Guest guest Posted December 13, 2002 Report Share Posted December 13, 2002 Congratulations on your new baby nephew! " Gideon " is a great name. AND... You were so SMART not to take Triana to the hospital. Triana will see Gideon soon enough and in a much safer environment. Sounds like your family is ready for some very happy holidays! Gale > Trypsinogen...n sent me a message about it (Thanks n!), and my mom told the docs to check for it. I'm pretty certain it's not automatically done here, or they would have caught my daughter when she was born instead of at 2.5 years. It's unlikely he'll have it, but better safe than sorry. > > Little Gideon Lamont Donaho (we call him Giddy, his daddy's side calls him Monty) was born around 7:25am, and weighed in at 5lbs 3oz, so has just set the record as the smallest full-term baby in our family so far. He's rather tiny, and VERY hairy...his whole back is a fur rug, and he's got a full head of hair. We had to go buy him some preemie clothes, since he's too small to wear the newborn ones. We told my sister to get some preemie clothes just in case because tiny babies run in the family, and she didn't listen to us. But he's got a few outfits now. > > My mom wanted me to bring Triana up there to see him. I was like " Are you out of your mind? " Hospitals aren't that fond of kids under 12 or so anyhow, but I'm also thinking about Triana. The two places the docs told us to avoid unless it was necessary were doctors' offices and hospitals because of all the sick people. My mom just thought that was silly. > > Anyhow, I'm an aunt now...yay...a kid that I can see and spoil, and give back to his mama! > > > Shanna > mom of Triana, age 2 wcf > > Re: Newborn testing > > > Yes, it is a heel prick, which tests for a high level of > Tryp-something. Sorry, I can't recall. > What state do you live in? > It might be done automatically. > Let me know. I'll get you the details. > Lenora > > >Didn't I read something about some sort of newborn testing they > >could do for CF that involved levels of something in the blood? (As > >opposed to the DNA testing.) > > > >My sister is getting induced tomorrow, and we want to quietly tell > >the docs to test for it, without scaring the heck out of my sister. > >Her husband tested negative for carrier status with the 25 most > >common mutations, but that still leaves a 10% chance that he could > >be a carrier, and we'd none of us rather take the chance of catching > >it late if little " Giddy " ends up having CF. (Although it's > >unlikely, it's still possible.) > > > >If someone could tell me what it was or if I was just imagining it, > >I'd appreciate it. > > > >Thanks, > >Shanna > >mom of Triana, age 2 wcf > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2002 Report Share Posted December 13, 2002 Golly, that sounds like a very busy time for all -----but fun:) I am so happy she like the gator ade. It can be a big help..(& flusher outer ---hahahehe)Your family sounds as large as mine. I love gift certificates too. I give them all a check in a small gift.There are a few exceptions, but that is how most are handled. the ones out of town, I do pick out a few things from home they like too. Have a great week & I hope your sister, her baby & all the family are well. LOVE & HUGS, grandmomBEV Re: Newborn testing They told my mom they would do the test. I know they took blood from his heel, but I had not heard how long it would be before the results came back. I don't think my sister and her husband know they tested for it yet...my mom will probably tell them after my sister isn't drugged out of her mind. She had to have a C-section because the cord had wrapped itself around his body, and every time she'd have even a mild contraction his heart rate went down. I'm hoping, and expecting, that he'll be clear. He may end up a carrier, but his chances of having CF are low, about a 2.5% chance. (I'm figuring 10% chance that my brother-in-law is a carrier, since they said he's 90% sure not to be one...and a 1/4 or 25% chance that if he is, they'll have one with CF...so 25% of 10% is 2.5%. Erk...math...bleh...always did hate it, even though I made good grades in it.) Everything is going pretty good for us. We took Triana shopping with us today, and she had a ball (up until she got so wet she drenched yet another outfit...30 oz of Gatorade will do that to ya.) We were sitting in the line at the lay-a-way in Wal-Mart to pick up the stuff I had put in in October (like 3 days before she was dx'd with the CF)...and my child is yelling " Help me! Help me! Help me Daddy! " We haven't been able to make her understand yet that " Help me! " and " I need help with this " are two totally different sentiments. There were some other parents there who thought it was highly amusing, though. I was quite happy that we've managed to get all of her toys from us (for Solstice) and Santa (for Christmas), and to get Christmas gifts for her young cousins (including the new one). Although she really wanted the semi truck that we got for one of her cousins. (They're all boys, the ones ages newborn-7, except her.) And we've figured out what we're getting most of the family (gift certificates are wonderful things...people get what they want, and we don't have to try and find something we know they'll like...especially the teenage girls...eeek! All the kids ages 14-17 are girls.) Triana's congestion is better. The Gatorade is a hit. At least she likes the stuff...I never have. She calls the orange flavor " orange juice " . And she'll guzzle the stuff at an incredible rate. So all is well and good on that front. We'll talk to you later...I need to answer the rest of my mail, and then go make yet another batch of cookie dough. Shanna mom of Triana, age 2 wcf Re: Newborn testing Yes, it is a heel prick, which tests for a high level of Tryp-something. Sorry, I can't recall. What state do you live in? It might be done automatically. Let me know. I'll get you the details. Lenora >Didn't I read something about some sort of newborn testing they >could do for CF that involved levels of something in the blood? (As >opposed to the DNA testing.) > >My sister is getting induced tomorrow, and we want to quietly tell >the docs to test for it, without scaring the heck out of my sister. >Her husband tested negative for carrier status with the 25 most >common mutations, but that still leaves a 10% chance that he could >be a carrier, and we'd none of us rather take the chance of catching >it late if little " Giddy " ends up having CF. (Although it's >unlikely, it's still possible.) > >If someone could tell me what it was or if I was just imagining it, >I'd appreciate it. > >Thanks, >Shanna >mom of Triana, age 2 wcf > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2002 Report Share Posted December 13, 2002 Golly, that sounds like a very busy time for all -----but fun:) I am so happy she like the gator ade. It can be a big help..(& flusher outer ---hahahehe)Your family sounds as large as mine. I love gift certificates too. I give them all a check in a small gift.There are a few exceptions, but that is how most are handled. the ones out of town, I do pick out a few things from home they like too. Have a great week & I hope your sister, her baby & all the family are well. LOVE & HUGS, grandmomBEV Re: Newborn testing They told my mom they would do the test. I know they took blood from his heel, but I had not heard how long it would be before the results came back. I don't think my sister and her husband know they tested for it yet...my mom will probably tell them after my sister isn't drugged out of her mind. She had to have a C-section because the cord had wrapped itself around his body, and every time she'd have even a mild contraction his heart rate went down. I'm hoping, and expecting, that he'll be clear. He may end up a carrier, but his chances of having CF are low, about a 2.5% chance. (I'm figuring 10% chance that my brother-in-law is a carrier, since they said he's 90% sure not to be one...and a 1/4 or 25% chance that if he is, they'll have one with CF...so 25% of 10% is 2.5%. Erk...math...bleh...always did hate it, even though I made good grades in it.) Everything is going pretty good for us. We took Triana shopping with us today, and she had a ball (up until she got so wet she drenched yet another outfit...30 oz of Gatorade will do that to ya.) We were sitting in the line at the lay-a-way in Wal-Mart to pick up the stuff I had put in in October (like 3 days before she was dx'd with the CF)...and my child is yelling " Help me! Help me! Help me Daddy! " We haven't been able to make her understand yet that " Help me! " and " I need help with this " are two totally different sentiments. There were some other parents there who thought it was highly amusing, though. I was quite happy that we've managed to get all of her toys from us (for Solstice) and Santa (for Christmas), and to get Christmas gifts for her young cousins (including the new one). Although she really wanted the semi truck that we got for one of her cousins. (They're all boys, the ones ages newborn-7, except her.) And we've figured out what we're getting most of the family (gift certificates are wonderful things...people get what they want, and we don't have to try and find something we know they'll like...especially the teenage girls...eeek! All the kids ages 14-17 are girls.) Triana's congestion is better. The Gatorade is a hit. At least she likes the stuff...I never have. She calls the orange flavor " orange juice " . And she'll guzzle the stuff at an incredible rate. So all is well and good on that front. We'll talk to you later...I need to answer the rest of my mail, and then go make yet another batch of cookie dough. Shanna mom of Triana, age 2 wcf Re: Newborn testing Yes, it is a heel prick, which tests for a high level of Tryp-something. Sorry, I can't recall. What state do you live in? It might be done automatically. Let me know. I'll get you the details. Lenora >Didn't I read something about some sort of newborn testing they >could do for CF that involved levels of something in the blood? (As >opposed to the DNA testing.) > >My sister is getting induced tomorrow, and we want to quietly tell >the docs to test for it, without scaring the heck out of my sister. >Her husband tested negative for carrier status with the 25 most >common mutations, but that still leaves a 10% chance that he could >be a carrier, and we'd none of us rather take the chance of catching >it late if little " Giddy " ends up having CF. (Although it's >unlikely, it's still possible.) > >If someone could tell me what it was or if I was just imagining it, >I'd appreciate it. > >Thanks, >Shanna >mom of Triana, age 2 wcf > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2002 Report Share Posted December 13, 2002 Golly, that sounds like a very busy time for all -----but fun:) I am so happy she like the gator ade. It can be a big help..(& flusher outer ---hahahehe)Your family sounds as large as mine. I love gift certificates too. I give them all a check in a small gift.There are a few exceptions, but that is how most are handled. the ones out of town, I do pick out a few things from home they like too. Have a great week & I hope your sister, her baby & all the family are well. LOVE & HUGS, grandmomBEV Re: Newborn testing They told my mom they would do the test. I know they took blood from his heel, but I had not heard how long it would be before the results came back. I don't think my sister and her husband know they tested for it yet...my mom will probably tell them after my sister isn't drugged out of her mind. She had to have a C-section because the cord had wrapped itself around his body, and every time she'd have even a mild contraction his heart rate went down. I'm hoping, and expecting, that he'll be clear. He may end up a carrier, but his chances of having CF are low, about a 2.5% chance. (I'm figuring 10% chance that my brother-in-law is a carrier, since they said he's 90% sure not to be one...and a 1/4 or 25% chance that if he is, they'll have one with CF...so 25% of 10% is 2.5%. Erk...math...bleh...always did hate it, even though I made good grades in it.) Everything is going pretty good for us. We took Triana shopping with us today, and she had a ball (up until she got so wet she drenched yet another outfit...30 oz of Gatorade will do that to ya.) We were sitting in the line at the lay-a-way in Wal-Mart to pick up the stuff I had put in in October (like 3 days before she was dx'd with the CF)...and my child is yelling " Help me! Help me! Help me Daddy! " We haven't been able to make her understand yet that " Help me! " and " I need help with this " are two totally different sentiments. There were some other parents there who thought it was highly amusing, though. I was quite happy that we've managed to get all of her toys from us (for Solstice) and Santa (for Christmas), and to get Christmas gifts for her young cousins (including the new one). Although she really wanted the semi truck that we got for one of her cousins. (They're all boys, the ones ages newborn-7, except her.) And we've figured out what we're getting most of the family (gift certificates are wonderful things...people get what they want, and we don't have to try and find something we know they'll like...especially the teenage girls...eeek! All the kids ages 14-17 are girls.) Triana's congestion is better. The Gatorade is a hit. At least she likes the stuff...I never have. She calls the orange flavor " orange juice " . And she'll guzzle the stuff at an incredible rate. So all is well and good on that front. We'll talk to you later...I need to answer the rest of my mail, and then go make yet another batch of cookie dough. Shanna mom of Triana, age 2 wcf Re: Newborn testing Yes, it is a heel prick, which tests for a high level of Tryp-something. Sorry, I can't recall. What state do you live in? It might be done automatically. Let me know. I'll get you the details. Lenora >Didn't I read something about some sort of newborn testing they >could do for CF that involved levels of something in the blood? (As >opposed to the DNA testing.) > >My sister is getting induced tomorrow, and we want to quietly tell >the docs to test for it, without scaring the heck out of my sister. >Her husband tested negative for carrier status with the 25 most >common mutations, but that still leaves a 10% chance that he could >be a carrier, and we'd none of us rather take the chance of catching >it late if little " Giddy " ends up having CF. (Although it's >unlikely, it's still possible.) > >If someone could tell me what it was or if I was just imagining it, >I'd appreciate it. > >Thanks, >Shanna >mom of Triana, age 2 wcf > > > Quote Link to comment Share on other sites More sharing options...
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