Guest guest Posted September 4, 2002 Report Share Posted September 4, 2002 Hi, Thanks for the info from the Hopkins site. I had an attack starting on July 25th and was hospitalized for a week. Am still on toradol pain needles and am getting the run around. I had an attack like this last May that lasted for a couple of months. They said it is not pancreatitis as my lipase levels or whatever are not elevated. They said it sounds like gallbladder but they won't remove it unless there is evidence that it is. I am allergic to all the dyes so they are limited as to the tests that they can do, as I have an anaphylactic reaction. To me it sounds like chronic pancreatitis as I had a bout of it a few years ago also. The pain is severe in the region above the navel and goes straight up and across to both sides most of the time as well as through to the back. I can hardly stand anyone poking around as it just seems to get things stirred up again. I went to a specialist and he told me that fibromylagia plays funny tricks on the abdomen and that was as far as I got there. My blood pressure shoots up to 200/110 where it normally is 100/66, when I have one of these attacks and it usually occurs after I eat. I have never drank in my life but I also have a fatty liver and that is immediately what the doctors think when you have that also. I have an endoscopy for next Tuesday, Sept. 10th so I hope they can find something out. If anyone has any other help I would surely appreciate it. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2002 Report Share Posted September 4, 2002 , Thanks for giving us a little more info... I have to question the diagnoses that you had of CP... once you have CP, you have it. It doesn't go away as Chuck stated. I think if your docs aren't aware of the DX you better enlighten them. The pain you are having sounds like CP and IBS (irritable bowel syndrome) I have that too... and sometimes the pain from that is worse than the CP pain. I also have been dx'd with GERD and CFS/FMS and those can make life miserable all by themselves. But since I have been dx'd with CP, I have been on all of my meds for the other stuff and they are bearable. I am also allergic to many meds, including the dyes for CT and IVP type x-rays. They don't cause shock, but they do make life miserable for me... So I have to list it as an allergy, along with the multitudes of other meds allergies I have acquired since my pancreatitis attacks have become stronger and longer lasting. They call it hypersensitivity. (It really makes getting pain meds hard too.) Well, I hope that the information you get here will be sufficient to get things moving in the right direction for you. {{{HUGZ and Prayers}}} PS... my blood pressure DOES go up slightly during an attack and just before. My GI says (and many ER docs) that its because of the pain we have... it increases the BP. Ok... I guess its something else for me to look up and learn about huh? --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2002 Report Share Posted September 4, 2002 , Thanks for giving us a little more info... I have to question the diagnoses that you had of CP... once you have CP, you have it. It doesn't go away as Chuck stated. I think if your docs aren't aware of the DX you better enlighten them. The pain you are having sounds like CP and IBS (irritable bowel syndrome) I have that too... and sometimes the pain from that is worse than the CP pain. I also have been dx'd with GERD and CFS/FMS and those can make life miserable all by themselves. But since I have been dx'd with CP, I have been on all of my meds for the other stuff and they are bearable. I am also allergic to many meds, including the dyes for CT and IVP type x-rays. They don't cause shock, but they do make life miserable for me... So I have to list it as an allergy, along with the multitudes of other meds allergies I have acquired since my pancreatitis attacks have become stronger and longer lasting. They call it hypersensitivity. (It really makes getting pain meds hard too.) Well, I hope that the information you get here will be sufficient to get things moving in the right direction for you. {{{HUGZ and Prayers}}} PS... my blood pressure DOES go up slightly during an attack and just before. My GI says (and many ER docs) that its because of the pain we have... it increases the BP. Ok... I guess its something else for me to look up and learn about huh? --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2002 Report Share Posted September 5, 2002 Chuck, a person with CP can have bouts of Acute Pancreatitis (check out the Hopkins GI website for this). I know, I have an acute bout once a year, then go back to my everyday pain, which varies in intesity. And you can have them without raised amylase and lipase levels (again, check out Hopkins GI website) http://hopkins-gi.org/ Kimber -- Kimber Vallejo, CA hominid2@... Southwest Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2002 Report Share Posted September 5, 2002 Chuck, a person with CP can have bouts of Acute Pancreatitis (check out the Hopkins GI website for this). I know, I have an acute bout once a year, then go back to my everyday pain, which varies in intesity. And you can have them without raised amylase and lipase levels (again, check out Hopkins GI website) http://hopkins-gi.org/ Kimber -- Kimber Vallejo, CA hominid2@... Southwest Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
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