New to group/need help/give me feedback plse!

[Guest guest]

Hello my name is tina and I live in Medford Oregon. 1 1/2 years ago

my face started to become very red/burning/stinging and my eyes burn

also this first started to happen at work using a computer and in a

heated building with tons of lights and heater vents. During the

summer I became all better. Then the winter hit again and I started

getting a lot worse! It got to the point that my face got so red

(apple red) and burned so bad I cried and cried all the time at work,

I would get dizzy, vomit, couldn't think- just scary bad! I have not

worked sense november. I have seen 9 doctors - 2 dermatologist, 2

allergists, 1 rheumatologist. My mom died from Lupus. I have had

blood tests, urine tests, chest x-rays, biopsy on my face and it all

comes back clean. My problem is a butterfly rash and only on my

face. From what I understand rosacea can burn is that true??????

With my symptoms I have been told by different doc that I have 1-

chemical reaction 2- rosacea 3- heat urticaria 4- photo sensitivity

5- Lupus. You see I am so unsure of what I do have!! I have taken

soo many pills, creams, etc - tried it all!!

What I really want to know - anyone out there have my symptoms?? Does

the heat from the computer, house lights, any heat at all bring you

to tears?? My face has tiny broken blood vessels on it and bumps

will break out but prednisone takes most of it away. Do you

burn/sting to the point of it disabling you??? Any response

appreciated! I have joined lupus chat and heat urticaria chat also.

help!!

tina in oregon