Attendance Reward Opinions

[Guest guest]

Remember when we were responding about attendance rewards and discrimination?

Well, I have (finally) compiled our opinions.

Anyone want the word doc that contains these opinions and suggestions?

Write to me and I'll send it.

Don't know how useful (if at all) it will be, but it might give

someone the ammunition they need to fight what they are up against.

-Lenora

--

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[Guest guest]

Vondie,

My daughter missed almost 2 months of school last year due to stomach

problems, which were cf related so the 504 was effective.

Talk to the principal but your son is entitled to the 504, they may give you

a hard time because it's more work for the school but he is entitled to have

it.

The 504 helps in a lot of ways...for instance my daughter doesn't have to

raise her hand and wait for the teacher to excuse her to use the bathroom,

the teachers are all aware of it so they know that she can get up and use the

bathroom and/or get a drink or even to cough when she needs to. It also

allows them to carry their enzymes/enhalers w/them so they don't have to go

to the nurse.

The biggest thing is the excused absences, being in the hospital and/or sick

a lot is bad enough but when you miss school and can't make it up makes the

situation even harder. My school provides an hour of tutoring for each day

missed and that hour counts as a day in school so all of her days are made

up.

Like I said previously ELizabeth missed 2 months of school but it only show 3

absences on her record.

Good luck and let me know if you need any help, I can send you a copy of my

daughter's 504 guidelines if you'd like.

mom to ELizabeth 14 w/cf, Cody 11 wocf, Zoey 3 wocf, Evan 11 wks w/cf

[Guest guest]

what is the 504?

[Guest guest]

what is the 504?

[Guest guest]

Vondie,

I get awful reactions (large bumps, small bumps - it varies) from ALL

pain relievers: aspirin, ibuprophen, acetomin-whatever-it-is). I

never had it before, but developed it later on. And I never used much

to begin with.

I am also allergic to penicillin and recently developed and allergy

to erithromycin.

Regarding the school attendance thing, to be cf-related, it does not

have to involve the lungs. It could very well be a digestive-related

absence, or a doctor visit.

So far, the leading responses are to initiate a 504 with the school

and make sure it states that child will not be penalized in any way

for absences due to his chronic illness.

-Lenora

>Ok guys. Question.

>

> When you say due to cf, exactly what falls into that catagory?

>Cough, lung involvement? Reason I am asking is that has missed

>9 days, of course 4 was for mono. But, the rest are for stomach

>aches (he has always had more stomach involvement). Anyway, I am

>getting ready to go visit the principal over the letter I got

>regarding his absences. Today they are both home. Going to the

>doc. has run a fever all weekend. has no fever, but

>they both have increased cough.

>

> About the allergic reaction post: I went to go get some

>ibuprofen this weekend, for his fever. I grabbed the generic brand

>( Best Choice). I gave him this and Robitussin DM (which he had

>never took before) and he broke out in HUGE bumps on the tops of

>his feet and behind his knees. It looked like BIG bites, not the

>normal hives. I thought it was the Robitussin, so I didn't give him

>anymore. The next morning he was running a fever again, so I gave

>him the Ibuprofen. He broke out again - only this time on the

>inside of his wrists. He has never had a problem with ibuprofen

>before. I went to walmart and got Motrin, there is a big difference

>in the ingredients (inactive ing.). I guess there is something in

>the Best Choice brand that he is allergic to. Another thing to add

>to his list of allergies, he can't take penicillin or sulfa meds. I

>don't know if this means he will never be able to take these meds

>again or not. I do know that the docs completely avoid them with

>.

>

> Well, I guess I will go. Have to get them ready to go to the doc.

>

> Vondie

> Re: Attendance Reward Opinions

>

>

>

> My daughter is 14 and she has a 504 in school, it's been really great. If

> she misses more than 3 consecutive days she gets a tutor and the days she

> misses due to her cf are excused and they do not count against her, she is

> also a honor roll student which makes me even more proud of her!!!!!

>

>

> mom of 14 w/cf, Cody 11 wocf. Zoey 3 wocf, Evan 11wks w/cf

>

>

>

[Guest guest]

Vondie,

I get awful reactions (large bumps, small bumps - it varies) from ALL

pain relievers: aspirin, ibuprophen, acetomin-whatever-it-is). I

never had it before, but developed it later on. And I never used much

to begin with.

I am also allergic to penicillin and recently developed and allergy

to erithromycin.

Regarding the school attendance thing, to be cf-related, it does not

have to involve the lungs. It could very well be a digestive-related

absence, or a doctor visit.

So far, the leading responses are to initiate a 504 with the school

and make sure it states that child will not be penalized in any way

for absences due to his chronic illness.

-Lenora

>Ok guys. Question.

>

> When you say due to cf, exactly what falls into that catagory?

>Cough, lung involvement? Reason I am asking is that has missed

>9 days, of course 4 was for mono. But, the rest are for stomach

>aches (he has always had more stomach involvement). Anyway, I am

>getting ready to go visit the principal over the letter I got

>regarding his absences. Today they are both home. Going to the

>doc. has run a fever all weekend. has no fever, but

>they both have increased cough.

>

> About the allergic reaction post: I went to go get some

>ibuprofen this weekend, for his fever. I grabbed the generic brand

>( Best Choice). I gave him this and Robitussin DM (which he had

>never took before) and he broke out in HUGE bumps on the tops of

>his feet and behind his knees. It looked like BIG bites, not the

>normal hives. I thought it was the Robitussin, so I didn't give him

>anymore. The next morning he was running a fever again, so I gave

>him the Ibuprofen. He broke out again - only this time on the

>inside of his wrists. He has never had a problem with ibuprofen

>before. I went to walmart and got Motrin, there is a big difference

>in the ingredients (inactive ing.). I guess there is something in

>the Best Choice brand that he is allergic to. Another thing to add

>to his list of allergies, he can't take penicillin or sulfa meds. I

>don't know if this means he will never be able to take these meds

>again or not. I do know that the docs completely avoid them with

>.

>

> Well, I guess I will go. Have to get them ready to go to the doc.

>

> Vondie

> Re: Attendance Reward Opinions

>

>

>

> My daughter is 14 and she has a 504 in school, it's been really great. If

> she misses more than 3 consecutive days she gets a tutor and the days she

> misses due to her cf are excused and they do not count against her, she is

> also a honor roll student which makes me even more proud of her!!!!!

>

>

> mom of 14 w/cf, Cody 11 wocf. Zoey 3 wocf, Evan 11wks w/cf

>

>

>

[Guest guest]

Vondie,

I get awful reactions (large bumps, small bumps - it varies) from ALL

pain relievers: aspirin, ibuprophen, acetomin-whatever-it-is). I

never had it before, but developed it later on. And I never used much

to begin with.

I am also allergic to penicillin and recently developed and allergy

to erithromycin.

Regarding the school attendance thing, to be cf-related, it does not

have to involve the lungs. It could very well be a digestive-related

absence, or a doctor visit.

So far, the leading responses are to initiate a 504 with the school

and make sure it states that child will not be penalized in any way

for absences due to his chronic illness.

-Lenora

>Ok guys. Question.

>

> When you say due to cf, exactly what falls into that catagory?

>Cough, lung involvement? Reason I am asking is that has missed

>9 days, of course 4 was for mono. But, the rest are for stomach

>aches (he has always had more stomach involvement). Anyway, I am

>getting ready to go visit the principal over the letter I got

>regarding his absences. Today they are both home. Going to the

>doc. has run a fever all weekend. has no fever, but

>they both have increased cough.

>

> About the allergic reaction post: I went to go get some

>ibuprofen this weekend, for his fever. I grabbed the generic brand

>( Best Choice). I gave him this and Robitussin DM (which he had

>never took before) and he broke out in HUGE bumps on the tops of

>his feet and behind his knees. It looked like BIG bites, not the

>normal hives. I thought it was the Robitussin, so I didn't give him

>anymore. The next morning he was running a fever again, so I gave

>him the Ibuprofen. He broke out again - only this time on the

>inside of his wrists. He has never had a problem with ibuprofen

>before. I went to walmart and got Motrin, there is a big difference

>in the ingredients (inactive ing.). I guess there is something in

>the Best Choice brand that he is allergic to. Another thing to add

>to his list of allergies, he can't take penicillin or sulfa meds. I

>don't know if this means he will never be able to take these meds

>again or not. I do know that the docs completely avoid them with

>.

>

> Well, I guess I will go. Have to get them ready to go to the doc.

>

> Vondie

> Re: Attendance Reward Opinions

>

>

>

> My daughter is 14 and she has a 504 in school, it's been really great. If

> she misses more than 3 consecutive days she gets a tutor and the days she

> misses due to her cf are excused and they do not count against her, she is

> also a honor roll student which makes me even more proud of her!!!!!

>

>

> mom of 14 w/cf, Cody 11 wocf. Zoey 3 wocf, Evan 11wks w/cf

>

>

>