Guest guest Posted November 3, 2002 Report Share Posted November 3, 2002 Gale, Emma has an appointment on Tuesday and once again I am going to argue for her to be switched to Pancrecarb. I am hopeful because she is not seeing the GI doctor (who she usually sees) and is seeing the head of the CF clininc (a Pulmonologist) instead. I am hoping it will be easier to convince him. Your email has given me more incentive to argue to at least try it. Emma's food also has to be the consistency of pudding. Only recently has she shown an interest in eating nonpureed solids independently. She has started to realize she is different from Isabelle and wants to eat what she is eating. She can often be heard energetically saying, " ME TOO, ME TOO " . I've been giving her the food when she does this but she doesn't eat much of it but I have noticed less gagging when she is eating it. I'm hoping it's a sign things are changing. At the same time, she has started gagging every time she drinks. Usually, she puts her tongue over the spout on her cup and prevents the milk from coming out but when she does get milk (carnation instant breakfast), she gags. This may be more behavioral. I don't know. Anyway, I just wanted to thank you for letting me know the Pancrecarb has been helping Abby. - mom to Emma 2 years w/cf and Isabelle 4 years wo/cf On Mon, 04 Nov 2002 03:38:41 -0000 " danieleverettharris " gale.harris@...> writes: > , > Thanks for the answers. Someone on this list talked about > Pancrecarb. It's an enzyme that has a bi-carbonate coating. We > asked Abby's doctor if we could try it and he gave us some samples. > > It has been three days and so far it seems to have stopped the > reflux. It may be too soon to know, but she was refluxing about 20 > times a day before we switched enzymes. > Abby also gags on solid foods. It's so disappointing when she > loses everything that she just ate. Her food needs to be the > consistancy of pudding. It was really interesting to see that Emma > also gags on solids. > Thank you again for your response. > Gale ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2002 Report Share Posted November 3, 2002 Gale, Emma has an appointment on Tuesday and once again I am going to argue for her to be switched to Pancrecarb. I am hopeful because she is not seeing the GI doctor (who she usually sees) and is seeing the head of the CF clininc (a Pulmonologist) instead. I am hoping it will be easier to convince him. Your email has given me more incentive to argue to at least try it. Emma's food also has to be the consistency of pudding. Only recently has she shown an interest in eating nonpureed solids independently. She has started to realize she is different from Isabelle and wants to eat what she is eating. She can often be heard energetically saying, " ME TOO, ME TOO " . I've been giving her the food when she does this but she doesn't eat much of it but I have noticed less gagging when she is eating it. I'm hoping it's a sign things are changing. At the same time, she has started gagging every time she drinks. Usually, she puts her tongue over the spout on her cup and prevents the milk from coming out but when she does get milk (carnation instant breakfast), she gags. This may be more behavioral. I don't know. Anyway, I just wanted to thank you for letting me know the Pancrecarb has been helping Abby. - mom to Emma 2 years w/cf and Isabelle 4 years wo/cf On Mon, 04 Nov 2002 03:38:41 -0000 " danieleverettharris " gale.harris@...> writes: > , > Thanks for the answers. Someone on this list talked about > Pancrecarb. It's an enzyme that has a bi-carbonate coating. We > asked Abby's doctor if we could try it and he gave us some samples. > > It has been three days and so far it seems to have stopped the > reflux. It may be too soon to know, but she was refluxing about 20 > times a day before we switched enzymes. > Abby also gags on solid foods. It's so disappointing when she > loses everything that she just ate. Her food needs to be the > consistancy of pudding. It was really interesting to see that Emma > also gags on solids. > Thank you again for your response. > Gale ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2002 Report Share Posted November 3, 2002 Gale, Emma has an appointment on Tuesday and once again I am going to argue for her to be switched to Pancrecarb. I am hopeful because she is not seeing the GI doctor (who she usually sees) and is seeing the head of the CF clininc (a Pulmonologist) instead. I am hoping it will be easier to convince him. Your email has given me more incentive to argue to at least try it. Emma's food also has to be the consistency of pudding. Only recently has she shown an interest in eating nonpureed solids independently. She has started to realize she is different from Isabelle and wants to eat what she is eating. She can often be heard energetically saying, " ME TOO, ME TOO " . I've been giving her the food when she does this but she doesn't eat much of it but I have noticed less gagging when she is eating it. I'm hoping it's a sign things are changing. At the same time, she has started gagging every time she drinks. Usually, she puts her tongue over the spout on her cup and prevents the milk from coming out but when she does get milk (carnation instant breakfast), she gags. This may be more behavioral. I don't know. Anyway, I just wanted to thank you for letting me know the Pancrecarb has been helping Abby. - mom to Emma 2 years w/cf and Isabelle 4 years wo/cf On Mon, 04 Nov 2002 03:38:41 -0000 " danieleverettharris " gale.harris@...> writes: > , > Thanks for the answers. Someone on this list talked about > Pancrecarb. It's an enzyme that has a bi-carbonate coating. We > asked Abby's doctor if we could try it and he gave us some samples. > > It has been three days and so far it seems to have stopped the > reflux. It may be too soon to know, but she was refluxing about 20 > times a day before we switched enzymes. > Abby also gags on solid foods. It's so disappointing when she > loses everything that she just ate. Her food needs to be the > consistancy of pudding. It was really interesting to see that Emma > also gags on solids. > Thank you again for your response. > Gale ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
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