Re: hello again, been away awhile,have????s

[Guest guest]

> Hello, this is . I have chronic pancreatitis and a brain

> tumor. I have been away awhile and would like to say hello to all .

> I have a ? for any of you that may be able to help. I had a

whipple

> done in 98 due to pseudocysts that formed during ERCP. I wore

,

I am sorry that you are having so much trouble. I found your

question very interesting. I also have had part of my pancreas

removed. And have often wondered that about the levels not

elevating as much due to the section of pancreas that is not there.

I discussed this with my PCP once and she thought it sounded

logical, but I have not talked about it with my GI. I am having a

hard time getting a diagnosis because my levels never elevate high

enough for my GI. I had the tail of my pancreas with a muscinous

cyst removed. And now I have a pseudocyst....but to the GI this is

all " coincidence " . Even though I have mild pain everyday, that is

usually tolerable. And I do have attacks of horrible pain about

every 2 weeks or so. I am going to do some research on this...see

if I can come up with any info. and I also have to call my GI this

week to schedule a CT so I will bring this up with him. I will let

you know if i come up with anything. Hope this finds you well!

Marisa

San Diego, CA