Guest guest Posted January 24, 2002 Report Share Posted January 24, 2002 Rob, blepharitis often goes with ocular rosacea, but you can have blepharitis without rosacea, apparently. My advice is to take Borage oil ( I take Vitamin Shoppe Borage 1300 mg and Flax oil 1000 mg). Alos olive oil to your diet, about two tablespoons a day. Take a good mulitple and maybe some extra E with Selenium, and C. A natural herbal anti-inflammatory is the herb Feverfew. Did the doc tell you to do warm compresses to your eyes before you do eye scrubs? I prefer the baby shampoo to the expensive commercial eyelid scrubs. If you don't clear up ask the doc for some tetracycline for awhile. I stay on very low dose, 3 per week, with good results. Good luck. Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 Anbody have ocular symptoms of rosacea? My face is not so bad it's my eyes that give me a problem. I've pretty much tried it all. Looking for someone with the same problem and any new ideas other than doxycycline, acutane, diet, vitamins et all. Thanks...Bill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Barbara, your medical condition is quite complicated, and I don't know how helpful your learning about ocular rosacea will be in sorting this all out; you detailed your conditions well, but it's impossible for any of us to know what's going on with you. You need a competent rheumatologist to talk with your ophthalmologist and come to a unified plan, if not a diagnosis, or to ask for a referral for a second opinion. Your ophthalmologist is only partly correct: seriologic evidence of antibodies is usually required for a diagnosis of SS, but it does not need to be a positive ANA. There are more specific antibody tests for SS, and those results are much more important. Unlike SS, RA can be diagnosed without positive serology. There is a strong association between RA and SS, but SS is also associated with its own kind of arthritis that is similiar but distinguishable from RA. One thing to consider: ocular rosacea is usually quite responsive to antibiotics, so it's unusual that you haven't seen improvement. However, you are on a low dose and that, not a misdiagnosis, may partly explain your non-responsiveness. Redness and photophobia are common and can come from a number of eye abnormalities, so those symptoms don't help much. From what you said, it doesn't sound like any " wrong treatment " hindered your eyes. There may not be an exact diagnosis at this time; honest disagreements in diagnosis can be a sign of good medical practice, esp in rheumatology, where conditions are sometimes difficult to distinguish and may take years to fully declare themselves. But there can still be a coherent " game plan " even if the diagnosis is in doubt. Good luck, and let us know how it all gets sorted out. Marjorie Marjorie Lazoff, MD > meant for the group. > > ----- Forwarded message from bbaylis2002 ----- > Date: Wed, 05 Jun 2002 03:29:33 -0000 > From: bbaylis2002 > Reply-To: bbaylis2002 > Subject: Ocular cea > To: rosacea-support-owner@y... > > I have had red eyes since October. I was diagnosed with Rheumatoid > Arthritis a few weeks before. At first the Othomologist and my > rheumatiodologist thought I had Sjogrens Syndrome, Dry eyes and > Mouth, After 6 months of treatment for Sjogrens syndrome and no > improvement I was refered to a Othomologist specialist for Dry Eyes > from Boston Ma. He thinks I have Ocular cea. I am on Doxyciclin > 100 mg 1 a day. Thera Tears eye drops, I read that flax seed Oil was > good for dry eyes and have taken that for several months, He now is > putting me on Rexall Fish Oil. I have seen a little improvement in > my eyes but wake up with red eyes in the morning most mornings. Does > anyone know how long it will take for the redness to go away? Or will > it ever go away? Did the wrong treatment hinder my eyes getting > better? I also seem to be sensitive to bright sunlight. Is this > Common? > My Rheumotologist still thinks I have Sjogrens Syndrome. But the Dry > eye specialist says it is Ocular cea because my ANA is negative. > My C-reactive protein went to 210.While I was with the first RA Dr. > But has come down to 10.60 in March. > I don't know what my last test showed. The first Rheumotologist > wasn't treating me very well, or at all really for that matter, and I > was suffering a great deal before I was able to get into the new > Rheumotologist. I had a great deal of inflamation and in a great deal > of pain with the RA. > I would appreciate any > suggestions anyone has at this > point. I have been reading post here but don't find much on Ocular > cea. Anyone have any other Places to look? you can contact me at > Fuzzyfeat@a... > Thanks, > Barbara > > ----- End forwarded message ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Barbara, your medical condition is quite complicated, and I don't know how helpful your learning about ocular rosacea will be in sorting this all out; you detailed your conditions well, but it's impossible for any of us to know what's going on with you. You need a competent rheumatologist to talk with your ophthalmologist and come to a unified plan, if not a diagnosis, or to ask for a referral for a second opinion. Your ophthalmologist is only partly correct: seriologic evidence of antibodies is usually required for a diagnosis of SS, but it does not need to be a positive ANA. There are more specific antibody tests for SS, and those results are much more important. Unlike SS, RA can be diagnosed without positive serology. There is a strong association between RA and SS, but SS is also associated with its own kind of arthritis that is similiar but distinguishable from RA. One thing to consider: ocular rosacea is usually quite responsive to antibiotics, so it's unusual that you haven't seen improvement. However, you are on a low dose and that, not a misdiagnosis, may partly explain your non-responsiveness. Redness and photophobia are common and can come from a number of eye abnormalities, so those symptoms don't help much. From what you said, it doesn't sound like any " wrong treatment " hindered your eyes. There may not be an exact diagnosis at this time; honest disagreements in diagnosis can be a sign of good medical practice, esp in rheumatology, where conditions are sometimes difficult to distinguish and may take years to fully declare themselves. But there can still be a coherent " game plan " even if the diagnosis is in doubt. Good luck, and let us know how it all gets sorted out. Marjorie Marjorie Lazoff, MD > meant for the group. > > ----- Forwarded message from bbaylis2002 ----- > Date: Wed, 05 Jun 2002 03:29:33 -0000 > From: bbaylis2002 > Reply-To: bbaylis2002 > Subject: Ocular cea > To: rosacea-support-owner@y... > > I have had red eyes since October. I was diagnosed with Rheumatoid > Arthritis a few weeks before. At first the Othomologist and my > rheumatiodologist thought I had Sjogrens Syndrome, Dry eyes and > Mouth, After 6 months of treatment for Sjogrens syndrome and no > improvement I was refered to a Othomologist specialist for Dry Eyes > from Boston Ma. He thinks I have Ocular cea. I am on Doxyciclin > 100 mg 1 a day. Thera Tears eye drops, I read that flax seed Oil was > good for dry eyes and have taken that for several months, He now is > putting me on Rexall Fish Oil. I have seen a little improvement in > my eyes but wake up with red eyes in the morning most mornings. Does > anyone know how long it will take for the redness to go away? Or will > it ever go away? Did the wrong treatment hinder my eyes getting > better? I also seem to be sensitive to bright sunlight. Is this > Common? > My Rheumotologist still thinks I have Sjogrens Syndrome. But the Dry > eye specialist says it is Ocular cea because my ANA is negative. > My C-reactive protein went to 210.While I was with the first RA Dr. > But has come down to 10.60 in March. > I don't know what my last test showed. The first Rheumotologist > wasn't treating me very well, or at all really for that matter, and I > was suffering a great deal before I was able to get into the new > Rheumotologist. I had a great deal of inflamation and in a great deal > of pain with the RA. > I would appreciate any > suggestions anyone has at this > point. I have been reading post here but don't find much on Ocular > cea. Anyone have any other Places to look? you can contact me at > Fuzzyfeat@a... > Thanks, > Barbara > > ----- End forwarded message ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Barbara, your medical condition is quite complicated, and I don't know how helpful your learning about ocular rosacea will be in sorting this all out; you detailed your conditions well, but it's impossible for any of us to know what's going on with you. You need a competent rheumatologist to talk with your ophthalmologist and come to a unified plan, if not a diagnosis, or to ask for a referral for a second opinion. Your ophthalmologist is only partly correct: seriologic evidence of antibodies is usually required for a diagnosis of SS, but it does not need to be a positive ANA. There are more specific antibody tests for SS, and those results are much more important. Unlike SS, RA can be diagnosed without positive serology. There is a strong association between RA and SS, but SS is also associated with its own kind of arthritis that is similiar but distinguishable from RA. One thing to consider: ocular rosacea is usually quite responsive to antibiotics, so it's unusual that you haven't seen improvement. However, you are on a low dose and that, not a misdiagnosis, may partly explain your non-responsiveness. Redness and photophobia are common and can come from a number of eye abnormalities, so those symptoms don't help much. From what you said, it doesn't sound like any " wrong treatment " hindered your eyes. There may not be an exact diagnosis at this time; honest disagreements in diagnosis can be a sign of good medical practice, esp in rheumatology, where conditions are sometimes difficult to distinguish and may take years to fully declare themselves. But there can still be a coherent " game plan " even if the diagnosis is in doubt. Good luck, and let us know how it all gets sorted out. Marjorie Marjorie Lazoff, MD > meant for the group. > > ----- Forwarded message from bbaylis2002 ----- > Date: Wed, 05 Jun 2002 03:29:33 -0000 > From: bbaylis2002 > Reply-To: bbaylis2002 > Subject: Ocular cea > To: rosacea-support-owner@y... > > I have had red eyes since October. I was diagnosed with Rheumatoid > Arthritis a few weeks before. At first the Othomologist and my > rheumatiodologist thought I had Sjogrens Syndrome, Dry eyes and > Mouth, After 6 months of treatment for Sjogrens syndrome and no > improvement I was refered to a Othomologist specialist for Dry Eyes > from Boston Ma. He thinks I have Ocular cea. I am on Doxyciclin > 100 mg 1 a day. Thera Tears eye drops, I read that flax seed Oil was > good for dry eyes and have taken that for several months, He now is > putting me on Rexall Fish Oil. I have seen a little improvement in > my eyes but wake up with red eyes in the morning most mornings. Does > anyone know how long it will take for the redness to go away? Or will > it ever go away? Did the wrong treatment hinder my eyes getting > better? I also seem to be sensitive to bright sunlight. Is this > Common? > My Rheumotologist still thinks I have Sjogrens Syndrome. But the Dry > eye specialist says it is Ocular cea because my ANA is negative. > My C-reactive protein went to 210.While I was with the first RA Dr. > But has come down to 10.60 in March. > I don't know what my last test showed. The first Rheumotologist > wasn't treating me very well, or at all really for that matter, and I > was suffering a great deal before I was able to get into the new > Rheumotologist. I had a great deal of inflamation and in a great deal > of pain with the RA. > I would appreciate any > suggestions anyone has at this > point. I have been reading post here but don't find much on Ocular > cea. Anyone have any other Places to look? you can contact me at > Fuzzyfeat@a... > Thanks, > Barbara > > ----- End forwarded message ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 and this is for the group as well. ----- Forwarded message from bunnyygirl dlambert@...> ----- Date: Wed, 05 Jun 2002 20:26:00 -0000 Reply-To: bunnyygirl dlambert@...> Subject: Re: Fwd: Ocular cea To: Pascoe dp@...> Dear : Your rheumatologist should have done a complete set of testing for you that would have shown whether or not you have Sjogrens. I was recently tested by a very good rheumatologist (one of the top in the country) because I had a positive ANA - usually a sign of an auto- immune disease. He did a complete workup and tested me for ALL the possible auto-immune diseases. Thankfully everything came out negative. I was at the time, and still do, suffer from red eyes - obviously not related to having an auto-immune disorder. VOILA - Ocular cea. My opthamologist has just put me on drops called PATANOL. You put one drop in each eye twice a day. To help with the dryness, he recommended REFRESH TEARS which you can put in your eyes as much as needed. Beyond this he suggested placing a towel or cloth with warm (not hot) water over my eyes for 10-15 minutes a day. I also carefully wash my eyes (lashes, lids, etc.) with warm water each AM & PM to keep any bacteria at bay. All of this seems to help a bit. I notice my eyes get more red if I have a bad episode of flushing. I have also been reading that DOXYCYLINE (an oral antibiotic) is supposed to help with ocular rosacea and rosacea overall. I'm seeing my derm. next week adn am going to check this out. HOpe this helps! > meant for the group. > > ----- Forwarded message from bbaylis2002 ----- > Date: Wed, 05 Jun 2002 03:29:33 -0000 > From: bbaylis2002 > Reply-To: bbaylis2002 > Subject: Ocular cea > To: rosacea-support-owner@y... > > I have had red eyes since October. I was diagnosed with Rheumatoid > Arthritis a few weeks before. At first the Othomologist and my > rheumatiodologist thought I had Sjogrens Syndrome, Dry eyes and > Mouth, After 6 months of treatment for Sjogrens syndrome and no > improvement I was refered to a Othomologist specialist for Dry Eyes > from Boston Ma. He thinks I have Ocular cea. I am on Doxyciclin > 100 mg 1 a day. Thera Tears eye drops, I read that flax seed Oil was > good for dry eyes and have taken that for several months, He now is > putting me on Rexall Fish Oil. I have seen a little improvement in > my eyes but wake up with red eyes in the morning most mornings. Does > anyone know how long it will take for the redness to go away? Or will > it ever go away? Did the wrong treatment hinder my eyes getting > better? I also seem to be sensitive to bright sunlight. Is this > Common? > My Rheumotologist still thinks I have Sjogrens Syndrome. But the Dry > eye specialist says it is Ocular cea because my ANA is negative. > My C-reactive protein went to 210.While I was with the first RA Dr. > But has come down to 10.60 in March. > I don't know what my last test showed. The first Rheumotologist > wasn't treating me very well, or at all really for that matter, and I > was suffering a great deal before I was able to get into the new > Rheumotologist. I had a great deal of inflamation and in a great deal > of pain with the RA. > I would appreciate any > suggestions anyone has at this > point. I have been reading post here but don't find much on Ocular > cea. Anyone have any other Places to look? you can contact me at > Fuzzyfeat@a... > Thanks, > Barbara > > ----- End forwarded message ----- ----- End forwarded message ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 and this is for the group as well. ----- Forwarded message from bunnyygirl dlambert@...> ----- Date: Wed, 05 Jun 2002 20:26:00 -0000 Reply-To: bunnyygirl dlambert@...> Subject: Re: Fwd: Ocular cea To: Pascoe dp@...> Dear : Your rheumatologist should have done a complete set of testing for you that would have shown whether or not you have Sjogrens. I was recently tested by a very good rheumatologist (one of the top in the country) because I had a positive ANA - usually a sign of an auto- immune disease. He did a complete workup and tested me for ALL the possible auto-immune diseases. Thankfully everything came out negative. I was at the time, and still do, suffer from red eyes - obviously not related to having an auto-immune disorder. VOILA - Ocular cea. My opthamologist has just put me on drops called PATANOL. You put one drop in each eye twice a day. To help with the dryness, he recommended REFRESH TEARS which you can put in your eyes as much as needed. Beyond this he suggested placing a towel or cloth with warm (not hot) water over my eyes for 10-15 minutes a day. I also carefully wash my eyes (lashes, lids, etc.) with warm water each AM & PM to keep any bacteria at bay. All of this seems to help a bit. I notice my eyes get more red if I have a bad episode of flushing. I have also been reading that DOXYCYLINE (an oral antibiotic) is supposed to help with ocular rosacea and rosacea overall. I'm seeing my derm. next week adn am going to check this out. HOpe this helps! > meant for the group. > > ----- Forwarded message from bbaylis2002 ----- > Date: Wed, 05 Jun 2002 03:29:33 -0000 > From: bbaylis2002 > Reply-To: bbaylis2002 > Subject: Ocular cea > To: rosacea-support-owner@y... > > I have had red eyes since October. I was diagnosed with Rheumatoid > Arthritis a few weeks before. At first the Othomologist and my > rheumatiodologist thought I had Sjogrens Syndrome, Dry eyes and > Mouth, After 6 months of treatment for Sjogrens syndrome and no > improvement I was refered to a Othomologist specialist for Dry Eyes > from Boston Ma. He thinks I have Ocular cea. I am on Doxyciclin > 100 mg 1 a day. Thera Tears eye drops, I read that flax seed Oil was > good for dry eyes and have taken that for several months, He now is > putting me on Rexall Fish Oil. I have seen a little improvement in > my eyes but wake up with red eyes in the morning most mornings. Does > anyone know how long it will take for the redness to go away? Or will > it ever go away? Did the wrong treatment hinder my eyes getting > better? I also seem to be sensitive to bright sunlight. Is this > Common? > My Rheumotologist still thinks I have Sjogrens Syndrome. But the Dry > eye specialist says it is Ocular cea because my ANA is negative. > My C-reactive protein went to 210.While I was with the first RA Dr. > But has come down to 10.60 in March. > I don't know what my last test showed. The first Rheumotologist > wasn't treating me very well, or at all really for that matter, and I > was suffering a great deal before I was able to get into the new > Rheumotologist. I had a great deal of inflamation and in a great deal > of pain with the RA. > I would appreciate any > suggestions anyone has at this > point. I have been reading post here but don't find much on Ocular > cea. Anyone have any other Places to look? you can contact me at > Fuzzyfeat@a... > Thanks, > Barbara > > ----- End forwarded message ----- ----- End forwarded message ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 and this is for the group as well. ----- Forwarded message from bunnyygirl dlambert@...> ----- Date: Wed, 05 Jun 2002 20:26:00 -0000 Reply-To: bunnyygirl dlambert@...> Subject: Re: Fwd: Ocular cea To: Pascoe dp@...> Dear : Your rheumatologist should have done a complete set of testing for you that would have shown whether or not you have Sjogrens. I was recently tested by a very good rheumatologist (one of the top in the country) because I had a positive ANA - usually a sign of an auto- immune disease. He did a complete workup and tested me for ALL the possible auto-immune diseases. Thankfully everything came out negative. I was at the time, and still do, suffer from red eyes - obviously not related to having an auto-immune disorder. VOILA - Ocular cea. My opthamologist has just put me on drops called PATANOL. You put one drop in each eye twice a day. To help with the dryness, he recommended REFRESH TEARS which you can put in your eyes as much as needed. Beyond this he suggested placing a towel or cloth with warm (not hot) water over my eyes for 10-15 minutes a day. I also carefully wash my eyes (lashes, lids, etc.) with warm water each AM & PM to keep any bacteria at bay. All of this seems to help a bit. I notice my eyes get more red if I have a bad episode of flushing. I have also been reading that DOXYCYLINE (an oral antibiotic) is supposed to help with ocular rosacea and rosacea overall. I'm seeing my derm. next week adn am going to check this out. HOpe this helps! > meant for the group. > > ----- Forwarded message from bbaylis2002 ----- > Date: Wed, 05 Jun 2002 03:29:33 -0000 > From: bbaylis2002 > Reply-To: bbaylis2002 > Subject: Ocular cea > To: rosacea-support-owner@y... > > I have had red eyes since October. I was diagnosed with Rheumatoid > Arthritis a few weeks before. At first the Othomologist and my > rheumatiodologist thought I had Sjogrens Syndrome, Dry eyes and > Mouth, After 6 months of treatment for Sjogrens syndrome and no > improvement I was refered to a Othomologist specialist for Dry Eyes > from Boston Ma. He thinks I have Ocular cea. I am on Doxyciclin > 100 mg 1 a day. Thera Tears eye drops, I read that flax seed Oil was > good for dry eyes and have taken that for several months, He now is > putting me on Rexall Fish Oil. I have seen a little improvement in > my eyes but wake up with red eyes in the morning most mornings. Does > anyone know how long it will take for the redness to go away? Or will > it ever go away? Did the wrong treatment hinder my eyes getting > better? I also seem to be sensitive to bright sunlight. Is this > Common? > My Rheumotologist still thinks I have Sjogrens Syndrome. But the Dry > eye specialist says it is Ocular cea because my ANA is negative. > My C-reactive protein went to 210.While I was with the first RA Dr. > But has come down to 10.60 in March. > I don't know what my last test showed. The first Rheumotologist > wasn't treating me very well, or at all really for that matter, and I > was suffering a great deal before I was able to get into the new > Rheumotologist. I had a great deal of inflamation and in a great deal > of pain with the RA. > I would appreciate any > suggestions anyone has at this > point. I have been reading post here but don't find much on Ocular > cea. Anyone have any other Places to look? you can contact me at > Fuzzyfeat@a... > Thanks, > Barbara > > ----- End forwarded message ----- ----- End forwarded message ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 for the group. ----- Forwarded message from trackgalcal trackgal1@...> ----- Date: Wed, 05 Jun 2002 17:26:55 -0000 Reply-To: trackgalcal trackgal1@...> Subject: Re: Fwd: Ocular cea To: Pascoe dp@...> I'm on more-or-less the same regimen for ocular rosacea as Barbara: 100 mg of Doxycycline once a day, at about the same time of day and at least 2 hours apart from calcium or vitamin supplements. (Started about 12 days ago.) I also use Tobradex ointment on my eyelashes (not IN the eye) at night, and use warm (not hot) compresses over the eyes and lashes 2-3 times a day. The Doxycycline has helped my face enormously -- reduced redness about 90% and eliminated the acne 100%! Great! But the ocular is slower to respond. I wonder if others have had more success with ocular rosacea using a higher dose of Doxy, say 100 mg BID (twice a day)? If so, how long did it take for results to become apparent? Barbara, the Doxy actually makes you more photosensitive: It probably says this in the info from your pharmacy. And be sure to consume Acidophilus, either in capsules and/or by eating plain yogurt with LIVE acidophilus cultures (such as Continental) .. to avoid a yeast infection. I'm not a health food type person and am generally wary of supplements (except as an adjunct to treatment) but this really DOES help. trackgalcal > Date: Wed, 05 Jun 2002 03:29:33 -0000 > From: bbaylis2002 > Reply-To: bbaylis2002 > Subject: Ocular cea > To: rosacea-support-owner@y... > > I have had red eyes since October. I was diagnosed with Rheumatoid > Arthritis a few weeks before. At first the Othomologist and my > rheumatiodologist thought I had Sjogrens Syndrome, Dry eyes and > Mouth, After 6 months of treatment for Sjogrens syndrome and no > improvement I was refered to a Othomologist specialist for Dry Eyes > from Boston Ma. He thinks I have Ocular cea. I am on Doxyciclin > 100 mg 1 a day. Thera Tears eye drops, I read that flax seed Oil was > good for dry eyes and have taken that for several months, He now is > putting me on Rexall Fish Oil. I have seen a little improvement in > my eyes but wake up with red eyes in the morning most mornings. Does > anyone know how long it will take for the redness to go away? Or will > it ever go away? Did the wrong treatment hinder my eyes getting > better? I also seem to be sensitive to bright sunlight. Is this > Common? > My Rheumotologist still thinks I have Sjogrens Syndrome. But the Dry > eye specialist says it is Ocular cea because my ANA is negative. > My C-reactive protein went to 210.While I was with the first RA Dr. > But has come down to 10.60 in March. > I don't know what my last test showed. The first Rheumotologist > wasn't treating me very well, or at all really for that matter, and I > was suffering a great deal before I was able to get into the new > Rheumotologist. I had a great deal of inflamation and in a great deal > of pain with the RA. > I would appreciate any > suggestions anyone has at this > point. I have been reading post here but don't find much on Ocular > cea. Anyone have any other Places to look? you can contact me at > Fuzzyfeat@a... > Thanks, > Barbara > > ----- End forwarded message ----- ----- End forwarded message ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 for the group. ----- Forwarded message from trackgalcal trackgal1@...> ----- Date: Wed, 05 Jun 2002 17:26:55 -0000 Reply-To: trackgalcal trackgal1@...> Subject: Re: Fwd: Ocular cea To: Pascoe dp@...> I'm on more-or-less the same regimen for ocular rosacea as Barbara: 100 mg of Doxycycline once a day, at about the same time of day and at least 2 hours apart from calcium or vitamin supplements. (Started about 12 days ago.) I also use Tobradex ointment on my eyelashes (not IN the eye) at night, and use warm (not hot) compresses over the eyes and lashes 2-3 times a day. The Doxycycline has helped my face enormously -- reduced redness about 90% and eliminated the acne 100%! Great! But the ocular is slower to respond. I wonder if others have had more success with ocular rosacea using a higher dose of Doxy, say 100 mg BID (twice a day)? If so, how long did it take for results to become apparent? Barbara, the Doxy actually makes you more photosensitive: It probably says this in the info from your pharmacy. And be sure to consume Acidophilus, either in capsules and/or by eating plain yogurt with LIVE acidophilus cultures (such as Continental) .. to avoid a yeast infection. I'm not a health food type person and am generally wary of supplements (except as an adjunct to treatment) but this really DOES help. trackgalcal > Date: Wed, 05 Jun 2002 03:29:33 -0000 > From: bbaylis2002 > Reply-To: bbaylis2002 > Subject: Ocular cea > To: rosacea-support-owner@y... > > I have had red eyes since October. I was diagnosed with Rheumatoid > Arthritis a few weeks before. At first the Othomologist and my > rheumatiodologist thought I had Sjogrens Syndrome, Dry eyes and > Mouth, After 6 months of treatment for Sjogrens syndrome and no > improvement I was refered to a Othomologist specialist for Dry Eyes > from Boston Ma. He thinks I have Ocular cea. I am on Doxyciclin > 100 mg 1 a day. Thera Tears eye drops, I read that flax seed Oil was > good for dry eyes and have taken that for several months, He now is > putting me on Rexall Fish Oil. I have seen a little improvement in > my eyes but wake up with red eyes in the morning most mornings. Does > anyone know how long it will take for the redness to go away? Or will > it ever go away? Did the wrong treatment hinder my eyes getting > better? I also seem to be sensitive to bright sunlight. Is this > Common? > My Rheumotologist still thinks I have Sjogrens Syndrome. But the Dry > eye specialist says it is Ocular cea because my ANA is negative. > My C-reactive protein went to 210.While I was with the first RA Dr. > But has come down to 10.60 in March. > I don't know what my last test showed. The first Rheumotologist > wasn't treating me very well, or at all really for that matter, and I > was suffering a great deal before I was able to get into the new > Rheumotologist. I had a great deal of inflamation and in a great deal > of pain with the RA. > I would appreciate any > suggestions anyone has at this > point. I have been reading post here but don't find much on Ocular > cea. Anyone have any other Places to look? you can contact me at > Fuzzyfeat@a... > Thanks, > Barbara > > ----- End forwarded message ----- ----- End forwarded message ----- Quote Link to comment Share on other sites More sharing options...
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