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RE: Update on Leila

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LIFE with any kids NEVER stop being scary for whatever the reason for

us parents & grandparents .It's called strong love & the fear of losing

our precious ones. .You will just know more so you can help them better.

Thanks for your caring. but just keep that strong love up .You can

handle Whatever is thrown at you:):)

LOVE & HUGS,

grandmomBEv

Update on Leila

I really appreciate all the kind messages the group has sent. It seems

like we're doing okay. Our doc thinks she just has a bad cold. He

listened to her chest and said he thought all the noise was mostly upper

airway congestion. To be sure he got a chest x-ray and it looked good.

He also sent a swab out to see what she's growing. We'll continue the

Septra and treatments and hope nothing else grows in the meantime.

Torsten, you're right about the first illness being scary. My first

born never ever sounded this bad, plus I'm am really scared about what

could happen. I suppose I'm going to have to relax a little because

this won't be the last time she gets ill! After hearing all of your

stories about late diagnosis I am grateful we got our diagnosis so early

(at birth with meconium ileus). Does life with these kids ever stop

being scary?

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