Guest guest Posted September 21, 2002 Report Share Posted September 21, 2002 Hi Mira, FWTW, when I had my Modified Whipple, (I think they are all a little different) I was five months before returning to work, and even then felt I went back to work too soon, and it was a full year of " getting better " before I felt I was stabilized. Just hang in there and recognize that while progress might be slow, it's still progress. And remember that ten hours in an OR is a heck of a long time and will require a long recovery. Best Wishes, Poncho - GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2002 Report Share Posted September 21, 2002 Hi Mira, FWTW, when I had my Modified Whipple, (I think they are all a little different) I was five months before returning to work, and even then felt I went back to work too soon, and it was a full year of " getting better " before I felt I was stabilized. Just hang in there and recognize that while progress might be slow, it's still progress. And remember that ten hours in an OR is a heck of a long time and will require a long recovery. Best Wishes, Poncho - GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2002 Report Share Posted September 21, 2002 Hi Mira, FWTW, when I had my Modified Whipple, (I think they are all a little different) I was five months before returning to work, and even then felt I went back to work too soon, and it was a full year of " getting better " before I felt I was stabilized. Just hang in there and recognize that while progress might be slow, it's still progress. And remember that ten hours in an OR is a heck of a long time and will require a long recovery. Best Wishes, Poncho - GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2002 Report Share Posted September 21, 2002 Poncho What do you take daily for pain relief , what dosage . from Canada. I posted this question on the site and only one person answered me I need this info as to what people are taking for my doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2002 Report Share Posted September 21, 2002 Mira, I bite my lip to keep from screaming every time someone bad-mouths the Whipple Procedure. I thank my surgeons each and every day for mine. Three and a half years ago I was crippled by pain from CP. Three fourths of my pancreas had calcified from 12 years of clinical and subclinical acute pancreatitis attacks subsequent to Pancreas Divisum. Multiple stent placements had failed to help and I was faced with being disabled by pain until there was no pancreas remaining. I chose to have the Whipple in the hope that I could get some relief. The two years that followed was interrupted by some acute attacks but I will forever be thankful for the skill of my surgeon and the Whipple he performed. I got all of my kids through school and well started in their adult lives. I had a record income year and ended up with the job I had always dreamed of and excelled at it. My wife and I became closer than we had ever hoped to be and we found and bought our dream farm on which to retire. None of this would have been possible without the Whipple. I am realistic. I know from my research what the end result of CP is. I know that someday I will end up with out a pancreas. I have only had hope to be pain free and insulin independent. The Whipple got me more than two years of that goal. Some of you may think of my surgery as being unsuccessful since I am now in end-stage CP but I think it was a flying success for giving me the two best years of my life. It's funny how different things can be. My surgeon used a technique for the Whipple he helped develop when he was at UCLA Medical Center before coming to Houston as the Head of Surgery for Baylor College of Medicine. This technique was developed to reduce post-op complications and to make the recovery period shorter. It used a vertical mid-line incision rather than the broad cut under the ribs. It also used a single -Pratt (J-P) drain which came out after 4 weeks. They took 3/4 of my pancreas from the head back. I was in the hospital for only 10 days (shorter than some of my AP attacks). I had no complications at all other than a minor fistula. I had the surgery on July 15, 1999 and was back to work the last week of August. It is unfortunate that the Whipple was not able to stop the AP attacks which have now destroyed most of the remaining portion of my pancreas. Like I said I will be eternally grateful for the time the Whipple bought me. Chuck At 02:53 PM 9/21/2002 +0100, you wrote: >Hi Everybody, > >I have not posted for 5 weeks I went to hospital to >have the whipple operation on the 15th July. >I'm back home I was discharged on the 12th of Aug. >I was in hospital over a month,. >Now that I'm home I can honestly say that I still have >lots of pain different kind of pain but never the less >lots of pain. >The operation took 10 hours, I't was duodenum >presserveing operation where they take the head of the >pancreas from the credle of the duodenum and stick the >tail to another small intestine. >I do take enzymes with every meal, but the nausea and >did not go away. >I will appreciate a reply from anyone how experience >so much pain as a result of whipple surgery. >Rrgards Mira Chuck Sullivan chuck@... " When in command, Take charge. When faced with a decision, do what is right. Nothing else matters. " - Gen. Norman Schwarzkopf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2002 Report Share Posted September 21, 2002 Mira, I bite my lip to keep from screaming every time someone bad-mouths the Whipple Procedure. I thank my surgeons each and every day for mine. Three and a half years ago I was crippled by pain from CP. Three fourths of my pancreas had calcified from 12 years of clinical and subclinical acute pancreatitis attacks subsequent to Pancreas Divisum. Multiple stent placements had failed to help and I was faced with being disabled by pain until there was no pancreas remaining. I chose to have the Whipple in the hope that I could get some relief. The two years that followed was interrupted by some acute attacks but I will forever be thankful for the skill of my surgeon and the Whipple he performed. I got all of my kids through school and well started in their adult lives. I had a record income year and ended up with the job I had always dreamed of and excelled at it. My wife and I became closer than we had ever hoped to be and we found and bought our dream farm on which to retire. None of this would have been possible without the Whipple. I am realistic. I know from my research what the end result of CP is. I know that someday I will end up with out a pancreas. I have only had hope to be pain free and insulin independent. The Whipple got me more than two years of that goal. Some of you may think of my surgery as being unsuccessful since I am now in end-stage CP but I think it was a flying success for giving me the two best years of my life. It's funny how different things can be. My surgeon used a technique for the Whipple he helped develop when he was at UCLA Medical Center before coming to Houston as the Head of Surgery for Baylor College of Medicine. This technique was developed to reduce post-op complications and to make the recovery period shorter. It used a vertical mid-line incision rather than the broad cut under the ribs. It also used a single -Pratt (J-P) drain which came out after 4 weeks. They took 3/4 of my pancreas from the head back. I was in the hospital for only 10 days (shorter than some of my AP attacks). I had no complications at all other than a minor fistula. I had the surgery on July 15, 1999 and was back to work the last week of August. It is unfortunate that the Whipple was not able to stop the AP attacks which have now destroyed most of the remaining portion of my pancreas. Like I said I will be eternally grateful for the time the Whipple bought me. Chuck At 02:53 PM 9/21/2002 +0100, you wrote: >Hi Everybody, > >I have not posted for 5 weeks I went to hospital to >have the whipple operation on the 15th July. >I'm back home I was discharged on the 12th of Aug. >I was in hospital over a month,. >Now that I'm home I can honestly say that I still have >lots of pain different kind of pain but never the less >lots of pain. >The operation took 10 hours, I't was duodenum >presserveing operation where they take the head of the >pancreas from the credle of the duodenum and stick the >tail to another small intestine. >I do take enzymes with every meal, but the nausea and >did not go away. >I will appreciate a reply from anyone how experience >so much pain as a result of whipple surgery. >Rrgards Mira Chuck Sullivan chuck@... " When in command, Take charge. When faced with a decision, do what is right. Nothing else matters. " - Gen. Norman Schwarzkopf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2002 Report Share Posted September 21, 2002 Chuck, I know how you feel about the whipple. I feel the same way about the reconstructive surgery I had on the pancreatic ducts (due to pancreatic divisum). I now have chronic CP and acute attacks once a year, but the surgery gave me 5 years of no pancreas problems. For that, I am extremely grateful. It helped me finish getting my Bachelor's degree and find a steady job afterwords. None of which would have been possible if I had not had the surgery. I would have hit End stage CP alot soon than I have. I do not regret the surgery at all. The surgery was considered experimental at the time I had it (only 150 had been performed in the US at that time). I had no complications.Unfortunately, they now think i had already had chronic CP at the time, which is why the surgery was not completely successful. Kimber -- Kimber Vallejo, CA hominid2@... Southwest Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2002 Report Share Posted September 21, 2002 Chuck, I know how you feel about the whipple. I feel the same way about the reconstructive surgery I had on the pancreatic ducts (due to pancreatic divisum). I now have chronic CP and acute attacks once a year, but the surgery gave me 5 years of no pancreas problems. For that, I am extremely grateful. It helped me finish getting my Bachelor's degree and find a steady job afterwords. None of which would have been possible if I had not had the surgery. I would have hit End stage CP alot soon than I have. I do not regret the surgery at all. The surgery was considered experimental at the time I had it (only 150 had been performed in the US at that time). I had no complications.Unfortunately, they now think i had already had chronic CP at the time, which is why the surgery was not completely successful. Kimber -- Kimber Vallejo, CA hominid2@... Southwest Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2002 Report Share Posted September 21, 2002 Chuck, I know how you feel about the whipple. I feel the same way about the reconstructive surgery I had on the pancreatic ducts (due to pancreatic divisum). I now have chronic CP and acute attacks once a year, but the surgery gave me 5 years of no pancreas problems. For that, I am extremely grateful. It helped me finish getting my Bachelor's degree and find a steady job afterwords. None of which would have been possible if I had not had the surgery. I would have hit End stage CP alot soon than I have. I do not regret the surgery at all. The surgery was considered experimental at the time I had it (only 150 had been performed in the US at that time). I had no complications.Unfortunately, they now think i had already had chronic CP at the time, which is why the surgery was not completely successful. Kimber -- Kimber Vallejo, CA hominid2@... Southwest Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2002 Report Share Posted September 22, 2002 Kimber I forgot to ask you if you find the methadone works really well? Why did the doctor choose that over other medications? from Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2002 Report Share Posted September 22, 2002 Kimber I forgot to ask you if you find the methadone works really well? Why did the doctor choose that over other medications? from Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2002 Report Share Posted September 22, 2002 Kimber I forgot to ask you if you find the methadone works really well? Why did the doctor choose that over other medications? from Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2002 Report Share Posted September 22, 2002 Hi Patrica, I take hydrocodine as needed and as much as needed. I have had Panc. attacks that require only one 7.5 mg pill. And I've had Panc. attacks that need maybe 8 of those pills over a twelve hour period. FWIW, I find pain relief most effective if I'm totally immobile. I try to keep the fluids up and extremely limited activity Best wishes, Poncho - GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2002 Report Share Posted September 22, 2002 Mira, so sorry you had those complications. I hope they go away soon and so does the pain and nausea. Wish I could make it all better. I've heard a couple of other members had delayed gastric dumping (not the whipple I think, but another pancreas surgery. I'm not positive, I just remember someone posting about it, don't know who or what surgery they had). I hope it goes away. Keep me informed on how you are doing, I'm concerned about you. Look forward to your feeling better enough to post regularly. Kimber -- Kimber Vallejo, CA hominid2@... Southwest Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2002 Report Share Posted September 22, 2002 Mira, so sorry you had those complications. I hope they go away soon and so does the pain and nausea. Wish I could make it all better. I've heard a couple of other members had delayed gastric dumping (not the whipple I think, but another pancreas surgery. I'm not positive, I just remember someone posting about it, don't know who or what surgery they had). I hope it goes away. Keep me informed on how you are doing, I'm concerned about you. Look forward to your feeling better enough to post regularly. Kimber -- Kimber Vallejo, CA hominid2@... Southwest Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2002 Report Share Posted September 22, 2002 Mira, so sorry you had those complications. I hope they go away soon and so does the pain and nausea. Wish I could make it all better. I've heard a couple of other members had delayed gastric dumping (not the whipple I think, but another pancreas surgery. I'm not positive, I just remember someone posting about it, don't know who or what surgery they had). I hope it goes away. Keep me informed on how you are doing, I'm concerned about you. Look forward to your feeling better enough to post regularly. Kimber -- Kimber Vallejo, CA hominid2@... Southwest Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 Mira, It took me a least 3 months to feel good after my WHipple and to be able to eat. I remen=mber my doc telling it could take a year to 18 months before everything was back to normal and completely healed inside, So be patient and give it some more time. In the end I was good for 2 years before I started to have the Chronic pain and nausea. All lot of people last longer, but I developed a gastric outlet obstruction and has problems after that. He said that doesn't happen very ofter. Just take it one day at a time and make the most of the feel good days. Better days will surely follow. If I had to do it all over again, I go throught the Whipple again, that's how much better I ended up feeling. Take Care, Louie in WV whipple surgery Hi Everybody, I have not posted for 5 weeks I went to hospital to have the whipple operation on the 15th July. I'm back home I was discharged on the 12th of Aug. I was in hospital over a month,. Now that I'm home I can honestly say that I still have lots of pain different kind of pain but never the less lots of pain. The operation took 10 hours, I't was duodenum presserveing operation where they take the head of the pancreas from the credle of the duodenum and stick the tail to another small intestine. I do take enzymes with every meal, but the nausea and did not go away. I will appreciate a reply from anyone how experience so much pain as a result of whipple surgery. Rrgards Mira __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 Mira, It took me a least 3 months to feel good after my WHipple and to be able to eat. I remen=mber my doc telling it could take a year to 18 months before everything was back to normal and completely healed inside, So be patient and give it some more time. In the end I was good for 2 years before I started to have the Chronic pain and nausea. All lot of people last longer, but I developed a gastric outlet obstruction and has problems after that. He said that doesn't happen very ofter. Just take it one day at a time and make the most of the feel good days. Better days will surely follow. If I had to do it all over again, I go throught the Whipple again, that's how much better I ended up feeling. Take Care, Louie in WV whipple surgery Hi Everybody, I have not posted for 5 weeks I went to hospital to have the whipple operation on the 15th July. I'm back home I was discharged on the 12th of Aug. I was in hospital over a month,. Now that I'm home I can honestly say that I still have lots of pain different kind of pain but never the less lots of pain. The operation took 10 hours, I't was duodenum presserveing operation where they take the head of the pancreas from the credle of the duodenum and stick the tail to another small intestine. I do take enzymes with every meal, but the nausea and did not go away. I will appreciate a reply from anyone how experience so much pain as a result of whipple surgery. Rrgards Mira __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 Mira, It took me a least 3 months to feel good after my WHipple and to be able to eat. I remen=mber my doc telling it could take a year to 18 months before everything was back to normal and completely healed inside, So be patient and give it some more time. In the end I was good for 2 years before I started to have the Chronic pain and nausea. All lot of people last longer, but I developed a gastric outlet obstruction and has problems after that. He said that doesn't happen very ofter. Just take it one day at a time and make the most of the feel good days. Better days will surely follow. If I had to do it all over again, I go throught the Whipple again, that's how much better I ended up feeling. Take Care, Louie in WV whipple surgery Hi Everybody, I have not posted for 5 weeks I went to hospital to have the whipple operation on the 15th July. I'm back home I was discharged on the 12th of Aug. I was in hospital over a month,. Now that I'm home I can honestly say that I still have lots of pain different kind of pain but never the less lots of pain. The operation took 10 hours, I't was duodenum presserveing operation where they take the head of the pancreas from the credle of the duodenum and stick the tail to another small intestine. I do take enzymes with every meal, but the nausea and did not go away. I will appreciate a reply from anyone how experience so much pain as a result of whipple surgery. Rrgards Mira __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2002 Report Share Posted October 1, 2002 Hi louie, Thank you for your replay, I know you yourself just had an operation I do wish you speedy recovery and pain free days. I'm 3 months after my whipple operation, I can eat low fat soft foods,. My doc. also told me that will take a year for everything inside to heal, I'm prepared for this what I can't take is the nausea or the bitter taste in my mouth it feels asthough the bile is coming up my mouth intead of going down I know they took my gall ballder out and re connected the bile duct direct to the duodenum. The bigget complecation is the Delayed gastric emptying I was told because my surgery was doudenum preserving whipple I will not have Delayed gastric emptying but not my luck I got it anyway and will take a year for my stomach to go back to it normal activity. Right now it feels hard like a brick and painful anytime I eat something. I will be seeing my doc. on the 8th of Oct. Thank you again Louie, Take care Mira in the UK --- edhall ehall@...> wrote: > Mira, > It took me a least 3 months to feel good after my > WHipple and to be able to eat. I remen=mber my doc > telling it could take a year to 18 months before > everything was back to normal and completely healed > inside, So be patient and give it some more time. > In the end I was good for 2 years before I started > to have the Chronic pain and nausea. All lot of > people last longer, but I developed a gastric outlet > obstruction and has problems after that. He said > that doesn't happen very ofter. > Just take it one day at a time and make the most of > the feel good days. Better days will surely follow. > If I had to do it all over again, I go throught the > Whipple again, that's how much better I ended up > feeling. > Take Care, > Louie in WV > whipple surgery > > > Hi Everybody, > > I have not posted for 5 weeks I went to hospital > to > have the whipple operation on the 15th July. > I'm back home I was discharged on the 12th of Aug. > > I was in hospital over a month,. > Now that I'm home I can honestly say that I still > have > lots of pain different kind of pain but never the > less > lots of pain. > The operation took 10 hours, I't was duodenum > presserveing operation where they take the head of > the > pancreas from the credle of the duodenum and stick > the > tail to another small intestine. > I do take enzymes with every meal, but the nausea > and > did not go away. > I will appreciate a reply from anyone how > experience > so much pain as a result of whipple surgery. > Rrgards Mira > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2002 Report Share Posted October 1, 2002 Hi louie, Thank you for your replay, I know you yourself just had an operation I do wish you speedy recovery and pain free days. I'm 3 months after my whipple operation, I can eat low fat soft foods,. My doc. also told me that will take a year for everything inside to heal, I'm prepared for this what I can't take is the nausea or the bitter taste in my mouth it feels asthough the bile is coming up my mouth intead of going down I know they took my gall ballder out and re connected the bile duct direct to the duodenum. The bigget complecation is the Delayed gastric emptying I was told because my surgery was doudenum preserving whipple I will not have Delayed gastric emptying but not my luck I got it anyway and will take a year for my stomach to go back to it normal activity. Right now it feels hard like a brick and painful anytime I eat something. I will be seeing my doc. on the 8th of Oct. Thank you again Louie, Take care Mira in the UK --- edhall ehall@...> wrote: > Mira, > It took me a least 3 months to feel good after my > WHipple and to be able to eat. I remen=mber my doc > telling it could take a year to 18 months before > everything was back to normal and completely healed > inside, So be patient and give it some more time. > In the end I was good for 2 years before I started > to have the Chronic pain and nausea. All lot of > people last longer, but I developed a gastric outlet > obstruction and has problems after that. He said > that doesn't happen very ofter. > Just take it one day at a time and make the most of > the feel good days. Better days will surely follow. > If I had to do it all over again, I go throught the > Whipple again, that's how much better I ended up > feeling. > Take Care, > Louie in WV > whipple surgery > > > Hi Everybody, > > I have not posted for 5 weeks I went to hospital > to > have the whipple operation on the 15th July. > I'm back home I was discharged on the 12th of Aug. > > I was in hospital over a month,. > Now that I'm home I can honestly say that I still > have > lots of pain different kind of pain but never the > less > lots of pain. > The operation took 10 hours, I't was duodenum > presserveing operation where they take the head of > the > pancreas from the credle of the duodenum and stick > the > tail to another small intestine. > I do take enzymes with every meal, but the nausea > and > did not go away. > I will appreciate a reply from anyone how > experience > so much pain as a result of whipple surgery. > Rrgards Mira > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2002 Report Share Posted October 1, 2002 Hi Poncho, Thanks for your reply, I agree with you 10 hours in the OR is very long time, I keep thinking what did they do for 10 hours? and how may pairs of hands went in and out my body,. My op was duodenum preserving with this I should not have Delayed gastric emptying but I have it and the taste in my mouth is the bile taste coming up instead of going down,. I will get better As for my job I have lost it,. I only hope is to get better and find another one. Thank you again Mira --- poncho9191@... wrote: > Hi Mira, > FWTW, when I had my Modified Whipple, (I think they > are all a little > different) I was five months before returning to > work, and even then felt I > went back to work too soon, and it was a full year > of " getting better " before > I felt I was stabilized. Just hang in there and > recognize that while progress > might be slow, it's still progress. And remember > that ten hours in an OR is a > heck of a long time and will require a long > recovery. > Best Wishes, Poncho - GA > > > [Non-text portions of this message have been > removed] > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2002 Report Share Posted October 1, 2002 My doc explained why I was in surgery for over 7 hours. He spent more than 3 hours freeing the Mesenteric Artery (Vein? I don't remember which). Evidently the walls of this large and critical blood vessel attach to the pancreatic tissue surrounding it. They have to get in and cut and scrape all the tissue away. Chuck At 10:05 AM 10/1/02 +0100, you wrote: >Hi Poncho, >Thanks for your reply, >I agree with you 10 hours in the OR is very long time, >I keep thinking what did they do for 10 hours? and how >may pairs of hands went in and out my body,. >My op was duodenum preserving with this I should not >have Delayed gastric emptying but I have it and the >taste in my mouth is the bile taste coming up instead >of going down,. I will get better As for my job I have >lost it,. I only hope is to get better and find >another one. >Thank you again >Mira > Chuck Sullivan chuck@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2002 Report Share Posted October 1, 2002 My doc explained why I was in surgery for over 7 hours. He spent more than 3 hours freeing the Mesenteric Artery (Vein? I don't remember which). Evidently the walls of this large and critical blood vessel attach to the pancreatic tissue surrounding it. They have to get in and cut and scrape all the tissue away. Chuck At 10:05 AM 10/1/02 +0100, you wrote: >Hi Poncho, >Thanks for your reply, >I agree with you 10 hours in the OR is very long time, >I keep thinking what did they do for 10 hours? and how >may pairs of hands went in and out my body,. >My op was duodenum preserving with this I should not >have Delayed gastric emptying but I have it and the >taste in my mouth is the bile taste coming up instead >of going down,. I will get better As for my job I have >lost it,. I only hope is to get better and find >another one. >Thank you again >Mira > Chuck Sullivan chuck@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2002 Report Share Posted October 1, 2002 My doc explained why I was in surgery for over 7 hours. He spent more than 3 hours freeing the Mesenteric Artery (Vein? I don't remember which). Evidently the walls of this large and critical blood vessel attach to the pancreatic tissue surrounding it. They have to get in and cut and scrape all the tissue away. Chuck At 10:05 AM 10/1/02 +0100, you wrote: >Hi Poncho, >Thanks for your reply, >I agree with you 10 hours in the OR is very long time, >I keep thinking what did they do for 10 hours? and how >may pairs of hands went in and out my body,. >My op was duodenum preserving with this I should not >have Delayed gastric emptying but I have it and the >taste in my mouth is the bile taste coming up instead >of going down,. I will get better As for my job I have >lost it,. I only hope is to get better and find >another one. >Thank you again >Mira > Chuck Sullivan chuck@... Quote Link to comment Share on other sites More sharing options...
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