Re: About the cea Diet, etc.

[Guest guest]

Interesting post, Suzi. A few comments:

> Derms need to be counseled that subacute allergies can

> show up on the skin and look like rosacea - but (no

> suprise here) won't respond to the traditional rosacea

> treatment protocol. I can't figure out why they don't

> recognize this with any frequency.

Classic rosacea has its own distinctive appearance, so it's not a

difficult diagnosis from that perspective. Variants may be more

challenging to diagnose, or if there's more than one rash present at

the same time. But what looks similar to you may not be confusing to

a physician with many years' experience.

> And, yes, from

> everything I've read, skin responses can show up days

> after exposure to the allergen... admittedly making

> tracking difficult.

Yes, well known and documented phenomenon in allergy medicine, but I

wouldn't think that's just limited to allergies -- probably a number

of triggers have a delayed response, based on their own mechanism of

action. By definition, an allergy involves only four very specific

types of reactions. Just because a trigger is delayed doesn't mean to

me that it is an allergic reaction. Substances can cause lots of

other types of reactions, immediate or delayed.

> There's a good percentage of members in the group who

> haven't responded to traditional treatment. And

> there's a fair amount reporting hot, painful skin,

> swollen eyes, swollen lips, hives, and other obvious

> (and fairly dangerous) signs of allergic reaction.

That doesn't mean these people have rosacea or allergies. It's

tempting, but trust me in this: it's *impossible* to diagnose over

the Internet.

Marjorie

Marjorie Lazoff, MD

[Guest guest]

Suzi,

I have never said that the cea Diet cures rosacea, it is simply a

way to control it. I realize that the vast majority of rosaceans do not

want to control their rosacea with diet. This is just an alternative

for 133 members of the cea Diet Users Support Group which gives you

an idea when you compare that with this group's 2134 members. It is

obvious. And most RDUSG members are members of both groups.

--

Brady Barrows - webmaster for

http://www.rosaceans.com

http://groups.yahoo.com/group/rosaceans

http://www.rosacea-control.com

http://www.rosaceadiet.com

http://groups.yahoo.com/group/rosacea-diet-users-support-group

On Wednesday, March 20, 2002, at 11:19 AM, Suzi LeBaron wrote:

> Brady & group --

>

> We all recognize that there are things -- spicy foods,

> heat, exercise, alcohol, etc. -- that will cause

> anyone (with or without rosacea) to flush. These

> irritants can cause additional damage to the blood

> vessels on a rosacean's face because of an apparent

> inability to recover efficiently from the flush. I

> realize this is a highly simplified explanation.

>

> However, big lists of " triggers " are pretty useless to

> the group as a whole.

>

> For example, one of the things that will make me flush

> and breakout is raw tomatoes. Does that mean tomatoes

> are a rosacea " trigger " ?

>

> No. They're a food to which some people are allergic

> with some regularity. It means I should avoid tomatoes

> and take an antihistimine when I'm reacting to them.

>

> (One big clue is that I frequently have a reaction

> that involves more than my facial skin.)

>

> I fear that complicated diets only confuse and

> overwhelm new group members looking for answers.

>

> Even if the diet eliminates one of the foods to which

> the person is allergic, they're bound by a rigorous

> eating plan and may not know which food is problematic

> for them -- subsequently, when they become frustrated

> by all the " food rules " they'll return to eating some

> of everything, never knowing which food was

> problematic.

>

> The NRS identifies the role histamine plays in some

> rosacea cases, but never actually says " allergy " . This

> is simple politics, the NRS is raising money for

> rosacea, not allergies.

>

> And yet, I'm convinced (and I'm no doctor) that a

> really good percentage of the people participating in

> the group are allergic to something and have been

> misdiagnosed.

>

> You, Herbler, and Mark B. have all made good and

> interesting contributions to the group. However, I

> really feel people need to be more introspective and

> figure out their own food issues -- involving an

> allergist or naturopath if needed.

>

> Derms need to be counseled that subacute allergies can

> show up on the skin and look like rosacea - but (no

> suprise here) won't respond to the traditional rosacea

> treatment protocol. I can't figure out why they don't

> recognize this with any frequency. And, yes, from

> everything I've read, skin responses can show up days

> after exposure to the allergen... admittedly making

> tracking difficult.

>

> There's a good percentage of members in the group who

> haven't responded to traditional treatment. And

> there's a fair amount reporting hot, painful skin,

> swollen eyes, swollen lips, hives, and other obvious

> (and fairly dangerous) signs of allergic reaction.

>

> Topicals aren't going to be much help to these folks,

> and laser treatments may make an allergic situation

> much worse, and certainly won't make an allergy go

> away.

>

> Most importantly, we need to not mislead people into

> thinking that there's a complicated, specialized diet

> that will be a quick cure. If it were that simple, we

> wouldn't be having this conversation, would we?

>

>

> Suzi

>

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

> but I stand by what I was intending in my

> previous post -- there are some symptoms that are not

> part of " classic " rosacea and really shouldn't be

> ignored.

I agree, no symptom should be ignored. We certainly don't disagree on

that.

Marjorie

Marjorie Lazoff, MD

[Guest guest]

> but I stand by what I was intending in my

> previous post -- there are some symptoms that are not

> part of " classic " rosacea and really shouldn't be

> ignored.

I agree, no symptom should be ignored. We certainly don't disagree on

that.

Marjorie

Marjorie Lazoff, MD

[Guest guest]

> but I stand by what I was intending in my

> previous post -- there are some symptoms that are not

> part of " classic " rosacea and really shouldn't be

> ignored.

I agree, no symptom should be ignored. We certainly don't disagree on

that.

Marjorie

Marjorie Lazoff, MD