately when we got here. Maybe 2-3 weeks after arriving. So don't give up hope yet, you still have a chance. I don't think we ever did but what can you do? Christy mom of Wyatt 7wcf and Hunter 2.5wocf > In a message dated 11/15/2002 10:40:14 AM Central Standard Time, > seabeewife2@h... writes: > > > > Deb, > > I'm sorry you are having such a bad time. I'm glad you were able to > > vent. Hearing you reminded me so much of 2 1/2 years ago when we were > > trying to get rid of Wyatt's PA's. I sat at the park down the road > > and bawled my eyes out. Thank God my husband just let me cry and gave > > me a hug and didn't say much. NOrmally he tries to give me his male > > perspective which usually I don't want. I hope you can still get > > rid of them and things will get better. I only have one CF Child to > > deal with but I can imagine how hard it must be for you with two. > > Lots of love, Christy > > > > Thanks Christy it is so nice to know I am not the only one that feels this > way!! So how did yo finally get rid of the PA? how long did it take for you > to get fid of PA? Deb A > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2002 Report Share Posted November 16, 2002 We didn't get rid of it. We tried it for over six months I believe and decided to call it a day and consider him colonized. So now we do 28 days on of TOBI and 28 off. My doc believes he went undiagnosed for at least a year and a half when I told him of my battles w/ Wyatt's cough while in California. His doc here in Hawaii diagnosed him immediately when we got here. Maybe 2-3 weeks after arriving. So don't give up hope yet, you still have a chance. I don't think we ever did but what can you do? Christy mom of Wyatt 7wcf and Hunter 2.5wocf > In a message dated 11/15/2002 10:40:14 AM Central Standard Time, > seabeewife2@h... writes: > > > > Deb, > > I'm sorry you are having such a bad time. I'm glad you were able to > > vent. Hearing you reminded me so much of 2 1/2 years ago when we were > > trying to get rid of Wyatt's PA's. I sat at the park down the road > > and bawled my eyes out. Thank God my husband just let me cry and gave > > me a hug and didn't say much. NOrmally he tries to give me his male > > perspective which usually I don't want. I hope you can still get > > rid of them and things will get better. I only have one CF Child to > > deal with but I can imagine how hard it must be for you with two. > > Lots of love, Christy > > > > Thanks Christy it is so nice to know I am not the only one that feels this > way!! So how did yo finally get rid of the PA? how long did it take for you > to get fid of PA? Deb A > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2002 Report Share Posted November 16, 2002 Christy, Is Wyatt on Zithromax? Kim Mom to (23 with cf and asthma) and (20 asthma no cf) > > In a message dated 11/15/2002 10:40:14 AM Central Standard Time, > > seabeewife2@h... writes: > > > > > > > Deb, > > > I'm sorry you are having such a bad time. I'm glad you were able > to > > > vent. Hearing you reminded me so much of 2 1/2 years ago when we > were > > > trying to get rid of Wyatt's PA's. I sat at the park down the > road > > > and bawled my eyes out. Thank God my husband just let me cry and > gave > > > me a hug and didn't say much. NOrmally he tries to give me his > male > > > perspective which usually I don't want. I hope you can still > get > > > rid of them and things will get better. I only have one CF Child > to > > > deal with but I can imagine how hard it must be for you with two. > > > Lots of love, Christy > > > > > > > Thanks Christy it is so nice to know I am not the only one that > feels this > > way!! So how did yo finally get rid of the PA? how long did it take > for you > > to get fid of PA? Deb A > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2002 Report Share Posted November 16, 2002 Kim, No, Wyatt is not on Zithromax. I only recently heard about it here on the message borard. I meant to ask his doctor about it at his last clinic but I forgot. It was so crazy and his normal pulmonologist wasn't there. Christy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2002 Report Share Posted November 16, 2002 Kim, No, Wyatt is not on Zithromax. I only recently heard about it here on the message borard. I meant to ask his doctor about it at his last clinic but I forgot. It was so crazy and his normal pulmonologist wasn't there. Christy Quote Link to comment Share on other sites More sharing options...
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