chronic pancreatitis

[Guest guest]

Hi,

Thanks for the info from the Hopkins site. I had an attack

starting on July 25th and was hospitalized for a week. Am still on

toradol pain needles and am getting the run around. I had an attack

like this last May that lasted for a couple of months. They said it

is not pancreatitis as my lipase levels or whatever are not

elevated. They said it sounds like gallbladder but they won't remove

it unless there is evidence that it is. I am allergic to all the

dyes so they are limited as to the tests that they can do, as I have

an anaphylactic reaction. To me it sounds like chronic pancreatitis

as I had a bout of it a few years ago also. The pain is severe in

the region above the navel and goes straight up and across to both

sides most of the time as well as through to the back. I can hardly

stand anyone poking around as it just seems to get things stirred up

again. I went to a specialist and he told me that fibromylagia plays

funny tricks on the abdomen and that was as far as I got there. My

blood pressure shoots up to 200/110 where it normally is 100/66, when

I have one of these attacks and it usually occurs after I eat. I

have never drank in my life but I also have a fatty liver and that is

immediately what the doctors think when you have that also. I have an

endoscopy for next Tuesday, Sept. 10th so I hope they can find

something out.

If anyone has any other help I would surely appreciate it.

Thanks

[Guest guest]

,

Thanks for giving us a little more info... I have to question the diagnoses that

you had of CP... once you have CP, you have it. It doesn't go away as Chuck

stated. I think if your docs aren't aware of the DX you better enlighten them.

The pain you are having sounds like CP and IBS (irritable bowel syndrome) I

have that too... and sometimes the pain from that is worse than the CP pain. I

also have been dx'd with GERD and CFS/FMS and those can make life miserable all

by themselves. But since I have been dx'd with CP, I have been on all of my

meds for the other stuff and they are bearable.

I am also allergic to many meds, including the dyes for CT and IVP type x-rays.

They don't cause shock, but they do make life miserable for me... So I have to

list it as an allergy, along with the multitudes of other meds allergies I have

acquired since my pancreatitis attacks have become stronger and longer lasting.

They call it hypersensitivity. (It really makes getting pain meds hard too.)

Well, I hope that the information you get here will be sufficient to get things

moving in the right direction for you.

{{{HUGZ and Prayers}}}

PS... my blood pressure DOES go up slightly during an attack and just before.

My GI says (and many ER docs) that its because of the pain we have... it

increases the BP. Ok... I guess its something else for me to look up and learn

about huh?

---------------------------------