Re: 9-year-old Crohn's disease

[Guest guest]

On Tue, 17 Jan 2006 10:46:06 -0000 " ornaal " orna@...> writes:

> My 9-year-old Crohn's disease son on SCD diet for 6 day. I read the

> book of the diet by Elaine Gottschall Breaking The Vicious Cycle.

> We live in Israel, We start with chicken shop, chicken, carrot &

> eggs.

> They told us next week He can eat banana & cooked apple.

> I see most of you are ASD parents, I like to talk with a Crohn's

> disease parents, to hear about the effects of this diet, and to get

> some tips.

> Thanks,

> Orna

Hi Orna.

How was your son before you started the diet? When we started my 13 y.o.

(also Crohn's) his symptoms were under control thanks to steroids, so we

were advised that we could go a little faster. But who is the " they " ? If

you have experienced mentors then do what they say.

If you have any specific questions, feel free to ask, and you can also

write me off list.

Kol tuv, Fay (All the best, Fayge)

P.S. I've been meaning to ask if anyone knows of any good yahoo e-mail

groups for kosher families dealing with SCD (especially with kids). So, I

guess I'm asking, but I don't plan on leaving here because this list is

one of the best sources of information I've found.

[Guest guest]

On Tue, 17 Jan 2006 10:46:06 -0000 " ornaal " orna@...> writes:

> My 9-year-old Crohn's disease son on SCD diet for 6 day. I read the

> book of the diet by Elaine Gottschall Breaking The Vicious Cycle.

> We live in Israel, We start with chicken shop, chicken, carrot &

> eggs.

> They told us next week He can eat banana & cooked apple.

> I see most of you are ASD parents, I like to talk with a Crohn's

> disease parents, to hear about the effects of this diet, and to get

> some tips.

> Thanks,

> Orna

Hi Orna.

How was your son before you started the diet? When we started my 13 y.o.

(also Crohn's) his symptoms were under control thanks to steroids, so we

were advised that we could go a little faster. But who is the " they " ? If

you have experienced mentors then do what they say.

If you have any specific questions, feel free to ask, and you can also

write me off list.

Kol tuv, Fay (All the best, Fayge)

P.S. I've been meaning to ask if anyone knows of any good yahoo e-mail

groups for kosher families dealing with SCD (especially with kids). So, I

guess I'm asking, but I don't plan on leaving here because this list is

one of the best sources of information I've found.

[Guest guest]

On Tue, 17 Jan 2006 10:46:06 -0000 " ornaal " orna@...> writes:

> My 9-year-old Crohn's disease son on SCD diet for 6 day. I read the

> book of the diet by Elaine Gottschall Breaking The Vicious Cycle.

> We live in Israel, We start with chicken shop, chicken, carrot &

> eggs.

> They told us next week He can eat banana & cooked apple.

> I see most of you are ASD parents, I like to talk with a Crohn's

> disease parents, to hear about the effects of this diet, and to get

> some tips.

> Thanks,

> Orna

Hi Orna.

How was your son before you started the diet? When we started my 13 y.o.

(also Crohn's) his symptoms were under control thanks to steroids, so we

were advised that we could go a little faster. But who is the " they " ? If

you have experienced mentors then do what they say.

If you have any specific questions, feel free to ask, and you can also

write me off list.

Kol tuv, Fay (All the best, Fayge)

P.S. I've been meaning to ask if anyone knows of any good yahoo e-mail

groups for kosher families dealing with SCD (especially with kids). So, I

guess I'm asking, but I don't plan on leaving here because this list is

one of the best sources of information I've found.

[Guest guest]

I found this testimonial that you might find encouraging.

http://www.healingcrow.com/incstory/incstory.html

Robbie

>> My 9-year-old Crohn's disease son on SCD diet for 6 day. I read the

>> book of the diet by Elaine Gottschall Breaking The Vicious Cycle.

>> We live in Israel, We start with chicken shop, chicken, carrot &

>> eggs.

>> They told us next week He can eat banana & cooked apple.

>> I see most of you are ASD parents, I like to talk with a Crohn's

>> disease parents, to hear about the effects of this diet, and to get

>> some tips.

>> Thanks,

>> Orna

>

> Hi Orna.

>

> How was your son before you started the diet? When we started my 13 y.o.

> (also Crohn's) his symptoms were under control thanks to steroids, so we

> were advised that we could go a little faster. But who is the " they " ? If

> you have experienced mentors then do what they say.

>

> If you have any specific questions, feel free to ask, and you can also

> write me off list.

> Kol tuv, Fay (All the best, Fayge)

>

> P.S. I've been meaning to ask if anyone knows of any good yahoo e-mail

> groups for kosher families dealing with SCD (especially with kids). So, I

> guess I'm asking, but I don't plan on leaving here because this list is

> one of the best sources of information I've found.

[Guest guest]

I found this testimonial that you might find encouraging.

http://www.healingcrow.com/incstory/incstory.html

Robbie

>> My 9-year-old Crohn's disease son on SCD diet for 6 day. I read the

>> book of the diet by Elaine Gottschall Breaking The Vicious Cycle.

>> We live in Israel, We start with chicken shop, chicken, carrot &

>> eggs.

>> They told us next week He can eat banana & cooked apple.

>> I see most of you are ASD parents, I like to talk with a Crohn's

>> disease parents, to hear about the effects of this diet, and to get

>> some tips.

>> Thanks,

>> Orna

>

> Hi Orna.

>

> How was your son before you started the diet? When we started my 13 y.o.

> (also Crohn's) his symptoms were under control thanks to steroids, so we

> were advised that we could go a little faster. But who is the " they " ? If

> you have experienced mentors then do what they say.

>

> If you have any specific questions, feel free to ask, and you can also

> write me off list.

> Kol tuv, Fay (All the best, Fayge)

>

> P.S. I've been meaning to ask if anyone knows of any good yahoo e-mail

> groups for kosher families dealing with SCD (especially with kids). So, I

> guess I'm asking, but I don't plan on leaving here because this list is

> one of the best sources of information I've found.

[Guest guest]

>

> I found this testimonial that you might find encouraging.

>

> http://www.healingcrow.com/incstory/incstory.html

>

> Robbie

>

>t

Here is what Elaine wrote about the " paleo diet " :

" I have tried over and over again to show the list that as a scientist

having studied genetics for 3 long years along with other courses, that

the first rule of genetics is ENVIRONMENT (including food) + GENES = YOUR

PHENOTYPE. Phenotype means what you express physically and mentally. Thus

in most chronic disease, we have what is considered mutilfactorial causes.

In spite of millions spent to try and find a genetic basis for Crohns, it

is mainly an environmental problem caused by an unnatural diet.

Man is adapted throughout millenia with a paleolithic diet (one without

grains) and the wonderful thing about SCD™ is that we are truly consuming

such a diet and still have our wonderful baked goodies and desserts. "

Carol F.

SCD 6 years

[Guest guest]

>

> I found this testimonial that you might find encouraging.

>

> http://www.healingcrow.com/incstory/incstory.html

>

> Robbie

>

>t

Here is what Elaine wrote about the " paleo diet " :

" I have tried over and over again to show the list that as a scientist

having studied genetics for 3 long years along with other courses, that

the first rule of genetics is ENVIRONMENT (including food) + GENES = YOUR

PHENOTYPE. Phenotype means what you express physically and mentally. Thus

in most chronic disease, we have what is considered mutilfactorial causes.

In spite of millions spent to try and find a genetic basis for Crohns, it

is mainly an environmental problem caused by an unnatural diet.

Man is adapted throughout millenia with a paleolithic diet (one without

grains) and the wonderful thing about SCD™ is that we are truly consuming

such a diet and still have our wonderful baked goodies and desserts. "

Carol F.

SCD 6 years

[Guest guest]

Hello,

My name is , I am 17 and have Crohn's also , and have had

for a year. I have just started the diet too ( accually on Monday) so

I don't have much in the way of advice, at least not so far. But if

you have any questions I would be glad to try to help or would be

willing to answer any of your son's questions. One question I have

was, what medications is he on right now? I am on immuran, prednisone,

and a remicade injection every 8 wks. as of right now, because of a

flare-up in Nov. Usually I am on Asacol,immuran, and the remicade.

Just wondering what another child is being treated with becasue we are

looking into a new doctor and other options in the way of

treatments.Hope that I can be of some help to you!

[Guest guest]

Hello,

My name is , I am 17 and have Crohn's also , and have had

for a year. I have just started the diet too ( accually on Monday) so

I don't have much in the way of advice, at least not so far. But if

you have any questions I would be glad to try to help or would be

willing to answer any of your son's questions. One question I have

was, what medications is he on right now? I am on immuran, prednisone,

and a remicade injection every 8 wks. as of right now, because of a

flare-up in Nov. Usually I am on Asacol,immuran, and the remicade.

Just wondering what another child is being treated with becasue we are

looking into a new doctor and other options in the way of

treatments.Hope that I can be of some help to you!

[Guest guest]

Hello,

My name is , I am 17 and have Crohn's also , and have had

for a year. I have just started the diet too ( accually on Monday) so

I don't have much in the way of advice, at least not so far. But if

you have any questions I would be glad to try to help or would be

willing to answer any of your son's questions. One question I have

was, what medications is he on right now? I am on immuran, prednisone,

and a remicade injection every 8 wks. as of right now, because of a

flare-up in Nov. Usually I am on Asacol,immuran, and the remicade.

Just wondering what another child is being treated with becasue we are

looking into a new doctor and other options in the way of

treatments.Hope that I can be of some help to you!

[Guest guest]

I am on immuran,

> prednisone,

> and a remicade injection every 8 wks. as of right now, because of a

>

> flare-up in Nov. Usually I am on Asacol,immuran, and the remicade.

> Just wondering what another child is being treated with becasue we

> are

> looking into a new doctor and other options in the way of

> treatments.Hope that I can be of some help to you!

>

Hi . I just want to encourage you. My 13 y.o. son has Crohn's,

and his C reactive protein (a marker for inflammation that my doctor

bases a lot on) came down dramatically when he was on the diet. He had a

hard time sticking to it, basically because he loves white bread and

flour products and this is really tough for him. He's trying it again,

and I hope it goes well for both of you!

About looking for a new doctor: it's hard to tell what's appropriate for

you because there are several factors-

- what kind of activity you have - ulcerative, scarring, fistulizing, and

I think one more I can't remember

- where in your system it's happening, and that can be anywhere from your

esophagus down to the very end.

I can say this: what doctors like to do is start patients off on steroids

and Imuran. It takes a few months for Imuran to build up in the body to

therapeutic levels, so the weaning off prednisone is carefully calculate

to hopefully work in tandem with it. Doctors have different attitudes to

remicade, especially for kids. My dr. wanted to use it preemptively, but

others will use it as a last resort. You may be able to come off the

remicade pretty quickly. As to the Asacol and Imuran, that you may need

long term, but hopefully it's not that big a deal. You would want your

Imuran levels checked though, because you don't want to be on an

inappropriately high dose.

You may know all this already. I'm only mentioning this to show you how

other competent doctors operate. My dr. at least is competent, don't know

about yours ;-)

I'd resisted Imuran at first for my son, but with healthy hygiene habits

like hand washing, and taking zinc and appropriate vitamins (Freeda

vitamins has an SCD line) hopefully he will avoid the problems Imuran

poses.

Kudos for being so involved, and take care, Fay

[Guest guest]

I am on immuran,

> prednisone,

> and a remicade injection every 8 wks. as of right now, because of a

>

> flare-up in Nov. Usually I am on Asacol,immuran, and the remicade.

> Just wondering what another child is being treated with becasue we

> are

> looking into a new doctor and other options in the way of

> treatments.Hope that I can be of some help to you!

>

Hi . I just want to encourage you. My 13 y.o. son has Crohn's,

and his C reactive protein (a marker for inflammation that my doctor

bases a lot on) came down dramatically when he was on the diet. He had a

hard time sticking to it, basically because he loves white bread and

flour products and this is really tough for him. He's trying it again,

and I hope it goes well for both of you!

About looking for a new doctor: it's hard to tell what's appropriate for

you because there are several factors-

- what kind of activity you have - ulcerative, scarring, fistulizing, and

I think one more I can't remember

- where in your system it's happening, and that can be anywhere from your

esophagus down to the very end.

I can say this: what doctors like to do is start patients off on steroids

and Imuran. It takes a few months for Imuran to build up in the body to

therapeutic levels, so the weaning off prednisone is carefully calculate

to hopefully work in tandem with it. Doctors have different attitudes to

remicade, especially for kids. My dr. wanted to use it preemptively, but

others will use it as a last resort. You may be able to come off the

remicade pretty quickly. As to the Asacol and Imuran, that you may need

long term, but hopefully it's not that big a deal. You would want your

Imuran levels checked though, because you don't want to be on an

inappropriately high dose.

You may know all this already. I'm only mentioning this to show you how

other competent doctors operate. My dr. at least is competent, don't know

about yours ;-)

I'd resisted Imuran at first for my son, but with healthy hygiene habits

like hand washing, and taking zinc and appropriate vitamins (Freeda

vitamins has an SCD line) hopefully he will avoid the problems Imuran

poses.

Kudos for being so involved, and take care, Fay

[Guest guest]

I am on immuran,

> prednisone,

> and a remicade injection every 8 wks. as of right now, because of a

>

> flare-up in Nov. Usually I am on Asacol,immuran, and the remicade.

> Just wondering what another child is being treated with becasue we

> are

> looking into a new doctor and other options in the way of

> treatments.Hope that I can be of some help to you!

>

Hi . I just want to encourage you. My 13 y.o. son has Crohn's,

and his C reactive protein (a marker for inflammation that my doctor

bases a lot on) came down dramatically when he was on the diet. He had a

hard time sticking to it, basically because he loves white bread and

flour products and this is really tough for him. He's trying it again,

and I hope it goes well for both of you!

About looking for a new doctor: it's hard to tell what's appropriate for

you because there are several factors-

- what kind of activity you have - ulcerative, scarring, fistulizing, and

I think one more I can't remember

- where in your system it's happening, and that can be anywhere from your

esophagus down to the very end.

I can say this: what doctors like to do is start patients off on steroids

and Imuran. It takes a few months for Imuran to build up in the body to

therapeutic levels, so the weaning off prednisone is carefully calculate

to hopefully work in tandem with it. Doctors have different attitudes to

remicade, especially for kids. My dr. wanted to use it preemptively, but

others will use it as a last resort. You may be able to come off the

remicade pretty quickly. As to the Asacol and Imuran, that you may need

long term, but hopefully it's not that big a deal. You would want your

Imuran levels checked though, because you don't want to be on an

inappropriately high dose.

You may know all this already. I'm only mentioning this to show you how

other competent doctors operate. My dr. at least is competent, don't know

about yours ;-)

I'd resisted Imuran at first for my son, but with healthy hygiene habits

like hand washing, and taking zinc and appropriate vitamins (Freeda

vitamins has an SCD line) hopefully he will avoid the problems Imuran

poses.

Kudos for being so involved, and take care, Fay

[Guest guest]

We also keep kosher and I am finding it very challenging to come up

with new things for a 31/2 yr old when he is the only one eating

SCD. He is dairy free and I have never been a big cook. I would

love to be connected with other Kosher families

Carolyn

>

> On Tue, 17 Jan 2006 10:46:06 -0000 " ornaal " writes:

> > My 9-year-old Crohn's disease son on SCD diet for 6 day. I read

the

> > book of the diet by Elaine Gottschall Breaking The Vicious Cycle.

> > We live in Israel, We start with chicken shop, chicken, carrot &

> > eggs.

> > They told us next week He can eat banana & cooked apple.

> > I see most of you are ASD parents, I like to talk with a Crohn's

> > disease parents, to hear about the effects of this diet, and to

get

> > some tips.

> > Thanks,

> > Orna

>

> Hi Orna.

>

> How was your son before you started the diet? When we started my

13 y.o.

> (also Crohn's) his symptoms were under control thanks to steroids,

so we

> were advised that we could go a little faster. But who is

the " they " ? If

> you have experienced mentors then do what they say.

>

> If you have any specific questions, feel free to ask, and you can

also

> write me off list.

> Kol tuv, Fay (All the best, Fayge)

>

> P.S. I've been meaning to ask if anyone knows of any good yahoo e-

mail

> groups for kosher families dealing with SCD (especially with

kids). So, I

> guess I'm asking, but I don't plan on leaving here because this

list is

> one of the best sources of information I've found.

>

[Guest guest]

www.digestivewellness.com has a full line of kosher scd products, as well as a

kosher scd cookbook. The founder of digestive wellness, Rochel Weiss is jewish

and keeps kosher.

Good Luck!

gilaface c2silver@...> wrote:

We also keep kosher and I am finding it very challenging to come up

with new things for a 31/2 yr old when he is the only one eating

SCD. He is dairy free and I have never been a big cook. I would

love to be connected with other Kosher families

Carolyn

>

> On Tue, 17 Jan 2006 10:46:06 -0000 " ornaal " writes:

> > My 9-year-old Crohn's disease son on SCD diet for 6 day. I read

the

> > book of the diet by Elaine Gottschall Breaking The Vicious Cycle.

> > We live in Israel, We start with chicken shop, chicken, carrot &

> > eggs.

> > They told us next week He can eat banana & cooked apple.

> > I see most of you are ASD parents, I like to talk with a Crohn's

> > disease parents, to hear about the effects of this diet, and to

get

> > some tips.

> > Thanks,

> > Orna

>

> Hi Orna.

>

> How was your son before you started the diet? When we started my

13 y.o.

> (also Crohn's) his symptoms were under control thanks to steroids,

so we

> were advised that we could go a little faster. But who is

the " they " ? If

> you have experienced mentors then do what they say.

>

> If you have any specific questions, feel free to ask, and you can

also

> write me off list.

> Kol tuv, Fay (All the best, Fayge)

>

> P.S. I've been meaning to ask if anyone knows of any good yahoo e-

mail

> groups for kosher families dealing with SCD (especially with

kids). So, I

> guess I'm asking, but I don't plan on leaving here because this

list is

> one of the best sources of information I've found.

>

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

>

> We also keep kosher and I am finding it very challenging to come up

> with new things for a 31/2 yr old when he is the only one eating

> SCD. He is dairy free and I have never been a big cook. I would

> love to be connected with other Kosher families

>

> Carolyn

>

Join the Long Island List for SCD by entering the following in the address line

of an email:

scd-list-subscribe@...

Carol F.

[Guest guest]

>

> We also keep kosher and I am finding it very challenging to come up

> with new things for a 31/2 yr old when he is the only one eating

> SCD. He is dairy free and I have never been a big cook. I would

> love to be connected with other Kosher families

>

> Carolyn

>

Join the Long Island List for SCD by entering the following in the address line

of an email:

scd-list-subscribe@...

Carol F.

[Guest guest]

>

> We also keep kosher and I am finding it very challenging to come up

> with new things for a 31/2 yr old when he is the only one eating

> SCD. He is dairy free and I have never been a big cook. I would

> love to be connected with other Kosher families

>

> Carolyn

>

Join the Long Island List for SCD by entering the following in the address line

of an email:

scd-list-subscribe@...

Carol F.

[Guest guest]

On Mon, 23 Jan 2006 01:52:37 -0000 " carolfrilegh "

c.frilegh@...> writes:

>

> >

> > We also keep kosher and I am finding it very challenging to come

> up

> > with new things for a 31/2 yr old when he is the only one eating

> > SCD. He is dairy free and I have never been a big cook. I would

> > love to be connected with other Kosher families

> >

> > Carolyn

> >

> Join the Long Island List for SCD by entering the following in the

> address line of an email:

>

> scd-list-subscribe@...

If I have a chance to go to the library I'll go on the internet there.

The list you mentioned is a fine list but there must be something more

specific to this need in yahoogroups land. Take care, fay

[Guest guest]

On Mon, 23 Jan 2006 01:52:37 -0000 " carolfrilegh "

c.frilegh@...> writes:

>

> >

> > We also keep kosher and I am finding it very challenging to come

> up

> > with new things for a 31/2 yr old when he is the only one eating

> > SCD. He is dairy free and I have never been a big cook. I would

> > love to be connected with other Kosher families

> >

> > Carolyn

> >

> Join the Long Island List for SCD by entering the following in the

> address line of an email:

>

> scd-list-subscribe@...

If I have a chance to go to the library I'll go on the internet there.

The list you mentioned is a fine list but there must be something more

specific to this need in yahoogroups land. Take care, fay

[Guest guest]

On Mon, 23 Jan 2006 01:52:37 -0000 " carolfrilegh "

c.frilegh@...> writes:

>

> >

> > We also keep kosher and I am finding it very challenging to come

> up

> > with new things for a 31/2 yr old when he is the only one eating

> > SCD. He is dairy free and I have never been a big cook. I would

> > love to be connected with other Kosher families

> >

> > Carolyn

> >

> Join the Long Island List for SCD by entering the following in the

> address line of an email:

>

> scd-list-subscribe@...

If I have a chance to go to the library I'll go on the internet there.

The list you mentioned is a fine list but there must be something more

specific to this need in yahoogroups land. Take care, fay

[Guest guest]

www.digestivewellness.com is a kosher/SCD website with a cookbook, prepared

foods, appliances and more.

Agape,

carolfrilegh c.frilegh@...> wrote:

>

> We also keep kosher and I am finding it very challenging to come up

> with new things for a 31/2 yr old when he is the only one eating

> SCD. He is dairy free and I have never been a big cook. I would

> love to be connected with other Kosher families

>

> Carolyn

>

Join the Long Island List for SCD by entering the following in the address line

of an email:

scd-list-subscribe@...

Carol F.

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

www.digestivewellness.com is a kosher/SCD website with a cookbook, prepared

foods, appliances and more.

Agape,

carolfrilegh c.frilegh@...> wrote:

>

> We also keep kosher and I am finding it very challenging to come up

> with new things for a 31/2 yr old when he is the only one eating

> SCD. He is dairy free and I have never been a big cook. I would

> love to be connected with other Kosher families

>

> Carolyn

>

Join the Long Island List for SCD by entering the following in the address line

of an email:

scd-list-subscribe@...

Carol F.

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

www.digestivewellness.com is a kosher/SCD website with a cookbook, prepared

foods, appliances and more.

Agape,

carolfrilegh c.frilegh@...> wrote:

>

> We also keep kosher and I am finding it very challenging to come up

> with new things for a 31/2 yr old when he is the only one eating

> SCD. He is dairy free and I have never been a big cook. I would

> love to be connected with other Kosher families

>

> Carolyn

>

Join the Long Island List for SCD by entering the following in the address line

of an email:

scd-list-subscribe@...

Carol F.

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com